The Challenges Of Being Autistic (ASD-1)
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- Äas pĹidĂĄn 14. 05. 2024
- Is living as an autistic adult difficult? What challenges face ASD-1 individuals? Let's take an honest look into life as an autistic adult!
In this video, we cover: Executive dysfunction, travel, transitions, emotions, alexithymia, self-advocacy, sensory difficulties, interoception, meltdowns/shutdowns, friendships and romantic relationships.
DISCLAIMER: I'm not a doctor or registered psychologist, please consult with a licensed medical professional before taking my advice.
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My autism doesn't effect me at all. It's the toxic impact that the neurotypical world has on me. I've had 65 years of a life blighted by a neurotypical society that doesn't even acknowledge my existence.
I hear you. Less than two years ago I died briefly because of a horrific breakdown due only to what you're talking about and it still didn't stop them for a minute. I do hope very much things are at least ok for you now
I struggle with neurotypicals
I do as well itâs very difficult to connect with most Neurotypicalâs. Because some of them donât even seem to understand or want to understand us. Some NTâs seemingly just wanna use us as a prop to make them selfâs feel better so they infantilize us.
Talking to kids and adults about autism should be mandatory like talking about racism in school. It helps people to recognize bias and prevent it. Itâs important. But autistic people are left out. Itâs somehow okay to discriminate against us. It just makes no sense with the statistics that people wouldnât educate neurotypicals and make it mandatory
I find self advocacy very exhausting.
but we *have* to fight hard for every last inch we have because neurotypical society does wonders at making us feel like we're the issue not them making us feel like the issue
I struggle in this world
My partner used to take a medication that was sedating. It was really hard for them to wake up before noon. They had no choice but to sleep 12 hours a night, and theyâd still feel very very groggy for several hours more. If I wasnât home with her, the only way they could wake up enough to get their day started was if they took our dog on a walk. It got very difficult for them to tolerate after a while.
I was given sedoquil once, I only took it a few times and stopped, I never took out another prescription or finish the bottle.
Screw that stuff man. đ
Itâs smelly đĽ đŠđĽ
Every next day make me feel way too aware how many people still dont get autism nowadays and this generete so many issues on daily basis đ¤
The reason why so many people still don't get autism is because autism is a spectrum where the severity of all the different autism symptoms varies from person to person which can seem very confusing to people outside the autism community.
@@au9parsec I know. so many âhigh functioningâ autistic people have bordeline diagnosis instead of autism so its still long journey ahead. Im afraid of thinking how many with bordeline diagnosis have in fact autism + adhdâŚ
â@@au9parsecthe reason why people don't understand is because they don't want to. Unfortunately that is the case for too many of us.
I've been watching you for a while and I think this might have been your most balanced presentation, between the plain information about neurodivergence, the personal stories and anecdotes, humor and balanced critiques. Just marvelous! I'm I'm starting to make enough money now so I'll be one of your paid supporters soon.
I meant to say I sobered up after a lifetime of more of less (mostly MORE) heavy drinking. At the end of my drinking career, I was drinking 20+ ounces of brandy STRAIGHT, every night. ( I very nearly died of liver failure). Now, I'm meeting myself as I am now, figuring out who I am. It's a lot to unpack!
This was so funny and informative. You make it easier to understand and you also make me laugh!
I like uour channel i highly relate to this one. Gosh even when i tellnpeople about my deficiencies they act as if i can just turn it off any time
2:21- âWhy am I introducing myself in that way? (as a mentally ill autistic person)â. đ¤Łđ¤Łđ¤Ł Thank you, Thomas, was just vibing with your mentally ill autistic self chugging my SAM-e, omega-3âs, and ADHD medication over here and that made me bust out laughing, thank you! Iâd also challenge you to find a non-mentally-ill autistic person. Seems they exist, but are the exception. đ¤
My daughter fits that profile diagnosed ADHD, suspected autism as well. She doesn't have any mental illness, she doesn't even have anxiety but some of her ADHD symptoms do present that way though internally they don't sound like it from her description and not diagnosed with it.
Standing up for myself is a big one⌠especially in the work place to neurotypical coworkers. OĂâŚ.. đ˘ did not turn out well.
I hate waking up and I can't sleep unless it's dark and quiet. Unless I'm taking a nap then I can sleep just about anywhere.. not sure why. When I wake up even getting out of bed is hard
Thank you Thomas - that really hit home on all points. Iâm currently finding increasingly impossible to continue with work and deadlines as if neurotypical. Iâve made a few starts on self-advocacy in the last few days (at 50, better late than never!) but itâs such a struggle when youâre completely overwhelmed to add another set of complicated processes and potentially difficult discussions to the mix. My neurodivergent traits bring me so much joy in way I interact with the world, senses and others. But I need to really communicate better the many challenges it brings too. Really appreciate your channel and sincerity.
Excellent explanation of alexithymia, difficult for a neurotypical like me to imagine. Thanks for the video.
One of the other challenges of being autistic is that since autism is a spectrum where the severities of the different autism symptoms varies from person to person hardly anyone outside the autism community knows what autism is unlike with most other mental disorders like social anxiety disorder or ADHD or OCD or schizophrenia or tourettes syndrome where just about everyone knows exactly what those disorders are.
No, they don't know exactly what schizophrenia or Tourette's syndrome is. Or OCD. They think OCD is being neat and tidy for example. They say ridiculous things on the Schizophrenia channel I follow.
I think a lot of the reason typicals loathe us so completely is that they cant deal with the fact that its exhausting and often traumatic just dealing with them.
I am level 2 but executive functioning is what I struggle with the most as well. I don't have a set schedule because my transitions are so bad. I have a loose schedule.
Dude, you created a phenomenal documentary..........What executive dysfunction?
THUMBNAIL SPOT ON
I really want this video to go viral in the auti verse itâs such a good description of what asd 1 is like
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Excellent in all areas (experience, information, editing). It makes me feel like I am not alone. BTW, I used 1/4 dose Lexepro and had to stop due to neuropathy of all digits (and I do mean all), and I was too sleepy.
I run my life completely using a diary. Itâs the only way for me. I document everything, I enjoy doing that anyway. My biggest issues would be overstimulation from being around people. Itâs incredibly hard for me to regulate, so I love being alone.I find I can only be around neurotypicals in small doses so I need to sleep a lot( though Iâm often awake in the middle of the night. I do constantly drink water or whatever throughout the day, sometimes when I have forgotten, I start to feel sick, so that will remind me. Same with food.
To sleep at night you need calcium, magnesium, potassium (deep sleep), iron (you need copper to absorb the iron)... B1 can help too especially with stress. Avoid foods you react to.
I can tell my brain before I go to sleep to wake up at 6 am or 7 am and I wake up at those times (although I often wake up early and several times through the night as well).. I don't know how I do this. But I have autism too. My mother (who also had autism) was very good at guessing the time without looking at a clock.
I was doing ketovore for years and now I am doing carnivore diet. The carnivore diet has improved my sleep. Diet has a big effect. What are you eating? Do you eat highly processed foods?? I mainly eat grass fed beef + lamb, liver, pasture eggs and a bit of sheep cheese (no cow cheese). Dr Berry tells how to do carnivore. The fruits / veggies has too much pesticides on it.
On 0 drugs from doctors. I don't drink or smoke. I go for long walks.
Love the information you present and how you present it â¤
Late response, but I struggle with pretty much the same issues. So interesting! Thanks for sharing.
I realized with this, that all time when I was a kid everyone told me I had anger issues but about 3 months I asked my ma if I was autistic cause I had a autistic friend point out autistic traits about me to me an my ma was like yes but it's low something or that I'm more active or some shit, I've known since I was a kid I had ADHD everyone was telling I was but I never new I was autistic, an those so called anger issues weren't that they were meltdowns.
Topic Suggestion? Why some people who are obviously autistic because their child is won't need a formal or self-diagnoses. And ones who may not have family members.
Fumble a lot and catch myself. Definitely. Clumsy ninja.
This is unrelated to the video, but I was always told that my grandfather from my father's side of my family was of Scottish descent, but after I had gotten an opportunity to research my father's family history I discovered that my grandfather didn't just have ancestors from Scotland but also had ancestors from northern Ireland, Sweden, the Netherlands, and including England from areas like Devon in southern England and Yorkshire in northern England.
I had a similar experience researching my UK side of the family. Lots of Scottish members and further back a lot of them have a Scandinavian background. The English ones have a Dutch and German background. But I have genuinely Anglo and Scottish members too
Loooool 0:47
I am not on a sedative, but on a "sleepy making/calming" anti depressant (in addition to my "main" antidepressant). And I have, not sure if due to medication, often the problem, if I am under a lot of stress, that I describe as: I cannot wake up. I can get up, but my brain still feels like it is somewhat asleep.. like the first few seconds, for some minutes, after waking up, when one is still somewhat disoriented and cannot access one's brain at full capacity. Just that it stays with me for hours, and rarely also for half or even all of the day, until I go back to sleep and "try again" after. .-.
Trazodone used to do that to me then I got used to it then it quit working. It was almost like once you stop feeling like you were hungover the next day you had to up the dose for it to work anymore and then I maxed out.
Really glad I'm not currently on meds except for those times when I can't sleep or I'm overly upset. I really wish there was some magic pillđđđ
Trazodone was great for 9 or 10 years but it slowly stopped working towards the end.
Have you tried LSD? There is a book "Autism on Acid" and I find it extremely helpfull too (microdosing)
Iâm not sure how I would go about getting LSD, but Iâm interested in the health impacts
@@stephenieolson8535 yeah the illegal aspect is really sad and in my eyes a crime in itself! Luckily I live in Germany, here we have a legal derivate (1T-LSD)
â@@stephenieolson8535 for me the impacts (of a microdose!) are HUGE, depressions GONE + NO masking + social skills improved very much! Only downside is that sometimes I can't stop grinning like a monkey haha
what dosage do you take? also on Mirtazapin, 15mg, am female 160cm 100kg... but it does almost nothing also need Pipamperon 40mg to sleep... but have not (yet?) been diagnosed with authism... and my lifestyle is kind of unhealthy.. usually on speed 3 days, almost no eating and then sleeping 3 days just get up all 5-8h to eat and pee... and i´m on escitalopram 15mg, without i would rot inside a awful depression right now....
oh and i vorgot my lifesaving weed....
30mg citalopram, 30mg mirtazepine. Iâve heard a lot of auties medicate with the herb, interesting correlation
for me its just the key to stay numbed enough to not be overwhelmed by myself even if im alone
and smoking is a good excuse to leave situations for 10 min or so kind of stupid that smoking is more likely accepted than an honest Explanation about my mind and feelings get always overwhelmed @@ThomasHenley
Dude I like your challenge.. 'mirtazapine' I thinkni tried that.. the name seems right and the images online of the oval 30 seems correct... hahahahahaha oh that was definitely a good rest.. problem.. I slept so muchbi was only awake 3 or 5 hours a day. Felt so rested when I would get up.. eat .. think about my special interests.. perform my ritual/chores.. and then kore sleeping
Does anyone else struggle with completing work tasks like timesheets I spent all day yesterday completing a month worth of timesheet. I see it as a different task to my other task I have to do at work and just struggle to do it everyday along with other tasks. People say that autistics are good with routine & organization, I feel my executive disfunction is so bad I canât stay organized in any aspect of my life. I have an entire system just to fight the disorganization in my closet(I roll my clothes and stack them in a way that I can always see everything instead of having them folded and stacked)
A lot of autistics have ADHD too. The ADHD side can win sometimes.
Executive Function has really screwed me up this week. Do I know how to submit my work hours? Yes, absolutely. Can I do it before it is due? No, almost never. It takes a lot of spoons and itâs boring and I cannot distract myself with music or Iâll do it wrong. So I am consistently late. I should have been paid Friday, I budgeted my life expecting to be paid on Friday. Itâs Wednesday, and I still havenât been paid because I submitted my hours so late. Just sitting here, holding on to my last $20 in case of an emergencyâŚâŚ..
I feel like neurotypicals donât give neurodivergents enough* credit :/
Are you really going to cry into a pillow?
I find the older I get, the stronger the autism is evident. It's almost the sabotage to "normal" living. I no longer can wear the neurotypical act. Just my true expression is all I can handle now. I don't think of it as nice or rude or harsh or sweet, I'm just ...It's all honest! The rough and the reserved of my clumsy truth. đś đŠľ