Elaine Biles on caring for her husband with FTD

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  • čas přidán 23. 04. 2017
  • Our journey so far, (7 plus Years and counting )
    Elaine Biles shares how life has changed for her and her husband since his diagnosis of fronto-temporal dementia (FTD), her wait for diagnosis and how they are facing their challenges.
    Filmed by Educational Media Services, University of Oxford at the Alzheimer's Research UK Oxford Network Dementia Information Day 2017 at the John Radcliffe Hospital.
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Komentáře • 17

  • @carolpoole7277
    @carolpoole7277 Před 4 lety +13

    What a sweet lady and courageous lady. My husband has FTD, your story is my story. I am a woman of Faith and my glass is always 1/2 full, but I am struggling . My husband is not as far along as Steve, but close. Some days are better than others but they are coming fewer and far between. I so admire you sweet lady, prayers for strength 🙏❤️🙏

    • @dogdonut3
      @dogdonut3 Před 3 lety +1

      Prayers and love for you.

  • @gwynethgrove772
    @gwynethgrove772 Před 6 lety +16

    A great record of the decline with FTD. This poor lady needs a break and have better health herself. I hope she continues to get the help she needs.

  • @carersoxfordshire2897
    @carersoxfordshire2897 Před 5 lety +8

    What a wonderful lady I spoke to her today her talks help people understand about FTD and importantly what caring for someone with FTD is like - I take my hat off to her. brilliant

  • @nancyschaefer9748
    @nancyschaefer9748 Před 2 lety +3

    Just starting down this path with my 86 year old husband and learning so much.

  • @weepingwillows21
    @weepingwillows21 Před 5 lety +6

    This poor lady has been through so much. She's breathing like my Gram does when she needs her inhaler, I hope she's taking care of herself

  • @SophieBird07
    @SophieBird07 Před 2 lety +3

    Oh yes. I remember eventually keeping the car keys in my purse under my bed, after many situations, not the least of which when he flew across the country and got married for a week; the police called saying his wife was looking for him! But he could always answer to the day of the week, his age, etc (I’m not sure I could at that point), so no one thought he had a problem.

  • @ronniedianefowler7648
    @ronniedianefowler7648 Před rokem +1

    I understand because we have also been there. God bless you!

  • @michellesammut4309
    @michellesammut4309 Před 4 lety +2

    My mum has FTD my heart goes out to you as your story parallels mine it's so hard it takes alot from you and more

  • @amylaird6181
    @amylaird6181 Před 4 lety +2

    What a beautiful soul you have.

  • @ladylilo6044
    @ladylilo6044 Před 4 lety +2

    Thank you Elaine, by far the best video on FTD...my mum was recently diagnosed with Dementia, we are now going through all tests to determine which type...my mother seems to have a little bit of symptoms, from each type!☹️

  • @aquiem5339
    @aquiem5339 Před 4 lety +1

    Thanks for sharing.

  • @paulwarren796
    @paulwarren796 Před rokem

    I REALLY WANT ELLIE-ELIN JOHANSSON-ALSO .
    SHE IS SUCH A HAPPY LITTLE BEAUTY AT TIMES.....

  • @lindauribe6872
    @lindauribe6872 Před 5 lety +2

    I do not know how you get through this
    . My husband had Lewy Body dementia but because of so many health problems he stopped walking and I had control of money. He passed away in December.

  • @paulwilson2169
    @paulwilson2169 Před 2 lety +1

    Broke.