Phases of topical steroid withdrawal - TSW - Stages of Topical Steroid Withdrawal
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- čas přidán 23. 12. 2022
- In this video I explain the different phases / stages of the healing process of topical steroid withdrawal. I want to thank Jay, who has treated TSW patients for over 15 years, for sharing his knowledge and experience. He and I, hope that we can help others who are going through TSW by sharing this information. By no means do I suggest that this information is complete. Still much research is needed into the whole process of TSW. But I do hope this video can give some insight to those who are going through TSW or those who are nursing or helping someone who is going through TSW.
Please support this channel if you can. I am dedicating 4 to 5 hours every day to learning, answering questions and making new material. I still have about 20 topics to cover. I will need more time here. But this means I will need some funding to be able to keep me going.
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Please like this video if the information has been helpful for you. This will help me to stay motivated to share more knowledge of and personal experience.
Thank you so much !
#TSW #topicalsteroidwithdrawal #healingtsw #stagesofTSW
Please support this channel 💛 so I can keep learning from Jay and share all this information:
paypal.me/supportTSWchannel
I'm spending about 4-5 hours per day, answering questions, making new material and learning from Jay. I really feel this is important for the TSW community. Im happy to do this for free, so many people can profit from this information, but I also need more time to finish this project.
Thank you so much! 🙏💛
Hi! This is so underrated and very helpful, thanks for showing us and sharing. I will make sure to share this video so more people can see it and spread awareness of Topical Steroid Withdrawal. Thank you very much, hope to see more from you
Thanks ! 😊 so important for me to hear this. It keeps me motivated to share the knowledge and my experience. And thank you so much for sharing the video 🙏💛🌟
Thank you *so* much for sharing your knowledge! Keep up the videos - they are helpful!
thank you so much for this!!
🙏😊 thank you for letting me know! It helps me so much to know that sharing this knowledge is helpful for others. Good healing and much love. 🌟💛
I am 3rd month suffering TSW and the 1st month doing NMT.
So i'm on the "Hell-phase".
Swelling, oozing & pain like hell everyday.
hell yeah..!!
Many thanks for your video by the way, it's very useful to remind the TSW Sufferer (especially my self) to have a ton more of patience.
Thank you so much for letting me know. It keeps motivated to make more material later on. 🙏💛 yes the hell phase is incredibly incredibly challenging. I feel for you and send you all strength to hold on, to take it day by day, hour by hour, breath deep and keep a healthy mental focus. Stay strong and give yourself the best care and love 💛🌟
How are you now?
@@manahilaziz2282 I'm 10 months in now. Alhamdulillah my wounds are getting better, less ooze, more dry, less pain.
Thanks to the NMT method even though at the beginning it was made my wounds excruciating, crush my psychology and it has made me off work. However it definitely and absolutely worth to do.
Doing NMT is like riding a roller coaster, it carries you hardly, flip you upside down both physically & mentally, but it carries you to the right destination.
NMT is 100% worth to do.
how are you now ?
@@Lexohhbeats At month 11 i got 'anniversary flare' and everything have gotten back to square one, and now i'm on month 13 and all my wounds are slowly getting better again.
yeah, the 'anniversary flare' is common amongst TSW Sufferers community, they say the healing progress of this TSW is just like riding roller coaster.
I just do NMT and Carnivore Diet, it helps a lot.
Amazing. So educative, thanks for the info.
Thank you for letting me know 🙏🌟💛
Thanks for sharing!!! God bless u
🙏💛 thank you for letting me know. I really needed to hear that today 😊 🙏
@@TSW.healing im going through a hard time right now also. Its been 2 years. Wish someone could tell me when mine would end :( please stay strong. Christ will give us the strength.
@@moltenvanilla5935 thank you ! You too. I'm so lucky to be in Thailand right now and receive treatment. I received 5 sessions so far and now starting to make real food progress. I so hope this treatment will be available for everyone soon. And in the mean time I hope that more people manage to go to Thailand or the UK to receive treatment. I'm now 1 year TSW . And I know the worst will be over when I leave here in two months 😊💛💪
Thank you for letting me know that the video helped you.
Much love.
Super informative, thankyou ❤ This is helping me recognize where I’m at, I believe I’ve passed the hell stage and am slowly going upwards
Thank you for letting me know that it helps you in your recovery journey. I wish you good healing and to stay strong ! Take good care 💛🌟 I will post some more info later om that can help understand your healing journey. Much love 🙏
I love your videos so much!! Can you tell me how long you think your skin will take to be full strong once the outer layer is healed? I know down under the outer layer is not strong immediately once that layer heals and can cause flares if we are not careful.
👋 hi! This is very case dependent. Light cases of TSW might heal in 1 or 2 years. Middle severity cases between 2 and 5 years and very severe cases can take 5 years + or even decades. Everything is dependent on the potency of the steroids that have been used, in combination with the dose. There is a system of 7 classes: class 7 being the lowest and class 1 the most potent steroid creams. Class 1 is 600 times more potent compared to class 7 !! Class 1, 2 and 3 are super potent steroids and cause the most problems and more severe withdrawal symptoms. Also the timeline and the surface of the body on which the creams have been used, are factors that influence the healing timeline. If a person takes 3 years to reach phase nr three, than usually the next phase also takes around 3 years.
But if this person has many complication that delay the healing time, like infections, daily irritant exposure or chronic hardened skin/elephant skin, than the healing time can be much longer. So as you see, many different factors play a role. Hope this is helpful. 😊👋🌟
@@TSW.healing yes it helps very much. Thank you for taking the time to. Respond. Much appreciated!!
Can you please address what you know about Protopic and Rinvoq?
Thank you so much is there some were I could get a consultation from you pls
It is a nice question :) Thank you. But I'm sorry to say I don't do skin consultations. The best thing you can do is really study the material on this channel. This helps you to understand what is going on and to get to know your own skin better. Observing your skin and becoming your own flare detective will help your healing rate a lot.
In short:
- avoid irritant exposure and other triggers (it is a small sentence, but a big task ;)
- avoid using moisturizers on your skin to prevent the de development of hardened skin
- if possible, find a medical professional who can monitor your skin for skin infections.
For the rest everybody's healing journey is so individual. Some choose the aid of immunosuppressive medication, others are able to get CAP treatment, others heal by time alone. Give yourself time with all these decisions and take good care of yourself in terms of healthy food and as much sleep as possible. Going outside to catch daylight everyday and enjoy your life as much as you can, even though times are rough.
I wish you the best possible healing rate.
I'm 31 years old, I live in Europe.
I've had eczema all my life. I started TSW in January 2019,after a year living with RSS not knowing what it wad, going to one doctor to another giving more and more TS. My first year was the worst, but after that I lived almost normaly.
After 2 years of withdrawal I became pregnant, and had lovely pregnancy. Unfortunately my water broke in 34 week, and I had to receive two shots for the baby lungs, not knowing that those are corticosteroids, although I didn't had I choice.
Definitely the year after giving birth was worse that the previous, but I don't think I had big bad flare. Until now, almost 4years in TSW, and 15 months after giving birth, my face and hands are terrible😔 the rest of the body is okay.
My question is,
Does the receiving those shots means that I will go through TSW all over again, are the previous 3 years for nothing 😭
Hi dear. If I read correctly you went through TSW and your skin was already back to normal, but probably still very sensitive. So let's say phase nr 3. Pregnancy is a known flare for TSW. So that normal that the hormonal fluctuations gace you a flare. After that your skin calmed down again. And only now you have a flare up again. So we don't know everything and lack scientific research, but from what Jay has observed, it is not likely that your flare was caused by the shots you received a while ago. What is much more likely is that you have encountered a trigger which is still unknown to you. So you have to research. Become a flare detective! What has changed ? Stress, not enough sleep, alcohol use, food triggers , irritants or allergens , something in your house, some new product for you or the baby? Really think of all the possibilities. I will post another video on triggers very soon. Good luck ! 💛🌟
@@TSW.healing
I had a huge huge stressful poblem at work, in that period the baby did not sleep well, I started to lose weight although I eat good.
My hands are red, sore and itchy, my face is sore with red circles around eyes mouth and forehead. I have edeme and swollen lymph nodes..
Some tips and advise please, because it lasts over 3months already and I feel like its gooing worse 😭
@@anastasijailievska4312 hi Anastasija. You identified your triggers very well. The best you can do is to avoid these triggers as best as you can.
I realize you could not avoid accepting the shots. IMO, the corticosteroid shots simply re-age the TSW nightmare. It will take longer to exit the blood stream and heal, as your skin heals from the inside out. I speak from experience. I wish you well, blessings to you and your baby.
Hi there, can you please explain and give more information on the treatment, thanks.
Hi! There are two other video's on this channel completely dedicated to the CAP treatment (part 1 Q&A and part 2 Q&A). This will probably answer all your questions. :)
What are the treatments i can help faster with recovery?
CAP cold plasma treatment. If you like more info on the option to receive the treatment in Thailand, you can send me a private message on my Instagram. On Instagram you can also follow my results.
tsw.topical.steroid.withdrawal is my Instagram name. I will also make video with all the information on cold plasma therapy here on this CZcams channel. But it takes me time to make this 😉 I think next month.
There is also a clinic in the UK for this treatment, the price is higher there compared to Thailand, but for many people more close by. www.skinsolaceclinic.co.uk/testimonials2
@@TSW.healing what is the instagram name
@@yahya2295 it's in the tekst above ☝️😊
😊
Does the treatment also consider adrenal recovery? I my belief skin healing and adrenal recovery (balance cortisol production again) go hand in hand.
I connect a disturbed sleeping pattern, stress sweating, disturbed body temperature regulation and the inability of the body to fight skin to inflammation to fatigued adrenals.
Hi Job. The treatment makes the skin ticker .
I had those symptoms as well, but only the first 2 months. (The hell phase 😉)
@@TSW.healing I had these fatigued adrenal symptoms for the first 2,5 years. To me the connection between adrenal recovery and skin recovery is very obvious.
So…I’m a little sceptical still of this process of thickening the skin, but interested to read more about it
@@jophermans hi Job. I'm sorry to hear this. 2,5 years is a long time! Pfff 😔 I think we still need so much more research about all these symptoms that are happening in the body after stopping the steroid creams. What I understand is that the systemic absorption can vary a lot from person to person. Depending on a whole lot of factors. And hence so much difference between the healing processes. I really hope TSW will be recognized soon, so more research can be done
And yes of course it's more then ok to be sceptical about the treatment . The only thing I do know is that has been proved to work for 15 years already with many many patients. But I'm finding out for myself now hahha, that's the most important! So yeah, the treatment addresses the skin and all it's processes like wound healing, stopping the oozing and stopping the inflammation, getting the skin proliferation rate back to normal and thickening the skin. It does not address sleeping disorders or other symptoms. Although thermo regulation gets much better when the skin is better. Also the treatment is not an overnight magic pill 😉 it still takes time to heal, but more like half a year to a year.
@@TSW.healing what is this treatment? And where is it available? Kindly reply
@jophermans Ik ben het hier totaal mee eens; ik hoor hier nooit iemand over, iedereen heeft het alleen over de huid, maar die hormoonzalven legt je bijnieren plat en het gaat helemaal niet alleen om de huid….Ik slik nu sinds een maandje elke dag 2000 mg vitamine C en B complex en B5, waarvan we denken dat dit de bijnieren zal helpen om weer gezond te worden.
Sorry I didn’t catch the actual treatment, “plus modifies”?
CAP cold plasma treatment. If you like more info on the option to receive the treatment in Thailand, you can send me a private message on my Instagram. On Instagram you can also follow my results.
tsw.topical.steroid.withdrawal is my Instagram name. I will also make video with all the information on cold plasma therapy here on this CZcams channel. But it takes me time to make this 😉 I think next month.
There is also a clinic in the UK for this treatment, the price is higher there compared to Thailand, but for many people more close by. www.skinsolaceclinic.co.uk/testimonials2
@@TSW.healing Thanks for the info!
Not available in USA?
@@TSW.healing do you think PRP can help if some one has TSW on face only?
@@Momina213 no sorry. The CAP device that has been developed especially for TSW is only available in the UK and Thailand at the moment. Hopefully this particular treatment will spread fast once TSW gets recognized by the medical community. 🌟🤞🌟
What device are you talking about?????
CAP, Cold Atmospheric Plasma, you can find several videos on this channel explaining exactly what it is, what it does and where you can find clinics.
How much does it cost to get the treatment?
In Thailand 2000 Thai bath per half hour. (about 60 UD dollar). Treating time per session is case dependent. You can imagine that a full body treatment takes much more time than half body or face only. It is best to first watch the videos on this channel about CAP treatment, so that your are well informed. It is not an over-night miracle cure. It does work, but you need treatment time as well (it takes many treatment sessions to get the skin cell proliferation rate back up and the skin to thicken and get strong again).
@@TSW.healing Thank you so much for your answer! It's for both me and my mother. Especially my mom. Hers is even spreading and oozing so bad