Hopeless and Turned Away by Doctors to Intense Workouts - John's Recovery | CHRONIC FATIGUE SYNDROME

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  • čas přidán 18. 10. 2023
  • 📈Learn how we're helping people recover from CFS, Long Covid, Fibromyalgia, Dysautonomia, and other Nervous System Health Disorders: www.cfsrecovery.co/apply?el=r...
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    BRAIN RETRAINING GUIDE FOR CHRONIC PAIN ⬇️
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    You Are Just One Mindshift Away From Living Life Without Chronic Pain and Fatigue
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    Tags: Cns fatigue, cns burnout, nervous system burnout, nervous system fatigue, cns exhaustion, chronic fatigue, cfs, chronic fatigue syndrome, bedridden, housebound, adrenal fatigue, chronic fatigue syndrome treatment, cfs symptoms, cfs recovery, cfs health, chronic pain, chronic pain syndrome, chronic pain explained, chronic pain meditation, post-viral fatigue syndrome, long covid, covid long hauler
    #cfs #cfsrecovery #cfsme #bedridden #anxiety #somaticsymptoms #somatic #panicdisorder #panicattacks #chronicpain #chronicsymptoms #longcovid #postviralfatigue
    DISCLAIMER: I am not a medical doctor or therapist. I am sharing my own experience and research. My video content is for information and educational purposes only. Please consult with your medical professional.
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Komentáře • 60

  • @cfsrecovery
    @cfsrecovery  Před 8 měsíci +2

    WANT TO SPEED UP RECOVERY? APPLY FOR OUR RECOVERY JUMPSTART PROGRAM ⬇
    www.cfsrecovery.co/apply

    • @Joesaraiva0523
      @Joesaraiva0523 Před 8 měsíci

      Do you have information or a video on weak shaky limbs ? For example, a squat position, or leaning over or just making a simple bicep muscle flex. This symptom is just not going away and as a 32 year old man makes me so weak mentally.

  • @brittney3156
    @brittney3156 Před 6 měsíci +6

    Thank you for being honest and thank you for not censoring! So many people are experiencing this and the medical community should care.

    • @cfsrecovery
      @cfsrecovery  Před 6 měsíci +2

      Absolutely! Honest conversations are vital for understanding and addressing shared experiences. Your voice matters, and the more awareness, the better! 💙

  • @Valentin-sz3wd
    @Valentin-sz3wd Před 8 měsíci +9

    "It's part of getting old !". Really puts the supposed sagacity of our doctors into perspective.

    • @cfsrecovery
      @cfsrecovery  Před 8 měsíci +1

      Indeed, attributing health issues to aging without proper evaluation can be frustrating. It's important to advocate for your own health and seek second opinions if needed. Your well-being matters at every age! 🌟👨‍⚕️

  • @lindseyweber4599
    @lindseyweber4599 Před 8 měsíci +11

    OMG I went to the same long covid clinic at Northwestern and all they did was scare me! So not helpful. They made me worse with the fear. Congratulations on your recovery! I’m glad you found real help.

    • @johnframe1117
      @johnframe1117 Před 8 měsíci +1

      No way! probably saw the same docs I did. Hope you are doing well in your recovery

    • @t2tmedia933
      @t2tmedia933 Před 8 měsíci

      ​@@johnframe1117how about full time job experience

    • @rigoelliot115
      @rigoelliot115 Před 6 měsíci

      Same here. I had one visit with Neurology in May and it was useless. Made me feel more hopeless.

    • @cfsrecovery
      @cfsrecovery  Před 5 měsíci

      Thank you so much! 😊❤️

  • @denisebraisby4251
    @denisebraisby4251 Před 27 dny +1

    This is exactly like my experience with the vaccine and then worsening after covid and im still managing to work but very symptomatic. Great to see he recovered. Gives me hope

  • @helenw8019
    @helenw8019 Před 8 měsíci +9

    Hi John, thanks for talking about your bad experience with the vaccine as well as your long covid. I too was badly affected by the vaccine and it gave me symptoms that are very similar to long covid. Your interview gave me some hope so thank you.

  • @KisutoJP
    @KisutoJP Před měsícem

    Incredible. Beat for beat my exact experience. Luckily I found a naturopathic doctor that's helped me navigate all of this....

    • @cfsrecovery
      @cfsrecovery  Před měsícem +1

      Good for you 😁

    • @KisutoJP
      @KisutoJP Před měsícem

      @@cfsrecovery Thank you! I still need help with the exercise portion of the recovery. I plan on joining the program soon!

  • @tomsmith5936
    @tomsmith5936 Před 8 měsíci +1

    Awesome work buddy, you're doing great, I've had a really similar journey and I'm pretty close along side you in recovery. Thanks Miguel for doing your thing and sharing people's progress. 🤟

    • @cfsrecovery
      @cfsrecovery  Před 8 měsíci +1

      Thank you for the kind words! It's wonderful to hear about your progress too. Let's keep moving forward together! 🙌😊

  • @mariegracebrabandt8028
    @mariegracebrabandt8028 Před 7 měsíci +3

    Wow John thanks for sharing your experience with vaccines and covid. The vaccines made me so so sick and I got covid 3 times any way. I will never take a vacine again. I'm glad you're doing so much better. You give us all hope. 🎉 also covid helped me find Miguel 🎉
    Doctors say some of the stupidest things. Years of this for me.

    • @cfsrecovery
      @cfsrecovery  Před 6 měsíci +1

      It's great that you found a source of support and information that resonates with you! Each person's experience with vaccines and illnesses can vary, and it's important to make decisions based on your unique circumstances.

  • @chellerenee12
    @chellerenee12 Před 3 měsíci

    You guys are such a blessing 😇 thank you so much

    • @cfsrecovery
      @cfsrecovery  Před 3 měsíci

      Wow! We appreciate this amazing feedback 😊❤️

  • @emilycole6453
    @emilycole6453 Před 8 měsíci +3

    ❤Thank you for sharing your story John. & thx for your honesty regarding your experience with the vax too. I’m so happy for you - back to living life with an awesome appreciation for it!❤

    • @cfsrecovery
      @cfsrecovery  Před 8 měsíci

      Thank you 🙌❤️

    • @ezza1236
      @ezza1236 Před 8 měsíci

      Why does the vaccine do this ? How come it can cause long Covid

  • @rigoelliot115
    @rigoelliot115 Před 6 měsíci

    It is crazy to here my exact experience.

    • @cfsrecovery
      @cfsrecovery  Před 6 měsíci

      Yes! May I ask what symptoms you may be struggling with ATM?

  • @sublimestudi000
    @sublimestudi000 Před 8 měsíci +1

    same age, similar set of symptoms, was previously very physically fit. Saw a similar set of specialists in NYC and the long-covid clinics at NYU and Mount Sinai in NYC.
    thanks for sharing your story.
    my rheumatologist told me the moderna vax gave me celiac disease. i got myocarditis from moderna

    • @cfsrecovery
      @cfsrecovery  Před 8 měsíci

      You're very welcome! Remember, everyone's journey is unique. Stay strong! 💪😊

    • @clemensh6214
      @clemensh6214 Před 3 měsíci

      Try Carnivore or the Ketogenic diet for a few weeks

  • @Am-ej3hs
    @Am-ej3hs Před 8 měsíci +2

    Thank you for all the information!! Brings hope hearing these wonderful stories!!
    would like to know if super high sensitivity in the ears is also because of the nerves system? I feel the constant electric feeling in body and head and ears. My ears tremble a lot by specific noise. I feel them trembling and popping.
    Hopefully you know something about it

    • @johnframe1117
      @johnframe1117 Před 8 měsíci +2

      It can be - I've heard many people talk about tinnitus. The nervous system can cause so many symptoms and they can rotate. But once you understand its just your nervous system needing to be regulated, establishing the sense of safety will help your pain learn to stop sending the symptoms (with consistency over time). Miguel's program really helped me a ton with the support and guidance, and I'd say the #1 book to read is Alan Gordon's book "The Way Out" for even more material. And Raelan Agle. From everything I've learned over the last 2.5 years, chronic pain and CFS (and long covid, chronic lyme) are all the same, they are driven by the brain stuck in fight or flight!

  • @user-nc7zy3er2z
    @user-nc7zy3er2z Před 8 měsíci +4

    Great video John. Happy to see youre doing well.
    I was a triathlon athlete before i got hit with CFS. Slowly recovering. Did you ever have issues with reaching lactic threshold quickly during your journey ?
    Cheers

    • @johnframe1117
      @johnframe1117 Před 8 měsíci

      I'm really more into weightlifting than endurance stuff so I'm not sure. I did notice that when I was very deconditioned, i felt the lactic threshold way too soon even after climbing stairs out of the subway when taking public transit. But that is no longer an issue as I've been working out again.

  • @majahorvat7294
    @majahorvat7294 Před 8 měsíci +1

    Thanks for this interview. It is good to know that also people diagnosed with Lyme do get better : )

    • @johnframe1117
      @johnframe1117 Před 8 měsíci +2

      It's all the same - just a disregulated nervous system!

    • @majahorvat7294
      @majahorvat7294 Před 8 měsíci

      I guess that is a good thing.

    • @majahorvat7294
      @majahorvat7294 Před 8 měsíci

      Which co-infections were you diagnosed with?

    • @johnframe1117
      @johnframe1117 Před 8 měsíci

      @@majahorvat7294 you mean like what strain of lyme? I honestly can't remember. I'm not a doctor, but I can tell you it caught my attention after seeing how many people go down the same path of thinking they found the answer as Lyme, getting put on antibiotics for months, and it not working. I'm not saying it won't work for you, but when I heard it from Raelan Agle I came to accept that this whole long covid thing is really a mind body syndrome.

    • @cfsrecovery
      @cfsrecovery  Před 8 měsíci

      Absolutely! 😊🙌

  • @theantiqueactionfigure
    @theantiqueactionfigure Před 4 měsíci

    My biggest heartbreak with cfs has been my loss of ability to exercise. Went from a fifty year old man who could do 30 one arm pushups to bedridden overnight.

    • @cfsrecovery
      @cfsrecovery  Před 3 měsíci

      How long have you been experiencing this?

  • @GarTiernanMusicOfficial
    @GarTiernanMusicOfficial Před 8 měsíci +3

    Any idea how that guy is doing now ? Enjoying these videos and story’s

    • @johnframe1117
      @johnframe1117 Před 8 měsíci +4

      I'm doing well - just keeping at it with consistency and over time your capacity increases and symptoms go away with your response. it's all about your response to the symptoms that will take the fear away and get your amygdala to calm the f#$@ down. I stopped taking zyrtec entirely which made things a little more intense, but that's the last piece to my recovery and know that i'll get to 100% in a matter of months.

    • @TheOtherJCBroadcast
      @TheOtherJCBroadcast Před 8 měsíci +4

      It’s nice to have a testimony from a man who likes to do man stuff and is now able to get back to it. This condition makes one feel like a real p$$y , very emasculating. So when you see this it’s encouraging.

  • @goldmund5593
    @goldmund5593 Před 8 měsíci +1

    Hey John, thank you for that testimonial! How is your cardio capacity? Can you do things like hiking or running again?

    • @johnframe1117
      @johnframe1117 Před 8 měsíci +4

      Of course! It's a little cringey watching myself LOL but was in an adjustment period during this so need to give myself some grace. I'm not doing any cardio yet because I love weight lifting, but I know it will be in the weekly routine soon. I'm currently lifting 3x a week and am off the zyrtec entirely. it takes work but once you see the progress happen you believe you will get back to 100% over time

    • @TheOtherJCBroadcast
      @TheOtherJCBroadcast Před 8 měsíci +3

      Nothing to cringe about here man, it was a really good interview and you represented your experience well from the viewer side. Well spoken.

  • @AristotelisMakris
    @AristotelisMakris Před 6 měsíci

    My biggest thing ist that when I am in a ap I get these really dark thoughts. I can Handel the symptoms in these periods but the dark thought are challenging.
    Any advise on that ?

    • @cfsrecovery
      @cfsrecovery  Před 6 měsíci

      You're exactly right, those are adjustment periods. It sounds like you already have an idea that they're adjustment periods. The symptom flare-ups are completely normal and expected, so there's no reason to get frustrated if it's all part of the recalibration process of the nervous system. Just like how your muscles would get sore after a workout, you will feel symptoms during an adjustment period after increasing the stimulus placed on the body.

  • @Ericstroman100
    @Ericstroman100 Před 8 měsíci +2

    Its really funny how people can Look so healthy but still be sick

  • @ezza1236
    @ezza1236 Před 8 měsíci

    Hey Miquel long time
    I’m finding the Sertraline I’m taking is helping me so much in my rocevory. Thank you for sharing you’re honesty about taking it too, it’s helping me feel less pressure

  • @mariusskrupskis2042
    @mariusskrupskis2042 Před 8 měsíci +1

    Yes, may doctor told me the same "well you are not that young anymore" im 33, the funniest part that the next week i told the same to her as a half joke and she denied it " no. you are still young" :DDD Even tho she admitted that she does not know what to do with me, i would love that doctors would admit this much more, and the help to search for solutions. Now most of doctors just pretend to know what they are doing.. :\