Idk if you will get this but I love these videos. I hate that you need that stuff, but as a chronic illness person myself I would rather watch this than organizing makeup or something. My mom had to do daily iv antibiotics for a horrible infection so I'm familiar with a lot of this stuff. I wish I had done this for her would have made my job caring for her a lot easier. Thanks for posting, being real and being you. ❤
I can really appreciate your organizational skills in this. I like using the dollar store storage containers too! :) Your supplies look so perfectly lined up and sorted. Hope you are doing okay today. ❤ I've been thinking of you this week!
Omg we have house rabbits and pic c lines in common lol! Binky got on my bed sat on my shoulder and proceeded to try to chew through my line!!! close call!!!! I have a catheter too and that's his fave. blessings & hug from the UK
Glad to see you are doing okay. I was curious if you would do a week long overview of your life vlog? I was also curious if you would do a video about your interests: music, videos, films, books, etc.? Thank you.
Do you remember which shower cover you bought? I just got my picc line and they sent me the cheap disposable ones but I'm leary to use them. There's so many choices on amazon.
I have my PICC nurse coming in the morning for my first lesson and my supplies. She's going to come every week, do you not have a nurse who comes each week? How often are your supplies refilled ETA just saw it was a months supply
i know this is an old vider...but how did you get your picc line supplies? who set you up? i just got a line placed and no one set me up for anything. going to out patient infusion center but they are only able to give me weekly infusions, flush that day and weekly dressing changes. having a terrible time finding someone to help me with supplies so i can do my daily flushes. just ordered curos caps on amazon. :/
Why are infusions better than regular hydration? I was diagnosed with POTS two days ago and the cardiologist prescribed me a medication... He said that if it doesn’t work, there’s nothing more he could do... He also said that regular hydration is more effective than infusions so I was wondering what you know about it
It totally depends on the person, what other illnesses they have, or what the cause of their POTS is. In normal healthy people, hydrating orally is good enough. Some may need electrolyte drinks for workouts or hot days. Their body is able to absorb and retain the water and electrolytes they take in and use it to hydrate the body. Some POTS patients can also do this and just require more electrolyte drinks and water than average people. However some people like me who also also have EDS and gastroparesis are unable to retain the fluid and electrolytes they drink orally due to their digestive system not absorbing things/working properly. Because of that, the fluid and electrolytes tend to go right through me and I pee it all out instead of my body absorbing what I need properly. With IV fluids my body is able to use the hydration and it helps boost blood volume. So in short, it totally depends on the person! Definitely try all the meds first and see how that goes. I’m on a POTS medication that helps me so much! But if after trying meds and still haven’t improved enough I would find another doctor who is willing to explore other treatment options besides meds. I wish you all the best!
Idk if you will get this but I love these videos. I hate that you need that stuff, but as a chronic illness person myself I would rather watch this than organizing makeup or something.
My mom had to do daily iv antibiotics for a horrible infection so I'm familiar with a lot of this stuff. I wish I had done this for her would have made my job caring for her a lot easier.
Thanks for posting, being real and being you. ❤
I really like these types of videos can u plz do more⭐️
I can really appreciate your organizational skills in this. I like using the dollar store storage containers too! :) Your supplies look so perfectly lined up and sorted. Hope you are doing okay today. ❤ I've been thinking of you this week!
Thank you!!!! I’ve always loved organizing since I was little! I find it so fun!
You have quite a knack for organization. That's awesome!
I would luv to know a bit more about picc lines or even when u do them what’s your routine.. I luv r vids 🥰🥰thx🙃🙂🙃
Would love to see a day in the life routine
Love your organization skills!
Omg we have house rabbits and pic c lines in common lol! Binky got on my bed sat on my shoulder and proceeded to try to chew through my line!!! close call!!!! I have a catheter too and that's his fave. blessings & hug from the UK
The little blue clamp is for clamping off a fluid line ☺️
I feel like it’d be easier to use the clamp already on the tubing😂 I guess maybe if it broke off? 🤷🏼♀️
Haley's Life Through A Lens lol emergency clamp. 🤷🏼♀️ I work with animals and I’ve only even seen it come with blood transfusion kits
How fast do you go through sanitizer it seem like every video you are like ,”I use sanitizer to clean this.”
I use peroxide for almost everything as it’s as powerful as bleach but not toxic. It’s also only like 80c at Walmart!
Glad to see you are doing okay. I was curious if you would do a week long overview of your life vlog? I was also curious if you would do a video about your interests: music, videos, films, books, etc.? Thank you.
Do you remember which shower cover you bought? I just got my picc line and they sent me the cheap disposable ones but I'm leary to use them. There's so many choices on amazon.
Me: watching u organize ur drawers
Also me: failing to organize mine 😅
How much do u love Haley?⬇️
I have my PICC nurse coming in the morning for my first lesson and my supplies. She's going to come every week, do you not have a nurse who comes each week? How often are your supplies refilled
ETA just saw it was a months supply
i know this is an old vider...but how did you get your picc line supplies? who set you up? i just got a line placed and no one set me up for anything. going to out patient infusion center but they are only able to give me weekly infusions, flush that day and weekly dressing changes. having a terrible time finding someone to help me with supplies so i can do my daily flushes. just ordered curos caps on amazon. :/
Why are infusions better than regular hydration? I was diagnosed with POTS two days ago and the cardiologist prescribed me a medication... He said that if it doesn’t work, there’s nothing more he could do... He also said that regular hydration is more effective than infusions so I was wondering what you know about it
It totally depends on the person, what other illnesses they have, or what the cause of their POTS is. In normal healthy people, hydrating orally is good enough. Some may need electrolyte drinks for workouts or hot days. Their body is able to absorb and retain the water and electrolytes they take in and use it to hydrate the body. Some POTS patients can also do this and just require more electrolyte drinks and water than average people. However some people like me who also also have EDS and gastroparesis are unable to retain the fluid and electrolytes they drink orally due to their digestive system not absorbing things/working properly. Because of that, the fluid and electrolytes tend to go right through me and I pee it all out instead of my body absorbing what I need properly. With IV fluids my body is able to use the hydration and it helps boost blood volume. So in short, it totally depends on the person! Definitely try all the meds first and see how that goes. I’m on a POTS medication that helps me so much! But if after trying meds and still haven’t improved enough I would find another doctor who is willing to explore other treatment options besides meds. I wish you all the best!
Haley's Life Through A Lens Thank you so much!
The last part : to clamp your tubing
will you eventually get a port and do you have EDS?
Yes I will most likely get a Port in the next few months. And yes I have hEDS
What are picc lines for?
I thought the saline bags were refrigerated... guess not
It depends on the brand.