🩸How I'm Feeling Post Iron Infusion
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- čas přidán 26. 07. 2024
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#irondeficiencyanemia #lowferritin #ironwarrior #lowiron #iron #keto #ketovore #lowcarb - Jak na to + styl
Just had my first infusion of 5 and I already feel like I can literally do anything. I feel like I have my old personality back, the color on my skin is back and I feel 22 (I am 22 years old) before I just felt like an empty shell. It was so funny, I said "i feel 17 again!" And was asked later today if I was a minor. 🤣for reference, people always assume I am much older than I actually am.. I had that "tired accountant" look. It is amazing how iron deficiency/anemia/hemoglobin levels can make or break your health. It is true, our life is in our blood
Hi! I still feel amazing but I HAVE to stay on top of my iron supplements. I take Blood Builder with vitamin c infused into them. For some reason they work better for me than the generic kind.
As far as your gastritis is concerned, have you ever done a black walnut or Paramax cleansing? My naturopath said it can clear H.P and potential parasites that could inhibit iron absorption
Hi mydaughter just fainted recently, then we learned “ iron deficiency” I feel like after speaking with her physician taking iron supplements, I make sure she gets spinach or iron enriched meal everyday. Vitamin c…… I just wonder how long it take to build back up because she went from 7.9 to 7 days later 8.4 currently. Any advice? Did you try on your own? What was your Hemoglobin?
My hemoglobin was 3, so I had to get infusion
I have another two weeks before my first infusion, and this helps so much! I am old, and tired!!!! This alleviates a lot of confusion about something I have never experienced.
Did you do it again..?
I had once and again iron become low
Wow. You put it perfectly about the mental hurdle to do things. Thats how I feel all the time. Getting my 1st infusion sunday after a lifetime of being anemic
Wow 👏🙌
I was one of the few that had the rare bad side effects. It spiked my bp to 185/110, had the awful flushing, got an instant headache the continued to worsen throughout that day, went home to lay down and couple hours later my family found me seizing. ( never had a seizure before in my life) they couldn't find a pulse, my pupils were fixed etc... lucky an ambulance arrived quickly and im still here at age 52.
So happy for you!
So glad to hear you’re seeing benefits from the infusion! 🤗
I’m glad you are feeling so well since the infusion. Great news.
Wow, so happy for your progress! This is so helpful for me, thanks for sharing ❣️🤩
I am going in for iron infusion soon and everything you’re saying makes so much sense. I have the same symptoms I thought it was all normal.
I'm happy you're feeling better.
Thanks for the update, Nili. Very happy to hear that the infusion is helping. I hope you can learn the cause of the low iron soon.
So happy it helped you !
I had it in infusions in the past and they made me feel alive again.
Thank you for taking the time to share your experience. I'm 59 and new to all of this.
Thanks for the update! You look like you have more energy.
Happy to hear that you are feeling better after your iron infusion 🤗
I enjoyed the VLOGMAS. I'm so glad to hear your on your way to healing. You seem different and happier. Still keep you in my prayers.
So glad you are feeling better and getting over the brain fog. That can really drag one down.
Glad you are feeling better.
This gives me so much hope.
I 100% agree with Sharon...You look amazing, your face is so clear and bright, and you sound fantastic as well!!
I have my first infusion later today, so thanks for sharing this because now I will have an idea of what to expect.
My iron deficiency anemia is due to heavy periods every month. And the heavy periods are due to uterine fibroids. Especially, the big one I have that has caused my uterus to become enlarged. A Gynecologist told me it's pretty much like I'm 5 mo. pregnant. That's how big my uterus is right now. I was wondering for years why my stomach was poking out a little. I thought I was just getting fat, but NOPE. It's uterine fibroids. And I'm now in the process of getting them removed/shrunk. But, I can't do any of that if I'm anemic. It's like in a nightmare cycle right now. So, I really hope these iron infusions help so I can get the fibroids removed asap! And start having lighter periods and less anemia.
Praying everything goes well ❤️🩹
@@Joy-hw5im Thank you so much. I'm doing much better. I had an open myomectomy this past December. The large fibroids are all gone. My periods are lighter. Finally, after years of suffering. God is awesome. 🙏💙
It’s sad that I do not know if my period is too heavy or not 😢
@@h3royalty606 Your doctor will ask you some questions to diagnose you with a heavy period or not. Track your flow by taking note of how many pads/tampons you go through on your heavier days and how often you have to change them. I was wearing the thickest pads I could buy (those long, thick overnight pads) and was soaking them every 1 1/2 to 2 hours. That's way too much, when the packaging says they last for 10 hours. Not for me they didn't.
Your symptoms are exactly like some of the symptoms I had before finding out my thyroid was acting up. I'm pleased you are feeling better.
So so glad to hear you are doing so good. God is Good
And yes you look radiant ☺️
You look amazing! You sound amazing! Your thought process is faster! You are talking faster and thinking faster! How exciting! I’m so excited for your progress and even more good things are sure to come! ❤️❤️❤️
10:13 I cannot believe I thought this was normal. my infusion is next week. I thought I was losing everything about myself. Knowing there’s hope…. I’m so so grateful.
How are you right now?
I'm sooo happy for you!
your skin & face colour has improved dramatically , good luck with your journey
You are describing my life with the heart stuff, motivation/ability or lack thereof & trouble with labor things like stairs & feeling lack of oxygen kind of... ??
Guess I will have my ferritin checked soon.
Thank You for sharing. SOOO happy You have not had to wait 4-6 wks to know You are improving :-) But You accel at listening to Your body on the whole.
MORE blessings upon You All!!
Yes 🙌Nili it’s not your imagination you do have color in your face …so happy for you it all went well…. You were staving for iron ..obviously… prayers you continue this awesome journey of healing …God Bless you and Your’s🙌🙏🙌💖
Thank you for creating this video ❤
Thanks for the update.
Thank You!!!!!!!!!!!! I just had my 1st infusion on Monday and I was trying to figure out how & what I was feeling!! Nobody tells you the long term effects of having Bariatric surgery!! I feel so much better and I'm awake!! Thank you for understanding how I'm feeling w/out even knowing me😁
My neighbor in her upper 80s and her daughter in her late 40s both have iron absorption issues which seem to be hereditary and they both get iron infusions on a regular basis. Both of them seem healthy otherwise (the mom has the usual age related issues but nothing horrible). They have not told me if there is a specific name for the cause but I can ask them. About 15 years ago I was treated with some vitamin infusions at a naturopathic clinic and reacted with extreme exhaustion. They had told me I might feel worse before I felt better and it took a few weeks and suddenly many things corrected. One doctor described the reaction to being thirsty and given water through a fire hose, that the body is grabbing for whatever it needs. Believing with you for complete wholeness. Thank you for sharing your journey.
Hi Nili, i'm so happy to know you are feeling so much better! Have you considered running your labs etc., by Dr. Berry? Seems his input would be invaluable here. Thank you for all you do, I really enjoy your content and your precious family.
Thanks for sharing, very encouraging!!!
I see pink cheeks! Glad to hear you're feeling better 😊
Hey I just got my first iron infusion yesterday! And it was nice to I guess "talk to" someone about this or just hear about others experiences. Thank you!
Can you feel a big difference?
@yes, its that time oh yeah. Even now it being 2 months ago I've had a huge improvement in my motor skills and energy :)
@Penny only for the first week. I was feeling a bit weak and light headed for a while but after that I've been great 👍 absolutely no lasting negative effects
Thank you!! I start my infusions in a week!! Thank you for this video
LOVE your front porch!!
Your video has given me hope and reassurance. My first infusion is Tuesday and now I know what to watch for. I have fought for these infusions and I’m glad I know what to expect. I hope you’re feeling better.
How did your infusion go? Any side effects?
Omigosh you are exactly describing my depression and lack of motivation! I'm scheduled for Monday but terrified because they can never get an IV in me. Me language is messed up too. But I just had an ileostomy and I'm limited on certain foods. No caffeine! You look so well!
Wow, your colour looks good!
Thank you for these videos. I came to look to see what to expect. I will be getting iron infusions and I have awful anxiety of the unknown. I have had low iron since a teenager but it has gotten significantly worse the last year or so. When you spoke about the heart rate that is exactly one of my concerns and caused me to finally do infusions was the heart rate waking me up as I start to dose off. It wakes me up and then makes me anxious. I was like alright there is a serious problem. I have also have had a time getting over normal seasonal allergies this time too. I have been sick with coughing, congestion, etc for over 2 months. Multiple steroid dose packs and two different antibiotics. I appreciate all this information.
You look great, so glad you are feeling better and all went well with the transfusion.
This gives me so much hope. I start my infusions in jist a couple hours. I get 5 total over 14 days. I literally have ALL the same symptoms as you. My ferritin level is 5 and hemoglobin is 8.4. My difference is we KNEW about my iron levels for a couple years. Looking back on paper trail its been about 5 years😢 ive been talking to my dr about my iron and he dismissed it i finally swotched drs and she has done 3 blood works over coarse of a year and FINALLY sent me to a blood dr/cancer center. I did google and seen a lot of negative things about the iron transfusions but this gives me hope so thanks for sharing
How has it help u I go Monday
This gives me hope. I just finished my first treatment.
Gives me hope too. Hoping to get my infusion next week. The week after latest.
Thanks for sharing and CONGRATS on your success with your iron infusions. I'll be getting mine soon. Just made an appointment earlier today.
How did it go?
@@lovelybones6891 They helped me a lot! I had so much more energy afterwards.
@@lovelybones6891 Sorry for the late response. They went just fine. I totally had more energy afterwards. The doctor/specialist prescribed 5 iron infusions once a week for 5 weeks. I honestly felt better after the first infusion.
Thank you for talking about it I got my first one December I feel a little better when you hear some body talk about thankyou
My first thought when I saw you today was, your color is better ! Heart rate elevated before makes sense because low iron means heart has to work harder/ faster to get enough oxygen to cells in body.
I have my first infusion of 4 starting Monday, I feel nervous because of the side effects but I’m just excited on feeling that motivation to just workout as much as possible
That’s awesome news. Congrats. I’m doing mine tomorrow. Very nervous won’t lie but I can’t wait to get some energy and motivation again.
It gave me life again! I hope it does the same for you!
Shelley….How did it go? My hematologist has been encouraging me to get an infusion, and I’ve been hesitant. I felt like a shell yesterday so I’ll be calling her Monday to get it scheduled.
@@IndigoNilidear did u have dizziness n vertigo feeling ..n anxious n fearful?
@@IndigoNilii have very low iron going for transfusion soon.. i have high esr n crp ...what was your crp n esr
So glad you found help. I am going insane looking for a good doctor. I am fatigued, no motivation, depression, as you said, just doing a load of laundry is a big effort. Heck, going on, is a big no no.
Is anyone experiencing insomnia with low iron?? I get the fast heart rate when I lay down at night. I have been struggling with sleep for years. I am tired of having doctors tell me is everything is “Normal”. So, here I am playing doctor and trying to figure out what’s wrong. I may have an ulcer, going to an endoscopy in December. Who do you suggest I use for parasites testing? I have lost faith in our “Healthcare”. It’s Sickcare…
Thank you for sharing! I’m struggling and dr has offered infusion if I want. Everything feels so hard!
My hematocrit was 27 when I was in my twenties. Back then, I was a pescatarian, and I did have heavy periods. My doctor gave me oral iron supplements for 3 months, back in the '80s. I quit pescetarian and I took a multivitamin and extra vitamin c and all has been well for decades and decades.
So what type of iron did ur doctor give u? I seem to be allergic to iron salts so I’ve been considering heme iron or my plant based iron but it doesn’t feel like the plant based one I have does anything
@@cheriselynn I took 350 mg of ferrous sulfate 3 times a day, for 3 months... then had repeat blood work.
Glad to hear things are getting better and better. How's your blood pressure throughout all this?
I just had iron infusion # 2 today. The craziest thing I noticed the day after the first one was that I completely stopped craving ice !! For two straight years I ate ice all day every day. I would go through Chick-Fil-A several times a week just to get a huge cup of ice. I constantly ate crushed ice at home. Anytime we would go out to eat, I would automatically take a fork or spoon and start digging into the ice in my drink. Well, the day after my first infusion, I was in the car with my husband and he had a fountain soda he had just finished but the cup was full of ice. Normally I would grab it and go at it, but I just glanced at it and looked away. Then it hit me I didn’t want it!! CRAZY! I also noticed about five days post infusion that my legs weren’t shaking when I walked down the stairs anymore! My dr said my first couple of infusions would be eaten up by bone marrow and it would take a couple of weeks to see huge improvements in my exhaustion and functioning. I am SO excited to feel human again!!
I know exactly what you mean about the mental hurdle! It can also be low dopamine, but a lack of energy for whatever reason. For me, it’s sleep apnea, which I’m treating. Despite your symptom of lack of clarity, I’ve always noticed how well said and effortless your videos seem.
My husband has to get his iron infusion and that's why I watched this video to at least know what he might feel and what I should know about not to worry. But at the same time, even though I do not have low hemoglobin but have very similar pattern of feeling tired, not getting things done what I want to do and that makes me feel frustrated as this is not I was! I don't know what the reason is. Perhaps dealing with so many health issues to handle has affected my true personality. Our son's esophageal cancer, then my husband's lung's bacterial infection, (diagnosis took too long as much as 2 years! ) , thankfully he was out of that and we both had corona. It took a long time to get normal for both of us and now he is diagnosed with colon cancer, the reason we found out because of low hemoglobin in blood work, leading colonoscopy, colon cancer, surgery and still low hemoglobin, perhaps he might have to go for a chemo therapy, he need to have hemoglobin level up and so he will go for iron infusion. I hope I too can get one iron infusion to bring "ME" back! 😀 I love portrait painting and I have not been able to pick up my brushes and colors as my mind is not free! I wish I can get back to my passion. I have no regret for not being able to, because I am being there for my family in the tough time. I think myself being instrumental by the Divine powers to help heal my family members.
How are you feeling now? How are you treating your sleep apnea?
iron helps produce dopamine and other neurotransmitters, so it makes sense!
Great video! Thanks for sharing your experience and glad you feel better.
I have my infusion in 2 days, wondering if there’s anything you prepared or asked the doctor beforehand? For eg, about the staining risks?
I really love listening to you! I"m pretty much going through the same stuff, not on keto though. My ferritin is at 5 right now and my iron at 13, and boy, do I feel like crap! It took begging and pleading and a few ER visits for a Doctor to agree to do an iron panel! How ridiculous is that! I"m going to be looking into the MTHFR gene too, because I believe this has been affecting me my entire life as well.
I feel like MY entire life has been affected by this to. I am so happy to be learning about this.
My daughters isn't absorbing iron these past couple years and has iron defiency anemia with extreme exhaustion, 😫so I'm listening to yours and other's videos getting ideas. They just tested her for celiac which came back negative, thank the Lord, because her dad has it.
Have you had that test?
Celiac & Crohns disease are a common cause of iron not being absorbed.
Also test for H Pylori -bacteria in the gut.
Glad you are feeling better. 🥰
I feel like I was listening to myself. Thank you for the video as I just did my first iron infusion and you described all the things that for others made me sound like I was a hypochondriac.
How are you feeling 4 weeks out?
I’ve also experienced these things from low iron and ppl think I’m just anxious and that’s not even the case
Dealing with the same ! Thank you!
I’m so happy for you. 🤗
What a blessing to have a dr who knows how to test.
My hair always sheds more right before I get new growth from treating a health issue I have.
I’m interested in seeing what gut health test you choose.
I love your videos. I find them relaxing and full of information and encouragement. Thank you.
I'm currently in the research stage of this process. I've always struggled with iron deficiency most of my life, but literally yesterday got a referral to hematology for iron transfusions by my PCM. I just happened to stumble upon your channel and the content is great!
They are infusions not transfusions as it’s not a blood product. I’ve been on IV iron for several years and get usually 2 rounds per year. I’ve been on IVIG for over 2 years and that comes from donors plasma and IV fluids and meds at home with a central line. IV iron burns. I used to bring a heating pad to put over my IV when I had a regular IV with the iron. When the PICC team was laid off and no one could come start my IV because I was a hard stick he started to order a PICC line for my IV iron. Now I’ve had a central line because I get IVIG every 28 days and I’m on IV fluids and meds at home. Be prepared for the medication to burn and I have bad reactions to IV Venofer which is IV iron. Ask for Benadryl prior especially with Venofer. Even with the premeds I still reacted during one of the 4 iron infusions. Always ended up spending the night on the floor in the hospital because of it. Know the reactions you may get. Most don’t get sick but I do. Can’t have IVIG and Iv iron because I really react and last time I ended up hospitalized for 5 days.
How is the reaction pls? I am easy reaction to med
Thank you for this video ❤️ I got my infusion 4 days ago and I feel so bad , I get all the side effects even fever , I’m so sad but this it’s giving me hope, thank you again
how are you feeling?
@@maddieb2763 the next day after my post everything was way better , I feel really good, thank you for asking ❤️
I have to get the infusion on Monday, and I’m sos cared of the side effects, but praying that I do as well as you! The way you’re describing yourself is exactly like me! Little motivation, high heart rate, looking for words, shortness of breath, lack of sleep…I’m hoping that this brings my levels up quick and I can come back to life!
So good to hear you are beginning to feel better. When you say high heart rate what do you mean? I've always had a high pulse rate just like my Dad, but my blood pressure is good.
Yes, high pulse and feeling like my heart is beating out of my chest. Also the beating in my ears... I've always been told that my blood pressure is normal though
I’m having my first time infusion in a couple of weeks. Your explanation of being exhausted with little motivation is exactly how I feel.
I’m really hopeful my energy and motivation returns after the infusion!
I just would work & sleep !! I use to be a out going person 😂ready to enjoy life again
I had all those symptoms too but I know why my body doesn't absorbe the iron. It's due to a gastric sleeve procedure. Since then my levels of iron in blood, ferritin, and everything related to iron started to drop 10 years ago! But this last year it was terrible. I got the iron infusion yesterday and I hope to feel the effects in a week. But BE CAREFUL, if you take ANTI ACIDS to protect the stomach, that is one reason a lot of people don't realise but it doesn't let the iron get absorbed. Iron needs acid and vitamin C to be absorbed so please, bear this in mind, everybody, just in case. An hematologist will know what to do.
I get mine soon...this video really helped me because I am worried...thank you
I’m worried about myself. How did it go for you?
I’m 38 weeks pregnant and I have an iron infusion scheduled this Thursday. Thank you for this video I’m very nervous 😟 I just want to feel better before my C-section in 3 weeks.🤞
How did you feel shortly after? I’m having a c section in a month or so and just had my first infusion. I hope all went well
@@sazzlepop321 well sadly our county was booked out a month so I delivered with a hemo of 10.0 which dropped to 8.5 after delivery. I felt horrible, confused, so tired, dizzy, but in the hospital they kept me for a few days and gave me the infusions. On my first one I had a headache for 2 days accompanied with nausea nothing significant. After being released I went for labs and was still very low so they scheduled 3 more treatments. On my second my veins did hurt a bit but I got my color back with that one. (I was pale white and my eyes were yellowish) by the time I finished which was 2 months ago I felt so much better. I have my energy back (hence the sleep deprivation of a new baby). I will say this take someone with you if you need to go back just in case you get a little woozy if you’re done just keep eating leafy greens. That and lentils have been helping me. I did get both tubes cut at delivery, so I have had so much bleeding I doubt it’s normal but it’s only been 3 months since delivery so who knows.
I hope you have a safe delivery. Is this your first cesarean?
@@Vanessa-jr2mbI’m scared, I am due to have a c section in 7 weeks and my hemoglobin is at 8.5. They want me to get a few infusions before my c section.
I had my first infusion and I can definitely tell that I’m tanner! I’m supposed to get another one in a few days
I definitely understand how you were feeling because I had the same exact symptoms prior to starting iron
I would cry from how exhausted I was doing anything in the house
Good luck
Nili, have you tried adding milk kefir to your diet? It really helps promote good gut bacteria which could help you absorb the iron you’re eating. Best of luck!
I noticed your skintone right away. I'm so happy for you that tyoure feeling better. Have you been tested for celiac disease? It can cause anemia and malabsorption
Also gluten intolerance alone can. Like me.
After getting infusions for a few months I've been dealing with nerve damage in my entire left arm. Be careful letting them poke you do much. Change your eating habits is the key
Has this gotten better? I’m so sorry you’re dealing with that!
this is fantastic...so happy for you. Do some research and maybe a hematologist if there is no easy answer.
I will start with iron infusion tomorrow, 26.01.24 . My doctor told me that my iron level is 2, i am very scared about this. But i am also more scare about those injections ( i will have 10 applications, 1 application of 50 mg every second week ) .
I really hope that i will get better soon 😢.
Your video helped me to relax a bit, especially when you told about your side effects.
Thank you ❤
Thank you so much for this video. I know what you are talking about when you talk about not having motivation. I also have been dizzy weak short of breath and heart racing just putting a fitted sheet on my bed. My heart rate went from 63 to 138 just doing that. I am going on Friday 5-5-23 to have my first iron infusion. My Ferritin level went from an 11 to 5 in one month. I am pretty scared due to the fact that I have many allergies and reactions to medication. My doctor said he wanted to give me 5 bags of iron in one infusion. This is so scary to me. What I read is the more they give the harder it is on your body. I am going to see on Friday if they will do it a little at a time. Maybe over the course of a couple of weeks. I would feel much better about that. They told me to take a benedryl an hour before my infusion. I always carry my epi pen in case I have a reaction to something I ate or medication I took. I have had many surgeries and they don't phase me but this infusion is not setting well with me. I am going to call the infusion center tomorrow and see if I can get some answers to my question. Hugs and blessings
How did it go?
Just went today !! Still feel unbalanced some I am a diabetic sugar was 584 now 124 !! I want to sleep but can’t for some reason!so happy for u
Discuss having your intrinsic factor checked. I was diagnosed with pernicious anemia along with iron deficiency anemia as well as something blood related to low B6 levels. Also hypothyroid, SIBO, NAFLD and gallbladder issues. I'm taking a supplement with intrinsic factor, vitamin B12 & folic acid as well as an iron supplement. The first thing I noticed was my skin texture and tone changed and that was on the next day after taking the iron supplement. No way can I absorb iron without taking intrinsic factor! PS - one of the iron supplements I take also has vitamin c. It's part heme and part non-heme iron.
Thanks for sharing it
Hello Indigo Nili how are you doing now? Thanks for this video.
I think you're right about the color in your face. There's a glow that looks new. I had forgotten about this until you mentioned perhaps testing for parasites. My friend's husband went through several years of unexplained ill health that got explained in one test once a doctor thought to do it. He had giardia. A parasite
I had giardia. I started with symptoms about a week before I was leaving on my first cruise, but it was mainly rumbling and gas until we left somI didn’t go to the doctor. It was horrible on the trip and when we got home. I saw the doctor and got an antibiotic which was promising but didn’t cure it. It took 5 weeks from first symptoms until we got the diagnosis and a few more weeks until I felt better. I can’t imagine years!! The smell is so distinctive, doctors should ask about that right off!
How did they check for parasites blood or stool
@@v-ellis728 I think it was a combo. He went to a naturopath, because the regular docs rolled their eyes at his continued complaints. They kept diagnosing him with general depression which the two of them believed was secondary to something. It cleared up once the giardia was treated.
I go Monday for my infusion I hope this make me feel better
I felt remarkably better within 24-48 hours after getting previous iron infusions, my brain fog improved, I had less fatigue, and my adhd drugs actually worked! Thanks, having multiple rare, invisible genetic disabilities!
O my god. Thank so much. I am from India. I feel relief now after watching your video. I have been going through all this symptoms especially heart rate. I am literally confused is it anxiety or due to iron infusion. Thank you for clarity.
Gut health - my thing is yogurt and kimchi (or any ferment). A good gut rules the body. Also wondering if you take magnesium, a catalyst that runs the body, from my research (i didn't word that well, but you get it).
Great to hear that you feel like a whole new person. I am getting my first infusion tomorrow, so thanks for sharing your experience - it's very encouraging. Have you considered coeliac disease? Or alternatively, are you including things in your diet that may inhibit absorption?
how did you go?
How are you feeling now?!
How did it go?!?
I just had a light bulb moment, Nilli. The things you are describing are so much of what I have gone thru my whole life but everyone said it was all in my head UNTIL I demanded my thyroid be looked at in tighter tolerances. Come to find out it was NOT all in my head and my thyroid was taken out (at that time it was all I had to do) and diagnosed with Hashimotos- which I have had since birth. But I have still fought all the symptoms I had before, especially not having energy/brain fog, etc.- always fighting to go on. Do you have a regular doctor you see or someone else? They always say it's my nutrition but I know it isn't. I don't mean to sound smug but I seem to know more about it than the nutritionists so I have given up on them. Also, are the test you are taking written up somewhere were we can get the tests you recommend and their names? I can't tell what they are with 3 letter acronyms. Also, are you paying out of pocket or is there a way to get your insurance to pay for at least some of the tests? I have spent $20,000 in the last 6 years and gotten nowhere accept what you have taught me along the way. Any help with these questions would possibly make the rest of my life easier- I'm turning 71 and would like to say the last part of my life was spent WELL. Thank you for all that you do on your channel and the time you take to do it. I know it is very much appreciated by everyone...... Mo
Just wondering if these results were from the first infusion or after several? Thanks for sharing!
The color in your face looks amazing... rosacea is gone 😊
There are different IV irons and I’ve had bad allergic reactions. I was on Venofer for a few years when I needed IV iron and before my first dose I was given IV Benadryl. Before I left I knew I wasn’t feeling well and I felt feverish and I was supposed to work a 12 hour shift that night at the hospital. I had to call out and go to the ER where I had a high fever, heart rate was around 160, and I was just really sick. I was admitted to the floor overnight. After that incident I had anaphylactic premeds that was Tylenol, IV Benadryl, IV steroid, IV Zofran, and IV fluids to avoid getting reactions. I usually also got IV iron for 3-4 rounds about every 2-3 weeks apart. Out of the 4 infusions I would always react once and some reactions happened several hours after I was done and others were almost right away. It was like playing a bad version of Russian Roulette and which infusion did I react to. One was a few hours after getting home I could tell my heart rate was 160 so my mom took me to the ER and I was taken back immediately where the doctor was waiting for me and they had a code cart. I was given Adenosine which is awful and we did 2 rounds and it didn’t work. I was put on IV fluids and given other meds and again admitted overnight on the floor. On another round of IV iron about 6 months later I had just finished up and they took the IV out. I went to the restroom and when I came out I could tell my heart rate shot up. Mom said to tell the nurse so they said to sit down. They had just checked my vital signs before the IV came out and it was normal. She rechecked it and my pulse ox was in the upper 80’s or low 90’s, heart rate was up to 187, and my blood pressure dropped. They called EMS and back to the ER and admitted to the hospital floor overnight. This is all with the pre meds. The next infusion my doctor admitted me to the PCU floor so I could be monitored overnight but thankfully nothing happened. After moving to FL I was switched to IV iron called Injectafer and I never had a reaction but I always had my premeds. That’s if all I got was IV iron and Iv fluids. Since moving to be back home to help my parents I saw a new hematologist. I started going on IVIG every 4 weeks and IV iron as needed and he also ordered Injectafer. So my first IV iron at the new infusion center we did IV iron first and then my IVIG right after on the same day. DON’T EVER DO THAT! I had a very bad reaction with a fever of almost 103, a high lactic acid, high white blood cell count, and high heart rate. I’m immunocompramised so anytime I have a fever of over 101.5 I’m supposed to be admitted to the hospital and they did that day for possible sepsis. I was admitted for 4 or 5 days. It was a reaction between the 2 meds. Only once was I sent home with a fever of over 101.5 and that’s when Ian was knocking on our back door. The hospital is about a mile from the beach and Ian was a major hurricane. When we left I was almost knocked over from the wind. So I react badly to some IV iron and with the one I can take fine with pre meds I can’t do it with IVIG (IVIG is made from donated plasma from blood donors). Bad reactions happen with IVIG. Im also on IV fluids at home and 2 IV meds (IV zofran and IV Benadryl) so I have a central line for my iron infusions, my IV fluids and meds at home, and my IVIG as well as IV antibiotics, steroids, and Lasix when I get pneumonia and my pulmonologist tries to treat me outpatient first even with those 3 IV meds. Still usually end up admitted so I go through a lot of infusions. Iron can be nasty and it BURNS with a regular IV. No burn with a central line and I’ve had a central line for 7 years now. Sorry this is so long but I struggle with IV iron.
What an awful time you’ve had! Why the IVIG? it is for immune diseases. Is that supposed to help you not react to the IV iron? Have you reacted to all the types of IV iron? I have Feraheme infusion, which has black box warning. I’ve not had pre-meds. I do the IV fluids afterwards. I’m not sure if I’ll continue. My body does not absorb iron. Feeling worse after the infusion. It’s been a week. I’m due for another one next week. Feeling worse can be because of phosphate levels or side affects of the drug Feraheme.
Dr. Said my body destroys iron. I need to find root cause of malabsorption. Have you checked into what is causing all of your health struggles? I really hope things get better for you.
@@C-eq1tj one thing that can cause you to not absorb iron is celiac disease. Have you had a blood test or endoscopy for it? I do have that and that could possibly be a cause for that. I am on IVIG because I have CVID (common variable immunodeficiency disorder) and that has nothing to do with celiac disease. It appears to be genetic in my family because it appears that my mom has it and I found a copy of her blood test a year or so ago but she is 79 and doesn’t want to do treatment as there isn’t a cure. Just IVIG. I got IVIG and IV iron back to back one day and I had to be admitted for a high fever. I’m supposed to be admitted for all fevers over 101.5 because I’m immunocompramised. I only get IV iron when my labs show I’m low. IVIG I get every 28 days via my central line. I’m still prone to certain types of infections such as pneumonia , sepsis, and GI infections and I’ve had all 3 numerous times and numerous hospitalizations especially the pneumonia’s and sepsis. I’ve had sepsis 4 times with one hospitalizing me for a month. That sucked. Pneumonia I’ve lost count and the hospital stays I’ve lost count. IVIG is made from plasma so we have to have enough blood donors to make the drugs.
If you haven’t been checked for celiac disease at least ask for the blood test. If it tests positive then you can also ask for an endoscopy as well to make sure it’s that.
I’m nodding my head at every symptom you say. I had my infusion yesterday and I’m hoping all these symptoms improve.
How are you feeling now?
@@agneris Its been 2 weeks now and i feel pretty ill from the infusion and b12 injections. Iron fever and B12 reversing the doc says
@@funny7oh noo😢did it eventually get better?
@@v-ellis728 yeah, much better, i found injecting b12 everyother day and taking b1 really helped me, iron levels are still good over a year later
I go to meet my iron infusion Dr on Monday. A little nervous. My twin sister went thru the same thing about 4 yrs ago.
Thank you for sharing. Just got my infusion and felt like crashing afterwards, so tired. I know in a few days I'll feel better but yes, the initial infusion fatigue is real
How do you feel now?
How do you feel now?
I had Venofer iron infusion and 3 days later serious bone pain. A side effect of some iron can be low phosphorus levels after infusion and you will feel bone pain and unwell. After lab confirmed this I was given prescription phosphorus for 10 days and it worked great and took bone pain away. A month after infusion I began to feel better.
Hi how low were you before your infusion . I'm getting a referral but I have to wait another month to see my doctor again. I resonated with everything you've said !!
Her ferritin was a 9 beforehand.
Hi , my ferritin levels are : 18 now . Doctor wanted me to go for iron infusion based on my levels and symptoms . I am lil scared of side effects . Especially sleeplessness . You said you were also unable to sleep for few days right ? But it ll go off after few days right ?
My doctor told me to cut out gluten and dairy, as it’s stopping me absorb, iron, b12 and folate to name a few!
Coffee (caffieine) stops absorption of iron too.
Great Doctor advice!
I have a large hiatal hernia. That means that acid from the stomach gets into your esophagus. After other tests like a normal colonoscopy they are pretty sure that this is the cause of my iron deficient anemia. I too take iron supplements but still suffer from the affects of deficiency like shortness of breath and fatigue especially lack of motivation that you describe. It just seems like I can’t absorb very well these supplements. I’ve had several infusions and they work great but the ferritin level always declines over the next few months.
Wow i have all these symptoms