What Causes Fibromyalgia?
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- čas přidán 5. 07. 2024
- What causes Fibromyalgia?
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What is the underlying cause of Fibromyalgia is a question we get asked all the time. In this video we will share what we find in a clinical setting as well as what the lab work reveals in patient after patient.
If you want to recover from Fibromyalgia this information is a must!
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I'm in south africa and none of that was explained to me, I was diagnosed with Fibromyalgia. For years I was called a hypochondriac 😢😢😢 I have it really bad, I have an hormonal imbalance as well as colon issues, headaches pains all over, lots of brain fog 😢😢😢😢😢😢😢😢😢😢 I just want to feel normal and not be depressed 😢😢😢
⁹uùùh
Ek ook😢
Bye
We with this disorder also need our vitamin and mineral levels checked...if they are close to "normal"according to a physician they often call normal if level is low....look into holistic doctor... medical marijuana helps relieve the pain
I was a nurse and had never heard of it. Then I was diagnosed with it. I would not wish this on my worst enemy! It is horrible. All the stuff that goes with it is ridiculous! IBS, chronic fatigue, sleep issues, brain fog, it is awful!
I say the same thing. I wouldn’t even wish it on my worst enemy.
Hey friend. A couple research papers, and answers:
"Insulin Resistance is Associated with Central Pain in Patients with Fibromyalgia" (100% fibro patients had insulin resistance based on HOMA-IR in this study, and 79% in a source they cited)
"Is insulin resistance the cause of fibromyalgia? A preliminary report"
(This study found fibro to have overall higher A1C & glucose intolerance. They had a huge reduction in pain with a diabetes drug, but obviously that's not your solution to fix prediabetes.)
*SOLUTIONS for insulin resistance* slash the processed carb intake-pasta , cereal, crackers, bread, pancakes, rolls, etc- & your juices/beverages, desserts. #2 you GOTTA exercise more. Strength train with body weight or resistance bands. Also, Take 10min walks after your meals whenever able.
Starting with, IBS celiac disease fibromyalgia, all in that order developed over decades. Thank you.
I've had it for 45 years. I worked as an RN for 40 years and it required that I find a way to deal with it. I'm now retired and can rest anytime I want to. That helps.
37 Years, and the flares get worse each time. God bless.
Me too! A nurse since 1982 and got sick after major car accident 1978 my whole life since then has been work call in sick work and finally all fell apart
Been in bed last 12 years. I'm still hoping there is a cure. God bless you.
vitamin B1 and AVOID COFFEE
I was just diagnosed in 2019After going to Metro South Hospital which they are close now! But I only went for muscle spasms and came our of there partially paralyzed and got sick after the nurse gave me a morphine shot my right leg gave out and I got dizzy and sick I had m6 daughter to ask the Dr.if they would admitme to the hospital! I was told No! Unless they find anything else wrong with me .But I told my baby daughter to call her husband and ask him to come and please take me to UIC HOSPITAL ON THE WEST SIDE.upon there in the emergency room I the lady who took my blood told me that I was dehydration and I was admit to the hospital and I stay there fromJune 19th 2019 until I was transferred to Schawb hospital to learn how to walk all over again. And each years my pain get worse. And I stop! Take my medicine cause it doesnot help and my Dr. Is upset with me! But I donot care like I tell them why am I going to keep on taking something that doesnot help! Me and beside the pharmaceutical companies know about you because the Dr.tell them about you and they are getting Rich off! Of you and your Dr.is profit from that also.So donot be FOOL!So I have had it for 3 half years now cause June is coming up! Again.
Same girl... RN retired/disabled
10 years and asking my cells to cure it , demand my body to heal itself.
Retired RN here as well. Diagnosed with fibro in 2014. I am 70 now and get a nap whenever I need to. Ty for this you tube instruction. I worked 46 yrs full time
So tired of living. I'm in pain everyday. I'm so over it. I want to go to sleep and not wake up.
I understand 100% but PLEASE DO NOT GIVE UP. I am right there with you. There are days when I feel I'm cheating my partner and he deserves someone who can do all the things I USED to be able to do with him. Now I feel useless in SO many ways and feel he deserves someone healthy. Hold on and live for the days that are less awful than most. Those of us that suffer with this daily tend to feel useless and unworthy of having a partner that becomes more of a caretaker. If you are alone, respond to this message. I find that connecting with other sufferers can at the very least remind us we aren't alone, we have worth and we can treasure the days that aren't as bad as most. I have 2 small dogs that love me. They stay in bed with me when I can't get up. That unconditional love is priceless. Please hang in there. You are someone who can help yourself by helping others. I promise you 💜
I too been struggling with this, please don’t give up
@violetfemme411 Thank you. Yes, it certainly gets overwhelming! Especially when you are alone. I have a bonemarrow condition, celiac, ibs, fibromyalgia, pacemaker that I got at 25, autoimmune disease, a lot of panic attacks, agoraphobia, ocd, arfid, underweight and depressed. I'm in physical and mental pain every day. Most days emotionally as well. I can't find work no matter how hard I try. I'm even working with ohioans with disabilities. I just signed divorce papers. Fortunately, we still get along great. She's my best friend. Kind of my only friend irl, too. I can't afford to get my own place with rent being so high and mortgage interest rates so high I can't buy anything either. Even buying an rv to live in is out as the interest rates for those are around 9.25%!
It's nuts out here, and it's unbearable if you have a disability.
@@lynnwallis8654 I'm sorry you are as well. Life sure kicks our ass doesn't it? I hope we can both find something that gives us hope.
I've had it for almost 36 years, and it started with an EBV infection. And I've had some of the other things. I've had thyroid problems, malabsorption problems, allergies, etc, etc, and I've had CFS as long as fibromyalgia too. Loads of symptoms. I went from being a hyper active workaholic to being basically bedridden within no time! And stuck there ever since.
I am the same & miss my overactive lifestyle. This is not how I saw my senior years! I feel robbed of my bliss!!!😢
Might be the lack of magnesium as it affects nerves and tummy function and brain and energy
Please Find my Comment
I've also had it for 36 years and was a super active workaholic before. I'd had an EBV illness, but it was 10 years before. Although I haven't been bedridden, most of my adult life has been marked by extreme pain, fatigue, and struggle. I'm sorry you've had it so hard. (Nobody I know even wants to know - I think they have no way of knowing what it's like and find it difficult to grasp that life is such an overwhelming struggle for me.)
I also used to be workaholic and hyperactive, also very strong. Nowadays I can’t do anything and am also virtually bedridden. It’s so depressing to think that I have to spend the rest of my life like this as there is no cure. Things will stay the same or get worse.
I have had fibromyalgia and CFC/ME since the 1990’s but although I knew there was something wrong,it took the medical profession until 2013 to diagnose me. I also have peripheral neuropathy which is as bad as the fibromyalgia and diabetic neuropathy. I have associated stomach problems with Diverticular Disease and Barrett’s Oesophagus.OA is also very painful. Also other health problems, but I am sorry, I don’t want to bore you😊. I wonder what my life has turned into and how I got here…I used to be so active and strong, now inactive and weak. I am a 64 year old female but feel a hundred! It makes me so sad. Bless all that have health problems that have changed their lives.
Thank you for reading.
Bless you all x❤x❤
For me, getting a doctor to "believe in" fibromyalgia is my hurdle. My mother and sister both have it, and I have a multitude of the same symptoms. Perhaps one day more docs will take it seriously.
I have been cured of fibromyalgia for over 15 years. When I found out through the sleep clinic that I had two sleep conditions, delayed sleep phase syndrome - meaning my melatonin doesn't peak until early in the morning making it hard to fall asleep at night.... and an alpha wave anomaly - meaning I wasn't going into all of the regular phases of sleep when I finally was asleep, like sleeping with one eye opened, continually taking in stimuli, not reaching REM. When the doctor told me that over 85% of people with fibromyalgia have this exact same type of sleep condition (alpha wave anomaly) I realized that there was a connection to my sleep and my symptoms. I quit my high stress job and removed the stress from my life and completely focused on getting my sleep under control at all costs. Over a short period of time of getting better quality sleep all of my symptoms disappeared. I still focus on making sure to follow all of my sleep routines to ensure I always get quality sleep and I have never had these symptoms return. I only had fibromyalgia for about 7 years and I am thankful to not have to deal with it anymore. The stress of having these symptoms with no disease or cure adds to the stress and the disruptive sleep patterns. So I didn't focus on the symptoms or try to fix them, I focused on my sleep and that in turn fixed my symptoms.
@@korivex742 Interesting that you mention that, as I'm awaiting my sleep study results as we speak! Fortunately, I was able to test at home, which made it a LOT easier. If I have this same anomaly, I look forward to the rest of the crap going on to dissipate! Thank you for the info. 🙂
@@Moona1966 Well in a weird way I hope you do have the alpha wave anomaly because if you do then it is possible you can clear up your fibro the same way that I did. Good luck, hope you get better soon.
@@korivex742 Thank you so much again for your info, Korivex. I wish you, and yours well.
That shows a genetic link and wonder if this was genetic!!!! We need more research!!
In my case, it was viral. I had a severe case of mono when I was 6 years old. I never felt like I fully recovered. I told the conventional doctors this for decades, but they ignored me. Finally, at age 54, I found a top notch naturopathic physician. He didn't ignore me - and his recommendations worked. I can't claim to be "cured", as I still need to go back on the antiviral regimen he gave me a time or two a year...but after a few days, I'm fine again. I never imagined that I would feel "normal" again after all those years. All those useless MDs I saw for so many years can go bugger off.
I had mono at 40 and have been suffering since - I understand your pain
Mine is lyme and parasites no one to help. 40 years now. Severe painful neuropathy have had to treat myself with herbs
Gosh like you I got mono but at 23 and believe that was the beginning of all my difficulties. 20 years on still exhausted and flat.
When I was 16 my mom took me to the doc because I was so tired all of the time. It turns out it was mono and the doc said I'd had it a long time. He said my blood showed the Epstein Barr virus also. I kept saying after I was finally diagnosed with fibro at age 40 that it started when I was a teen.
Thank you for sharing! I'm glad you didn't give up!
I have been cured of fibromyalgia for over 15 years. When I found out through the sleep clinic that I had two sleep conditions, delayed sleep phase syndrome - meaning my melatonin doesn't peak until early in the morning making it hard to fall asleep at night.... and an alpha wave anomaly - meaning I wasn't going into all of the regular phases of sleep when I finally was asleep, like sleeping with one eye opened, continually taking in stimuli, not reaching REM. When the doctor told me that over 85% of people with fibromyalgia have this exact same type of sleep condition (alpha wave anomaly) I realized that there was a connection to my sleep and my symptoms. I quit my high stress job and removed the stress from my life and completely focused on getting my sleep under control at all costs. Over a short period of time of getting better quality sleep all of my symptoms disappeared. I still focus on making sure to follow all of my sleep routines to ensure I always get quality sleep and I have never had these symptoms return. I only had fibromyalgia for about 7 years and I am thankful to not have to deal with it anymore. The stress of having these symptoms with no disease or cure adds to the stress and the disruptive sleep patterns. So I didn't focus on the symptoms or try to fix them, I focused on my sleep and that in turn fixed my symptoms.
А как вы лечились? Как вы восстановили сон?
I was diagnosed in the '80s.... I'm 64....been long painful road, but I hang in there.
31 years and ridiculed by Drs and PT men along the way.
Absolutely yes!! My medical files are full from male diagnosis. Did the biggest move for my health on my birthday in April besides dropping sugar. Have a new female MD🙏
I've been diagnosed with fibromyalgia for 38 years but I really think that I've had it longer than that. I remember in high school playing tennis and remembering how my muscles ached and burned, no one else had that problem. I was in an abusive marriage and constantly walking on eggshells emotionally. I remember falling down the stairs in our log cabin, they weren't carpeted and I was totally black on my right butt, hip, and thigh. My husband never took me to get checked out. Right after the fall I got the flu but it seemed like it never went away, I just continued with the all over body aches, headaches, and was so exhausted I had a hard time doing anything, but the husband I had I had better! I finally told him I need to see a doctor, it took me going to 8 doctors before I was diagnosed. The worst thing done to me was to put me on Lyrica, I gained 50 lbs in 6 months and felt like I was floating and it never helped any of my symptoms. I've been on Cymbalta now for 8 years and that's the only thing that's helped me. This is my story, I'd be interested in hearing about other's stories.
I've had Fibromyalgia for about 35 years. I was first told about CFS . I had leg pains and was exhausted. I've got IBS as well. My tendons are painful when pressed on still in 2024. I have taken Cymbalta 120 MG. daily since early 2000 which has been helpful. I was also put on Gabapentin, 300 MG. 3x daily which helps a great deal more. If your pain isn't gone try asking your physician to add this script to your daily regimen. If they are hesitant, ask to at least give it a try. Gabapetin is a nerve blocker. Good luck fellow comrade ! ❤
Cymbalta made me so stupid I wrecked my car. I had been on Lyrica for a decade and someone recommended I switch. First feeling Lyrica work was a mind-blowing miracle. Warm tingling slowly going from head to toe, with the pain still in front of it, but gone behind it as it went down my body.
My Fibromyalgia began shortly after I was rear ended in an automobile accident. I sustained severe whiplash that progressively got worse instead of better. It took me four years, five different doctors and many many tests to rule out some things. Once all tests were in, I received a diagnosis of Fibromyalgia. It was a long hard road .
It was the 4th dr that realised my thyroid had stopped completely. I understand your distress x
@@Admit-Audacityhi, are you doing better now?
Finally a Dr UNDERSTAND US 😟 Thank You ❤
Thank you for your kind comment.
Thank you for explaining everything. No one has ever explained everything like you have. Went to many doctors and finally one doctor told me I have fibromyalgia and gave me medication. I’ve had to research everything on my own.
May i asked what your Medication is?
Beware I about died from that diagnosis what I have is severe vascular problems.
I take the Elavil Rx generic amitriptyline
Yes me too. One PA told me it was all in my head. I was diagnosed over 16 years ago. Rarely, is it that any one understands.
Thank you for your comment!
It hurts worse when you get older.
I’ve had it for over 35yrs before any Doctors knew what it was,l was treated like my pain,exhaustion etc was in my mind.
I'm sorry about that kind of mis treatment. That should never happen!
i wish the NHS in the uk had your enthusiasm, i've been suffering now for 7 years with no help from my DR, i think he's wrote me off as hypochondriac.
Try 30 years 😖
16 years for me.
Your condition is very real. Use this channel to get better. I also have a website called fibromyalgiauniversity.com
It took forever and a whole load of tests before I was diagnosed in my early 20’s. They ruled out everything before I got the diagnosis and I got no help for a long long time, I was diagnosed in the 90’s and not a lot was known. Keep trying to get help, change your doctor, my original doctor had exhausted everything and referred me to a colleague in the practice who helped no end! ..I now have prescribed medication after using herbal for years at my own cost. I have added indica CBD into my meds and it has taken me out of bed and living a slightly better life! Try it, you may find that it helps you a lot. Good luck
answer: take B1 thiamine and avoid coffee
Sir, you just said my family's thoughts about me in your first sentences. I have had "moving" pain since i started double digits and my doctor kept telling me it was just "Growing "pains. I finally seen a new doctor 18 years ago who told me that he thought he knew what was wrong and sent me to see a doctor in Glasgow, who then diagnosed me with Fibromyalgia. I went back to get the results from my own doctor and he showed me what he had written in my notes that last visit i had had with him and sure enough he had written Fibromyalgia on my notes. I went to get those wee needles in me for nearly a year but it did no good. They sent away tests to a lab that came back with i had no fight or flight hormone left in my body because i had been beaten, kicked, stabbed, drawn through barbed wire fences, bricked, shot at, the list goes on. \i am on various tablets that somedays work and some days don't but i am so tired and have been fighting for so long to get answers and not be told once again that it is all in my head. Thank you for helping so many across the water, this is not something i would wish on my worst enemy. Norah
Norah WOW, I'm sorry for your horrible mmis treatment. No one should have to go through that! Please don't give up.
vitamin B1 thiamine and avoid coffee
@@Lauren-vd4qe Many thanks Lauren for your help, i appreciate your kindness
The best way to describe the miacle pain, to me, is the continual fight or flight feeling all the time!.It is just miserable!
@@norahmcphee4928 a full program of B complex and B vitamins and magnesium would help you tremendously. they are calming and very good for restoring a positive outlook on life. also i wd soak myself in the book of Psalms, funny videos and upbeat music.
I'm 47 and I've had Fibromyalgia since i was 14 with the diagnoses coming at 15. It runs in my family like crazy.
BUT "It's not hereditary!" Heard several millions of times in doctors offices across the world. Glad to know my family isn't an anomoly!
Remember that families carry the same genetic code but they also share the same environment, usually for several decades.
So there are two connections, genetics and environmental that make it more likely that you would suffer from fibromyalgia if your parents or siblings have it.
Fibromyalgia is such a great 👍 pain in Life 🧬😢
Yes and I have Polymyalgia Rheumatica as well which is not helping.
I’m bed bound from fibromyalgia 😢
Footprints hello yes me too and leading a miserable life robbed of everything barely just existing depressed with no answers to how to getting any better or any hope 😢
@@zaramayne2444reduce carbs, eat meat, beef,eggs, butter, more water, reduce sugar, take vit B1 Thiamine at least 400mg, D3, K2, vit C this helps, but you must stop most carbs and increase meat especially beef products. And especially take B 1 Thiamine and B12. Also, get your thyroid checked with simple blood test from Dr.
Me too. 😐
Same here. For years. I know others who have it and also these symtoms and bed bound
@@gillhall7590 Thank you so much for your advice 💟
Why do many people get fibromyalgia after car crash or surgery.
Infection, injury or trauma usually triggers it 😔
I was finally diagnosed so many years ago by my chiropractor. He had heard me explain the pain for so long. When he finally did diagnose me he said he had known it for a while but hated giving me that diagnosis. It was just finally such a relief to not be treated as if it was all in my head. I’m not a painkiller kind of person, I do stretches, walk and take Tylenol. Having the acknowledgment that it is real made so much difference.
Tylenol is an OTC pain killer though and hard on the liver.
he said he had known it for a while but hated giving me that diagnosis. THT MAKES ME SICK TO MY STOMACH. IF HE HAD BEEN MY DR I WOULD HAVE HAULED HIM INTO COURT. AND YES I DO HAVE IT.
@@janehyden1652 why would I do that? Everyone is to darned ready to litigate. He was not my primary, he was my chiropractor. I did not feel that he did this out of negligence. My sense at the time was he didn’t want to saddle me with the stigma of this disorder. We all know from personal experience that a good many drs deny the existence of fibro. They say it’s all in our heads. This chiropractor was very knowledgeable, kind, respectful and did not do anything wrong. I’m guessing that your comment was to be supportive of my situation. With that being said, I thank you for that. There was absolutely no reason in my opinion to sue the pants offf of him……………….
Thank you can’t even express how much I appreciate everything you share with us. I’m in a flare right now and as you know, it’s no fun. God bless you…. Beverly
Comments like that keep me going!
Me too that’s why I’m here, I read all I can on this very painful condition, known as fibromyalgia. People don’t understand, I accept that too, I don’t care what people think, we know our bodies and what we are capable of doing on a flare up. I rest get up do what I can, and rest again. I take Tramadol and Panadol it takes the edge off only.
Just to say that people in the U.S. without economic resources do not have access to doctors who are willing to do all the tests for underlying issues. We also don't have the means to go to the dentist, let alone have all our Mercury fillings removed. It'll be interesting to see if this office takes Medicare and Medicaid. That would be great.
All doctors should have such compassion. Poor people get inadequate and often hostile "health care" in the U.S. as a rule. Especially if one is suffering from an illness, syndrome or disease that is less than straight forward. The toxins we are bombarded with in daily life have changed so much in the past 30 years alone. Those providing "health care" to low-income people have been loathe to dig beneath the surface for answers. If it's not diabetes or heart disease, crazy, lazy or hypo is the pat response. Our best option is to learn how to use food as medicine and care for ourselves with natural health. However, one needs some sort of diagnosis just to point them in the right direction and that's so seldom available in the U.S. in my experience and the experience of countless others.
Thank you for taking the time to share this valuable and empowering information.
Around 2007, after a lifetime of constant pain and dysfunction, I was diagnosed with a whole bunch of food allergies. A year earlier I'd started eating only organic foods, and my pain had decreased a lot (The doc told me that was a common outcome with eating organic), but after changing my diet because of the allergies, it was like night and day; I had the strength to lift my feet so I could walk, I could lift my arms so I could wash my hair, most of my pain was completely gone.
I still have fibro and ME/CFS, as well as other issues because of mold allergy (even to my own natural yeasts), thyroid issues, gluten intolerance (a slice of bread makes my thyroid swell up like a peach), chemical sensitivity (I can no longer use fragranced laundry detergent because it gives me panic attacks and exhaustion), but overall my quality of life is much better if I respect my allergies, which can have the most strange but debilitating reactions you have ever heard of.
Thank you for sharing. I do feel for you. Glad changing your diet helped some. Wish you the best. 🍀
Reading your comment, I’m wondering if you have Mast Cell Activation Syndrome like myself. Going organic means I avoid glyphosate (higher amounts found in wheat) which triggers tryptase release.
Wow who would have thought our food would be killing us, I had allergy tests done and only things I am not allergic to are birch and oak tree pollen. It was then suggested to cut out dairy and gluten for four weeks. I knew I was sensitive to gluten but the dairy was a surprise. I have had hashi hypothyroidism since I was 13, a bad case of mono in my 30's, a cple rounds of pneumonia, etc... When I hit menopause it all went crazy and the fibro started. Allergies and immune problems single that your body is fighting against itself. I take xolair every two weeks along with b12 shots and lots of vitamin and supplements. I am changing the way I eat. I struggle and take alot of meds. It is life changing and so very frustrating. I had sleep study done and wake 12 times an hour due to snoring so I do not stay in R.E.M for long. There is not one answer or pill that fits all. It is a very complex condition. Just remember you are not alone and never stop fighting, God bless!!!
@@staceym7940 I hear you. I recognise your trials. Crap, isn't it!
A large part of the problem with the food these days is that industry has stuck its fingers in everywhere and messed with nearly every facet of every food. Even if you make your own bread (glutinous or gluten-free), the grain has been impacted by things like selective breeding, pesticides, inorganic fertilizers...and if not, the air and water are polluted; that all goes into what we eat too, as well as microparticles of what it was packaged in...I think there are very few areas of the world where you can safely eat the food, drink the water, and breathe the air.
The selfish drive for money over everything else has poisoned the planet, and us along with it.
@@r.1599 Very good points!!! Do not forget all the chickens they killed this year, (egg shortages🤨) the food distribution centers that burned to the ground along with the manufacturing facilities, the train derailments that polluted the ground and then they burned it polluting our air. The plastic facility in Florida that burned for days, the barge that overturned in the Ohio river spilling pollutants, the explosives that went missing recently, etc, etc... If you start connecting the dots and taking a hard look at all the disasters that have happened in the last 3 years, it seems to be alot more than coincidence. Call me a conspiracy theorist, (like that's a bad thing🤣)!!!
53 years out of 83 !!
It was 28 years ago this month that I felt sick. I thought I had a cold or flu. I was healthy, had lost weight and was exercising. Then the weakness, fatigue, pain and other crazy symptoms started. I did the doctor thing for about 5 years. I was misdiagnosed with myasthenia gravis, had lots of tests and became really stressed by the doctors. I decided no more doctors. I decided to get on with my life the best I could and I did.
vitamin B1 thiamine and avoid coffee
I was diagnosed 15 years ago but had it so much longer. I was diagnosed at arthritis clinic but if I mention it too my doctor he just says it’s all in the mind
I havent been diagnosed but every video describing fibro i widh doctors would listen
I used to have fibromyalgia for 20 years. I reached those 20 years. I figured out and I headed. I want to write a book about the neurologist issue. This disorder take on every system on the body. To help people. The medical field is not the answer. Alternative is the answer
You literally just listed off everything myself, my 3 daughters and my Grandson all have. MTHFR, Hypothyroid, Vit D, B-12, folic acid deficiency, etc…… (oh!! And excessive Candida😞)
I also have been an RN for 44 yrs I had to retire 13 yrs ago because of having a severe case of Sarcoidosis and worsening symptoms of Fibromyalgia!! I was an RN in all aspects of Peds and I loved my job and had no intention to retire at that time!! Now I’m 68 and would love to go back to Nursing in Peds but due to the Fibro and the Sarcoid o2, meds, lo O2 it’s not possible!! Since I’ve always loved working with kids I have now 6 of my own Grandchildren from 12 down to 20 months old!! 4 boys and 2 girls, 10 and 3!! They’re all so cute and make me so happy!! My husband and I are very lucky that we live pretty close to all of them!!! Try to do everything I can on days that I’m going to see them!!!
💗💗💙💙💙💙
My fibro came out after I was in a severe car accident in 1993!!!
Does anyone think of a connection to working in Nursing since the early 1980s?????
I was diagnosed by the only doctor in my area (dr Malloy in Massachusetts) who knew exactly what fibromyalgia is when other doctors (like my primary doctor said it was in my head) i was in my late 20's
That is so sad. I'm glad you got help though.
My doctor told me that it was in my head, meaning it was a problem with brain sending false pain signals to parts. He and I have learned about fibro together. I started working with him when he first started so he knows me and knows my Mom didn't raise sissy girls.
Oh Please ……
Where is this Dr Malloy
I live in Massachusetts and am looking for a doctor who will treat me (as in functional medicine)
What is his or her first name and what part of Mass are they in?
What type of dr was he?
I have a condition that is very similar to fibromyalgia, in fact my symptoms and treatment is almost identical. This video has made a HUGE difference for me. THANK YOU, this video has really helped me and given me hope and understanding. It brought tears to my eyes.
Lise, it is true. You can get your life back!
My son had no problems until his doctor convinced him to get the HPV vaccinations. Headaches and fibromyalgia came soon after.
I am 48 (2022/23) and have been diagnosed with Fibromyalgia (and more) for a couple years before my "accepted disability start date" of 05/09. That was age 34. While I am on SSDI, I have had a BS time trying to get treatment. Absolutely ridiculous. Of course, the World pressing pause on life definitely put any treatments behind 3-fold over actual time. I need all the education I can get because everything I say to my Doctor or show my Doctor is reduced through my Drs' bias filters.
I was diagnosed many years ago, but told there was no treatment. No test to confirm, no treatment to ease or "cure." I have had Dr's that don't recognize fibromyalgia as "real" problem. I have been referred to mental health because my Dr told me fibro was a mental illness. Kept the referral, ditched the Dr! Recognition, acceptance and now some treatment options are available. Yay, for progress.
😢
Gaslighting happens a ton in the medical system!
If your blessed with a mild case of fybromyalgia you can deal with it but thats not the case suffering with it chronically
Thank you so much for sharing this. I have been sick my entire life. Was told I have everything from SLE/RA/IBS and multiple co-morbidities. Hashimoto's, CVS (Cyclic Vomiting Syndrome), Diabetes, asthma, low platelets, positive ANA, Shogrens, Multiple other chronic health issues.
I am in the UK and my GP laughed at me when I said the hospital diagnosed me with Fibromyalgia, he said they only said that as they couldn't think of anything else. I changed Dr's and the next one was worse. So since diagnosis in 2003 I have just got steadily worse and have spent the last 12 years stuck in an upstairs bedroom!
You need to find a good GP they will help you. Ask friends and family who might have give you information about good family doctor.
Finding a new GP
@@nasima... I already moved once and from the frying pan into the fire there are not many in my area so I have little choice
@@faithcrownofjewels4467 I already moved once and from the frying pan into the fire there are not many in my area so I have little choice
I have been diagnosed with chronic fibromyalgia several times by PENN Medicine Perelman Center for advanced medicine in 2012. Tried everything possible with no success. Getting worse. No support or help. In bed. Desperate to get my life back n functioning. Lost.
I added d3 , B4( choline) & magnesium & it helps a lot. I recommend it highly
All of your comments hit home with me. I was a very hardworking Mom of 4 and used to work tons of hours in healthcare. I had EBV in the past but it seems that after back surgery in 2007 all of my symptoms progressively started getting bad. I have continued to keep as active as I can. I found a med combination and vitamins that helped for many years along with exercise, but my time off work is really getting bad now that I’ve been diagnosed with Graves Disease, Thyroid Eye disease and eventually about a year ago Heart Failure. It’s possible that a vaccine lowered my immunity enough to set off a cascade of events a year and a half ago. My heart was fine just after diagnosis of Graves and TED but about 6 mos after I went in for a follow up echo on my heart and HFrEF was diagnosed. The Drs think it’s due to me either contracting a virus that effected my heart muscle or it was the vaccine as well. The past several yrs have been awful and I have so much fatigue and brain fog I honestly don’t know how I’ve not been fired because my work as a data analyst has suffered. Everyone at work hates me for being ill so much. I don’t think I’ll be able to work much longer but I refuse to give in until I’m forced into early retirement or get fired and figure out how to survive from there. It’s so expensive where I live that I don’t have a choice but to keep working and finding ways to keep going. I feel for all of the people who have FM. It’s hard not to be depressed all the time. I am in therapy for past trauma and the constant pain and it helps but I am getting to the end of my rope. Praying for all of you to find peace in your condition and that they will come out with a cure for this in our lifetime! ❤🙏🏼
So much I suffered all those fibro symptoms.
At the same time I was so hardworking person
But fibromyalgia snatched away my activities..
Never ending ...
Fatigue, dullness, chemical sensitivity, not tolerating its medicines, allergic to everything, dizziness, nausea, migrane, pain abdomen, wide spread pains, parenthesis, numbness , sprains off and on any muscles..
Still I manage everything in a home ..despite severe fatigue and pains
Bcs I am unwell own ppl feel I am doing drama..
So pathetic situation
Thank you so much Sir for these vedios gives me energy and hope..to move ahead.
Also the comments of those who suffer.
Thanks a lot
I was diagnosed in 2003. But I had been suffering for most of my life.
I am 62 and was diagnosed over 35 years ago. My daughter was diagnosed at 16 and is 37. We have never heard a word about any of this from any of the MANY doctor's we have been to over the years. Including the Cleveland Clinic, multiple VA facilities and top notch physicians. Incredible.
I'm 64 and it's been a bugger to say the least. It's been around 40 some years and I am still trying to plug away at it.
You can’t look to any VA facilities for help
@@starfishjennie no
Beautiful job explaining this complex condition....thank you.
Thank you for reaching out!
I've had it for 40 years plus, also fobbed off finally diagnosed in 2009
The problem with the diagnosis of Fibro is that it brings you no closer to a cure. It just opens the door for a list of drugs that don't help most people.
Apart from the pain I hate the buzzing feeling I get in my legs
This is the first time I’ve had someone else say they have buzzing in legs! It’s just a new symptom that occurs occasionally
Yeah, I get that mostly at night. Haven't talked to anyone else who has experienced this.
By "buzzing" do you mean like mini electric shocks?
Oh my gosh! Me too! It’s like there’s a million little bees inside my calves. The muscles are so darn tight they feel like they’re going to snap.
I literally thought I was going crazy! Sometimes it feels like bugs crawling in my legs
Thank you for explaing this how do we get our dr.s to figure out what we need to help us?
Thank you Dr Dailey! I would give anything to have a direction to go or some treatments to try. I miss my old life. I miss working in nursing. I miss being strong. I’ll be calling your office.
Hey Julie, There is a good chance you can get your life back.
I had mould and carbon monoxide when trapped in a rented flat when I came down with Fibromyalgia and the NHS doctor said nothing for 6 months till casually saying you have had Fibromyalgia all this time but what's the point in telling you as nothing can be done. I believe I had hashimotos and now thyroid problems too now, but am still left untested as there is nothing that can be done
My fibromyalgia started in June 19th 2019.i went to Metro South Hospital which is now close! Thank GOD! I went there for muscle spasms and the Nurse gave me a morphine shot with sulfur which i am ALLERGIC TO AND ANY THING IN THE SULFUR FAMILY.And I got very sick and throwing up 👆.And was very dizzy. After that I was discharge and when I try to get off the bed my right leg gave out and I got sick and I ask my baby daughter to go ask the Dr.or Nurse if they would admit me to the hospital.And the Nurse came in and Dr.told me that they couldnot admit me unless they found something else wrong with me.But I knew that I was really sick so I ask my daughter to call her husband and ask him if he would take me to UIC HOSPITAL .I LIVE IN CHICAGO ILLINOIS. WELL! When I got to UIC HOSPITAL in the emergency room I was told that I was dehydrated and they admit me right away.i stay there from June 19th 2019 until July the 2nd 2019 and was transferred to Schawb hospital to learn how to walk all over again cause i was partially paralyzed on the right size with my right leg. I stay there from July the 3rd until July the 18th and I had physical therapy and Occ.Physical Therapy in house and out.And as the year goes by my fibromyalgia get worse. And I Stop! Taking the medicine that my Dr. Put me on cause it wasnot helping me.And I told them why should I keep on putting something inside of my body that isnot helping me!! And beside the pharmaceutical companies know about you because of your Dr.'s they informed them about you and they both are getting Rich Off of you and your insurance company. I just deal with the pain and Trust in GOD! AND THE fibromyalgia have miss up 👆 my Nerves system. I will 🙏pray for all of us that have FIBROMYALGIA .🙏Ps. So it is going on 4 years now that I have Fibromyalgia .
I looked up "Fibromyalgia University" and there seems to be no such place. Be careful who you trust.
I guessed that from the stuff he was saying, so many factors not covered. It’s not known what causes it and there are thoughts that it’s neurological…
Thank you, for your words. Never has anyone ever showed caring so much.❤
I was in the hospital and had surgery. I got gangrene and had to have the gangrene remived without anesthesia! When i got better i had fibromyalgia!
O M G !! I Love You!! Thank You so much!! I Will share this with all my Fibro Friends!❤
Too many doctors don't want to diagnose fibromyalgia. Many others just want to throw meds at it. I noticed my symptoms got worse after a bout of septic pneumonia.
Its through truma in your life and extreme stress and suppressing it
I agree.
I too agree, trauma stress plays a huge part in fibromyalgia. If there was a study on people with fibromyalgia, I bet most would have had, severe stress and trauma in their lives.
I have fibromyelgia, lupus, relapsing polychondritis and other autoimmune syndromes. It's daily torture. I do feel better if i don't eat food. Just live on enure. I did that for a year. I did improve. Just very hard to continue. Lack of sleep is a killer for me.
Beautifully explained, thank you so much.
Thank you. This is the best video I’ve ever ever ever seen, explaining fibromyalgia.
You explained more that I could understand than any other i have listened to. i was 28 when I was diagnosed and im now 65. I also have hypothyroid and iron deficiency aneamia........plus a few other things!! I am in Uk though, wish I was over there and could come to see you. I was always all my life very thin, when my thyroid went, for 14 years they did nothing about it and just said we will see how it goes, i piled on the stones and pounds, i now have a belly like a poisoned pup. I know i do not overeat, i dont eat between meals and have three meals per day. I over the last year have been eating less as everything tastes like cardboard. I have major depression, which is just getting worse, i no longer can look in a mirror. Sorry to have gone on, but it just had to come out. i look forward to anymore from you.
Great explanation!! Thank you 🙏!!
Thanks for your terrific video!!! I wish I lived by you so I could see you. I would love to send this to my doc but most docs don't like how to be told how to treat patients for something she knows nothing about. At least this is what I've learned in my 30 yrs in nursing in general practice, emergency med., or hospital medicine. Do you have any pamphlets or info you give your patients I can possibly have you mail to me that I can read and pass on to her!
Again thank you for all the info and I would love to send you my address if you do have info you can send!!!
Barbara Dargan in Massachusetts!
Hey Barbara, I do 99% of my Functional Medicine remotely. If I can be of any help we do offer a free initial phone consultation. You can call our clinic to set that up. 800 939-2948
My FMS trigger was the flu shot. Every sept when I got the shot I’d go into a flair. Would start feeling better around July. Only to get the shot again in sept.. felt like crap all winter… on and on for years. I was working with children so felt I needed the shot. Quit taking the flu shot and within one yr felt so much better. Should have put 2 plus 2 together sooner.
The flu shot aggravates the immune system and for many that causes serious flare ups. Glad you are better.
Me too! Within a month my life changed, was diagnosed at UPMC Pittsburgh pain center
Mine was shingles at 40
Yes after my flu shot started within a month I was diagnosed at UPMC pain Clinic after that.
52 years of suffering from Fibromyalgia and this is the best explanation I have heard. I was 8 years old when the first pains started. I was 18 when diagnosed, at the time I was the youngest to have it according to the leading specialist Dr. Offer. I will be 60 this year and I do not remember what life is like without pain. Thyroid problems took years to find because in Canada, for some reason, the general docs can only order 1 kind of blood test but psychiatrists can order both kinds and that is the only reason I found out about my thyroid issues. Hopefully that rule has changed.
I can't imagine 52 years of suffering like that.
@@FibromyalgiaUniversity I have had good days sprinkled among the bad ones. I was somehow able to partly shut my brain off on the pain. I have no idea how I did it. One day I realized the pain was there but I had put it to the side because I had something I needed to focus on. Maybe because I had it at a young age my body did it, maybe it is because it was many years and I was breaking. Of course the medication I was put on exacerbated the tendency to get depression. Oh, and in the "courses/therapy" I was put into, the "teacher" took me aside to talk to me about pregnancy. No one else was at that stage of life and I got a very good word of caution. Another thing, I was told to go to the physiotherapist in the hospital. They did stretching, movement measurements on me. Then I was laying on a high table and was to kind of arm wrestle with the physio student while I was laying down, I ended up knocking her off balance and moving the table. She was shocked, the physiotherapist was not. He talked of immense strength at times. I still dropped glasses and plates occasionally. Weird.
I think your doctor was confused.... any doctor can order thyroid hormone panels. Most important are Free T3 and Free T4...
there is also now an approved lab test for FM called FM/a. I am trying to get it covered by my insurance, as it is expensive, and newly approved in Canada.
@@2shadowcats2 I don't think he was confused. They can order them now but they weren't before. This was many years ago. I haven't heard of this test for FM. Hopefully it won't be so expensive for too long and will help people get the right diagnosis.
Oh, the doc I refer to ended up going to work in Ottawa to be some head honcho in the government/medical field where he hoped he could help get changes made to better help more people.
The best information yet, I have heard about fibro. I also believe there can be different pain and symptom levels for each individual. Thank you for reporting this vital information.
Thank you so much for all you do , I wish my doctors understood how I’m feeling. I was diagnosed with fibromyalgia over 18 years ago but 2 years ago I hurt my back . I have spinal stenosis degenerative discs and there we go been in a really bad shape since . I’m going to try the magnesium. My pain clinic has advised to have an infusion of ketamine and lidocaine which scares me tbh
I agree
I’ve been on Ketamine infusions and at night troches under my tongue. It has saved my life. (I’ve had fibromyalgia for 30 years and rheumatoid arthritis for 49 years) It doesn’t make everything perfect and it doesn’t make all the pain go away, but it helps significantly. At almost $500 an infusion now it’s really pricey at least in New York State/USA so I can’t go as often as I should, which is at least once a week.
That sound a bit scary. Some of these things can't be undone.
Oh, I was given ketamine during surgery, I had 2 emergency surgeries in 8 hours. When I came to after the second surgery I was a crazy person. I don’t remember much but was to,d it was from the ketamine. Scary stuff.
I took magnesium ans selenium thinking that would help because Inhad read somewhere that those of us with fibro ran low on them. I didn't see much of a difference after taking for several years.
I’m sure I got fibromyalgia after a dentist injected me for a filling. It seemed very painful and seemed to be into my nerve. About a year later I got diagnosed with fibromyalgia. I may of already had mild symptoms but they got bad aft this dentist visit.
These tramatic events are often the straw that breaks the camels back.
@FibromyalgiaUniversity From Epstein Barr at 29, years teaching in moldy old classrooms, to almost dying at childbirth of twins at 37, then Shingles at 40, I had Fibro and symptoms prior. I was 5 day a week in gym very active ADD type- but something changed about 28/29. Body aches like the flu.... rashes and face flushes, anxiety and mono. That was the first trigger.- weeks of mono. Shingles made it go to another level and has stayed there. I was diagnosed shortly after. 47 now. I'm on highest dose of effexor, many many supplements, acupressure pad time, grounding, heat, red-light, tens therapy and lots of naps. I homeschool, babysit and pace. Oh and I was tested for all named. Only high in copper. No mthrs, thyroid, and I've managed to get my autoimmune panel to normal. I've tested for everything- and more. Gut health n all good. But yes, I had trauma from family stuffed away too. It's definitely not the life imagined. But it's mine and I'm doing my best.
I've had Fibro for several years. Of all the symptoms you mentioned, brain fog is the worst one of all. I explained it to my doctor like this. Think of a light switch, I have the words I need with the switch on. With the switch off, I lose my words and some memory then the switch turns on and things come to me. It is very frustrating trying to get my words across and slurring when I speak. I am disabled because of these symptoms. I do have a Thyroid problem as you said. Sometimes, I repeat the last word I said. Ugh!
I also have word finding problems and memory problems to go with my pain and fatigue. I want to continue living my life but it doesn't seem possible
Finally people recognise it is a real illness thank you 8n Australai from birth problems some times a remission but now not for the last thirty years I am 72
Our fibromyalgia came from compromised internal systems, multiple disabilities, disorders, unable to get access to medical help and treatment, misdiagnosis and fighting with the doctors and specialists, who were like ostriches with their heads in the sand and the we don't know...... going through abuse and persecution, no adequate help and support, inability to understand our multiple disabilities, we live with, along with environmental factors, such as polluted water that was declared a public health risk, and then we had the diseased mosquitoes, and paralysis tick bite that was part of causing glandular fever, never fully recovered from that and then chronic fatigue, and just complete internal utter exhaustion and shut down. The immune system was already down and exhausted. My member of my family got it for their 13th birthday and it was first looked as growing pains, it slowly came forth, but it was so bad, because it was under their feet as well, which made at times walking difficult. That was years and years ago, we have good days and not so good days. Sometimes we have times where there is no pain able to do a little, then it comes back again, bit like waves.Its an ever present member of our family and life, its always there. But they also can handle it so amazing at times, you wouldn't know they go through that. I do though they sleep for sometimes up to 16 + hours and I can feel it, I am empathetic. The doctor prescribes exercise and stretching, and to do it for a certain time, however they forget that the family member is disabled and so its like trying to be given something that you can't do, and so you try and work towards that, which can take years and they still never able to achieve what the doctor gives them. The doctor will say 1 hour, but they are lucky if they can do 5 minutes, sometimes they can't even do a minute so they don't bother,
Wow i go through all these symptoms all the dang time...
I feel seen, thank you. 12 years and counting with FMS/CFS.
The keto diet has helped mine very much and I also had a very bad case.
I had a 4th emergency surgery and woke up with Crohns finally diagnosed. I had post-surgical pneumonia as well that time (never had before or since). I never got rid of the all-over pain that I woke up with from that major surgery. It didn't exist before the 3 days before the surgery (when I was so sick I was afraid to move because it made me vomit and I was hoping it would pass...nope) but I needed my gallbladder removed which they removed in that surgery as well. I baby tf out of my gut. Because of the Crohns. I have done everything suggested and it's still where I am. Just mildly to almost severe pain. It's okay. I've accepted it because my other autoimmune diseases are always causing stress on my body (Crohns colitis disease, Primary Scerlosing Cholangitis, short gut syndrome, some malabsorbtion despite daily prenatal vitamins which have a higher level of vitamins than most).
I also have Crohn's. A little over a year ago I also had to have my gallbladder out. Three days later I had to have a little over a foot of my intestines removed. I was hospitalized for 18 days & have yet to fully recover as well. My life is a living hell. With my Crohn's I would develop food intolerances. Something I've eaten all my life would set off a massive flair causing almost a complete blockage. First time steroids cleared it, this last time it didn't even budge it.
I woke up from surgery with shortness of breath, weakness, & it definitely made my fatigue much much worse.
Outstanding synopsis!!!
Well Defined...
What also 'sucks' for my personal self Diagnosis is that my Auto-Immune disease also is a plethora of symtoms. But, do to process of elimination...
perspective and separating the wheat from the chaff helps in narrowing down & pinpointing for a definitive answer for
"Functional Medicine"
I have learned alot in this one video.
I thank you!
Great information, Dr. Learned a lot.
Very interesting and forward thinking
Thank you. This is helpful.
Great information!!! I suffer from many of these ailments and it seems to come and go meaning worse on some weeks than others it's a mystery disease but for me it does seem sugar causes a lot of my ailments where my entire body hurts even to brush my hair, very light sensitive as well
I was diagnosed only because the rheumatologist found no positive markers for inflammation. She blamed it on my mental state, menopause n said fibromyalgia was the diagnosis she gave to all painful patients. My diagnosis is 15 years old, with symptoms long before that. I am now in my mid 60s n have learned pretty much just to suck it up
I was diagnosed 10yrs ago. Do you have a UK clinic plse? Ticked a lot of those boxes. Now gonna binge watch to see if I can see if there's anything that might help? Thankyou!
I have surferd for 20yrs, but since my breast cancer dx and bilateral mastectomy the nerve pain in my feet and hands is unbearable, along with the chronic fatigue and Brian fog. I just would love to feel even half functional again. I have an awesome neurologist who try to alleviate my symptoms, but unless I go to pain management there is only so much they can do. Glad to come across your video.
I was diagnosed in early 1990s with fibro! Before that I had been told it was all in my head. I wish my pain and other symptoms could be in their head for just a few days!! I am now seventy three and it is getting me very depressed. Wish there was a way to overcome it, but just have to live with it.
Thanks for mentioning the importance of thyroid issues in FMS. Many times it seems we need natural dessicated thyroid since we can't convert the synthetic T4 to the usable T3. A selenium supp. can help with that . At 9 minutes in it says those of us who have MTHFR mutations should take folic acid, but that is a bad idea. We need to take methyl folate. Some of us have very high levels of folic acid from years of not being able to convert it to the usable folate form due to the mutation. We also need methyl cobalamin, not the plain cobalamin form of B12.
Im in 23years +. I. Dont know how much longer. I can take this pain. I was an r.n
In a hosp. I was forced to quit work due to my grossly decreased physical ability due to pain. I had isolated episodes tthrough the yeArs until it slammed me 23+years ago. All tests and studiies were always normal.
I was diagnosed with Fibromyalgia over ten years ago and am STILL struggling to find someone to help give me relief!! My family is of the mindset that most of my issues can be overcome with my brain. Believe me, I've tried that path and the frustration I experience just makes me feel worse! They don't understand that this is not something I would wish on my worst enemy and that I'd give anything to have never had to go down this path.
I was looking through videos and found one regarding Sjörgren's Syndrome and the Fibromyalgia connection. The question I have is: does this mean that if one has Fibromyalgia, does this mean they also have Sjörgren's or if one has Sjörgren's, they automatically have Fibromyalgia (even if they haven't officially been looked at or diagnosed with Fibro?)
The biggest issue I have come across is when I ask my PCP if there is any specialist I can go to, I'm told not that they know of. It's frustrating and frankly, disheartening knowing I am getting worse, and there's nothing that they've done that is helping or even giving me hope of relief!! Maybe it's a matter of living in rural Tennessee when I need to live closer to where there are doctors/universities/anyone who has done any studies or had any successful treatment protocols in their patients?
I live in TN I go to Vanderbilt doctors. Was diagnosed with fibermyalgia in 2001 when I lived In Texas.
Went to a Vanderbilt rheumatologist, all he wanted to do was prescribe me depression medication even after I told him I have tried many Depression medications and it doesn't do anything. The depression medication he wanted to give me can cause high cholesterol well I already have high cholesterol I don't need a medication that will make it worse. If there is a side effect of a medication I seem to be sensitive to it. To give him credit though he did say that my diagnosis was correct for Fibermyalgia. I just don't agree with his treatment regiment of Medication, Depression medication muscle relaxers and taking me off of my current sleeping medicine.Went to a neurologist with Vanderbilt and he doesn't believe in fibermyalgia he put a ? next to my diagnosis. It is hit and miss to find a doctor that believes it is not in your head.. I have decided to go the natural route. For pain and depression I take Passion flower herb. When the pain is real bad devil's claw. Other herbs when I feel real bad In a tincture are Burdock, marshmello, Ginger, slippery elm 2 to 3 drops each. Low doses for me because I am very sensitive to anything I take.
Vitamins Methyl b12, vitamin D3 Bone-up for Osteoporosis, Magnesium, other herbs Korean Ginseng, Milk Thistle and Olive leaf.
Just started taking Thyroid plus herbs by Bsque don't know how that will work out for my thyroid disease we will see when the doctor does another thyroid test. Sometimes I rotate the herbs and give a few days of not taking anything to give my body a rest.
I hope you can find some relief.
Thank you Dr Dailey
I reckon ive had it for 69 years or so. The tender-over-bony-points thing goes back to elementary school. Mine pretty much disappeared 5 years ago when i adopted a ketogenic diet. If i eat fruit, legumes, bread etc and get out of ketosis my pain and stiffness comes back
Question: is Fibromalgia linked to abuse situations?
One of my family members that was diagnosed with Fibro was extremely abused, not just in childhood but throughout her marriage as well.
Has that component been tracked to see if it's a contributing factor?
I have seen abuse and trauma initiate the symptoms of fibromyalgia. There are normally several other underlying issues, but the trauma seem to be the last straw before full-blown fibromyalgia occurred.
@@FibromyalgiaUniversity thank you for your response.
Very interesting and informative!
Thank you so much for your video 😊.
Lovely to watch your video. I have real chronic pain , fell tired all the tired and feel so much like you mention in your video. I am a type 1 diabetic and also have a thyroid disorder and have a high dose of thyroxine. I just wish I could find out if fibromyalgia is what I have, so I could try and have a happy life rather than pain everyday. My sleep pattern is rubbish as well. Are you in the Uk.? Thank you shsring
Glad Ifound your channel. What thpeof dr are you? Where are you located .
Everything you discussed sounds exactly like my symptoms and possiblity of having fibromyalgia but I'm having a hard time getting a doctor to take serious.
I was diagnosed in 2001 but have never been treated, if there is treatment. I have wide spread pain over my entire body and the pain comes in several forms, stabbing, burning, sharp, aches etc.. What kind of doctor do I need to see ? When I go to my family doctor or any doctor I am treated like a drug addict trying to get pills. I try to explain my pain and I feel like they think I am crazy. I can feel somewhat good and be walking fine and in a matter of seconds I will get pain and have trouble walking or doing whatever the pain affects . I am tired of living in pain and not feeling like I have a doctor that understands my illness. Thank you for the video.
Thank you, I have nearly all the symptoms, was diagnosed over 16 years ago. I do gluten free and it helps some. But it is rare to impossible to get help.
So many people suffering that could find relief. If I can help let me know. I work with people all over the world.