My Acoustic Neuroma Experience - Part 1 - The Hospital
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- čas přidán 6. 10. 2014
- Prior to going into surgery for an acoustic neuroma, I attempted to find something on the Internet which explained the human side of recovery but found very little on the topic. What I did find was a bit disheartening, so I wanted to provide some feedback on my experiences both in the hospital and during my recovery at home.
This video explains my stay in the hospital and what someone might expect while recovering from an acoustic neuroma (aka Vestibular schwannoma) operation. - Věda a technologie
Awesome video, and thanks for sharing your experience. I was diagnosed with an acoustic neuroma in September of last year and also had the surgery in the same month. My symptoms were deafness in my left ear, facial tingling and balancing issues. The surgery was around 10hrs. I stayed in the hospital for 3weeks and 2weeks in rehab. I had to learn to walk again, and my balance is still an issue(I still walk with a cane),I have partial left side facial paralysis (but the ENT said it should come back, and lately it’s been a twitch and tingling feeling), I had to have a weight installed in my eyelid because my eye wasn’t shutting fully (I have constant dry eye). No one told me that I would have light sensitivity, I can’t go out without sunshades. But all in all I’ve improved a lot and I’m great full for being here. I also forgot to mention that the surgeons removed 90% of the tumor and the other 10% I had treated with gamma knife radiation in January of this year. I have a question, did you experience tightness in your head and tenderness near the surgical site for a while after your surgery? It’s been 8 months since my surgery and I still experience the tightness and slight tenderness. I’m kind of scared about because this experience has me on edge for every little thing. I take my next MRI in August to see how things are going. I’m nervous but I’m striving to be optimistic. For everyone that’s experienced this and has made it I commend you
My issues started with an ear infection 3 years ago. I have vertigo, muffled hearing, fullness/clogged ear only in right ear. I'm hoping mine is not an acoustic neuroma. MRI is coming up soon to check. My sister had brain cancer and really can not even imagine having to go through what she did. Thank you for sharing.
Howd it turn out?
@@blainj5687 My MRI was all clear.
hello, question. hope you reply. is your surgery went at the back of your head? thank you
Great video! Hi, I was just recently diagnosed with an Acoustic Neuroma. I have some questions for you. What size was your tumor and what approach did they do? How long have you been using a cell phone? Did you have ringing in your ear?
Greetings! I'm sorry to hear about your Acoustic Neuroma, however I'm happy to answer any questions that you may have. My tumor, at its largest size, was 24mm. Given the size and location, my only option was to have surgery. I did have ringing in my ear, and it had been ongoing for some time. As far as the cell phone question, the tumor started before I ever owned a cell phone.
Thanks!
@@EdEngelkingII what was your initial symptoms?
What was your initial symptoms?
sagar thurwal I started noticing deafness in my left ear.
So I know this was 2 years ago, but I was told by an urgent care doctor that theres a possibility that I may also have an acoustic neuroma because I have been having really bad vertigo/balance issues, for about 2 years now. I've set up an appointment with an ENT but I've been doing a lot of research. I'm wondering if you were experiencing a fullness feeling in your ear, or extreme dizziness. I havent noticed a major hearing issue, just a really annoying ringing, buzzing or almost like a vibration. Balance is my biggest complaint, and migraines.
I didn't have much of a balance issue until a week or two prior to my surgery. But when it hit, it took me out hard. I could barely walk and had to have people help me get from place to place.
As far as my ear feeling full, to be honest I don't remember. But my hearing loss was also pretty dramatic and sudden.
The ringing may be a good indicator of an issue, especially if it's only in one ear and continuous. The ENT will most likely send you to get an MRI, and if there's an issue, they should be able to spot it almost immediately. They may also send you to an audiologist for a hearing test.
I wish you the best of luck, regardless of what happens. You'll make it through this!
Thank you! I'm hoping to get some answers next week!
@@rachaelobryan2411 i have all those symptoms that you have mentioned. I have a an acoustic neuroma aswell at 4cm. I will be going for my surgery next week. I would gladly keep you updated on how i feel post surgery if that helps you aswell.
i have all the same issues as you as well...i go for my MRI today
@@beccaredcay8500 I hope your visit went well!