GERD/esophagitis/bad taste in mouth/vocal fatigue: My Confusing Experiences
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- čas přidán 6. 09. 2024
- Hey everyone, sorry this is so long. I even left out a lot of details.
So this is a summary of the past two years of my experience since several doctors diagnosed me with GERD, Pantoprazole messed me up, then they undiagnosed me, then diagnosed me with hypersensitivity, and etc, etc, etc. It's a long and confusing experience and I think this video may be useful to some out there.
I watched tons of youtube videos trying to find people with my symptoms and looking for advice, so I figured I would try it.
Please comment and let me know if you have any questions. Sorry this is so long.
Some links referred to in the video:
databankws.lar...
/ @lizbills
/ @healthyvoicetips
/ ericarceneaux
I am going through the same exact thing as you. This has been happening to me for 3 going on 4 years now and I get no relief. Diet, PPI's, etc. does not work. My throat and upper stomach are inflamed, it's hard to swallow, metallic taste in the back of my mouth all the time, I burp a lot (even when drinking water) and get nausea. I've had 3 endoscopies, all see inflammation and mild gastritis and had the bravo done with one of the endoscopies and they noted like you normal acid production. Some spans of days I can tolerate it, but during a random "flare up" it can last multiple days and even a week where it's debilitating. I've tried pretty much everything and have no idea what to do next. Now my doctor want's to try a low dose SSRI thinking it could be esophageal hypersensitivity. I've read on Reddit that it seems GERD/Reflux symptoms seem to match this diagnosis but I'm not sure how that could be the case if I'm getting a strange metallic taste in the back of my throat and my upper stomach and throat are inflamed. I can't believe I found this video and everything you said hit very close to home because it's so similar to what I'm experiencing other than the voice issue.
I have been felling all of this since May, but I also feel Dizziness, Shortness of Breath, Continuous Sinus Infections... Can't talk much without loosing my voice. I tried doctors in Brazil (all kinds), and now I moved to Canada and I can tell you. Doctors are just useless everywhere, we're by ourselves.
Yo wtf I have the same thing, stage 4 oesophagitis, and ive been having sinus issues and shortness of breath too, did you find any answers!?
@@ett_baer still looking forward to find these answers. Doctors are useless
Oh wow. Can't offer any solutions that have worked for me unfortunately :( but just wanted to say that I can totally relate and commiserate w/ you in your struggles. I've been dealing with a mystery throat condition since like March or April of 2020. My symptoms aren't quite the same -- I don't have a bad taste in my mouth, and my voice is mostly normal, but I have an almost constant discomfort in my throat that feels like a burning kind of itch/irritation. Regardless of what I eat, how I sleep, it's always there, though it can vary from somewhat mild to really uncomfortable and distracting. Feels like I'm swallowing/tasting more mucus too. Lotta fun.
Literally went through so many of the same steps as you -- looked at reddit, tried PPIs + H2 for a month, Gaviscon Advance for a couple weeks, gabapentin, allergies, diets. Did the endoscopy, barium swallow, 24 hour monitoring, swallow study, pepsin saliva test, everything. I've even had the giant google doc sheet of symptoms lol, though I haven't kept up with it in a while. Some tests have been borderline -- some esophagitis, gastritis, and one of the pepsin samples was positive. But nothing with big 'THIS IS THE ANSWER' sirens.
Have been to several doctors, might try another endscopy soon. I've been prescribed anxiety meds and amitriptyline to try, but I'm almost scared to try them because I feel like they won't work either and it sucks to cross off another potential solution.
I've been looking into other potential health concerns, since other health issues have cropped up as well, and I have no clue if they relate or not. But in any case, hang in there! I really, really hope we can find some relief soon.
Thanks. I appreciate the comment. It's somewhat comforting knowing others have been going through this. Recently two doctors I saw disagreed with each other about my condition, and I really don't know who to believe. It's so confusing.
Update: Been REALLY bad the past few months. If anyone can help me, I am begging for any sort of answers. I don't know what to do anymore.
Well, most of this is addressed in the video. If you want a shortcut: none of the things you suggest are the answer. Been there, done that.
I've done everything you said in your comment, some simultaneously. Many of the things you listed actually made my condition worse.
Gabapentin is absolutely 100% not an option for me.
@@jordancooperlalala same boat. It's been 5 years
It sounds like this has been a frustrating time for you. I have had a similar problem with my throat since the end of 2018. It really began when I took Pantoprazole for 2 weeks then stopped. I got rebound acid hypersecretion (RAHS) which burnt my throat and the first indication was a cricopharyngeal spasm which freaked me out during holidays on a Greek island. I thought I was having an alergic reaciton and vomitted which burnt my throat more. What has followed for the last 4 years is a terrible condition known as Globus Pharyngeus, the sensation of a lump in my throat. I have good and bad days, it's on a scale of 1 to 10. For the first few months it was like 10/10. I ended up having to go back on Pantoprazole and take it twice a day now for 4 years. I guess it helps control the acid which causes the globus. I believe I have LPR, both LPR and globus need to be treated agressivly with PPI's, not standard once a day dosing. I think my throat has become hypersensitive now, even resting tight earphones around my neck makes me feel uncomfortable. Expresso coffee seems to sometimes make it worse and escalates my anxiety. I had pretty bad health anxiety before this but this globus made it 100x worse so I started mirtzapine whcih has been great but then made me fat lol. Anyway I have no cure yet but I manage it to have more good days than bad and most days its a 1/10 now. If my globus is bad, then my voice can get raspy. Globus I believe is caused by the UES spasming. I think my LES isn't tight enough so lets acid backflow up to my throat causing the UES to tighten in response to protect the airways.. Anyway I didn't watch all your video because it was too long but I wondered if your problem was also globus? 4 years of thinking about my throat every day seems to have made it more sensitive to everything now, it always feels a little sore or uncomfortable.
I feel you, I have been struggling for years now. Don't drink coffee. take it very serious and avoid all spicy foods, sugars, alchohol citrus etc. this will only irritate your inflamed oesophagus more. My condition have just been getting worse year by year as I have just wrote in a comment to this video, and I eat perfectly clean and only drink water. this condition is a true nightmare, I hope you are doing better.
@@TjoneNormall I made a big breakthrough that eating dark chocolate was causing my reflux. I found a paper showing that theobromine in the chocolate causes a 45% reduction in LES pressure for a sustained period, many hours. After giving up chocolate I had no globus for 9 days until I ate a fatty meal (also relaxes LES). I was then able to get off the PPI's over 6 months that I had been on for the last 6 years. Now I've been off the PPI for 3 months. I have a theory the PPI is causing some of the issues and waiting until 6 months pass for the stomach cells to reset. I still get globus but its 95% better and a lot of days without it. It's also possible because I had globus and persistent reflux for 6 years I have caused some damage.
I would enjoy seeing more of these kinds of videos
Maybe. Any ideas? On the same topic or other topics? My throat has gotten a lot worse since recording it, and not only do I not want to make a video complaining about it, I think it may hurt my voice more to do this sort of thing.
Hi Jordan, I came here from Reddit after reading your post and I have been massively struggling with "painful" and various throat issues for 13 months as of today. It is UNBEARABLE and the discomfort manifests itself in various forms "every single day" since last year. I haven't watched your video entirely, only watched the first 1/3 part through the middle which is really long, but I will watch. I just would like to ask, what are your EXACT throat symptoms and are they painful especially during swallowing your saliva? I had many tests and visited plenty of doctors and they could do nothing. My story is a bit long and confusing, so I just wondered your symptoms and your current throat situation. How are you doing now? Hope we sort it out. Best Regards.
I am better now, but a lot of that is mentally accepting things rather than constantly fighting my situation. My symptoms were all over the place and changed all the time. I guess the most common, and what still happens is like this slight burning feeling, the feeling when you wear out your voice as if you've been screaming all night at a concert, but obviously, that is not what I am doing. Just a sore throat feeling. I didn't have swallowing issues, and "pain" would only be the appropriate word once in a while, probably at the worst few months of my situation, it would actually be like "OW my throat HURTS." But normally just a kind of hot, burning, inflamed feeling.
@@jordancooperlalalahave you done a complete micronutrient panel. Just being deficient in one B Vitamin can inflame the vagus nerve which at the end of the day, is what this is, and if you are deficient you would need high doses of the vitamin to heal.
I've had the exact same situation after 2 days on PPI. Completely caused GERD where I've never ever had it before. Drs have no concept of this. Lost my voice completely for going on a month. How long did it take for your voice to come back? And how are you doing now?
how are you doing today?
I have been struggling for many years with similar issues, but I Amin a much worse condition. I am 31 and can barely get through the day at this moment. It take me almost 3 hours to eat 1 meal, and I have to zip water with every bite, using close to 3 liters for 1 meal. I have almost no voice, I can speak with low volume for about 40-60 min. 1-2 per week. I am doing so much regarding diet and lifestyle. I don't get reflux anymore, but it is like I am damaging my throat and oesophagus more during the day by eating, and not healing enough during the night, my sleep is also horrible due to pain and muscle tensions. If every meal goes well for months it gets a little bit better, but if I accidentally swallow a small piece of food It gets me way worse, and the progress I made the last months are wasted. I am really scared for my life to be honest. I have done everything I could possibly do for the last years, and I just keep getting setbacks and getting nowhere. I am really starting to loose hope
This sounds extremely worse than what I had. I'd urge you to see a doctor, and try seeing a voice specialist like I did.
@@jordancooperlalala I have seen soo many doctors. 2 years I did nothing but going to different doctors and getting tests done. All the test just made me worse, and showed nothing but a damaged- and inflamed oesophagus. They prescribe me strong PPIs which I took for many months, and they just made me worse, and gave me even worse digestion problems. I am of meds and have been for some time, and my digestion is better, no reflux, but the condition is so bad in my oesophagus that it feels impossible to get well. it is extremely hard
Make the same video but maybe explain what’s going on now I seen you were talking about all this and saying it’s very bad a month ago the scary thing is I’m only 19 and I am going through everything your going through with no cure in sight
Nothing much new is going on now. Still trying more doctors, still trying more kinds of vocal therapy, still getting nowhere.
@@jordancooperlalala what tests have you done ph study bravo manometry etc I know u had your endoscopy which same here chronic burning sore throat esophagitis they just throw ppis at me but my issue is that for me the ppis didn’t even help like they do for some people so other than surgery which won’t help like what else is there out there l
It's all in the video. I had a BRAVO.
Awesome video dude! You need to get your hernia fixed thats the only one been going through the exact same thing
Hey thanks. I had asked one of the gastro doctors about that, but he said because my BRAVO test showed no abnormal acid, I would not be a candidate for surgery. And to be honest, I read so many horror stories about that surgery that it really scared me. What is your experience with it?
@@jordancooperlalala oh same here, i have a hiatal hernia and been living with acid reflux for 3 years. My gastroenterolgist and my Dr said that my hernia was "too small" for surgery. So know im left to try to watch my diet just like you I guess
As I say in the video, I do not watch my diet. Because I had the same problem on a low acid diet (for three months) so diet has nothing to do with it, as far as I can tell. My hiatal hernia was said to be 2cm, and according to everything I googled, 2cm is considered small and not necessary for surgery (and apparently its extremely common too.) So I really have no idea what to do, because I have no idea what is causing my problem, and doctors disagree with each other.
@@jordancooperlalala same here man, just like you ive tried EVERYthing. Im trying probiotic now, we'll see how that goes. But yeah, ive been dealing with the same thing for years
Ok, so probiotics are strange, but my experience is, many times they have worked wonders for my digestion and IBS problems, but it only lasts for a short time (sometimes a few days, most recently probiotics helped me for almost an entire month.) Then it always stops working and I have to stop taking them for a while. Then maybe try again in another month or two. However, probiotics have done absolutely nothing for me in terms of my throat problems.
Assuming you're still doing shitty, I'm in the same boat for 2 years now. I'm on the PPIs but they're shit, completely crushing pains in my chest from esophagitis and I've been on omeprazole like clockwork.
Neat find.
+1 and I'm suprised this is your first video on camera, but your voice sounds like a podcast or audiobook,great at telling your experiences
@@abdinajibmohamud Thank you, I do in fact have a podcast, czcams.com/users/DontLetsStartvideos
can you make a video on anxiety it would be very helpful as i share lots of these same issues, thanks
Did you have any post nasal drip?
No memory if I mentioned this in the video or not. Yes, I do. Doctors always tell me that.
Have you cats tried the IQORO for this?
It's not possible you actually have low stomach acid is it? I saw your post where you said low acid diets and PPIs made it worse. I think low acid causes similar symptoms to high acid, so it made me wonder. I hope you find answers.
I have lpr. I just switched to Tyler's coffee and it's helping so far. You might Google if you're a coffee addict like me
Oh sorry. I see u explained low acid further in the video. Funny about the candida. I thought that at first too and actually tested positive on a swab but it wasn't candida after all. Was lpr. My dad had hiatal hernia/barretts esophageus so my anxiety is through the roof. Don't see ent for another week.
I talked about this in the video. I tried doing the low stomach acid thing and made my insides burn.
...right, it could bery well be the antihistamine making you better, with the M.C.A.S . Sounds like you could even have some thing going on at your place setting you off. Just you moving away on the road trip, not being exposed to an allergen could be helping you.
Yes I wondered this too. We may move out of the city soon and I have been wondering what may happen to my symptoms. Will they get worse, better? They are changing every day and I still can't figure out a pattern. I'll have a great day and a really bad day and there's just no reason.
@@jordancooperlalala go and buy some fexofenadine and try it for a few days.
It's cheap, can buy from Walmart or anywhere, and near no side effects
@@BrandonGreenShow I get too many side effects from antihistamines so I avoid them when I can.
@@jordancooperlalala there's heaps of them, look into the 2nd generation ones. You Americans live your 1st Gen ones too much. You can't even get some of them elsewhere because of the side effects.
Look up 1st and 2nd gen antihistamines. You would have been doing 1st gen. They are not alike at all, hence the 2nd gen title.
The traditional ones make me so sleepy .
Question everything man. The more we question, the more we learn.
and you can try taking 1/10th a tablet.
@@jordancooperlalala also, one final but important thing.
You need to get checked for upper and lower cross syndrome. Fixing this can help line it up and can be night and day differences.
You can start by doing stretches for the syndromes you find on CZcams.
And remember to stretch the Psoas.
Your video is way too long. Let me ask you a few questions:
1) Have you been diagnosed? Is it LPR?
2) Have you read Dr. Jamie Koufman's book, blog, and studies?
3) Have you tried Dr. Koufman's reflux detox?
4) Do you or did you have acid reflux?
5) Have you learned about Nissen Fundoplication? Have you talked to a gastroenterologist about it?
I made the video so that these questions were answered already before anyone commented...much of this is addressed in the video.
I haven't read Koufman's book. I've read a few books. None of them helped me.
My GI told me I am not a candidate for the surgery.
@@jordancooperlalala I trust Dr. Jamie Koufman. Everything she says resonated with me. You can watch her videos on CZcams.
@@m.l.8258 All of these diets feel like such bullshit.
I have answers! If you can't see my comment, reach out to me.
I'm kind of better but kind of the same. Hard to explain.
Hey what do u mean with answers? I have the same problem as him
I'm no longer seeing my detailed response... if Jordan can please copy & paste my response to him to you@@tosexe2535
It's almost like I'm watching me when I watch this video. Been suffering for 5 years now. Let me know if you wanna chat.
Sorry to hear that. I've had a few other theories about why my throat seemed to get better on my road trip. I also took this CVS pill most nights to sleep, Nighttime sleep-Aid, it contains Diphenhydramine HCI, 25 mgs. It's basically Benadryl. I wonder if it helped my allergies and my throat congestion? I don't know. It unfortunately has sexual side effects and it's apparently unsafe to take long term (can lead to dementia and other side effects.)
@@jordancooperlalala I really think it's all mental. Have you ever read about TMS before? I'm not the woo woo type but it really is something that helps me.
@@jordancooperlalala Do you gargle with and Neti pot with 9+ pH water? Morning and night.
@@jordancooperlalala also you should try ssri again. Start suuuuper slow. I'm very sensitive as well. If I start at the lowest dose it feels like a bomb went off in my head. I start off by cutting pills into quarters and working myself up.
It's partly mental. I talk about that in the video. But it's not all mental. I've tried meditation, etc. I thought I talked about that too but maybe not.
Ha, I'm half way in and your story is very similar to mine.
Of course you can have antibiotics if you need them.
Heaps of people have c diff in their stool, but at a controlled level. They get overgrowth of it from antibiotics, and it's some more than others, there's a list. Also, does he knows what else causes it to overgrow, PPI's and reduced stomach acid! Ha
And yes, it's like they go to university and are taught that they know everything ever possible, so their curiosity is somehow inactive or some shit... its fucking beyond odd.
If you go to my website and read about my light allergy, you'll be like WTF... and all the dr could say was "are you sure your noy making this up?" Or sorry, I dobt know what you expect me to do about it?"
Ha. I even had 2 doctors tell me yesterday to get the vaccine because Covid could kill me.. and they had it last week despite being 3x vaxxed... clearly those vaxxes aren't doing anything, or if they are, it's hard to convince me. But theyre fully convinced, somehow... They just forget the side effects too... theyre simple people. I have 4 friends
On heart drugs from the bastard vaccines.
MCAS could even be causing yours. And back to the doctor that said anxiety, it could be that but I doubt he'd even know how to explain that it could be that...
Please try giving your gooch a massage... see if these muscles, as well as your psoas is tight...
Please don't ignore what I've just written. Find some of these videos on CZcams and report back.
I have had a bit of immediate release from manipulation of these regions before. Even accupunctire cause my stomach to feel lower.
Yeah about the anxiety thing. I have been doing breath practices and Yoga and massage practices (see channel Liz Bills for the yoga video) but I have no idea if they help. In the moment they certainly feel like they are helping but only a short time later I'm back to how I was. So I just have no idea if they are worth doing or not. It's extremely confusing.
I really don't want vaccine conspiracy talk on my channel, but out of respect I won't delete your comment. The vaccines don't stop someone from getting COVID but they reduce the symptoms by a huge amount for most people. The side effects of any vaccine are rare and can be bad, but they are not as bad or common as the effects of COVID, which can be debilitating or life threatening or long-lasting (I have a friend whose sense of taste is still affected several months later.) Are the vaccines perfect, I don't know, but they seem to have led to life getting back to normal for a lot of people so I'm appreciative. As for myself, my condition started a long time before the pandemic so I don't see how vaccines would have anything to do with anything here.
I'm not interested in getting into a debate (even a friendly one) about this on my channel, as I am not an expert, and I think convincing people not to take the vaccine could be potentially dangerous, so I will not be replying again about this specific topic. But thanks for watching my video and commenting. I really do appreciate it.