Erin's Multiple Myeloma Story: From Back Pain to a Stage 3 Diagnosis | The Patient Story
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- čas přidán 18. 06. 2023
- Erin H. started getting back pain but he thought it was just related to aging. Several months later, it got so bad that he collapsed to the floor after a sneeze. He went to the doctor who initially prescribed muscle relaxants but finally ordered an MRI which revealed six compression fractures in his spine and cancer.
He was then diagnosed with stage 3 multiple myeloma and 80% of his bone marrow was affected. In this conversation, he shares how he underwent oral chemo followed by infusions and eventually a stem cell transplant.
Full story & transcript → www.thepatientstory.com/patie...
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My grandma was diagnosed with myeloma when i was about 9 years old i didnt understand what it was i just knew she had severe back pain when she was diagnosed she was told she had 2 years to live she was determined and actually lived for 23 years bless her
I learned that I had Multiple Myeloma in 2010. I thought my back pain was all in my head. After 6 months of pain I reached a day that I could not go into work. Instead I drove to my Doctor. Same day a blood test made my Doc send me to the local hospital. He told me that my blood test showed an abnormal amount of calcium. Which indicated to him that I had Multiple Myeloma. I wasn’t afraid because I had Hodgkins 40 years earlier. After 13 years I have had 4 treatments. One was a Stem Cell transplant. I am still here.
So sorry you are going through this. My husband was diagnosed in 2014. We were told he was terminal and given 6 months. Please remember doctors practice, Jesus heals. My husband still very much alive and though he has Cancer still we haven't given up.
My late husband had multiple myeloma and it started from back pain. He had 13 fractures in his body. He lived for 5 years, but there are so many new therapies now. God bless you as you battle this cancer. ❤
6 compression fractures, prior to diagnosis of cancer, and the xray didn't show anything. I'm so tired of dismissive medical personnel when obviously something serious is wrong.
My boyfriend of 15 years and I went on this journey for 7.5 years. It was the hardest thing we had to endure. He got chemo induced neuropathy in his feet and found that only smoking pot gave him some relief. He tried everything else, all the drugs, creams and acupuncture. I'm so glad that marijuana has been recognized as another tool to give patients relief from pain and other issues. All the best to you and your family throughout your journey.
Seven years from diagnosis and still alive and kicking! Still in treatment, still got low immunity, still able to accept that 'it's one day at a time'. I'm 76 now and getting creaky anyway. I skipped the stem cell transplant as I didn't want to be away from my cat or be cooped up for weeks. Getting worried about the increasing pain in my pelvis lately so probably need a scan, so will follow up on that when I go for treatment next week, so one day at a time.
Let’s ALL Agree to Complete Healing for Erin!’n
I’m so annoyed that he was shuffled around like that. He should have had an MRI earlier. Our healthcare system is so broken.
I took my wife to see our family doctor. She and I are 75 and 76. While I was there, I told the doctor I needed him to refer me to a shrink for depression. He wanted to do a blood test to rule out anything else. It showed low white blood cell and low testosteron. I have been losing weight. He wants me to come back tomorrow to do a second blood test. I was going to an oncologist for many years to monitor a persistant low white blood cell count. She eventually put me on yearly checks because she concluded the slightly low whit blood cell counld was just my nature . So now I have this. The diffenece is the weight loss and depression. I think the next step will be a bone marrow biopsy. I'm very worried and now in an even deeper depression. Otherwise I am in great condition and health. I walk and jog most days and eat right.
I was a bone marrow doner for my brother we were a 1 in 20 thousand match he lived for 30 years he died of copd . Then i got cancer they told me i had 2nweeks to live. This is when i was 66nyears im now 71 now . Heres what i can tell you God saved my brother and he lived for 30 years and now i have lived for 7 years after they told me i had two weeks
God bless anyone diagnosed with cancer and their families too.
My moms primary is the one that found her multiple myeloma from her yearly physical blood test. Her calcium levels were very elevated. She had a small amount of cancer , I believe 10%, and had a stem cell transplant. It did not work but she lived 10 years before her first vertebrae break. Not long after the first break she broke another. She too had chemo as well as radiation but decided to stop it.
I was diagnosed with MM only 6 months ago. Only sign I had was extreme anemia and elevated creatinine on annual physicals. My GP sent me to nephrologist. God bless her she suspected Myeloma and sent me to emergency room. Received complete work up and diagnosis and started my chemo combination on day 5 after admission. Now in complete remission and going in for stem cell transplant next week. Living in Philly suburbs is a blessing and receive excellent medical care.
Hi Erin, And others here,
43 old? I didn’t have my first child until I was 41. 😬 You’re a strong man. All the best.
Bless you! My husband was just diagnosed 5weeks ago, we were blindsided by this yet another cancer diagnosed. It has been a long road, so much stress, May God bless you
My dad has Stage 3 Multiple Myeloma himself & is currently at City of Hope doing his stem cell treatment & we're all hoping it puts him in complete remission for the foreseeable future! Good luck to anyone who unfortunately gets this diagnosis!
My dad had chest pain. Doc thought he had pulled a muscle so sent to physio and it didn’t get better. He then started to get the shakes plus he kept getting like the flu. Not once did the doc do anything not even a blood test. My dad had never been ill. He crashed the car but wasnt hurt but he went downhill fast. He got taken to hospital took 4 days for them to find out the problem-multiple myeloma and they reackon he’d had it 2 years. The shakes were kidney failure they were working bout 12%. He lived 16 years had 2 stem cell transplants was out both times after 16 days. He worked the whole way thro no matter his treatments. Never broke one bone and was very active guy from kid to adult. Docs could never believe he was ill just to look at him. Even when he on treatment and he had to be lifted in jcb bucket to get on his combine he was working 80+ hours a week. The treatment damaged his nerves in hands and feet he could hardly hold a pen yet was still angle grinding and chsinsawing. He was a legend among others his funeral was so packed they couldn’t all get in. He was the most remarkable person not just to me but to even the medical profession. Can’t believe he’s been gone 6 years. Feel for anyone who experiences cancer it robs us all. Big love to you all
Thank you for your courage in telling people your story, which helps us all recognise symptoms that we may have. God Bless