Thank you for this helpful information! We are circulating this information now also within our Dutch/the Netherlands sarcoïdose community. Regards, Roy
This disease should be studied more and more hospitals should be treating this disease because my top hospital in my area Pennsylvania geisinger didn't even know how to treat it .. and they misdiagnosed her for years so when they caught it it was too late it already attacked her body too much now she's gone rest in peace mom ... Born 1957 - passed on 4-6-2020
Sorry to hear you lost your Mom. It is difficult to diagniose cardiac sarcoidodis, and to save the bother and expense of a heart biopsy to prove sarcoidosis, some places ( like my area) simply ignore the possibility that sarcoidosis may be the cause of arrhythmia of the heart and proceed as if it wasn't there and couldn't be treated with ant--inflammatory drugs like prednisone.
@@ldragon8er Cardiac MRI should be done on every Sarcoidosis patient within the first year to rule out Cardiac involvement. I'm talking about those patients who are very sick and put on steroids and immunosuppressant medications right away. You have to look further than pulmonary involvement.
My uncle was the same, they initially thought he had cancer but it turned out to be the less fatal strain. He told Dad years ago his sleep apnea wasn't even looked at until he checked into the hospital in 1994 wheezing.
Great tips! Thanks. My pulmonary-involved 'Sarc' prescription for methotrexate (15mg/wk) lapsed months ago. I had been procrastinating a checkup w/ my specialist at UW over the winter. Developments since then have not inspired me to visit a pulmonologist in Seattle. But all signs indicate I'm doing well as is for now.👍
Dr Sporn, what do you think about the apparent correlation between BCG vaccination patterns and severity of covid disease in various countries? Could granulomatous diseases , in fact, protect against covid by inducing long term tolerance or damping to inflammatory events?
I had a bronchoscopy but it was negative for sarcoidosis and covid the diagnosis was Pneumonia inflammation in both lungs but I'm being treated like I have sarcoidosis because my body seems to be responding well to the predison 10 mg I had a bronchoscopy but it was negative for sarcoidosis and covid the diagnosis was Pneumonia inflammation in both lungs but I'm being treated like I have sarcoidosis because my body seems to be responding well to the precision 10 mg in the AM, mycophenolate 500 mg 2 in the AM & 2 evening, and DAPSONE 100 MG in the AM
Could exposure to COVID19 cause sarcoidosis? I was exposed to COVID19 confirmed patient 3/13/2020, was fatigued, allergies, mild cold symptoms since then, started having shortness of breath 4/1/2020, diagnosed sarcoidosis 4/15/2020. Swab was negative. Could I potentially have had asymptotic COVID19, triggering sarcoidosis? Could I potentially have antibodies showing the virus caused this condition? Would this be worth looking into?
I have got stage 2 sarcoidosis in my lungs. I asked my physician if I'm at risk from Covid-19. He says it's a light risk and I should take a flu vaccine and I will be ok. Is this a standard recommendation?
Not at all.... lol they try to get everyone to take that... never have in my life... google complications of the flu vaccination... also look into the Canadian study that proves it doubles your chances of getting the flu the following year because it weakens your immune system towards it
I saw this thing that making a mask out of a vacuum bag filters like 86 percent of microbes from getting in. Maybe such a mask would be better than a cloth mask when going out .. I'm taking Zinc citrate at 30 mg a day because I know zinc helps slow virus replication
Sorry to hear that. I came across this looking for a foundation to donate to my moms fight she just lost to this disease hang in there and take care she died yesterday April 6th 2020
@@jasonmccarrick6783 God Bless . I KNOW SHE WAS STRONG AND A FIGHTER. Also, know you were with her from theG start. God's Peace to you and know she is your perfect Angel with you and yours until eternity.
@@jasonmccarrick6783 oh my.🙏I am truly sorry to hear this. My mother was diagnosed 15 yrs ago. She had to completely change her diet & lifestyle. It's scary for me bc every diagnosis is so uniquely diffrent. God Bless
sarcoidosis ki problem meri aunty koh thi boh buhat parshan ho chuke the, buhat doctors se dwai lekar , fir uno ne planet ayurveda se medicine li or baha se 15 din me hi fark pad gya . toh ek war ap sbhi bhi planet ayurveda ki medicine laker dekho , or jaldi se jaldi thik ho jayo .
Thank you for this helpful information!
We are circulating this information now also within our Dutch/the Netherlands sarcoïdose community.
Regards,
Roy
This disease should be studied more and more hospitals should be treating this disease because my top hospital in my area Pennsylvania geisinger didn't even know how to treat it .. and they misdiagnosed her for years so when they caught it it was too late it already attacked her body too much now she's gone rest in peace mom ... Born 1957 - passed on 4-6-2020
I am so sorry to read that. My condolences.
Sorry to hear you lost your Mom. It is difficult to diagniose cardiac sarcoidodis, and to save the bother and expense of a heart biopsy to prove sarcoidosis, some places ( like my area) simply ignore the possibility that sarcoidosis may be the cause of arrhythmia of the heart and proceed as if it wasn't there and couldn't be treated with ant--inflammatory drugs like prednisone.
I agree with you
So much uncertainty about how to treat sarcoidosis. We deserve better
@@ldragon8er
Cardiac MRI should be done on every Sarcoidosis patient within the first year to rule out Cardiac involvement. I'm talking about those patients who are very sick and put on steroids and immunosuppressant medications right away.
You have to look further than pulmonary involvement.
My uncle was the same, they initially thought he had cancer but it turned out to be the less fatal strain. He told Dad years ago his sleep apnea wasn't even looked at until he checked into the hospital in 1994 wheezing.
Great tips! Thanks.
My pulmonary-involved 'Sarc' prescription for methotrexate (15mg/wk) lapsed months ago. I had been procrastinating a checkup w/ my specialist at UW over the winter. Developments since then have not inspired me to visit a pulmonologist in Seattle.
But all signs indicate I'm doing well as is for now.👍
Thank you....
i cant get off my pred or cellcept because my sarcoid is so aggressive im scard
Praying for you, right now. Don't be afraid. I have sarcoidosis as well.
Hang in there .
Same
I have this too😔
Me2
Dr. Sporn is the BEST
I have sarcoidosis since 2019
I just got Covid-19 one week ago I suffer from a cough and there is a little shortness of breath.
I didn’t take any medication only Tylenol and natural warm drinks and soup.
Dr Sporn, what do you think about the apparent correlation between BCG vaccination patterns and severity of covid disease in various countries? Could granulomatous diseases , in fact, protect against covid by inducing long term tolerance or damping to inflammatory events?
Your the best thank you for everything
I had a bronchoscopy but it was negative for sarcoidosis and covid the diagnosis was Pneumonia inflammation in both lungs but I'm being treated like I have sarcoidosis because my body seems to be responding well to the predison 10 mg I had a bronchoscopy but it was negative for sarcoidosis and covid the diagnosis was Pneumonia inflammation in both lungs but I'm being treated like I have sarcoidosis because my body seems to be responding well to the precision 10 mg in the AM, mycophenolate 500 mg 2 in the AM & 2 evening, and DAPSONE 100 MG in the AM
Thank you, SIR.
Thank You.
Could exposure to COVID19 cause sarcoidosis? I was exposed to COVID19 confirmed patient 3/13/2020, was fatigued, allergies, mild cold symptoms since then, started having shortness of breath 4/1/2020, diagnosed sarcoidosis 4/15/2020. Swab was negative. Could I potentially have had asymptotic COVID19, triggering sarcoidosis? Could I potentially have antibodies showing the virus caused this condition? Would this be worth looking into?
Good question.. I’m in the same boat.. was diagnosed with Sarcoidosis in November before Covid was something to look for.. hope somebody answers
I have got stage 2 sarcoidosis in my lungs. I asked my physician if I'm at risk from Covid-19. He says it's a light risk and I should take a flu vaccine and I will be ok. Is this a standard recommendation?
Not at all.... lol they try to get everyone to take that... never have in my life... google complications of the flu vaccination... also look into the Canadian study that proves it doubles your chances of getting the flu the following year because it weakens your immune system towards it
I know if I get coronavirus I'm a Deadman. Sarcoidosis almost killed me imagine what the combination will do 😟
I saw this thing that making a mask out of a vacuum bag filters like 86 percent of microbes from getting in. Maybe such a mask would be better than a cloth mask when going out
..
I'm taking Zinc citrate at 30 mg a day because I know zinc helps slow virus replication
Sorry to hear that. I came across this looking for a foundation to donate to my moms fight she just lost to this disease hang in there and take care she died yesterday April 6th 2020
@@jasonmccarrick6783 God Bless . I KNOW SHE WAS STRONG AND A FIGHTER. Also, know you were with her from theG start. God's Peace to you and know she is your perfect Angel with you and yours until eternity.
Front row seat to the end of the world Be careful! God bless.
@@jasonmccarrick6783 oh my.🙏I am truly sorry to hear this. My mother was diagnosed 15 yrs ago. She had to completely change her diet & lifestyle. It's scary for me bc every diagnosis is so uniquely diffrent. God Bless
it came from a lab not bats it was a terrorist attack
sarcoidosis ki problem meri aunty koh thi boh buhat parshan ho chuke the, buhat doctors se dwai lekar ,
fir uno ne planet ayurveda se medicine li or baha se 15 din me hi fark pad gya . toh ek war ap sbhi bhi planet
ayurveda ki medicine laker dekho , or jaldi se jaldi thik ho jayo .
Do you work down at the Colorado Jewish hospital i refused to visit? Give my mother her owed due.
He's in Chicago