Advanced Prostate Cancer - update after 3.5 years and dying slowly
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- čas přidán 18. 07. 2022
- This is my first take of an update after a while. I wasn't happy with this attempt and did some more. but in the end, I decided on the first rubbish version.
Alan. Hang in there. I also have prostate cancer, and am undergoing radiation daily as well as ADT. Those in our situation understand what you are feeling and agree with what you are saying. Its hard not to let this overwhelm us, however, I hope you can do just that. Glad you enjoyed your vacation ("holiday"). Try to do more of that and enjoy every minute. I find myself enjoying things more now, things that bored me in the past. So, go out and have a drink and eat a steak and have a laugh or two. We are blessed (or lucky) to be alive. Make the best of it my friend. Rob Rosanelli, Phoenix, Arizona, USA
I am 67 years old with the same problem keep the video coming it’s a help. Thanks
Just a note my remission is no longer. Getting a targeted radiation so now here we go again. Back on the roller coaster. It was nice to have 6 months off now it will be back to 3 months.Not looking forward to it. Trying to stay positive. Good luck to to you all.
Alan, I’m Stage 4, Metastatic. Just hit 5 years. Done it all, Surgeries, Radiation, ADT, Chemo. Currently CRMPC, have new tumors and doing Radiation again. Waiting for Pluvicto. (Lutathera). Its a long slow journey but it beats the alternative. 👍🏼
Stay positive brother ! Immunotherapy is making new breakthroughs all the time.
Take care
Agree with what Robert said, just finished my radiotherapy treatment and on ADT. Stay strong and positive and keep the fight going. Glad you enjoyed your holiday
Your right about that, you do see things differently when you have cancer. You appreciate all the small thing that you never thought about before. In away you feel more alive 7:08
Hi Allen thanks for your videos I have written you before and know what you are saying about wife’s feelings and having to live with this stuff every day. Being in remission doesn’t mean you’re cured knowing it can come back anytime. I just told my wife taking my 4 horse pills of ZYTIGA every morning is getting old and finally admitted to her about some of the side effects aren’t very pleasant. She has a lot to deal with. This is the first time in two years I have felt good enough to work on the house and go fishing. Every time I have to do a PSA and scan I hold my breath and pray they don’t find anything. I try to keep positive and some days it’s pretty hard and try to tell myself things could be worse. It’s hard for people that haven’t been going through this what it’s like for us every day. Take care and hope your PSA is just a yawn.
Good to see you again! I sympathize. With stage 3 prostate cancer, radiation knocked the wind out of me, and ADT dropped my energy/indurance levels 80 percent. Is fighting every staircase a satisfactory quality of life??? Your enjoyment of your holiday gives me hope that someday, somewhere, I will regain a sense of happiness to be alive. Thanks for letting us into your life, and give Rupert a pat on the head. Such a good patient dog!
I enjoyed your video Alan. Allow me to wish you success with your rising PSA. I’m 59 and am dealing with stage 4 metastatic prostate cancer. Currently on ADT, blood pressure meds and some opioids. Trying to live everyday like it’s my last
Great to hear you Alan, and don't give up... research and look some alternative ways out there, most pointing to metabolic therapies and diets...
Stay strong and kicking !
stay strong brother, I walk through this with you!
I'm 72. Diagnosed 2018 stage 4, Gleason 9. Did 3 rounds chemo, shots, infusions, more shots. Nothing worked. Was given 5 yrs. I have lost 55 lbs since Nov, by going full keto and intermittent fasting. We decided to just take it day by day. Good luck to you bud.
Turmeric 2 gm + 2 pinch blackpepper in hot water n take slowly 2times daily....4/6 weeks .....
Apply( same) turmeric paste ..... with oil based externally lot amount..... relieves pain....
So sorry that you have this. I am about to find my results on Monday from my biopsy, doesn't look promising, I had a PI-Rad score of 5 from the mri. I look for hope in these videos and people as yourself. I hope something is found that can help.
Fenbendazole . Joe Tippens cancer story. Check it out
I also agree with Robert,live your best life and hang in there🙏
I know exactly how you feel, had it. For 15 years now. I can feel the change in my body. But I’ll tell you what I’m not leaving this world with out a fight. I’m doing all kinds of Homeopathic treatments. The standard of care sucks. All these treatment they have given destroyed my body. What have I got to lose.
Actually you are on a Good Course. I have people tell me I look Very Healthy not knowing I have Metastatic prostate cancer. Get your Vitamin D through Heliotherapy or phototherapy.
At 68 with a recent cancer diagnosis all have have to do is watch the evening news of all the young people getting dying for one stupid reason or another and I feel grateful to at least lived as long as I have in pretty good shape.
The 21-year-old woman, who had a heart condition, died after consuming a heavily caffeinated energy drink at Panera Bread that she may have believed was regular lemonade.
I have remained on ADT and similar to you I caught COVID-19 and am currently taking Paxlovid tablets. I am glad that you enjoyed the cruise but sorry that your PSA is up a bit.
Hang in there! From a fellow survivor. of Covid and PC -- 3 years now
Hi Alan, great to see you had a break from the normal, hope your PSA doesn't jump to much, you might have to go back on the hormone therapy, not nice but if it helps then so be it. I myself have my PSA full blood count and zoladex injection in a fortnight, you go through hell again and hope all stay the same, take care Alan and let's us know your next results,
Glenn from Australia.
Thank you for this. I too have prostate cancer. I've been through radiation and ADT and now we just wait and see how the PSA reacts, but until you are face with something like this, you can't really understand. I will keep you in my thoughts and prayers ad keep us updated.
Stay strong.
My own story was Gleason 3+4 and PSA 8. Bad UTI and bladder retention. General misery. I opted for prostatectomy 8 weeks ago . PSA now zero and feeling great. No more catheters!
What was your initial pi-rad score?
@@iamric23 Hi , I’m not sure what a pi -rad is. Originally my Gleason score was 3+3. Further on I was having problems with bladder retention and infection ( one hospital acquired anti biotic resistant infection was result of bladder retention test ! ). They did another biopsy which showed 3+4 so instead of a TURP the best way forward was a radical prostatectomy. I’m now catheter free and regaining a normal life and hopefully cancer free .
@@vladtheimpaler8995 The Pir-rad score comes from the MRI exam. They look at all the parts of the prostate that gets examined and they rank it by, 1,2,3,4,or 5, A pirad 5 is the worst, it means that you have cancer, but it does not mean that it is a dangerous type. How many months were you under active surveillance before you were diagnosed as a 3 + 4?
Just diagnosed. It is the waiting for results that I struggle with. Scared of the journey ahead.
Take a deep breath keep your wits about you make sure you have a first rate medical staff that are willing and able to see you through your journey. Godspeed my friend
Good luck on your journey ahead. You’ve got this 💕
@@johndarrow1995 Thank you for your support. It means the world.
@@jenniethompson7342 Thank you for your support. It means the world.
I’ve had around 30 years of doctors telling me to get my life together and take their test every month. They never asked if I exercise or anything at all.
Now I’m getting the information that their test are not accurate at all. Take a look at the varied information on CZcams. Keep looking forward.
Hi Alan
Keep strong I’m in the same boat had me blood taken on Friday and I’m away on holiday this week with all my family and waiting for my results it’s on your mind all the time.
Everything you say is true not many understand. Keep the videos coming. 👍
Same boat, brother.
66 yo. 44 photon zaps, and 14 months ADT so far. I dont think about it(much😂). What will be, will be.
I enjoy your diary Alan.
i agree with your sentiments , hang in there , I have been through the seed implants , radiation and adt for two years , its been seven months now since the treatments stopped and i guess its a wait and see
It's even worse because of the Covid putting the world on hold for 2 years. I'm so glad you got your cruise. I miss cruises. Remember Norway and Bergen. I'm sure you'll make it more times. Enjoy nature and the lovely woods. Thank you for sharing this and God bless you.
I leave only 2 1/2 ours be boath frome Bergen. I have been there so many times. I go to the hospital there so often. Have a wonderfull day frome Hilde in Norway
Good thoughts Alan and I am with you. Age 67, with 99 PSA and 4+5 Gleeson and extensive spread in bones. It's not easy is it
Age 69, psa 350, spread in bones. Chemo and antihormon th is of no help any more, I get psma lutetium therapy now. It seems it will help for some time. Great fatigue is a big problem.
Very sorry, don't know how you even manage.@@dusanjez2011
I’m in the same boat, but there is hope. New stuff and treatment coming out. I’m on a waiting list for lithium 177 after I finish my kemo. I had all kind of different treatment on radiation twice on kemo for last 8 months. Enjoy every day as a gift from God. I’ll pray for you, appreciate if you would do that for me too.
Lutetium Lu 177 (Pluvicto). I’m Stage IV also but not so dire at this point so I will probably be waiting a while for this treatment. This treatment can actually produce remission and disappearance of metastases so this is the most efficacious treatment to come along yet for advanced prostate cancer cancer.
Metastatic prostate cancer, I am a lucky one so far, I never placed my faith in the medicine but in Well Being. On ADT I have gained muscle mass and lost weight; I exercise, sauna and sunbath like nobody's business. I got my Vitamin (D) (is a Hormone) up considerably.
I'm dying of prostate Cancer stage 4 metastasis my PSA currently is 430.4 and every 3 months I get tested it's going up & I'm dying! I think I have around 12-14 months of life left in me so I might reach 62y next year but by then I'll be in a critical condition!
My Gleason is 9 aggressive cancer very aggressive so once I research it taking ADT chemotherapy won't work & I'll only be DAMAGING my self even more & my quality of life will suffer badly! Once you research your cancer if like in my case I was diagnosed very very late after 8 years going to my doctor he missed all the signs!? I was told in 2019 that I had stage 3 prostate cancer so by then my body had already been flooded by Micro cancers! So no treatment would work! The Oncologist don't tell you this because they want to give you HOPE! I'm a practical person & once I read & understood cancer I have just accepted DEATH! I take it so we'll with good grace and dignity because I've had a FANTASTIC life 4 children had a great job etc etc BUT the main thing is I have always had FAITH!! I was born 1963 so I'm an old style guy I don't cry it's not in me I don't fold it's not in my character I accept death because I did everything possible to flag up to my then GP something was seriously wrong with me! Remember Cancer today is a Business!
Loved the video Alan, have been doing my own. Stage 5 advanced 4 spine tumors going through the same. Chin up.
Thanks Keith,
I have looked, keep up with your videos!
It’s not a nice time.
Regards
Alan
Same here brother
My husband is starting radiation next week. It’s all I think about. As far as we know it hasn’t spread.
I friend had radiation a while ago and had been fine ever since. I hope your husband is coping with the treatment.
Regards
Alan
Have Prostate cancer , in the system , had the M R I and P E T. scan see the Boss end of August , may have to have Radiation . Was 18 PSA gone down to 10 ,,, been on a vegetarian diet attempting to starve it .
Do you have any symptoms from the prostate cancer?
God bless you.🙏
Thank you 🙏
Were you originally diagnosed with an 'enlarged prostate ' or straight away diagnosed with Prostate Cancer? Apparently the symptoms can be similar but not always. I'm sorry to hear of your diagnosis. I currently have an enlarged prostate and I obviously don't want to have cancer. I'm 65 yrs old and my PSA has gone up from 3.1 to 4.1 in the last month. I'm having a MRI scan next week and I'm really hoping and praying it will be a good report. I wish you all the best
MRI?
I am sorry to hear that Chaz. I know it’s not a nice place to find yourself in.
My thoughts are with you.
Regards
Alan
Has you tried lutetium 177? I am just starting to look at my options
if i have it , ppl wont like me . lol . as i said in another video . i was given a death sentence years ago with my heart , and the honest truth is . i hope i do have the cancer , noone understands that hahaha . i have 23 % heart left due to heaps of heart attacks and i have a ICD implanted cardio device aka a defibrillator . its gone off 2 times upto now , and its a freaking nightmare , its like being electrocuted and kicked by a horse at the same time . im horrified of it going off , the thing is , when my heart gives in . the defib , will keep shocking me trying to revive me until im gone . and thats not a nice way to die , i know , ive flat lined 4 times , i wanted the thing switched off , id rather die than keep going through that until i have 0 heart left , but they refuse to turn it off , because their job is to save lives , not let them go . UNLESS i get a terminal illness . then i can have it turned off so i dont get shocked when the illness gets me , ive been given a ball park life expectancy , its not very long now lol . so for me to have cancer . could actually be the difference between dying in horror flipping around like a fish being shocked , and dying in my sleep fron end of life meds . and be comfortable and die with a bit of dignity . its a very unusual case i know . but sometimes these things are sent to try yu lol . and none of its getting the better of me , im 58 . got noone im gonna leave behind . been suffering alot of years . and the way things are atm in the world , i think im the lucky one . lol and ill die a pure blood . lol . theyre not winning with me lol .
i should say . ive had a few friends die of cancer . one imparticular . i spent the whole 9 months she was ill with her every day . and 24 hours a day in palliative care with her and learned alot about cancer . because i had to give her meds when i could take her out for a few hours . i also made alot of friends in there that all passed away . 31 in total . so i know death very well . its not something that scares me , or i wont openly talk about . its something will all do . and as i say . in 100 year time , which isnt long , everyone on this planet today , will have died and gone . its not something anyone can escape .
Sorry Alan but I think you could be a lot more positive in your outlook. We are all dying slowly, life is a sexually transmitted terminal disease after all! I have had advanced PC for over a decade now. Just turned 70. In that time I’ve had initially highly focused radiotherapy, there were fewer options back then, a Gleason of 9, PSA of 37, chemo five years ago. Have metastatic spread to my hip bones and seminal glands for the last four but touch wood, not yet any further. I live alone. We all have our dark days but I think probably something else will get me, not PC. My greatest fear is of breaking bones due to the hormonal treatment that I and probably you are on and therefore, as a physically active person, immobility.
TO RESOLVE THE PROBLEM OF THE PROSTATE WHEN YOU HAVE A SHOWER SPRAY WATER ON YOUR GROIN AS HOT AS POSSIBLE.