A Boy with Locked-in Syndrome and a Family That Won't Quit
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- čas přidán 8. 06. 2024
- Talon was resuscitated after his heart stopped while drowning for 10 minutes. Doctors say he now has locked-in syndrome, meaning he is aware of his environment but unable to communicate. Talon's family believes that if they surround him with constant love miracles are possible.
Contribute to Talon's Medical Fund at gofund.me/16434142
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We made a $5,000 donation to Talon’s Medical Fund. If you would also like to help him see continued progress you can visit gofund.me/16434142 for more details. Unfortunately, insurance does not cover everything that will help Talon reach his full potential.
@@Cimorelli102 8
Those insurance companies get to me. That had to be a hard interview, hard to watch. Your so good at that. Sweet little guy. I had polio so that's all I knew, but Talon was a regular mischievous little boy and I wonder what he does remember. Anyone who has such a life changing event in the midstream of their life that does such physical destruction is unimaginable. My disability is nothing compared to LIS did not mean to compar.
Thankyou❤ THANKYOU❤
@@Cimorelli102 Nice to see a member of the CIMfam here. I agree with you on Talon. He is adorable.
What a beautiful boy and such a supportive family. Keep up the positive energy and he will get better and better. Seeing all the donations on the go fund me is so amazing. He deserves it.
Locked in syndrome is hard. I was diagnosed with locked in syndrome in 2013 at 19 from meningitis. From only being able to blink I can now breathe, eat, move my right arm so don’t give up x
You have come such a long way and even though we have never met I'm am so proud of you. As you continue your journey in life I hope you find great happiness. Take care.
Love this ❤
I'm proud of you Lucy. You are an inspiration for others like Talon ❤️ keep working hard and being happy
did u have brain damage &. no oxygen to brain for 15mins .. no brain activity he can’t even breathe on his own the vent is keeping him alive ..
Hi, it’s great to hear you have come such a long way. I’m curious though, when you could only blink, were you still conscious and thinking and understanding what people were saying? Would you try to speak but not be able to? I hope this doesn’t come across as offensive I’m just curious.
My prayers go out to this family. Including Talons father.
He isn't mentioned in the interview other than being there during the accident and it is none of my business. And I don't think I can even begin to imagine how he must feel.
Dad, if you are reading this, it is not your fault. Accidents happen. It sucks....there are no words.
I wish you and the family a future of love.
Exactly . It’s not your fault. It’s a freak accident.
I was wondering also. His dad must feel so horrible and just can’t face seeing his son like that even though it was an accident.
I was thinking that as well. God bless him.
I was thinking about that, too. I can't imagine how he feels. Also sending him and the family so much love.
Challie Wallie, I cannot agree more. I was on the verge of tears this whole video and while reading the comments. Yours opened the flood gates. My heart hurts for this whole family, but most for Talon's father.
Edit: I wasn't thinking that his father wasn't an active part of his life anymore. Just that the situation as a whole was too difficult to be interviewed for.
Gradual spontaneous recovery is something that happens with this syndrome. Couple that with his brain being so young and having such a long time where it’ll still be developing, AND add in regular therapies and a supportive family who keeps Talon’s brain active…I don’t know. I have some high hopes for talon. Might not be for five years. Maybe ten. Maybe 15. But people, ADULTS, have regained abilities after a decade or more with this syndrome. A developing brain and all this support must be meaningful.
☺ I hope so too blessings to him
I agree, neuroplasticity is no joke. Unfortunately this all costs a lot of money, which is why their fundraiser is so important. I think with the right support and ongoing medical advancements he has potential to get much better. I'm rooting for him!
The mom said theres already some improvement! God is good. Spontaneous healing to me, means a miracle happened.
Im curious tho- I thought locked in syndrome had no particular cause, whereas Talons is due to traumatic brain injury. Apparently, they use LIS more broadly. I wonder if the TBI effects the recovery rate, vs LIS with no apparent causation
@@lalathebenificent1335 i think no matter what he will make at least some recovery, its possible even with tbi. Look at prichard colón for example
To dear Dad, you were loving your son by taking him for a ride, loving your cow swerving to not hit it, loving your son unbuckling him, & trying to save him out of the water.
May God comfort you & strengthen you as you keep loving your son, & your whole family.
Sounds like it was his uncle! He must blame himself every day.
Sounds like it was the oil companies fault. ATVs are way more dangerous than dirt bikes. Just expect the unexpected
@@Ross-ql9filol. The oil company's fault? The oil company's fault for the dad's poor decision making.
@@helloisitmeurlookingfor5898 without oil tho it wouldn't of haappppened
@@helloisitmeurlookingfor5898 u must've eaten too much spicy falafel kebab ayesha saleem, it has clogged ur brain
His sister is amazing. The way she said "we talk about..." rather than "I talk to him about..." really got me. What a positive, loving outlook she has on their relationship.
I'm amazed always by the families in these videos. People can be such heroes.
Sister impressed me as well. Smiling from ear to ear, pride for her brother just beaming from her face! And he loves her so much!
Your post is so spot on.
@@caydancebloom thank you both so much! He is my pride and joy always has been and always will be
yes, his sister is so adorable!
She’s such a special girl.
Oh my! 15 minutes underwater?! My heart aches as I imagine the roller coaster of tragedy this family has gone through. And the fact that his body survived drowning is mind blowing - modern medicine can do so much! And what a gift for mom that his brain scan showed clear signs of recognition. Just amazing, and I hope for peace for this family and for Talon.
Completely agree. All the best to these people.
Sometimes modern medicine should not. It’s a tragedy, but is this really a life worth living for him?
@@heyborttheeditor1608 I have to agree, it might be a blessing to the family, but if I had any awareness of life, and was unable to do anything, I’d feel like a complete burden, and I’d rather pass on. But I’m a different person.
@@vanessaaves3271 See, I understand your point. But the problem here is that you cannot ask him.
If someone would know this about you, it would be fine to not keep you alive for your own sake. But if you can't ask the person, you can't really say that they'd rather be dead and you especially can't answer the question for them.
I for my part, would rather live like this than not at all I think.
@Heybort the Editor I get where you're coming from, but I like to believe that his efforts so far prove he wants to keep fighting. Life will never be as it was, but that doesn't mean it can't be fulfilling, full of joy and love. Hopefully someday he'll be able to tell us himself ❤️❤️❤️
I’d love to see a see a second interview with Talon and his family a few years down the line. It sounds like they’re all making progress and working hard, and I’d love to see how they evolve.
Да, и мне хотелось бы пусть все будет хорошо
@Maura_Lee-Corrupt - They are certainly a united and supportive family. That is what they ALL need for each other.
There is definitely still hope. There have been cases of people being totally locked in for 10 or so years before recovering enough to communicate through text to speech and gaining better control of their muscles. He seems to already be recovering function slowly, which from my view is at least good sign. It feels like further recovery and an even better quality of life is at the very least possible.
Yes definitely, there's been people who gradually were able to move and communicate over the years. The book Ghost Boy is written by a man who went through this. It's an amazing story! I believe there's hope.
Yes ghost boy, His book is amazing! Martin Pistorius wrote it himself worth reading
How is his Dad doing? His heart must be broken, such a terrible ACCIDENT. He didnt mean for this to happen. Take care Dad.
@@maedeandeaniewingertparkin3194 i wonder why the dad wasnt on the video? Poor guy..
@@arendariaand the Diving Bell and the Butterfly by Jean-Dominique Bauby
I love love love how Addi doesn’t speak in past tense when describing Talon himself ❤️ he’s still the same mischievous, courageous young man, and she knows that :)
He always will be! He’s always been the strongest boy and he still is :)
I also loved that! Her saying “when we talk” even made me happy.
Agreed
Mom....you are doing a great job. Much love and respect to you.
She does the best job!
@@addi_lopez463
YOU seem/are amazing, TOO!!!!!!! 💗
Thank you so much for posting Talon’s story. I’m a high school teacher who recently discussed Locked-In Syndrome with my Anatomy class and this will be so important for them to see that people with LIS are just as alive and worthy of love!
You are a wonderful teacher! ❤
Before I look into this syndrome, can you school teacher explain what is going on biologically? Worked in labs since 17, so technical speak is appreciated.
Is this due to brain damage, or the treatment to get better, I.e, drugs.
Did you use "The Diving Bell and the Butterfly" as a teaching aid?
@Marquis DeSadie you can just Google that stuff in like one second. Also the video answers your question that yes it's due to a brain injury
@@kelsonl6084 Yes, yes we can all just Google everything...my sister almost drowned until I saved her, and she was never the same.
I watch this channel because I generally run across people who aren't really into googling answers.
Is it wrong to ask?
Just because some of us can ask questions instead, says a lot about your own inability to do so.
Be nice, it doesn't hurt anyone.
To this family. My brother had a traumatic brain injury. We were told he would never regain any semblance of life. He was 30 years old. It took over 2 years but he regained everything. Your boy is so young, his brain is still developing. With enough stimulation and the right kind of stimulation I have no doubt your boy could see vast improvement. I worked every day with my brother. We had no access to any tbi centers. Just wanted to give you hope because I remember fighting for him in the lack of hope from medical professionals. Your boy is so lucky to have a family fighting for him. ❤
His sister really gets him. You can really see him trying to react. I hope with such an understanding family, theyll find a way to communicate
He totally looked like he was trying to react to the fart button. That made me laugh, such an 8 year old boy thing 😂
I feel bad for that kid. Honestly, imagine having basically all of your ability to move and act for yourself being taken away at such a young age. I hope he makes a recovery.
My mom and step dad did everything they could to care for me and ensure a positive living experience and opportunities. This family is giving me those vibes. It's so clear how much Talon Is loved.
It's beyond amazing that your parents didn't give up on you. Do you feel their support and love got you through? Thanks for your comment.
May god bless you all :) Your entire family ❤️❤️.
I implore people to read the true story, The Diving Bell and the Butterfly, by Ronald Harwood. He suffered the same same syndrome, but had control over blinking one eye. The book and film aren’t an easy watch, but it gives you a glimpse into the mind of those struggling with the condition, in a compassionate way, from someone who saw his body as a diving bell, but his soul was truly a butterfly, just like this little dear.
Excellent reference. Truly incredible story and movie. Bless this brave boy 🙏
what do you mean by read the true story?
What is my favorite miracles and a wonderful read. I'm going to go take it out of my bookshelf now
Sorry, one of my favorite miracles talk-to-text doesn't get my accent sometimes. Arthritis, have a hard time typing sometimes
@@kellz6266 there’s a movie and a true story based on another case of locked in syndrome
I hope his father is doing well and still involved. I know as a parent, even with a small accident the weight that you carry is big, when something happens to your child. I pray they’re still connected.
He committed suicide cause he couldn't live with himself after the accident, mainly because he was blamed for it from the family but they don't tell you that.
How do you know that? @@randysalsman6992
@@randysalsman6992no way, you’re lying. I read on his donation page he’s still around.
How would you know that @@randysalsman6992
Reading the video's title was an emotional rollar coaster for me. A child with locked in syndrome makes me so sad, but his family keeps fighting to provide him a good quailty of life motivates me to keep going. I love your channel and the work you both do
Thank you so much
This made my day Thank you for writing this and it also made me cry but in a good way
Sweet, beautiful, Talon. Please don’t rub my leg constantly if I’m ever in this situation.
Thanks for covering anoxic brain injuries!! In my town this highschool cheerleader went to prom and had a severe asthma attack (possibly from the heat and crowdedness of the school gym etc) and tried to run out to her car to get her EpiPen or inhaler I'm not sure which one and collapsed before getting to her car and luckily someone was in the parking lot and called 911 but she was without oxygen for a decent amount of time her throat had closed up and has been on a long road of recovery since about 2019. She can't walk but has finally been able to say a few things and laugh which is good. But it's just crazy how something like asthma attack can effect your whole life. But I didn't know anything about anoxic brain injuries beforehand so it's great you're covering them.
really hope she recovers, awful that happened to her
Asthma attacks are no joke. You feel like your dry drowning and you can pull a muscle among a million other things.
That's horrible. I guess I never knew the severity asthma can have in a person if they don't have their inhaler. That's so terrible to hear.
@@sizzurp8820 one of my classmates died of an asthma attack in the 7th grade. It absolutely devastated our school and church community and happened in front of lots of kids and families at a sporting event. I guess I have always known how serious asthma attacks are because of this but I didn’t realise it wasn’t common knowledge. We definitely need more asthma and oxygen deprivation awareness.
@@blondesense1708 Thank you for sharing. I'm sorry to hear. I always thought people would end up in the hospital if they didn't have access to their inhaler, I didn't know how fast it can happen though. I guess I have been a bit ignorant regarding asthma, I'm glad to know this information now. I didn't know dying from an asthma attack happened as often as it does, so thank you.
Most people who spend 10-15 minutes under water don’t survive. The fact that he survived 10-15 minutes let alone 4 or 5 is amazing. He’s so strong for that and I hope he continues to get better and live life to the fullest
This is the most shocking sbsk I’ve seen. Such a horrific story. Talons mom is so brave and loving. I can see her ptsd from the accident. I hope she’s taking care of herself too. Life can change in a flash. Talon is lucky to have such a strong loving family to support him. I know he feels the love❤️
This broke me down into absolute tears. His family is SO strong and full of love. And I’m sure he knows how loved he is. Seems like such a cool little dude!
I’m trying not to cry!!
@@Shambaga he did before? why did you feel the need to comment?
Idk about everyone else, but I always end up in full sobbing tears everytime I watch any SBSK video, whether it has heavy topics involved or not. Growing up autistic with adhd and then later down the line with CPTSD, anxiety, and depression, my parents were basically devoid of love. So when I watch these videos and I see and feel such fiercely strong and amazing love all these parents have for their kids, I can't help but cry. Not only that, Chris' tender heartedness and extreme empathy moved me from the minute I saw my first SBSK video. I truly believe that the world could become a better place if we could just learn to accept each other and see value in another person's life, just for being alive, and not any "determining" factors. Love this channel so much ❤
Fr dude. This channel gave me feelings of love and acceptance I had a hard time finding in my community.
I relate to you- these videos make me cry a lot too.
This must be where all the beautiful empaths hang out 😉💖
I am blind, and I also get teary-eyed and love SSB SK videos and I think Chris is awesome too!
Amen to this ❤ I fully agree with you! We all are deserving of love and need to lean on one another for support. You're not alone in your cpstd anxiety and depression. I am diagnosed with those disorders aswell and my heart is moved by the families aswell as I too have not received what my parents should have given me throughout my childhood. Love this channel so much. I'm glad Chris found his calling in this. ❤
Being able to talk so naturally to someone who's non-verbal is a real talent
Its not that hard.
My son is nonverbal it's not that difficult.
To be fair it can be very difficult for people who haven’t had the opportunity before. Some people really struggle without response and the to-and-fro of conversation. It can take practice for some people to be comfortable doing so
It's the little things you have to pay attention to
@@SewingMink160somebody woke up on the wrong side of the bed today
As a mom of a spunky 8 year old boy who’s my best friend, (and who also loves farts and Minecraft), this hits me really hard. You guys are incredibly strong and amazing. Talon, you are a beautiful and badass little boy.
I have a 7 & 8 yo who love farts, mine craft, the titanic, and watching weather radars lol they are something!
Talons grandma seems like such an amazing and loving person
I was intubated 2 years ago and not being able to talk and losing my voice was one of the hardest things that has ever happened to me. I pray Talon and his family are able to take baby steps into healing from what happened and that he will regain function over his body.
I've had the opportunity to help a man in his 60's that had locked in symptom after having a stroke. His daughter made a small board with letters and we would communicate by his eyes picking a letter on the board. It took forever to form a sentence. But, I was always grateful he would have conversations with me.
You're a good human being for that. ❤
The best piece of life advice I got after my husband received a traumatic brain injury-Find your new normal and embrace it. I was able to move on when I stopped mourning our old life.
Yes, it's normal to grieve your old life, you wouldn't be human if you didn't, if you just focus on that and how good that was and how bad now is, then you won't notice the good things about now and you will just be miserable.
Even if it isn't a good life change, you don't need to feel down all the time about it. You can still enjoy your life.
Hope Talon's dad knows it's not his fault and he did what he could. As someone who accidentally (non-fatally but badly) hurt another person years ago, I somewhat get the trauma and sense of guilt and anger at yourself over it, but a family member would be even more painful. Hope the guy knows stuff sometimes just happens and all we can do is learn and not be upset with ourselves for those things.
That honestly seems worse to be conscious and unable to move or respond in any way than to just be braindead.
Bless this family. I wonder why the father didn’t speak. I hope he knows it wasn’t his fault. I hope he doesn’t blame himself. 😢😢😢
I was thinking the same thing. I'm sure he probably had PTSD from the accident. I hope he can heal too.
I too was wondering… I thought that maybe the tension between the parent may have driven them to breaking up - one blaming the other… but the go fund me seems to suggest that Jimmy (the father) is just as much involved as the rest of the family.
Jimmy, it’s not your fault!
@@Massiah82looking for drama, he's not broken up. Spare me!!!
I was wondering the same thing.
He probably didnt speak because he either blames himself for it or its just a very sensitive topic to him
oh dear god i can only imagine the guilt the dad probably feels. ugh. my heart hurts for him as much as for Talon. 🖤✊🏾
He committed suicide cause he couldn't live with himself after the accident, mainly because he was blamed for it from the family but they don't tell you that.
@@randysalsman6992I understand the father not being able to live with his remorse. Other people blaming him for something he did is something he needed to get therapy for. People are allowed to hold others accountable. The man had mental health problems that were his responsibility to attend to. The family have a little boy to take care of.
This is clearly a tragedy but also a testament to love. Wishing so much peace for him and his family. May neuroplasticity bring him some additional connection. And if it can’t-his family has his back.
Omg that poor family. How much joy does this kid actually experience now? He can't do anything. Heart breaking.
The case of poor Talon forces us to ask a question: is his life worth living?
None. They’re selfishly keeping him “alive”. Taking him to school is insane and a waste of Taxpayer dollars.
People feel very entitled.
Well, he has shown improvement. Let's hope he continues to do so.
Talon, know that there are so many people praying for you. I pray that one day technology advances enough so that you'll be able to communicate more clearly. Sending you a big hug 💚
Out of all the stories being told on this channel. This one really made me cry to the point of hyperventilating. I worked with many kids with different disabilities and survivors of accidents. He is such a strong sweet handsome boy, I will pray for his family's strength.
Hyperventilating?....
hyperventilating is crazy 😭
Crying to the point of Hyperventilating, over a CZcams video about someone you don't even know. Yeah okay, cause that's a normal thing for someone to do. 🙄
Yes. I worked with many people i did not know and I would leave work crying. You don't know me or anything I have been through. Or the fact that I have a brother that passed from this. Be kind. Dont be a jerk. Have a nice day.
@@randysalsman6992That’s called empathy, some people have it a lot of people don’t!!
As a mother of a baby with brain damage from a stroke at birth I feel for this mother and her baby boy. This boy is so loved and loves his family so much. They are so lucky to have him.
Ģggggggg
Gg
Gģ
I love this family for fighting for Talon.... it must be even harder for him than it is for them, not being able to respond, but obviously hard for everyone... donating, and I truly hope the science continues to grow to provide more healing. The fact that he couldn't even move and now he can open eyes, moving himself, even a little, is hopefully foreshadowing for more good things.
@@aussiefurbymogwaifan6621 Hello, stranger. I hope you are well. What's the difference between the two, aside from semantics? I try and keep abreast of everything my/our community tries to implement, but this one stumps me. I have always referred to myself as non-verbal, although I do also say non-speaking sometimes, and I just can't work out what's wrong with that? I spent some time on The Google, but aside from personal preferences, nothing else came up for me. I could have just been searching for the wrong thing though. I would love to hear your perspective on this, as I'm always trying to update my language - if appropriate. Thanks for your time!
I do know that people can recover from Locked In syndrome. Neurotherapy can do wonders. My friend has locked in syndrome and has greatly improved since starting Neurotherapy. I see a stark difference from her accident two years ago to now. I hope Talon can benefit from Neurotherapy as well. Thank you for sharing his story with us ❤
Talon will make progress. Brain injury requires that we find new pathways around damaged areas and build new bridges. It takes a lot of time and it's exhausting. Sometimes we make strides millimeter by millimeter. Every step forward is a victory.
Talon will get there. I believe in him! As someone who still heals from a TBI, never ever give up, because you just never know when the next big leap of growth will come, but it will come👍🏼💖
We will never give up on Talon and his recovery. Thank you for your genuine encouragement. Others can’t see the strides he has made in the past 2 yrs. ❤️Love ‘every step forward is a victory ❤️!
I feel so bad for this child. How is this a quality of life? I couldn’t imagine.
“Well in general he loves farts” is so great. Sis knows he still has his sense of humor! What a great kid. We’re all rooting for you, Talon! You’ve done a great job just surviving, and the rest of your life is gonna be incredible!
Talon has been so courageous throughout the past 2 1/2 year. And I pray that God continues his plan for Talon.
Loving farts is quite a normal little boy thing! I just say fart or poop and my boys start chuckling lol!!
My heart breaks for Talon’s mom. It is so hard to tell the story of how your child obtained their disability, and it’s a hard story to live with. So hard, and I hope she also knows she isn’t alone. I am sending lots of compassion from one special needs mom to another.
Dear Talon, thank you for choosing life. Thank you for choosing to still be here. You may have changed a little bit but you’re not alone and you’ll never be alone. I don’t know you but I love you, dude!!! 💚💚💚💚💚
I can’t stop crying. He’s got so much love around. Grandma is exploding with love to him
I have so many mixed feelings about this. Would talon want this as his life? This is so sad all the way around. Such a tragedy.
I feel his parents were negligent. Just not a safe environment.
@@Boring_Deboraha child should never be on an ATV. So dangerous. Helmets and seatbelts mean nothing because they are so prone to rollover
I wish there was a push to make this channel into a TV series. It is impossible to say how meaningful the work is from the Team, Families, and Individuals.
Truly beyond the best of us.
I am so sorry that your family is going through this. You all are so strong. I also had locked in syndrome after a massive brainstem stroke at 21, I have significantly recovered and I am now walking and talking after I could only blink my eyes and was given a less than 1% chance of recovery. Anything is possible. Keep believing. Sending all of my love.
I can't even comprehend how awful that day would have been. What a beautiful family.
Countless ATV accidents and death and people still continue using these vehicles especially with children. It's so simple to just not put children in there.
Since he's young I hope he shows more signs of movement through the years.
The only gesture of love Talon deserves to receive is to spare him this life.
Would love a follow up on this family periodically. I’m rooting for talon. I’ve seen some documentaries on people with this. Some people can suddenly start to regain some muscle control. There’s a guy who can speak and use a wheelchair now and has made incredible advancements. Other people who can now speak using speech devices. He’s young. His body and brain is quite literally still developing. I’d say maybe that might give him an advantage even perhaps.
In tears watching this, Talon is so very much loved. He is surrounded by great family and he is so handsome, I send all my love and support to everyone ♡
Hi Talon! I was really excited to watch your video today, I found it very interesting and it helped me understand what your average day is like just a little bit better. It makes me happy to know that you’re surrounded by close family members who love you so so much-believe it or not, that’s not a happiness that every person knows, so you’re very fortunate. Thank you so much for being here and getting the chance to meet you, even if it was only through a video!
@Balaam That is beautifully written Balaam and expresses my feelings also. My thoughts and prayers are with all of you x
I have a brain injury and I can tell you right now he’s the same person and he knows his family are there. He knows he’s cared about it’s so awesome they refused to give up on him.
This was tough to watch without being emotional. That poor little guy. He is so lucky to still be here with his awesome and loving family ❤️🙂
I hope since Talon is so young maybe the brain will heal itself and make new connections over time.
i really, really hope he heals. i am sending all of them such a big hug.
Anyone that has small children and ponds, lakes or swimming pools should watch this! I have known several families that have had tragedies with drowning issues!
Being from louisiana, there is usually at least 5 drowning deaths at my local rivers and lakes yearly. Many children. The worst one I remember was last year when a boy got caught in the river current that was unusually strong that day at a popular swimming hole... 3 men jumped in after him. All four of those poor souls were found a few days later.
That's why I make sure to practice swimming with my kids every summer and remind them frequently to never get into moving water.
@@erinbosch5915 My supervisor drowned when she went into the ocean to save her son. She got into shore and then was swept away in front of her whole family she drowned! She was a lifeguard at that same ocean. You never know! Children can be drawn by a toy or one last jump into the pool! A friend's young son was missing one winter day. The police were called and walked around the house the back yard was fenced in. They asked what was inside the fence and they said a pool but it's covered. They jumped the fence and he had somehow gone on top of the pool cover and fell in. They had to rip the cover off to get to him but he was gone! They kept the gate to the pool locked but he found a space under the fence to crawl under! I worried when we had a pool.
I wish this family the best. I can see Talon looking at anyone who talks to him. He even turned his head towards the end of the video while taking with Chris. He looked like he really enjoyed your conversation with him.
Yes Chris, Talon did try to interact with you he tried to turn to you and I felt him sit taller and show pride with all the positive affirmations you were giving to him. You are a very empathetic man Chris and you and Alyssa are doing a mighty work. Dont underestimate that👏🙏🥰 I heard the emotion in your voice too during this talk with Talon and his wonderful family and hope and pray
that you both get a chance to debrief and refresh your spirits as you need to. Rich blessings to you both❤
I am a para with students with disabilities such as Talons and I have to say this family is doing such a great job handling a very difficult situation.
When she said that the docs wanted them to put him in a home and they said absolutely not, we wont leave him behind...it broke my heart. Im so glad he has such a strong family who not only loves him but also genuinely appreciates him for who he is. I can only imagine how the father feels. This is so sad all around. The way his sister describes him and smiles though...thats true love right there ❤
I hope talon and his dad are ok. It’s not your fault, dad. Accidents happen! Spend all the time you can with Talon and your family.
I’m a nurse and take care of patients that require mechanical ventilation. Similar to Talon. I have the best job in the entire world. To be apart of these special children’s lives is beyond a blessing. I bet Talon is surrounded by an amazing team of nurses, and an even better family.
Talon could not have a more loving family. 💙
It's still so recent and the pain they feel is still so raw. I wish i could take away a bit of it.
I hope Talon's father is ok. 🙏
It’s always so sad when it’s something so preventable. Parents should take this as a sad, but cautionary tale.
This is exactly why the American Academy of Pediatrics advises that children and teens under 16 years old should not ride or drive ATVs. Children under 16 account for 40% of ATV fatalities and accidents in the US. It’s estimated that about 4 kids go to the ER every hour for an ATV-related injury.
I hope this little boy breaks free from this state. He deserves the world.
The sister really makes me smile. I love how her energy supports Talon.
Thank you!!!
i know they’re doing what they feel is best but i really hope they don’t let him stay in that state for too long. having hope is one thing but it’s also important to know when to do what’s best for him.
21:55 Love Talon's head turn and other interactions with Chris throughout their serious talk. He's so strong and so precious! Such a blessed family with the tremendous amount of love they have for each other
All of Talon s family is doing a great job. I think his sister is fantastic : she has that natural positive energy, she can see forward, and embrace her new relation with her brother : great big sis! 👍
I remember hearing a TED talk about people with locked in syndrome being able to control the computer with their mind I really hope that there's a solution like that out there for Talen and I perked up when I heard he was getting speech therapy along with his other therapies. I'd be curious for a follow up because you can really see that he's receptive and taking everything in ! I also liked what the mom said about the world being awkward and you just have to get over it. I let that hold me back too often.
I love hearing his air pump fluctuate to the different situations and questions, this just means he's listening and reacting to what's going on around him.
i was wondering if that’s what it was or if it was normal for him or if he was reacting to the situation, people, discussion, other stimuli, etc. i felt he was communicating and showing reactions.
You are gone in the head get help
it's sad hearing the aunt say he WAS so fun, we WERE best friends, he WAS almost like my kid
He is so young, it’ll get better. The aunt talks about him in the past like if he’s dead. He’s still here. It’s hard but the family needs to stay strong for him. It will get better. Trust that he will improve and he will get more brain functions back. Stay strong.
The past tense thing is very upsetting. I thought he passed away at first because of it.
Even though what happened to him is very sad, it makes me feel so good he has such amazing support and family who will NEVER give up on him❤️
This was a hard one. I have an almost 8 yr old boy and I just can’t even imagine. Incredible strength and love in this family. All the love and hope to Talon and his loved ones. I’ve seen some amazing things with adults with locked in syndrome so I think with the amazing support from his family he can go far!
I’ve noticed something with siblings. No matter how old they are they seem to be so protective and positive. It’s a wonderful thing to see.
What a family! It must be hard knowing Talon and then losing him within himself. However, I hope they are as closely knit as they seem, supporting each other and together supporting Talon. I wish them courage and strength and immerse amounts of love...
The last speech from Chris talking to him directly was emotional.
As a Parent & Grandparent, My Heart Hurts So Immensely for Talon & His Entire Family But At the Very Same time, My Heart is Bursting with Pride at The Love, Care & Compassion they have for Talon & Hold Themselves with such Courage and Dignity!
We Love & Support You & Your Family Talon!
I Pray for Medical advancement that can Help People, Come out of Their 'Prison' with Locked in Syndrome!!!
If you believe in prayers, I will send you a million right now! God bless you Talon and your whole family. Sending love and hugs too!! Thank you Chris for sharing Talon's journey with us!! Thank you to Talon's family for all you are doing for Talon!
Amen 💜🙏💜
I pray that maybe he can overcome this and be able to move more as he gets older-- I understand it may not be possible with locked-in syndrome. I'm praying for you Talon, you are such a strong kid.
This might be the hardest episode I've watched 😓
Sending love to this family
His family has a lot of strength. I feel the pain his mother has dealt with. I wish him the best life he can. It’s an impossible situation because you don’t really know if he wants to live in this vegetative state but you want to keep him alive. Very hard life for him.
love the grandma! and mom is doing an awesome job. what a loving family. Blessings to you-
Sometimes people have spontaneous recovery with this syndrome
I am praying that he comes out of the shell today!!
The power of faith and love is amazing. Prayers of strength and healing to the family and continued improvement for Talon. 🙏🙏🙏
Sending love to you Talon and your family. They truly love you. 💚
I hope that he may one day be able to make more and more recovery from this. Healing to him and his entire family…
Thank you Chris for showing these beautiful precious youth.
The final part where she’s singing to him is heartbreaking and sweet.
I pray with him and sing to him every night. It heals my broken heart when he opens his eyes responding to my voice.
@@janeylewis774"praying?" Just nonsense of course
I'm sad for his dad too. Not mentioned, but he must hurt so much. Prayers for him too
It’s absolutely amazing that he lived through all of that.
The Aunt kept saying, he WAS... it's not was...he's still alive ❤
It's great that he's already been showing improvements and y'all have been able to access therapies for him! The ability of the human body and brain to heal itself is remarkable, especially for kids! Best of luck to this sweet family! 🙏❤
little bro is locked in
As a mother, this was very emotional to look into another mothers reality. Your such a strong mother and family. And Talon is so strong, and knows he is home with his loving family 💚💚💚When family's and individuals share their stories on this channel it helps so many others who are going through the same thing and to help educate those who are hearing about conditions for the first time or may have only known very little.
What a strong child and family. This is one of those accidents that feels unreal because it’s so unfair, nobody deserves this. I feel so sorry for them. I hope Talon and his family never gives up. He will always be loved and cared for throughout all of the hardships. What a terrible accident. It will forever affect them, and it’s so unfair. But they are so strong. They help each other and thats beautiful. They just show how much love and strength can exist inside a single person. They’re all shining bright with love and strength, I wish I could be their friends❤️
Give this family the strength and the courage to move forward each day,and the power of love carry them through. ❤❤❤❤ l believe in miracles,and this little fella will have his!❤❤
Oh my goodness this is so sad. My baby brother died from drowning at 2 and a half yrs old. This is tragic. What can u do but love him till he goes to heaven
We are sorry to hear about your loss. Thank you for sharing it.
I let out an audible whimper and had to stop watching when she mentioned the accident and how he wasn't always this way. Parenthood has changed me.
Blessings to Talon, to his loving family, and to the owners of this important channel.