Iron Infusions, My Experience Dealing With Severe Anemia...
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- Äas pĆidĂĄn 5. 08. 2020
- Iron Infusions were something I had never heard of before... I've been on and off different Iron supplements/medication for years since I was pregnant with Skyler (a little over 14 years ago). Being anemic is horrible.. my anemia is so bad that I get so dizzy, I faint. I'm not a young OR small woman, so every time I fall, it hurts! It can be so exhausting waiting to feel better.. but I know I'm doing all I can and I just need to relax ( hahaha yeaaaah ok. I have Obsessive Compulsive Disorder, High functioning Anxiety, and Panic Attacks... Relaxing isn't something I do well with đ€·ââïž)
I'm so glad to have you guys to share this with.. I know I'm not alone and I so appreciate all the love, encouragement and support you all give me! I love you guys!! â€
If you're new here, Subscribe! Say Hey to me down in the comments! đđ„°đ
/ @mirandaincanada
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I have an iron infusion coming up on Monday I canât wait because Iâve been having heart palpitations dizziness blurred vision because of low iron and being anemic Iâm ready to have this infusions đđđđđGod bless everyone who has to endure this đđđđđčđčđđŸđđŸđđŸđđŸđđŸ
It's so worth it!! Best of luck! xo
@@MirandaInCanada thank you
@@lynngoldsby3789 I hope you're feeling much better after your infusion. I'm also excited for mine next Monday. I think it will make a big difference. Hope you are well â€
Everyone have no fear...this fatigue, heart palpitations, weakness, breathlessness, etc.. was killing me. Immediately felt clearer and better! I also was told it wouldn't take effect right away. As long as we're on our way, people!
@Lynn Goldsby We have same exact symptoms. My 2 infusions didn't stop palpitations because l waited so long to go to doctor. iron brought up the blood levels but not as much as they like. I am happy you're addressing it. l hope you'll be filled w energy..! I had no bad results from it at all but l believe WAITING did damage. If you don't like doc CHANGE because we need info to do our on research these days.Best of luck ..please tell me how it went đ
as someone who is about to go through this because of severe anemia, thank you this has eased my anxiety.
How was it? Iâm going to ask for it.
@@spoolspool6278 Iâve had it done 2 months ago & I had mild to moderate nausea for good 3-4 weeks after it but yes definitely felt the energy and vitality going up after 1-2 weeks for sure much more quicker than the tablets
Me too đ
My thoughts and prayers go out to everyone going through this process, my first infusion is this coming Thursday and this video is helpful⊠thanks you for sharing valuable information â€
I am starting my iron infusion starting Monday and I canât wait to start. Cause Iâve been feeling tired, dizziness and blurry vision. May anyone who is going through this journey stay strong and bless
How did it go? I hope you are feeling better!!!
Anyone that will be having an iron infusion, don't worry. I had one last week and it was literally them putting an IV in my forearm and then sitting in a comfy reclining chair for 3 hours. Nothing to worry about!
I'm scared too Penny
My mum's 92,
She is having her first one next week
I'm really scared at her age if her body
Can cope will an iron infusion,
She is so short of breath ,
We are not going to tell her what she is
Having done it will cause her more worry
Did you have any side affects
What amount did you get, I was not aware it took a longer time period.
Thank you so much I have one tomorrow
I died when you said, âIâm gonna eat that ice!â, because that is so me. Was afraid of getting iron infusions and glad to find your vid. It put me a little more at ease on getting it done.
A great experience from a real person. I see the difference. You positively glowed at the ending. As a severe anemic myself, I know that washed out (fatigued) feeling. But 3 weeks of infusions, energy flows naturally, without the crankiness and the inner dialogue of anxiety
Had my first one yesterday and my blood pressure crashed and I became unresponsive. My limbs are swollen and painful. My face looks and feels sunburned. I was brought back with adrenaline. My arms were full of hives. Please have them give it to you slow and ck you. My reaction didn't happen until end of my infusion. Have someone stay with you for next two days!
Thanks for taking the effort with filming this. Always nice to see Canadian content :). Quite insightful too to see the process, as most videos I've come by don't show the actual clinic/hospital experience. Hope your levels continue to climb and you feel more okay!
Thanks hun!! I actually am going to be going for more infusions soon!
Going tomorrow for my first iron infusion, excited and nerves. I had a âbloodâ transfusion once due to low iron, never want to get that low again. Thank you for this!
How low was your iron?
My Dr wants me to get a transfusion, because my iron is 6.5
@@leahskitchen1157 Shucks...I am sitting at 4.8đ€
@@nomg563 me at 3.3
A lot of us are going through this journey without a information/testimonials to look at⊠Thank you for sharing your experience!
âOn the road to recoveryâŠâ I love that! Thank you so much for your vulnerability and sharing your experience. This puts me at ease in my journey to recovery. Thank you beautiful! â„ïž
I am so glad your video was suggested in my search, I really liked how you walked us through the experience, thanks đ I am having my first iron infusion tomorrow morning and not sure what to expect, however, after you video I feel less anxious about it, thanks đ I hope things are working on your end!
Three years later, now December 2023, found your video. Going in for my first infusion today. This answered my unspoken questions, and i feel more at peace going to go get them now. Thank you!!
Iâm going for my first treatment this week and Iâm a little nervous so Iâm glad to have found this video as well as this comment
how did it go?
Tomorrow is my first infusion, I was so nervous, but now after watching a few video like this I feel a little more comfortable, so onward and up! Thank you for sharing your experience!
Happy to hear this!! Good luck my friend! xo
@@MirandaInCanada why is there sucrose is it thats poison
Thanks for sharing, I am scheduled to have mine and was inquisitive, thanks to you, I am much calmer with a glimpse of what to expect. Thanks a bunch.
Thank you so much for filming this I start my infusions next week and im so nervous. I'm sorry you went through this.
Good luck!!
Howâs it going? Iâm scared to get mine
@@jayleeafraser1798 so far so good im posting my journey about it on my youtube channel though like this video.
Thank you for this. My first infusion is next week, and I had no idea what to expect, and that is unnerving for me. You were very helpful.
Thank you for sharing your experience. I just found out today that I'll get 3 infusions starting next week so seeing this helped me. I hope you are feeling better now! đ
Your experience n energy made me calm down! My mom has low iron n is anemic n it scared the shit out of me! She got one n didnât tell meâŠhad a huge fight with my parents to tell that to me next time! But itâs so scary yet nothing to worry Iâm gladâŠ..also found out anemia is very commonđ! Stay blessed everyone with good wealth ! â€ïž
You are such a great daughter God bless â€
Had my first blood transfusion last week and my first iron infusion next Monday. Watching your video made me feel much better and that I'm not alone.
How are you feeling currently? Hope you feel better! Much love to you and your family đ
hey!! Since these infusions I've had 3 more, and I'm doing OK. I just had an IUD put in last week which we're hoping it will help with blood loss!!!
@@MirandaInCanada Oh I hope it works for you! My anemia is also caused by very heavy menstrual cycles and I've never been able to tolerate birth control pills. I'll be interested to hear your success with this! Hang in there!
Wow! You did awesome. Thank you for the detailed information. I'm having an iron infusion Monday. Perimenopause is kicking my butt. đ I hope I do as well as you did so that I can have my surgery. đđŸ
Your video answered the question of whether or not I can drive myself to these infusions. Thank you for documenting your experience.
I drove to and from my infusions every time! I sometimes was tired, but my drive home was only 25-30 mins
Thank you so much for sharing .Have never had an iron envision and now can see what it is all about for my upcoming appointment.
I wanna thank you for making this video cuz I just got diagnosed with severe anemia and got scheduled for iron infusions. They give you little to no info when scheduling so I was happy to watch your video and take notes! Thanks for being so candid and informative!
Glad I could help! Best of luck! I'm going back for more next month! xo
@@MirandaInCanada I am scheduled for iron infusions. I have 2 weeks infusion scheduled. My iron went down to 4. I am eating more healthy foods with iron medicine. hope nothing will be more difficult than now.
Thank you so very much for sharing your journey. I am getting infusions starting in a couple weeks and am nervous and had no idea what to expect. Thank you so much!
How did your infusions go?
Iâm in my early 30s and am anemic and have been getting iron infusions since February of 2020. I started on this journey due to â Mother Nature issues , ladies know what Iâm talking about đâ have had heavy â ukâ since I â became and women â My anemic symptoms are mainly fatigue, heart palpitations and really hungry. Have had three so far ~ once a year and I go every 6 months. Got an appointment next week for blood work and then appointment with the doctor at the clinic so weâll see how my levels are, my last infusion was July of 2021 and Iâm definitely feeling the symptoms coming back so I feel like itâs time for an infusion
thank you for making this! ive been on iron supplements for a couple months and iâll need to get my blood tested again soon. fingers crossed that i donât need a transfusion but this video made me way less worried about the possibility!
This video brings back memories of my iron infusions...I was diagnosed with Crohns disease and needed a bowel resection and my ferritin and Hgb are fine now...I haven't needed one for 2 years...I hope you are doing ok now...I used to chew on ice for years before I got really low...They definitely worked for me.
Hey man , I hope you're doing well now . My father just got diagnosed with Crohn's and he is constantly losing blood. His Hb is 8gm/dl now . We have got IV shots now but I wanna know is your Crohn's gone now ( considering its a life long disease ) and are you on any injections like Remicade or Humira etc .
Did you have any hair loss?
Going in for mine tomorrow, glad I found this video because they didnât give me any information when scheduling.
I get to go in for one in about 2 hours. I have had many, many IVs before, but this is the first for iron. It is nice to know what to expect. You don't look that old to me. I am almost 65, and you don't look that big, but I will readily agree with you that falls hurt and the older you get, the harder to come back from they are. Used to be if you fell, you just get up, dust your butt off and carry on but at my age, that could easily be a 911 call in progress.
You took it like a trooper. Good job and your videos are a real help. I also have severe anemia, so I am curious to know if it works and how you feel once it works.
You are absolutely right. This is why I scheduled the infusions on my off days from work because of this
Thank you for making this, I was very nervous before I watched this video. I go in for my first infusion tomorrow.
Best of luck! xoxo
Thank you for sharing your experience! I hope you are feeling better â€
Thks so much 4 the information đââïž everything was really helpful.
Thank you for this video. I'm currently doing my first iron iv infusion.
Best of luck!
I just had my first infusion yesterday. I have MGUS. The thing is, I have TERRIBLE veins and already had 7 blown ones from blood tests over the last few weeks. Anemia makes veins even more fragile. Good thing the infusion center had heating pads, and heated chairs. They still had to poke me 3 times. I recommend wearing very comfortable warm clothes if you are a difficult stick, and trying to drink lots of fluids leading up to infusion day. The infusion center I was at had snacks and juice, but I was too afraid to get any because of that vein, I didn't want to move it and have the IV need to be redone. My hematologist gave me Feraheme. The medication stings a little, nothing intolerable, I think having the heating pad on low over my arm helped. The nurses wrapped it in an extra pillowcase so it didn't get too hot, they were so sweet. Some people had throw blankets, their laptop, and a stuffed animal, they let you get comfy. They also gave me a bag of saline, which yes tastes weird, especially if it is higher up on your arm. First infusion since Covid-19, and I could even smell the saline inside my face mask when they flushed my line. Today I am achy and tired, and I have a mild headache on and off as side effects. My brain fog is still really bad. The nurses told me this is all normal, and I will start to feel better in 4-5 days. I get dose #2 next Friday, and follow up with my doctor in a month.
Thank you so much for sharing your experience!! I am so nervous to do this , tho you made it not so scary â€
I had one done before back in 2019. They discovered I was anemic due to another health issue and ended up in emergency room. Now I have another issue that may be causing the deficiency so I have another infusion scheduled later this week. Thank you for the video. You gave me great tips on things I need to to notice of. Being more tired and things to bring. Hope all goes well for you.
what did they find and how are u now? what u do to fix things?
I hope you feel better!!! I start my iron infusions next month.
They work! Good luck! xo
Getting ready to go through this myself, thanks for taking us through your experience
Also, the taste thing is totally a thing! When I get vaccines I can taste them for several hours afterwards...it's the weirdest thing.
Thank you so much for sharing your experience. My first round is Monday and this helped me so much! Also I hope your doing well! đ
I have one coming up for myself too. How did yours go?
@@kathywallace6386 it was so easy. I had no after effects either. The purpose for my infusion was for severe RLS and it helped tremendously! Good luck with your infusion! Itâs totally worth it
Omg the fact you can cook dinner and drive yourself anywhere. I canât even get out of bed Iâm so anemic. Some days are better then others but I am not feeling this anemia crap at all. I guess my reason is a bleeding source and we are trying to find the source? And my iron level is in the toliet! They are ordering IV iron so thank you for recording this. I hope you feel better in a years time now.
I thought the same thing...Most people can't even function properly
Thank you so much for filming this. Eases my anxiety.
Thank you for sharing this with us. â€ïž
Thank you for making this video. I have my first infusion tomorrow and it looks like what I imagined. â„ïž
How did it go for you? I get my first in 3 days
Hello, i go for my first iron infusion tomorrow morning. Watching your video has helped calm my nerves. Thank you!
Thank you for sharing your experience. I have to go for iron infusions very soon. This was very informative and helpful.
How did your iron infusions go?
I hope that you feel better soon - 12 weeks is a long time to wait! I've never had an infusion, but my iron is somewhat low. I better start taking those iron pills like the doctor told me to do!
Oh girl yes start taking those supplements!! I hope they work for you! Thanks for the well wishes!! Iâm really hoping it wonât be a full 12 weeks until recovery!! Iâm so impatient! đŹ
Hope you have a wonderful weekend!! Xoxo đđ„°đ
@@MirandaInCanada You too! â€ïž
Thank you posting. I have to go in for an infusion next week
Thanks for sharing this. I am nervous because I have severe anemia and it has gotten worse even with prescription supplements so now I'm going to be getting infusions and I didn't know what to expect. I really appreciate your video!
How are you now?
@@kala9907 I still get anemic but I get regular blood work and supplements. Last time I had anemia it was due to vitamin D3 and B1 I think.
Thanks for posting this video.
The first time I had my infusions my body reacted to it they give me benadryl with it I also get a full bag of fluids first because I get dehydrated all the time I get a full bad of iron, first time was scary but it didn't hurt was just wiped out. I'm due for another set in 2 days my levels are always so low I have bone marrow issues,, but going through it before has prepared me I bring orange juice because it helps and a blanket coloring books and crayons. I also make sure I have all housework chores done and I get microwave easy stuff for my teenage kids because once I start infusions I'm down for the count l get so exhausted and pretty much can't do much of anything after. I thank you so much for sharing this because of covid nobody can come in with me I go to the cancer center in the hospital, but I thank you because my kids watched your video and were able to see what it's like. I hope you are feeling much better and are well I wish you all the best I know it's hard to suffer from theese things but knowing I'm not alone truly helps . oh also I taste it too its so weird right lolđâ€
@KAT NYC..Hi .l also have gotten 2 full bags of iron infusions a week apart. I was so weak before l was getting breathless,would crash ... literally, especially after meals ( probably celiac bec l do like 85% GF) .
After first infusion l felt like Superwoman,but by 7th day l was tired ,etc. Second infusion made me tireder and l worry about heart ,shortness of breath! Seems many say it EXHAUSTED them ,so you feel WORSE after the iron? Medically they says weeks but l feel worried now,cuz lm back to square 1 physically. l am 10 days from starting and have had 2 treatments ( more not recommended yet).Am l worried for nothing? Let me know how you feel too,better each day l hope.
I go for my first Iron transfusion on Thursday. This made me less nervous.
Here because I go tomorrow and Iâm VERY nervous đ
It's nothing and will make you feel better! I'm very happy ( mine took 15 minutes and 30 to observe blood pressure! You'll be ok!!!! Even my face looks more vibrant.
@@trinastrong8618 Hey, Iâve been so low iron for the past few years and Iâve just refused to have iron transfusion because I am so so scared of any needles and stuff like that. My iron is at 4 right now and some how my naturopath and friends have got me open to the idea of getting it done. I was wondering if it hurt at all
@@reemqras1645 if you donât want to die get the infusion. Otherwise youâre a dead woman walking đ
I had 2 iron infusions a month ago and Iâm going back to my hematologist this Thursday for blood work to see how much it helped. I have a blood transfusion May 25th before My 1st hematologist appointment because I was having heart palpitations and sweating profusely and left like I was going to die. I got 2 bag of blood which took me from a blood count of 6.2 to and 8 now Iâm hoping that the iron infusions took my blood count to a 10 or more so I can have a hysterectomy on august 25th. I wonât be cleared for surgery if itâs not a 10 or more⊠pray for meâŠ
I receive iron infusions as well and I think I have severe anemia but my doctor also referred me to another doctor because she just trying to figure out like what exactly is going on so she referred me to a doctor that deals with thyroids so it's been like this for years but I feel like my anemia went from not that severe because they've always told me to take iron medication but now I feel like it's very severe and I'm always sick I'm always fatigues tired drained it's ridiculous and I cannot wait to see my other doctor so I can get this under wraps
Omg your definitely in my prayers
Sounds like my conditionâŠ. Hopefully your feeling better, and was able to get your surgery!
I need one of these so bad! Iâve felt awful for about a month now. I finally went to the dr last week and I just got my labs back today! They told me I didnât need an infusion just yet đ but man I feel like I do. Iâve been so dizzy and weak, blurred vision and heart palpitations like crazy I canât even get up to go to the bathroom without feeling extreme dizziness. Im so over this. It does give me peace of mind that Iâm not the only one going through this.
Tomorrow is my first infusion. Before I watched your video I was really scared! Thank you for posting this. TAKE CARE.
Good luck!!
Hi, I made it through the first infusion thanks to you or I probably would have canceled my appointment and gone on suffering! I had a little nausea When the nurse hooked me up but I think it was from my nerves. I took my I pad and played games the whole time and before I knew it I was done and ready to go home! Next time I will drive myself like you did but this being my first time my daughter drove me and waited in the parking lot for hours- bless her heart! I'm glad I didn't expect to jump up with all this energy cuz that didn't happen. The nurse said it might be weeks before I feel better BUT thanks to you I am on the road to recovery!! I appreciate you so much! Thank you and God bless. Take care.
thank you SO much for this video. i found it searching for peace of mind with my first infusion tomorrow. i saw youâre canadian, thought oh wow maybe the experience will be similar! to my surprise, i am getting my infusions at the SAME HOSPITAL! what are the odds!!! thank you again for making this, gonna help me be a bit calmer at clinic c tomorrow:)
side note, iâm very surprised you had to pay for yours!! mine is free under medicare
Hi thanks for this video! Im getting my infusion Monday for the first time and i am sooo scared but thanks to you i feel better towards the procedure. Quick question those bottles that you pick up from the pharmacy, what are they? My doctor didnât give me that :( do i need them? Should i ask? Thank you!
My first iron infusion is tomorrow. Thank you so much for making this vlog it is really helping me have the courage to face the infusions. I'm having the same product you had so hopefully three sessions does the trick for me.
How are you feeling now? How many times did you have to go back? My iron is low I'm just waiting for my appointment for the procedure.
You helped me a lot! Unfortunately I have to have 5 iron infusions. I hope that you are feeling better. thank you again.
Hello beautiful lady. Itâs so reassuring to see you get the care you need. Especially during this time. Praying for your health to be fully restored. I appreciate you sharing, itâs very informative on how our bodies can need things we donât know they are lacking. I hope today youâre feeling much better after the treatments youâve gotten. BTW.....get that ice cream! Alwaysđ Sending love and prayers from Alabamaâ€ïž
YASSS GIRL đŠđŠđŠđŠ!! đđŒ I didnât on that day.. I was sooo exhausted & dizzy so I came home and slept until morning!
But I will have an ice cream this weekend just for you! đđđŒđŠ
Thank you as always for your prayers! đ I am feeling covered in love by God right now and I totally believe itâs all because of the power of prayer! đđŒđ I am so blessed to know you & have you in my corner đđ„°đ I am so ready to be fully restored in health! Patience is not one of my skills đ
Love, hugs and prayers for you too my girl xoxo đ„°
Having a iron transfusion is it ok to drink coffee after,thanks
Thanks for sharing this. I've been having serious dizziness, heart palpitations, exhaustion, etc for some time now. I was going to the same doctor for 11 years. He said I had low iron told me to take a supplement. Changed doctor's because he just was not working out for me. First visit and I get a call saying you need iron infusions. Looked at the symptoms of severely low iron and every one there is I have almost. How could he have missed that? Anyways, I was curious about everyone's experience. Thank you for sharing yours.
I get mine Wednesday, im ready for it im so tired. And my breathing is not the same. Im just ready for energy and my life backđđœđ€đŸđŻ
Eating Ice is an Anemic thing.
I have a craving for the smell of coal, recently on iron but hopefully they trace it back to a stomach bleed been ten months with a five hemaglobin count .They use Argon gas to seal the bled fingers crossed
Freezing winter day....buying a cup of ice eating it with mittens!
dunno if anyone cares but if you guys are stoned like me during the covid times you can stream all of the latest movies and series on InstaFlixxer. Been watching with my brother for the last few weeks xD
@Keaton Nixon yea, I've been using InstaFlixxer for since november myself :D
No wonder I love ice so muchâŠhaving my first one done this Thursday
Awe feel better soon darlin. Yes i taste certain injections as well. Id tell the nurse at the time and they said oh really..never heard that before lol. Anyhow i believe you! Hugsđșđđșđđșđ
Right? They taste weird!! (And smell weird too!) Curtis said heâs had a few patients say the same then when heâs giving them an IV. Maybe weâre just more âin tuneâ with our bodies đ€
Hugs and love sent right back to you my girl!! Xox đ„°đđž
I can taste the saline when they flush my line also. My IV was in my arm this time, but I have had a central line before, and you can taste it even more with those. It's a thing, it's not just you â€ïžđ
I had 4 transfusions. From chronic anemia. Then after that I had vitb12 injections. The feelings of tiredness slowly lessens and soon you realise you are more energised. Like you I also ate lots of ice and still do but not as badly as before the infusion. The ice broke my teeth so be careful with it. Sorry this comment is so long
Susan Ryder Hey love đ Donât apologize for a long comment - I love them!! đđđŒ
Iâm on Vit B supplements as that has been low too for a long time... Iâm encouraged to hear your body came around and you felt better! Iâm getting tired of waiting to have my âfullâ life back. (Iâve never been good at being patient đ)
I wonder is being addicted to ice is an anemic thing?! I am so worried about my teeth so I usually only chew ice after itâs been melted down small in my water... but it is seriously my favourite thing to eat in the world! đ§đ
Thanks so much for your personal experience! So glad Iâm not alone in this mess! đ„°đđ
The eating ice I am positive is from the anemia. At the time I read this from Wikipedia âIs eating ice a sign of pica?
Possibly. Doctors use the term "pica" to describe craving and chewing substances that have no nutritional value - such as ice, clay, soil or paper. Craving and chewing ice (pagophagia) is often associated with iron deficiency, with or without anemia, although the reason is unclear.â Hope that helps. Iâm many moons older than you at 52 so maybe my pica is more of a habit now. Oh and I crave the ice.
Susan Ryder So interesting!! Thanks for sharing the information! You know whatâs funny? I used to hate cold water! I only drank room temperature! I hated ice because I have sensitive teeth and the cold sometimes hurts. I only started craving cold water and ice last year in May! Which is when my anemia was getting worse & my supplements werenât working like they should of. This is wild to me! Iâm so glad you told me! đđ€
You said you were chronic...what was your levels...mine is 4 ...I am starting to panic...do you mind if I ask?
Lol
Thank you for the video. I was hospitalized on March 12th 2022 for one week. With three bleeding stomach ulcers, My hemoglobin was 4.7. after three units of blood [ blood transfusion ] count was 7.4 Had surgery to remove the ulcers. Today had first follow up Hemoglobin is still low at less then 9 talking about having a iron infusion done to help. your video helped.
I'm at 6 and taking the iron daily 350 mg plus the foods for 7 months. Dr called a month ago and referred me i need infusion . Today an appointment in another month for the referral. Dr. takes so long for everything
@blendorart9561 take care always
Thank you for this video. I have severe low iron due to fibroids causing excessive bleeding and will be receiving these kind of treatments soon. I am facing a decision on whether to have a full hysterotomy or a fibroid treatment. There is some risk in the surgery due to location of one of them and they are both about 10cm large! I am horrified my female doctors did not say or do something earlier (fibroids first found in 2012). Now that I moved and have a male doctor, he was determined to get to the bottom of why my iron was low and I am so thankful. Scared out of my mind based on what I learned today so your video helped ease at least one part of my question, "what the heck does an iron infusion entail!" Thanks for all the tips and warnings about bringing things, how you'd feel, and also about the cost! I am a Canadian too. Thanks so much for this.
Same here! I started my first iron drip today. I have fibroids and Iâm terrified because, I havenât had kids yet. I have an appointment with my obgyn next week. My thoughts and prayers are with youâ€ïžâ€ïž
Im going for my first infusion in a couple of weeks. Thanks for sharing your experience.
I just came by this video of 2 years ago, you sure got a lot of infusions your hair looks very pretty happy Thursday love your New Brunswick neighbor Kimberly â„ïžđđđđđđđšđŠ
I wish you all the best. I'm waiting to hear back on whether I will be getting an iron infusion for my anemia. I was super sick for several months and my iron months later is still low and affecting me. I thankfully have a port and do infusions multiple times a week so thankfully I will be able to use my port. I've been know to have anemia multiple times throughout my life and take iron everyday via mouth, but still having low iron. We will see. Hopefully, it helped you and continues to.
Thank you for this video!!! I am 31 weeks pregnant and I have an iron infusion coming up next Monday, I have to get infusions once a week for 4 weeksâŠ.. Iâve always been anemic but my levels have dropped lower during pregnancy and iron pills arenât bringing my hb levels up enough.
This video was so helpful to let me know what to expect and how to prepare myself to be as comfortable as possible for a few hrs of sittin still lol.
Same how did it go?
Never heard of this before. I am developing symptoms of anaemia including shortness of breath, racing heartbeat, light headedness, fatigue. My mother has pernicious anaemia, I am hoping I do not have that type. I have started using iron spray, b12 and folate patches as I have issues with my digestive system. Itâs quite frustrating getting up and feeling so exhausted after a full nights sleep.
Thanks so much for your video. Iâm in BC and am scheduled for an iron infusion (monoferric) next week. Iâve been recently diagnosed with Crohnâs disease which would account for my low iron, since I canât really absorb it well from foods or pills.
It was nice to see what you went through and your advice on what to bring đ
Hi! Iâm going in for my first ever MonoFerric infusion next week. How did yours go and how have you felt since? Did you require a second infusion or blood transfusion? Thanks :).
@@MessiJessi3 It went well for me, no issues, no reactions, no side effects later.
My ferritin number went up over the next few months and hit its peak maybe 3-4 months after (it went up to normal/optimal number). My actual iron number only ever went up a few points đ€·đ»ââïž
Since that 4 months after mark my ferritin level has been dropping again and now, almost a year later Iâm back down to where I started. (I have an absorption issue due to my crohns, so I wasnât surprised). My GI doctor is going to send me for another, hopefully soon, just waiting for approval through the health system.
Iâm about to start mine this coming Monday to treat severe anemia. So ready for the light headedness and dizziness to be over.
I get my first infusion on Friday. Thank you for making this video.
Best of luck!
@@MirandaInCanada it went really well. I now have a weird taste in my mouth and have nausea. My first infusion was on Friday and my next one is this Friday. Did you experience the taste in your mouth for a while and any nausea?
Happy birthday. Sorry you have to do all this the day after. But if it gets you well then that's the main thing. X
Thank you so much for your sharing your experience. I just returned from the hospital yesterday thinking I had Covid. I have had chronic anemia but following my covid test, chest X-ray and ECG the doc did a blood profile. Haemoglobin of 98. That is pretty low for me. All my complaints mimic Covid vs Anemia. I did not realize this and thought I was just in a Covid fog and exhausted like everyone else but when my heart rate, sob, chest discomfort, headaches, etc started I immediately thought hmmm.. Covid. Well now ER doc in ONtario suggesting infusion. My ferritin level is really low at 7. Iron supplements do not seem to work for me or take too long.... Can you share at what level of hb you were when deciding to get the transfusion and how you are doing now? Thank you so much. Kelly
Hey sweetie! I can't remember my numbers, and what they meant and what they were called lol oh geeze sorry!!!
I know there was a number that was like a 3 or 4 and then after the transfusions it went to a 104... maybe that was a 10.4? I wish I could be more helpful!!
I was on supplements and clearly they weren't working anymore!
Glad you don't have Covid!! But take care of that Iron!! The infusions will be very helpful but are so time consuming! Make sure to bring a book or something fun to do while you sit hooked up to the iv!! Good luck! xo
@@MirandaInCanada how are you feeling now I just had my infusion last Thursday and I have another this week I'm still short of breath which is crazy I thought I had heart failure but it's anemia..
I have Chronic Kidney Disease and I have had to have blood transfusions and I take iron daily but it is not enough so now I am going to have to have iron infusions. The blood transfusions we're a bit scared and exhausting for me. I am sorry that you have to have the infusions. Praying for you â€ïžđ
Thank you! I'm getting my first of 5 Infusions tomorrow. Iron level 4. EEKS! I'm nervous but excited and ready to feel "normal?" again.
I'm 33 weeks pregnant with severe anemia. I go for my first iron infusion on tuesday. I'm so nervous! But hopeful it will work as I also am tired of feeling exhausted, dizzy, light headed, having head aches that last all day. This gave me an idea on what to expect. Thank you!
You'll be ok! Just bring stuff to do so you won't be bored, or sleep!! My last 3 infusions were a few months ago and I slept every time! It was wonderful. Best of luck with yours & with baby too!! xoxo
How did it go?
Thank you for sharing and I know I am on the late train but if you donât mind me asking what were your levels? If you said it in video I am sorry as I am currently watching it.
Thanks, I'm going tomorrow and this eases a lot of my anxiety
Wow. Thank you so much for your video. Tomorrow I have iv infusion.. doctor said my ferritin level is 4. I'm really worried.
I just had my second one today. After the first one, I was super exhausted. Today was better, other than feeling dizzy. I have another next week. Fingers crossed that it goes well! đ€đŸ
Best of luck to you my dear! xo
So u have to get several or is it just your iron level it depends on
What was your hemoglobin levels at?
@@beautifulanomaly9920 I had to get 3 infusions but Iâm sure it varies per person.
@@lzjz5679 Oddly, mine hemoglobin was not tested but I felt a lot better. Less chest pain and more energy.
Thanks for sharing! Iâm going in a couple of days to get my first of 5 infusions of venofer.
Thank you for posting this! I am at the point where I might need iron infusions and I have heard such bad things about it that now I am afraid to have it done. My iron is at 5. And I feel like crap! And yup! Can't even go into the grocery store without feeling like I am going to faint and pass out and it's sending anxiety through the roof!
I just had them done 3 weeks ago. You just sit in a comfy chair and receive iron. I was nervous too but it was so easy. Make sure you're hydrated and bring snacks, if you want.
This is me I can't even walk for 45 minutes. I usually walk 2 hours a day 1 hour in the morning 1 in the evening. After 5 minutes I feel like crap, sleepy, and just lazy. I hate getting up even to walk the dog.
feel the same . my level dropped from 7 to 6 after taking the iron med for 3 months . waiting for infusion.
Iâm anemic. I was getting b12 shots and taking iron capsules. The iron capsules had a side effect that I really didnât like. So, I stopped taking them. I also stopped the b12 shots after having 3 all together of them. I was supposed to go last week and I blew it off. I told the doctor about stopping the iron and he never called me or said anything about it. Guess he doesnât care. I hope you are feeling better soon.
Thank you for the video , I have been in and out the er due to breathing issues so I found out that my anemia is causing my bad breathing. The doctor suggested iron infusions so your video is helpful.
I have a bleeding hiatal hernia causing severe anemia. I had a blood transfusion and an iron infusion. I'm averaging about two hrs of sleep at night. My hemoglobin numbers are slowly going up. Having surgery in 2 weeks. Praying that I'll be able to sleep and breathe better. đ
Hi there - I JUST saw your post. I will be getting my 1st iron infusion this week. Never had it before. On top of the symptoms that you mentioned leading to you getting infusions did you have low blood oxygen. Mine was in the 80âs and got as low as 77 last Friday. I have NEVER messaged anyone on CZcams and not sure how I will see your message back. Thank you SO much if you do đ
I know this is an older video, but I'm going through this pretty much as you are, and it is such a relief to hear that you are experiencing the same things I am - like extreme tiredness in general and with the infusion itself, the dizziness, the worries about driving when you're so tired/dizzy, etc. I think it's easy to be hard on yourself when you've gotten used to feeling crappy and you're wondering how people work a full day and still have energy to exercise and socialize or work on a hobby.
I had to laugh about the ice thing - my ice cravings were the thing that sent me to the doc to ask about iron deficiency - I love ice so much.
One thing you didn't mention was any cognitive issues - I have some annoying brain fog days and I'm wondering if that's something you've experienced. No one really talks about how deficiency affects the brain.
I had very low iron and ended up in ICU having blood transfusions from Wales uk
Bless you. I would imagine that infusions are much like being on a drip. I was on one several times through my eldests pregnancy. Serve morning sickness ment I needed drops to rehydrate and then go was premature do I was put on another to try and stop him coming out. I feel your pain.
Pregnancyâs are HARD! Thankful that stage of my life is over!!! And so blessed to have my three đđđ
@@MirandaInCanada yes!! I'm all fone with that bit of my life!
Thanks for sharing this experience. What did the nurse do for you low blood pressure?
They slowed the pump down a bit, and it came back up!
I start iron infusions today⊠thanks for sharing.
Hi! Do you know what was causing the iron deficiency? Thank you for sharing your story đ
Hello from Ontario Canada đšđŠ just wondering what your ferritin level was by chance? Like when is low to low and when is an infusion recommended?
Having my first Iron infusion today. Had a blood transfusion back in February when I literally couldn't stand or stay awake.
Best of luck to ya!! xoxo
Hi read your post ..what were your levels...I am at 4 and getting freaked out at what I am reading...do you have any worthwhile advice...can you help at all.
Question I have very bad anemia as well, did getting your iron up and feeling better help with your weight loss?