I am getting a port this week to help manage my POTS and to start IVIG with. Thank you for these videos and your tiktok ones they have been extremely helpful!
Hi Hayley wow you picc line free!!! Great. I was getting a port but getting a Hickman instead not allowed the port due to immuno probs. Waiting on Hickman. So pleased you have your port so much nicer and easier than a picc!!! My picc pees me off when I'm trying to do things. You look really lovely with your make up , it's nice your not always made up and when you are it's like wow u look great girl. You look lovely with or without though. Well girlie sweet hugs from binkybun. To you and all your bun buns. X ps wish could have port less for bunny to try to chew!!! Lol
I KNEW I didn't see your picc line on your newest videos on your 101rabbits account! Hope all is going great (or at least good) with you and your family.
So glad I found this video. I'll be asking for a port at my next cardio appt. Having to go to the ER over and over for IV fluids during a pandemic is scaring the life out of me. I kept my moms hickman infection free for 3 years I think I can handle a port.
You've inspired my to start my own channel about life with POTS and other chronic illnesses. I hope I can be as consistent as you. It's so nice to find someone I can relate to whenever they post content!
Have you had any infections? How worried do you feel about the risk? My pots is severe and I've been doing peripherals for years. I'm just so apprehensive and not sure what I'm going to do long term, I'm glad this treatment is working well for you and you can do it independently!
Hi! Thank you so much for this video, it's really informational! I was diagnosed with POTS when I was 13 years old, I've had it for 8 years now. I was hospitalized many times since it got so bad. My POTS actually got worse through out the years. My doctor kept on putting me on medications, I take 25 medications daily which help some. My doctor recently prescribed me IV saline infusions twice a week. I have to get a new IV every time I receive an infusion. My doctor is planning on upping the infusions to 3 times a week, so I've been looking more and more into getting a Port-A-Cath. Do you think that's a good choice or should I wait? I'm a little conflicted about it at the moment. Thank you! ♥
Haley, I do enjoy your 101Rabbits but I am interested in knowing more about you! So subscribed this morning & I have been amazed how you have been trained to keep up your port.
How long did you or have had the port/cath for and have you had discomfort with muscle tension/tightness around the port, in the neck, chest and shoulder? I have had mine for over three years. If so, would you be willing to share if anything has helped? Curious if anyone else has experienced this.
This may be a weird question but can you do normal day to day activities when your port is accessed and being used. Like going to work or the grocery store kinda idea while you are currently getting saline? I am researching about POTS because they are like 99% sure I have it and I dunno if I would need a port obviously but like I drink a decent amount of fluids.. so I worry I will need one and my main concern is like I wouldn't want to be stuck at home for 12 hours every other day while its pumping in the saline. lol
I'm not saying this from personal experience but if you have a pump that administers your saline instead of a drip line I have seen a few people on CZcams just throw everything in a backpack and then go about their normal lives with the backpack on while they are infusing!
how long did it take your pots to adjust to the port in your body ? or did your pots not flare up from it ? i am looking into getting a port and am curious if my pots will react and take getting adjusted to it
I’m getting my port in 2 days and I’m nervous. The home health agencies in my area do not do peripheral IVs and my doc said I’m pretty much out of options so we are going with a port. I have major issues with dehydration, very low energy and chronic fatigue (I can’t even take care of myself 5-6/7 days per week), dizziness and I’m starting to almost pass out more often. I’m really hoping a port can help because I don’t have any more options for medications.
Hi, I have a question. I have pots, and I weigh 422. I'm getting a port on my chest for a potassium transfusion. I have to get it in when i have the gastric bypass. Have you heard of other overweight people with pots? I feel a little alone on this.
Hi! Thank you for this video. It’s been so helpful for me! I got that mighty well backpack because I need regular IV fluids because of pots too with my port. But my Baxter pump is incompatible with that backpack. What pump do you have?
Hi Haley, thanks for this information! I just got a power port and am looking at pumps. What kind to you have and do you like it? Did insurance cover it?
You should do a video about accessing your port
I already have it filmed!!! I’ll post it next week maybe
I am getting a port this week to help manage my POTS and to start IVIG with. Thank you for these videos and your tiktok ones they have been extremely helpful!
Hi Hayley wow you picc line free!!! Great. I was getting a port but getting a Hickman instead not allowed the port due to immuno probs. Waiting on Hickman. So pleased you have your port so much nicer and easier than a picc!!! My picc pees me off when I'm trying to do things. You look really lovely with your make up , it's nice your not always made up and when you are it's like wow u look great girl. You look lovely with or without though. Well girlie sweet hugs from binkybun. To you and all your bun buns. X ps wish could have port less for bunny to try to chew!!! Lol
I KNEW I didn't see your picc line on your newest videos on your 101rabbits account! Hope all is going great (or at least good) with you and your family.
So glad I found this video. I'll be asking for a port at my next cardio appt. Having to go to the ER over and over for IV fluids during a pandemic is scaring the life out of me. I kept my moms hickman infection free for 3 years I think I can handle a port.
You've inspired my to start my own channel about life with POTS and other chronic illnesses. I hope I can be as consistent as you. It's so nice to find someone I can relate to whenever they post content!
Have you had any infections? How worried do you feel about the risk?
My pots is severe and I've been doing peripherals for years. I'm just so apprehensive and not sure what I'm going to do long term, I'm glad this treatment is working well for you and you can do it independently!
Hi! Thank you so much for this video, it's really informational! I was diagnosed with POTS when I was 13 years old, I've had it for 8 years now. I was hospitalized many times since it got so bad. My POTS actually got worse through out the years. My doctor kept on putting me on medications, I take 25 medications daily which help some. My doctor recently prescribed me IV saline infusions twice a week. I have to get a new IV every time I receive an infusion. My doctor is planning on upping the infusions to 3 times a week, so I've been looking more and more into getting a Port-A-Cath. Do you think that's a good choice or should I wait? I'm a little conflicted about it at the moment. Thank you! ♥
Can you do a story time on getting your port?
omg you have my exact diagnosises snf im currently going to the hospital every 1-3 days for saline :,(
Haley, I do enjoy your 101Rabbits but I am interested in knowing more about you! So subscribed this morning & I have been amazed how you have been trained to keep up your port.
Awesome video !!!
Love your video you make!
How long did you or have had the port/cath for and have you had discomfort with muscle tension/tightness around the port, in the neck, chest and shoulder? I have had mine for over three years. If so, would you be willing to share if anything has helped? Curious if anyone else has experienced this.
This may be a weird question but can you do normal day to day activities when your port is accessed and being used. Like going to work or the grocery store kinda idea while you are currently getting saline? I am researching about POTS because they are like 99% sure I have it and I dunno if I would need a port obviously but like I drink a decent amount of fluids.. so I worry I will need one and my main concern is like I wouldn't want to be stuck at home for 12 hours every other day while its pumping in the saline. lol
I'm not saying this from personal experience but if you have a pump that administers your saline instead of a drip line I have seen a few people on CZcams just throw everything in a backpack and then go about their normal lives with the backpack on while they are infusing!
how long did it take your pots to adjust to the port in your body ? or did your pots not flare up from it ? i am looking into getting a port and am curious if my pots will react and take getting adjusted to it
I’m getting my port in 2 days and I’m nervous. The home health agencies in my area do not do peripheral IVs and my doc said I’m pretty much out of options so we are going with a port. I have major issues with dehydration, very low energy and chronic fatigue (I can’t even take care of myself 5-6/7 days per week), dizziness and I’m starting to almost pass out more often. I’m really hoping a port can help because I don’t have any more options for medications.
How did it go?
How is your OCD at the moment? I haven't heard you talk about it in a while.
Hi, I have a question. I have pots, and I weigh 422. I'm getting a port on my chest for a potassium transfusion. I have to get it in when i have the gastric bypass. Have you heard of other overweight people with pots? I feel a little alone on this.
Hi! Thank you for this video. It’s been so helpful for me! I got that mighty well backpack because I need regular IV fluids because of pots too with my port. But my Baxter pump is incompatible with that backpack. What pump do you have?
Hi Haley, thanks for this information! I just got a power port and am looking at pumps. What kind to you have and do you like it? Did insurance cover it?
You’re so pretty
Isn't she married now? Does anyone know?
can I contact you through email?