What medications give the best bang for your buck for CIRS (Chronic Inflammatory Response Syndrome)?
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- čas přidán 28. 02. 2023
- There are a few very important medications, supplements and modalities to take/try in your CIRS healing journey. We break down some of the more important ones (and less important ones) to help you determine which could make the biggest impact for you. For more information, visit TheCIRSGroup.com
TIME STAMPS:
0:28 What medication has really mattered the most? Spoiler, its the correct binders
1:50 Removing yourself from exposure
4:16 Cholestyramine vs Welchol
7:15 High Dose Fish Oil / Lipid Replacement
9:43 EDTA/BEG spray
10:18 Cromolyn and Low Dose Naltrexone
12:20 Somatic Therapies / Limbic Retraining / Book Recommendations
16:47 What is the right choice? Spoiler: there isn’t one, just go for it
17:50 Barbara’s one CIRS treatment regret
Link to books and modalities recommended:
The Body Keeps the Score: a.co/d/8e0xSFV
The Joy Plan: a.co/d/0UbV92V
Interesting podcast episode on DNRS: chriskresser.com/how-to-rewir...
The Gupta Program: www.guptaprogram.com/
(none of these links are affiliate links, we are not associated with these entities)
Jacie is a 3 year carnivore, certified nutrition coach, and carnivore recipe developer determined to share the life changing information of carnivore and CIRS to anyone who will listen. Barbara is a wealth and wellness coach, 2 year carnivore and a big fan of health and freedom. Together, they co-founded The CIRS Group, an online support community to help people that are struggling with their CIRS diagnosis and treatment.
Catch Jacie and Barbara on Judy Cho's podcast to learn more about their health journeys and why they started The CIRS Group: When Carnivores are Affected by Mold Illness - Jacie Gregory & Barbara Williams - • When Carnivores are Af...
Dr. Shoemaker highly advises against any type of physical activity until you have reached are certain level in your treatment and even then he has a protocol to ease back into physical activity. He states it will hurt your healing process you are active. I get his mailing list and it was one of his main topics about 6 weeks ago. Which made complete sense why I feel like crap for weeks after doingsomething as simple as cleaning out my garage and moving boxes.
Ugh yes! Such a common experience for CIRS peeps!
Cholestyramine can be compounded into capsules. I believe this removes the need for brushing your teeth afterward.
Yes! It can be expensive but totally worth it if you can afford it!
Before I was diagnosed, some of my symptoms got progressively worse over the past six months or so. Just a couple days ago, I finally realized that I had been spending several hours at the library 2 days a week. Just sent back my ERMI kit.
Ooof! I’m glad you were able to connect those dots
Most of the downstream effects are from low MSH due to Marcons, so I’d say the BEG spray is equally as important as the binder.
Marcons definitely suppresses MSH! Great point!
Ran into an old friend over the weekend. She is totally into DNRS. She said Gupta didn't work for her, but I like that it has a money back guarantee. She said she'd help coach me through DNRS if I needed it.
12-18 months is so unrelateable for so many people ive talked to. Specifically people who have had CFS for many years. Shoemaker warned of cirs patients developing "irreversible chrinic fatigue syndrome" in his early books, so theres definitely something different or extra going on in my subgroup. I have gotten a decent amount better since starting in 2021 but nothing dramatic. VCS still positive.
Have you looked into Lyme? It seems like a lot of people who aren’t fully recovering from the protocol are reacting to actinos/Lyme/spike protein so they haven’t really cleared the first step “remove exposure” yet. Another lever to pull, for sure!
I do OmegaBrite fish oil. You have to order online, and it's pricey, but I am happy with it. Cromolyn was huge for me. I had a bad red splotchy rash on my face & neck.
I’m not familiar with Omabright, we’ll have to look it up!
Thank you ladies for another great episode!
Thanks for watching!
You can use raw eggs instead of binders, they make you detox through reverse cholesterol transport (RCT).
I haven't tried cholestyramine but eggs are infinitely more effective then charcoal and zeolite for mold detox. Absolutely no comparison
I haven't seen the research on that. If you can share, we'd love to take a look!
Thanks for sharing
Love you guys and your knowledge
I personally have had zero problems with colestyramine
Welchol was causing my high blood pressure to increase even more
I'm still in a bit of exposure (8 hours weekly total)
that cannot be helped due to watching a seasonal sport my son plays but it's almost to the end of the season
Luckily, I have still been able to notice quite a bit of improvement but in the next couple weeks, I should start noticing much more healing!!!
Amazing! I cannot wait for you to be out of that exposure!
Make a video on VIP when you can please thank you :)
Oooh great suggestion!!
@@thecirsgroup Do people still have brain inflammation before VIP? This is a good question to address, such as it being a requirement for some like me 4-3-53 to shut down the inflammation with VIP being required.
Thank you guys so much for these videos. I have really bad CIRS. I did a hertsmi-2 and it came back as 36! I have massive brain fog. I got the cholestyromine binder but I haven’t started it yet because I am already having bad constipation. I have been taking magnesium citrate but it’s not working well. Any advise to get my stools going more?
Citrate is not great... citric acid is commercially produced using black mold. I personally prefer mag chloride but check with your doctor! - Jacie
Oh and also, I do not even brush my teeth after each dose
I have had no trouble with that either (that I am aware of at least)
Help me prove a theory - do you eat dairy?
Basically it’s
Remove from exposure
Normalize VCS on Binders
Remove Marcons
Long term 6-12 VIP use, should improve blood markers and shut down brain inflammation raising MSH.
Does this sound correct?
You got it! There are 8 other steps that are indicated by symptoms and bloodwork, but these 4 steps are what almost everyone has to complete!
@@thecirsgroup If you guys need someone to speak with you on your podcast I would love to share my journey. And help others.
VIP?
How long did it take for you guys to see improvement from the phospholipids?
Providers typically recommend starting them 4 weeks before starting binders!
Thanks for the info ❤🙏 Can a person DIY this protocol? I don't have insurance and, due to CIRS I'm unable to work. I wonder what folks do who are in my situation in order to heal?
The binders and vip are prescriptions and bloodwork should be monitored by a doctor! I had to pace treatment to what I could afford but pursuing what you can when you can will get you to root cause healing!
@@thecirsgroup thank you, and of course that makes sense; can treatment be done remotely?
@@cocoazen Yes! Many CIRS practitioners see patients via telehealth
@@thecirsgroupcan you recommend any telehealth options? 😊
Did you both take Welchol or the generic Colesevelam? Are they equally effective?
Yes, colesevalem, and yes, it is as effective!
you mentioned: 12-18 months for treatment - is that for the protocol or for the binders?
That timeline is for the full protocol... everyone is a different though! That just seems typical.
How much & how do you take Welcal or Cholostyramine? With food? away?
Definitely talk to your provider about appropriate dosing and timing!
Well, you should definitely seek out a Shoemaker certified practitioner with a lot of experience in treating CIRS to guide you and your dosing. This is not medical advice. Generally, people are instructed to take the binder 20-30 minutes before consuming at least 7g of fat. This can be a whole meal, or just some butter or oil. In all cases, you start slow (1/16 of a scoop of CSM for instance, or just one pill a day of welchol) and very slowly titrate up over time. Again, this is why working with a practitioner is best - you want them to guide you through that process and avoid side effects as much as possible.
what does "not tolerating" the cholestyramine? symptoms ramp up?
It can manifest in a lot of different ways. For some, extreme fatigue, nausea, headaches, lack of appetite, and constipation are common. If you can tolerate those side effects, you can push through and they should subside in a couple weeks. If your mold/reaction symptoms get worse, that would be whatever you're already dealing with but worse: joint pain, GI distress, headaches, etc. - its possible you are still in exposure and need to double check your environment before continuing the medication. Your CIRS doctor should be able to guide you through that process either way.
Is there a different between Welchol and the generic form of it…there was a big difference in price.
Not that we're aware... Jacie and I both took the generic version. There may be worse fillers in one or both - so if you react badly to one, I would try the other before giving up or switching to CSM.
Whenever I try the cholestyramine, I have tightness in my stomach & upper chest. Maybe it’s acid reflux? . I’m just wondering, does that go away? Do I need to try less?
Im having a lot of inflammation and pain in my body as one of my main symptoms and I’m hoping it will take that away. I wonder how long I have to wait before I see results ?
Definitely talk to your provider about any symptoms you are experiencing!
I definitely encourage you to speak with your doctor about it, as we cannot provide medical advice. It's possible you are going too fast on the dose, so backing down is an option. The other possibility is that you are still in exposure, so any amount of the binder may be difficult to tolerate.
What brand and dose of phosphatidylcholine do you use? Thank you
Body bio is the brand I (Jacie) used and the bottle says something dumb like 1.375 teaspoons. I just did a teaspoon am and pm
Quicksilver PC
what about an anti-fungal like itraconazole
There is some research that shows anti-fungals are TERRIBLE for people with CIRS because they actually speed up brain atrophy. Check out our episode with Dr. Dorninger - he talks a little about that.
LDN took my brain inflammation and made it 10x worse unfortunately.
I am sorry you had that experience. So many people love it, goes to show how bioindividual we are!
How can i find a cirs certified practitioner?
Shoemaker certified practitioners can be found at survivingmold.com