MY LIFE WITH UC - What Is Ulcerative Colitis?
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- čas přidán 19. 06. 2024
- NEWLY DIAGNOSED WITH IBD?
Effie Siamalekas was just diagnosed with UC. She wants you to know what she didn't so you can understand what's happening inside your body and take action to live your life your way despite having a chronic, invisible illness. It's honest, interesting and compelling. Have a look at this self-produced video.
![4 Common Foods that Make Ulcerative Colitis Worse [AVOID THIS]: Gut Health Expert](/img/n.gif)
Great video. In a flare right now and I forgot how it feels. It has been a long time since I’ve been this bad. For anyone reading, cutting out gluten and dairy are the first two objectives I would plan for. Gluten breaks down the junctions in the small intestine. Most of us are also lactose intolerant, as we lose the enzyme that breaks down lactose after adolescence. Nutrition will go a long way in managing the disease! Meds are definitely necessary when things are bad, though. Everyone is different, but look into the SCD diet, the AIP diet, or GAPS if you’re up for real intensity. I haven’t managed to stay on one consistently. It’s a lot of work. A lot. I hope anyone reading this will find peace and happiness in their healing. Only those with IBD truly know how I feel. We’re in this together. Love.
try carnivore dieet for 2/3 monhts
Thanks so much my bf just got diagnosed with UC and we are at the moment pretty overwhelmed with everything but gradually we are trying to stay positive and research on any helpful informations that will help us as family in the new normal life for us now. Thanks everyone here for sharing their experiences and advice and of course for making this video ❤️❤️❤️🌈🌈🌈
I dont know if I have this disease but I fear I might. I had a constant urge to urinate for like 7 months and now I am having problems going to the toilet too. Fevers and general weakness were common during the stage where I 'only' had an urge to urinate. I think it could be IBD. How likely is it to end up in hospital? I never want to get sick and taken to the emergency room, can this be avoided?
@@idreeskhan8885 you have to see the doctor asap!!! I wish you all the best 🥰🥰🥰🙏🙏
@@janetoche1725 I got and even a month after going they still havent sent me a letter....
I just want to say you did an outstanding job explaining this disease. Probably better than half the Drs. They rush you in and rush you out like cattle. I hope that the treatments get better for people with this. I'm sure this is not easy to live with so stay strong.
agree 100%
Exactly! I went to one dr and he said that I need to eat vegetable. Went to an actual doctor urgent care and they took what I was saying seriously
This is so true. My boyfriend was diagnosed with UC about 2 years ago and they explained the diagnosis to him super quickly while he was still high on the sedatives from his colonoscopy. He asked for them to bring me in as he couldn't process what they were saying and they simply shoved a leaflet in my hand and ushered us out of the room. This video is so much more helpful and less daunting.
Really did explain it so well better then drs for sure 🙏
@@queenofcamp832 hey! How has your boyfriend been? My boyfriend got diagnosed with colitis yesterday and I’m worried.
It's obvious that this video was not easy for you to make, and I'd like to thank you for pushing through. Excellent work. I wish you many flare-free days.
I found your video comforting. 20 years I have had UC. The last 10 years have been tolerable. As a man, the worst part, is the lack of understanding, or even empathy. I had work mates mock me, for needing to go to the toilet, even though they had known for 5 years I had a chronic condition. My own mother has made disparaging comments, relating to me being sick.
If I had cancer, they would be giving hugs, comforting me, but UC, they think you are not really sick. You just have diarrhoea (×20 times a day, for 10 years).
I’m sorry to hear that mate. As a Male it is harder and not only is it a condition that affects your digestive system but your whole body, mentally too, and thats not considered in people’s feelings and attitudes towards chronic conditions. I hope you find relief and ease in your life, as I wish with all sufferers
I've had uc for 18yrs, diet plays a big part I've found the carnivore diet to be very helpful.
I've been diagnosed this morning I'm a man 20 and I'm worried.
@@garythesnail7631 Was your diagnosis 'severe' UC? I didn't seek assistance until I was extremely unwell, fainted in the shower, from internal bleeding, and had to have numerous blood transfusions.
I was given medical advice from a GP and non specific surgeon that hindered my management.
Things turned around for me, by being included in a research study, being conducted by a professor at a university.
His told me, not to fall into the trap, of looking for miracle cures, just eat a normal varied diet. Keep at the high end of a normal weight range, don't get overly fat, but muscle weight it OK.
For an example, I went through Army basic training at 90kg, I wasn't an athlete, but didn't struggle through fitness training.
When I was 30, really sick, and first admitted to hospital, I was less than 70kg.
Now, at 50 years old, I am 110kg, and the doctors are not concerned by my weight.
Once you have a good gastroenteroligist, follow pill taking regime ... exactly. When they tell you to have a colonoscopy, endoscopy, MRI, do it ... don't put it off.
The drugs you take, may be different in your country, when I started on mine, it was always an issue, with the pharmacist, they didn't like that the 3 drugs prescribed were seemingly, contradictory to each other. I am still taking them 15 years later, and are in pretty good health.
@@garythesnail7631 change your diet, cut out sugar, all processed foods.
Shoutout to all my other Canadians living with this! You're not alone 🙋🏻♀️
it hurts alot :(
Thank you. My mum just sent me this video. I've been in hospital for a week and just found out I have severe UC. I was in pain for over a week at home before this, constantly going to the toilet and in extreme pain. I'm 32, have also been recently diagnosed with psoriatic arthritis. I've been so down but now I'm learning more its getting easier. They estimate ill be out of hospital in 5 days.
Can't wait, I need my life back!
Thanks again, from Western Australia :)
UC makes bones weak. Also one can have osteoporosis alongwith UC. I hope all UC patients heal soon
You are from a rich country ,you are lucky ,people with this illness die in many countries
@@sheebaahmad4830 hindi me Bata sakti hai kya please
Whenever I get stressed I have an episode
Me : Get stressed.
UC : Welcome to the next episode of "You're F***d".
Great video. Thanks for doing this
Me to! This is why I’m getting tested at urgent care tonight
Same
I was diagnosed with UC at age 71 I'm so sorry you have to deal with it at such a young age.
Aw I was diagnosed at 7, I’m 15 now. I’ve always wished I had more time to be healthy. I’m sure you do to!
@@olir3601 How are you now? Any further problems are you facing?
It’s 4 years since you uploaded the vid. Hope you are doing well and that you are in peace.
She has Never one single time, responded to any comments on here or even given a single like. That is really lame and sad, especially after years have gone by.
@@Xuevium don't think it's her specific channel
@@Xuevium It looks like it isn’t her channel. Most probably she was asked to share this info. Also, probably for advertising the app she was talking about in her video….
This is the best video on UC I've ever watched. Taught me more in one watch than I've learned since being diagnosed 4+ years ago. Ill be saving this video to rewatch for sure. Thanks for your work.
Damn girl...you should be a spokesperson for this disease. BRAVO! I don 't have Crohn's or UC but I totally understand it now!
UC is hell, got it at 20, at 56 it led to colon cancer, now wear an ostomy appliance, my colon gave out after 36 yrs. it's a tough disease to live with and it ruined my life
Just wanted to say I truly admire your courage, you are an amazing person. To everyone diagnozed keep strong, you are not alone, have an amazing life!
We're trying lmao
Thank you. I need that.😥
Hello Simon
I agree, a really clear presentation from this lovely young woman.
Thank you so much for making this video. It makes so much sense. I have experiences so many flares up and was so confused for so long. Thank you for clarifying everything and making it so easy to understand.
Thank you for posting this. My son was just diagnosed; I knew most of what you were saying it is just good hear someone living with it.
I just saw this today, and I'd like to thank you for being so honest and detailed about what you have been through. I hope and pray you are doing well and spending the majority of your time in remission.
I was just diagnosed 2 days ago and this really helped me understand a lot. I didn’t know how to tell me job nor have I ever called in or missed work, but some how I pulled through and told them what was going on with my body. I’m now working on a food journal to prepare myself for my new normal.
How do you feel right now
How were you diagnosed?
I just got diagnosed so this really helped me understand what’s going on. I’ve really been so embarrassed this past month because I haven’t been able to work and when I do I’m stuck in the bathroom. Thank you for giving me hope
Im proud of u too, that was very elegantly and honestly done.
Thank you for such detailed information. My mother has been suffering from UC and I can relate to all the symptoms and experiences you shared. Really appreciate you coming forward and sharing this. Wishing you the best!
Thank you so much for this. Video saved for rewatching. I learnt more in these 10 minutes than I have talking with my doctor and specialists over the last few months. I found it encouraging as well, which for any sufferers of UC, is something sorely needed as it can feel like a lonely and pretty dark battle at times. Thank you.
Thank you for the much needed information . God bless you and my heartfelt prayers for you speedy recovery
Awesome job and a very brave thing to do. A strong woman at her finest. Thanks
Thank you so much for the time. Good luck too
Thank you so so much for this!!! I was diagnosed this year and definitely needed this.
I've had it UC fir 2 years and its ruff but God is still good in the midst of everything goin on around us. Thank you so much 4 the video. Keep strong life is just a moment that leads to eternity. You will be in my prayers. @effie siamalekas
I've had this for 12 years. You've hit every topic, symptoms, and advice perfectly. Thanks for sharing. Keep up the good fight!
Thx for this. Quite helpful. Downloaded the app. Just diagnosed at 54 - mild to moderate UC. You’ve done so well to get to the point you have with severe disease. Good on you.
Thank you so much for your video . I was recently diagnosed with colitis and your info has helped me understand better what I am facing. 👍👍
Thank you for sharing your journey with us. As a parent with a teenage son recently diagnosed with UC, we are going through a mixed bag of emotions. We have good days and some not so good days. Your video gives us hope and the strength we need to focus on the positive. God bless you.
Got diagnosed back in May, after about 6 months of panic and a lot of physical pain. This video gets the message across so succinctly, and it really helped me develop an understanding of what was/is happening with my body, and has helped me come to terms with my diagnosis (it's also a great resource for explaining this to other people). Thank you for sharing this with us, and I wish you all the best!
What an eloquent and strong young woman. Thank you 🙏🏻
I have been diagnosed with diverticulosis and get diverticulitis flare ups way to often. I came to this video to understand if I have symptoms of UC and might have been misdiagnosed. You have explained this very well, and I pray for everyone living with UC.
Such a helpful video! I’m researching for a member of my family who has UC.
Thanks for such a great video. I’m 62 and was diagnosed UC at 59. In a flare as I write this and, to be honest, and scared that the “bag” might be in my future. Anyway, you’re a very brave young lady and will look up you more recent videos to see if there are any updates.
Thank you SO Much young lady, this was awesome! I sent this to my daughter who has been diagnosed with uc. Again, thank you❤
My 7 year old was recently diagnosed with UC. It's journeys like yours that you are sharing that will help not only parents but the patients. I hope your doing well and thriving😊 - thank you for sharing!
what a sweetheart you are!! I’d love to be your Gramma! I’m really proud of your ability to talk honestly and very openly about your symptoms, Honey!!
I’ve been having symptoms for many years.. but what seems to have started this OVER THE TOP EPISODE, seems to have been a terrible stress and anxiety attack concerning someone I. My life..
I became really sick, had awful unloads of bloody, mucous stools… along with serious pain!
I’m still trying to discover everything I can about both IBS and IBD!
I want to thank you most sincerely, for your enlightening video!
Thank you so much for the clarification because I’m new to this horrible disease and nobody around me understands what I’m going through at times. You taught me more then the doctors smh
Thank you so much! What a brave and intelligent young lady. You posted this 6 years ago. I would love to hear where you are today. I have just started this journey.
Thanks for the info.....I've had these symptoms going on for a awhile now. Had to call in sick and making an appointment with my family doctor.
Take care and stay safe!
I have lived with UC almost 40 years now...didn't realise my age until calculating...life is possible with all considered. I cycle, fluctuate in weight/shape and dance to all genres. Seems to be genetic and theories of stressful environment are popular around me but I am amazed that you explain things so detailed. I understand more than ever and hope to come across more about your sharing. You taught me logically linked biological concepts that I never knew eventhough I researched about embarrassing symptoms and possible IBD issues from the age of 10 years. Thank you for every word, overcoming embarrassment and most if all sharing about you. More than appreciated and admired.
Effie, thanks so much for your brave, wonderful and very clear explanation. I know it has helped out my son a lot. I hope you are well and healthy.
Thank you for this video Sis. I pray that your condition has improved. I’ve shared the App with my close relative and I’m committed to helping them fight this disorder.
Thank-you for sharing your story with all of us. We pray for you to endure through this, and to find the proper balance to managing those symptoms.
Hey, thanks for sharing your story. It took a lot of guts?! It was very informative and simply explained. Sharing your story helps destigmatize the disease. You’ve done a public service (PSA) by testifying to your trials + tribulations. You’re a super hero! I feel slightly better knowing that they’re other people also enduring through this like me. I think talking about it and sharing tips can help us get thru this.
I’m currently immersing myself into yoga. I believe I’m on the right path. I believe ulcerative colitis can be managed and possibly cured taking a holistic approach. Meaning, it takes a bunch a “lifestyle choices” that will keep the disease in remission. Eat right, exercise right, sleep right!!! Thanks, again. Stay humble + healthy!!
Great video. Well done! Thank you for sharing your story, and, like many, like myself, parts of it were probably very uncomfortable or difficult to share. The part about accidents, and always wanting to know where the nearest washroom is, almost got me crying. This was well presented and I’m sure I’m not the only one who appreciates what you’ve done here. Take care of yourself! 🤓👍🏻
Literally the best video on UC I've seen. All the info put together so concisely. She basically went through the same thing I did, I also had pancolitis and lost about 25lbs.
I am newly diagnosed and 67 years old! thank you for this wonderful explanation of the disease. It IS the best I've seen yet! I do so hope you are doing well and that I can get out of this flare and succeed as you have shown me is possible. I am a nurse and had many patients throughout my career with this disease but never thought I'd be at the other END of the issue! Thank you for your courage to do this for us new folks!
Kathy what is your condition now?
5 years later and this is still the BEST video I've seen on the topic. Thanks for the courage. Really.
5 years later and she has Never one single time had the humanity to like one single comment, or reply to one single comment. That is really sad.
Oh Wow !! Thank you so much for very important video ! wish you all the best
Great video! Very thorough but easy to understand. Thanks!
We are all in this together. Words can help and has an impact on all of us. Wishing everyone that are having symptoms to stay calm and all storms end, eventually 🙏 so just hang in there 🤗
I understand every word that you shared. I myself going through this UC(ulcer colitis).
The concerns when the urge comes to go to the bathroom is very stresful.
My family is very supportive and also my job too. I hope that you get better.
God bless you.
Thank you.!
Agree with MW this is the best explanation I have heard and seen. Thank you.
I've just been recently diagnosed & doing lots of research. This video is the most concise, easy to understand explanation I've come across. I will be using this video to educate my family & friends. Thanks.
Thank you so much for sharing!!!! Very encouraging didn't know if there was hope but you definitely have given me hope thanks for explaining in depth! Every point hit home brought me to tears God l you!
💖
Thank you for sharing..I was diagnosed as a child at the age 12..It sucks so bad..I am now 51 and I went into remission for a decade and now its back in my 50's........you are so brave and I am proud of you .. Covid stress brought it back
How did it go into remission
Thank you for this video! Ive been diagnosed last year and its been a constant struggle. Greatly appreciated.
Straightforward explanation! Highly commendable! :)
Understood UC in 10 minutes from you. My docs have not been able to simplify it over the last 15 years :(
Wish you healing and blessings 🙏
I was studying this topic today for my med school and glad i came through this video. Such a helpful and emotional video.. thank you so much for sharing your story. God bless you and my heartfelt prayers for you and everyone suffering from ulcerative colitis.
@@Michelle-qd9gm hey I’m from India 🇮🇳 and I got uc it’s been 1year I’m under medication I have a question will it completely get back to normal someday or I would have this pain my all life
@@graspknowledge8799 Hi I’m from Pakistan 🇵🇰 and I’m pretty sure there is no known cure for ulcerative colitis same as hypertension but yes it can be controlled with medications like it will calm the inflammation and it’s good that you manage the diseases rather than the disease manage you so I hope it will be a bit informative for you and you will feel better soon…
@@umernawab4558 bhai aap mujhe hindi me samjha sakte ho kya please
@@ashrafraza9738 bhai is bimari ka abhi tak koi muqamal ilaaj nahi aya par inflammation ko rokny ky liye ap dawai ly sakty ho…
@@umernawab4558 aapne kon si davayi li?
My heart goes out to you. My daughter is 22 and was diagnosed in January. Although she has had stomach issues for a few years and we went to so many doctors but none of them found anything wrong until this January. I thank you for sharing this video.
Hello, how was your daughter diagnosed? For example, colonoscopy, imaging, blood work, etc? I would appreciate it as I'm currently trying to diagnose myself.
@@MikeTheGreatCC12 I had a colonoscopy last year they didn't find anything, then yesterday I had another one and I've been diagnosed with uc
Amazing explanation on things. I always have odd looks when I try to explain. They should play this video to any new person diagnosed with this cause it’s so informative.
This explains a lot. Thx for taking the time.
Thank you for making this. I was diagnosed around 6 years ago. Right now, I'm in the middle of a flare and I hate it. I hope you're doing well!
Are you feeling better now ? How did you improve it ?
@@suliyachannel1739 Doing better now! I haven't done much other than stay on my meds. I do what I can to reduce stress too.
so informative, thank you!
Well done. This is one of the best videos I have seen that explains all facets of the IBD. Very helpful. Thank you.
Thanks you for being honest young lady.....yohr brave for being honest.....much respect.
Damn that’s hard, it’s really amazing that our bodies stay together at all
When I was first diagnosed I was 215 and it dropped me to 165 and recently I have a lost of appetite and more frequent bathroom runs in the middle of the night.
I was diagnosed recently, I only dropped 20 pounds but I was already light so not good. I also have a loss of appetite, I cant even finish a burger anymore
lol 🤣 yeii there's something good about this. Weight loss 🤣
I’ve also lost weight but I desperately needed to lose so that’s fine. I hear you about night time bathroom visits. It’s very disruptive of sleep. Sometimes I just give up and take a nap the next day if possible.
I just got diagnosed today. It’s been 3 days of get off the toilet. No energy, hoping the meds will help. Absolutely great video. Great information!!!
Just diagnosed. Thank you for this video, it is much appreciated … I was taken aback when you said that it’s common within the Jewish community; as our Jewish community here in Southern Africa is so small - that the doctors here didn’t mention it me - but I guess it all makes even more sense now.
Thanks again, wishing you much health.
I was just diagnosed two days ago and have been researching like crazy. This is the best, most honest assessment I have seen. Thanks for your honesty.
Try contacting Dr folonsho, he Is a herbal doctor, he healed me from UC, this disease is really terrible, I can only feel what you are going through now
How are you? I just dianosed with colitis.
Great video. I have UC at age 51. There are many treatments. So far Xeljanz works for me. With that I’m 99% better. But yes, before the meds every place you went you had to know where the bathroom was.
Great informative video. I am 70 and was diagnosed two days ago. You were thorough and spoke slowly enough I could process the information.
thank you for your honesty and making this video. it is so informative. all the best with your UC management. you are a very good videographer.
You're clearly a sweet person and thank you for having the courage to share some really helpful and personal information about something that would be tough for anyone to deal with. Your video was a million times better than a video of a robot voice just reading facts and symptoms to you.
That being said, someone I care about and is close to me has been dealing with this lately, hopefully others can share more of what's working for them besides just medication.
To you (or anyone reading this) Does fasting help? Which foods trigger you? What's the longest period of remission you've experienced and what contributed to that the most do you think?
Thank you, hope to exchange information with you and/or others and share ideas to improve one's quality of life.
Can you Please tell me if Gluten free and Lactose free Diet has worked for you?
Big kudos to her for stepping forward and sharing her story. 21 years ago I had my colon removed because of UC; when push came to shove I was so sick for so long that I happily handed it over on a gold platter. That left me with an ostomy bag for six months before they did J pouch surgery which is essentially when they build an internal ostomy bag out of small intestine. An extreme outcome, but ever since been happy and healthy without any incidence of UC.
This is what they’re pushing on me right now. I’ve only been diagnosed for 4 months and I’m just not mentally ready for surgery. I’ve just started infusion treatments and if I don’t respond to this I’m just going to have the surgery. I’ve been told by the surgeon that the second surgery (j pouch) has an 80% success rate and the other 20% have a stoma bag forever. That’s heavy for me as I’m in my 30s. But if I continue on with quality of life diminishing then I’ll take my chances.
@dani cali I can remember when I was first diagnosed and the doctor explained the worst case scenario to me and I thought to myself that I would rather die than than have my colon removed and live with an ostomy (a 20 something thinking), but in the end, when push came to shove I knew that it had to happen and accepted it. Good luck.
I don’t know how someone could be truly healthy without the colon, that’s where all the bacteria and flora are… your microbiome determines your health…
Really good video. Ever since I got diagnosed with left-sided colitis, it has impacted every aspect of my life way more than I ever thought it would. It gets super discouraging having to use the bathroom every 15-30 min. I wish doctors would explain this to their patients the way you did. I plan to take more precautions, eat healthier, and stay on top of whatever meds I may need to use because I'm afraid of missing out on so much in life. This disease can be so controlling. My heart truly goes out to everyone who's struggling with it as well. God bless.
Great video - I was just diagnosed with UC and your video was super informative. Thanks you.
I’ve had UC for 10 years and because I was diagnosed at such a young age, I was never interested in knowing much about it. Thank you for this simple yet informative video!!
I’m 13 and I was diagnosed with UC when I was 10 and I’ve jumped between so many medications. It’s pretty overwhelming sometimes and it hasn’t gotten better, my gastroenterologist says that I’m the first of his patients to be on this special $4,000 medication every 4 weeks so I hope it does the job and I can get to a stable place and not have to worry about getting chunks of my intestines cut out.
So sorry...I pray to God that healing come through for you. I was 30th when I was diagnose and like the video said, they don't give a good explanation. Now i am 67th and after a good years along with med, this time gotten more aggressive but, I am still trusting God and that this shall pass and we'll get better soon.
God bless you.
I was diagnosed with Ulcerative Colitis at the age of 15. Now I am 37 year's old and still deal with it. Hang in there it will get better for you. Never let this disease get you down.
Im 13 aswell and i have all of the symptoms of IBD. I hope i don't have it
I feel you. Ive had huge stomach aches sense i was 6 and everyone told me i was overreacting and i was stressed so i just took tylenol constantly. in 2020 of august it got miserable, couldn’t eat and dropped down to 57 pounds. In december they finally took me serious and i got a colonoscopy. Found out i had severe uc. I was originally given an option of a infusion or the humira shot. I did humira (and i dont really think it did much). Eventually they gave me a pill of mesmaline! That helped…but it doesn’t go as far as it needs. So they gave me they gave me a choice between another pill or mesmaline that goes the other way. I chose the pill asap!! But… they gave me the mesmaline because they thought it would make me better. That’s where i am right now, i’m hiding so i don’t have to do it. I feel like it’s NEVER going to get better and i’m wondering why they think this is better? It just brings me more pain.
@@zzbug17 - Hey there, Zuri 👋 my name is Kel and I have very bad Ulcerative Colitis with bleeding and severe stomach cramping and pain. Please do Not just hide away. I am on the max dose of Mesalamine, taken daily, and even though i have always been extremely sensitive to all drugs, the Mesalamine does not even give me any side effects at all.. and that is a miracle, and it Does work! But just remember that it takes time... typically numerous weeks of taking it daily before you see the good results. The key is starting it asap, and staying on it. And if you are in the middle of a bad UC Flare that will not stop, then they need to give you a second med as well, like Prednisone or Uceris rectal foam. I highly recommend Uceris foam, if you can afford it, or get your insurance to cover it. I really hope that you get better soon and find relief. I know first hand about suffering terribly from this disease, to the point where I did not want to live anymore. Getting on, and staying on a combination of medications is Nessesary for this disease.
Thankyou, had it since 1990, recently had a op that wiped me out. But I’m still going, never spoken to anyone so hearing a another voice is great. I avoided meds until recently preferring dietary improvements but that only worked for so long. Now I try to listen to my body, optimise my diet with as much unprocessed quality food, take time eating and rest. I take numerous vit. supplements and hope health care discovers something. All the best, thanks again
You did a really great job explaining everything and you were interesting and easy to listen to. Thank you so much! I learned a lot.
Thank you for this video. My 20 year old son was diagnosed today. This was really helpful. I hope you’re doing well.
I’m 20 was diagnosed at 18 but I know your son is strong he will get through it
@@alfredeinstein1742 fatigue painful bloating stomach most of the time blood in stool nausea and pain in lower abdominal
@@alfredeinstein1742 yes diet is the best thing
@@alfredeinstein1742 don’t try to rely on medication to much trust me.
@@alfredeinstein1742 yea like anything bro
Thank you for sharing this stuff. Even though my doctors and nurses explained it well, it kinda meant more and I got a better understanding when it came from a person with uc, does that make sense lol. My disease rn is moderately active and I have a ways to go to recover. It’s nice to see someone talk about this and put it on CZcams for people to easily access, thanks
@Marian Cook actually there is no cure for uc or any other forms of IBD. It’s called a "chronic" illness for a reason. Chronic by definition means continuing or occurring repeatedly. I think you may have been scammed. Flare ups come and go, so it may just have been awhile since you’ve had a flare up. (I am not in any way trying to spread hate, I just wanted to let you know)
Thank you for this video. I shared this with friends and family, it really helped explain to what I was going through.
Such a great job of teaching about UC. I’m a nursing student n this was super helpful!!
My friend had ulcerative colitis in 1971 and had to have a colostomy installed in 1972. He is doing well and I learned from his condition.
I'm living with ulcerative colitis for the pass 20 years and to be honest I don't understand anything about it my treatment don't really works I just wish their was a cure going to the toilet so often is more than I can bare I feel like I will never be normal again I'm praying the Lord will send a cure soon
@@payalchauhan9638 which medicines do you take?
Lately I take digestive bitters, digestive enzymes, potassium, l glutamine, zinc carnosine, probiotics
Did you try tweaking your diet?
Any food intolerences, low carb/hi carb, low fat/high fat, elimination diets, etc?
@@marechell66 I gave up smoking tobacco like 5 years ago but honestly still smoke a small bit of the waccy baccy every day
What a sweetheart, thanks for sharing your story.
Remarkably articulated ,I wanted to hear more ,thank you so much ,I learned a lot,, I pray that you stay strong and all of us with this disease learn to manage it better
This breaks my heart. I dealt with severe Crohns for 8 years and it was the worse quality of life I have ever experienced. Somehow I came off of all my medications after strict diet and exercise including running. I know that sounds crazy because it seems impossible during flares but I was in do or die mode. So often times I wished I would die rather than live that way. Continual bleeding and pain. So after roughly 5 years of remission, I have let my diet go, gained weight, stopped exercising, and currently going through a divorce, I’m convinced the stress got me back to here. So back to putting in the hard work of doing all I can do to be the best me I can and hope for the best. Asking for all of your prayers and I will def be praying for you. Anyone who has ever experienced this knows that it’s no joke. However there are way more of us out there than you may realize. Keep your head up the best you can and treat your body well. Love all of you!!!!! Get well soon.
Thanks for sharing. I know the pain all too well, every morning I feel like I’ve been hit by a train in My abdominal area. And the frequent bathroom trips are crippling, as well as the accidents that can and most likely WILL occur if you have this terrible disease. I’m so sorry for all the stress you’ve been going through it def makes things much worse, as I am too going through some hard times. Stay up, I’d say I would pray for you but i forget to pray even for myself lol. I’ll try and remember. Keep up!
hi did you use medication to go into remission then change your lifestyle or did you achieve remission soely without meds
thanks for explaining it to me better than my doctor did... omg
Great video! Lots of good information! Thank you for the content!
OMG thank, thank, thank you for this wonderful video. I was just diagnosed. And it's so hard and scary for me because you don't know what to expect. I swear I saw different video and left it on auto play and your video played. Not sure if it was a sign but I honestly thank you for this video information 🙏🙏
I’m 28 and just been diagnosed with mild UC. Just completed an 8 week course of steroids and hopefully it does seem to have reduced inflammation. I also had the fatigue and anaemia so can totally relate to nearly passing out just walking to the bathroom, it’s horrible! I’m just trying to learn as much about UC as possible so thank you for this video, it helped a lot!
My boyfriend got diagnosed nearly 2 years ago. He did the 8 week course of steroids too and has been on mesalazine ever since. His flare ups are very rare now (maybe 3 a year) and they aren’t anywhere near as bad as they used to be. I hope you’re coping as well as you can with it.
One piece of advice I’d give is don’t listen to anyone telling you there’s one solid answer to all of this. We tried several different diets with my boyfriend but nothing seemed to make much difference so it didn’t seem worth the hassle. He eats whatever he wants, trying to be as healthy as possible, and just listens to his body. If he has a flare we think if he ate anything unusual recently that may have triggered it and try to find patterns. Everybody’s different so take your time with it and go easy on yourself :)
Steroids has too much side effects. Didn't you noticed any side effects with taking steroids
I was diagnosed with infectious proctitis and I’m already 28! I’m already scared it’s gonna spread more! 😢
@@sheebaahmad4830side effects are typically long term use. Typically if they give you steroids it’s very short term. If you take it long term not only do the side effects kick in, the relief you get decreases as well because your body starts getting used to it.
Stress, lactose and large meals.. avoiding them gives respite
So brave, thanks for sharing and hope you get better
thank you so much for this video.....hope you are feeling better and you have found the right medication to keep you at bay. I'm truly sorry, i feel for you. I was diagnosed recently. take care of yourself.