As a primary care provider I believe TSW should be included into every medical school curriculum. We need a paradigm shift from sick care to actual health care that is preventable and empowering. Inspiring work. Thank you.
Agreed! Eduardo, can I ask where you practice? There are many going through TSW who do not have a supportive Doctor. I would love to be able to refer our ITSAN members to you for care
Now is the time to get off the steriods. I am going through this now. I suggest since we can wear a mask to cover up ....go for it. I'm going on 5 months no topical steroids. I had no choice but to start Dupexient which has helps with the itch still getting flares but only 3 months in and have felt better and able to sleep. Thank you for doing this video and raising awareness.
@@lana7911 Actually you do have a choice. Dupixent is but another immune suppressant. I was too afraid to do it during Covid, not to mention it has some nasty side effects. We are on the approximate same time-line. But no judgment here, we do what we have to do. My go-to is Benedryl to keep me from itching. Take it, seems most days lately, but only when I feel a rage coming on. A 1/2 a one during the day mostly does the trick. Unless the 'night crawlies happen' then 1 tablet knocks me out.
From someone who has been through this: 1. If you're using steroid creams, stop immediately. 2. Inform your doctor of your decision and the reasons why. Do not let them convince you to use steroids. 3. Focus on maintaining a healthy diet and regular exercise. 4. No matter how bad things seem, do not revert back to topical steroids. 5. Focus on yourself and eliminate stressors from your life. 6. Never forget that you will get better. 7. If your loved one is going through this, support them. You don't know how much it means to them. 3 years and counting I have been suffering from this awful condition CAUSED by the medical industry. There were days where I couldn't physically work through pain. Days where I couldn't get out of bed due to depression. And days where I did not want to leave the house because I thought I looked so hideous. But I am 90% recovered now. At it's worst I was red raw with raised open sores over my entire face and body. I still itch sometimes, but it hardly bothers me, and I can now exercise without wanting to scratch my skin off. I moisturise sparingly after showering and before leaving the house, and my skin is getting stronger than ever. Each journey is personal but I found stress to be a major factor in making me flare. I went through a vegan diet, and cut out wheat and eggs and dairy but in the end I found what mattered most was having a healthy diet containing lots of fruits and veg. There was no need for me to eliminate whole food groups. But like I said you must try things, and see what works for yourself. Have faith and don't give up.
I think this documentary may have saved me from TSW. My eczema was getting worse and I had just been prescribed a huge tub of steroids and began applying it rigorously. When I watched Preventable, I knew I needed to change course asap. I believe I avoided TSW because of you, Bri. Thank you ❤
I started TSW 5 years ago this July and it's something I haven't completely dealt with mentally or emotionally, I'm pretty certain I have PTSD from it. The rawness, pain and truth in this documentary brought me to tears, I was full on sobbing at some points. A huge thank you and congratulations, Briana! This documentary was incredible, YOU are incredible!
I actually got lucky with my new Dr. I had run out of steroids and began going through tws. I didn't know what was happening so i went to her for the first time. When I showed her the pictures of my face in withdrawal she immediately asked me what I had been using. She became LIVID when I told her I had been prescribed lotrisone 2x daily for the past 3 years. Then she described a new game plan that involved weaning from steroids completely. I left the appointment upset but optimistic. She really heard me and understood what the reality was instead of just refilling my prescription.
I really have to thank you for this video. It helps me to understand Red skin syndrom even more.. And the dammage Tropical Steroids did to my girlfriend. Now i can be more supportive to her knowing the hell she has been going through, and still goes trough. we've only been together for a year.. and she is in withdrawl for 3 years, and still fighting it..... Once again, thank you for this video. And i hope you get well soon aswell.
This is amazing. Finding ITSAN saved my sons life. He is healthy and strong. He started a horrible TSW withdrawal that started when he was 4. He is now almost 8 and we hardly deal with his eczema at all. This experience was horrible, but had to happen. Thank you so much for your efforts. I will forever feel a debt to this community.
Briana - you define HEROISM in its most poignant definition. How you did this WHILE suffering THROUGH this is beyond on any of our imaginations. As for the technical clarity - you truly made a masterpiece that has the potential to DIVERT medical practitioners to reconsider their options. Ambitiously this documentary could actually be THE CALL TO ACTION for the entire medical / dermatology industry to go back to the drawing board and start all over again. Absolutely phenomenal job Briana - this will be one of many more legacies of yours. Sleep like an angel tonight...you've sprinkled your pixie dust into the universe. Your Mama Spice always ready to feed you on the west coast...
Watching this and crying. I am you and you are me. Thank you for making this...I am now going to fight for myself and my life! Every corner I turn, nobody can help me. I will fight!!!!
Imagine being on steroids for almost 50 years, when you try to stop your body reacts violently, you end up in the ER, the Doctors don't even know what TSW is . We ended up with Dupixent injections. It has been a life changer. But not sure what the long term will bring
I’m studying to become a doctor and I praise patients who take their care into their own hands. It shouldn’t be that way, patients should be able to feel comfortable in denying a treatment if they feel it is doing them harm. And doctors are there to listen and to care for each human INDIVIDUALLY because humans are complex. I strive to always keep this mindset and so I want to thank you for reminding me that even though I’m going to school to care for humans it doesn’t mean I know it everything. For reminding me that science is an ever evolving line of work.
Hoping this gets into the hands of every dermatologist. My son is 2 years free of steroids and it literally saved his life. TSW was a horrific journey I would wish on no one but it was absolutely necessary. One of the top dermatologists in MN told us he would be on steroids the rest of his life. He is now almost completely healed and eczema itself is just an afterthought.
What an incredible video! Thank you for all you do. You are such a beautiful person inside and out. I’m so thankful for our community and for people like you that have guided us throughout our journey. I couldn’t have made it without you 😊❤️💗
Absolutely LOVE your documentary....you are speaking for all of us TSW Warriors and give us such an amazing tool to educate and share our painful journey with our family and friends!!! Just think of all the people you can be saving from this painful process by passing on your story and others. You are my hero!!!! Thank you for all your hard work!!
Thank you for your hard work, Briana! We’ve all been waiting so long for this. See a lot of familiar faces in this documentary and consider you all my TSW family. Hoping the world become more aware about the effects of steroids because it’s about time we do more research and learn more about this!!!
Thank you so much for taking 2 years of your life to document this painful misunderstood medically induced condition. I so grateful I have a very tangible way to share my experience with others who may be on the same path or headed in that direction. You will probably never know how may lives you have impacted. May God bless you.
Briana, Briana, Briana! You did an amazing job. So professional, so emotional, so much work you put in to this. You even went to Japan to talk to my heros. I'm still battling this but getting there step by step. Thank you so much, girl, for making this documentary and get our story out there. You are amazing! Much love and hugs!
Wow! This documentary is so touching and heartbreaking. First time I've cried in a while. Seeing the horrific withdrawals you have all faced, and the courage to go through TSW and continue to tell your story is truly inspirational and keeps me going too! Wish I had found this video earlier, but just wanted to show my appreciation and gratitude for Briana and everyone else involved for making this incredible documentary. You guys are true heroes! All the best to everyone with healing, especially Morgan, my heart goes out to the young warrior.
Briana, the finished product certainly shows how much time, effort and yourself that you've put into the project. Well done ! Your videos and advice certainly kept me going through the worst of TSW. You are right in saying that it's horrible to go through without any support, yet I did and I'm thankful for all the advice I found online. This documentary should be viewed by anyone contemplating the us of TS.
Briana! Thank you! We're so grateful for this documentary. You did an amazing job, and of course brought me to tears. Thank you thank you thank you! This will be shared!
Briana! You’re an angel! Seriously! I have finally watched it and I’m amazed! You did such a great job! It’s one of the best documentaries I’ve have ever seen and so so so touching just because I feel you due to same journey we took on! Thank you very much for a huge research you have done to get to all these important people! It’s amazing! I’m so grateful and I will be for the rest of my life! Thank you! You are a star! God bless!
I had to watch this documentary in sections as it put me in tears every few minutes bringing me back to my very very dark TSW days. Briana you are amazing. Love you and love what you have done. Forever grateful. 💜
Thank you so much Briana and everyone who contributed to this documentary. I finally took the leap and have been in TSW for 1 month. It hurts but time will heal me. (P.s. Putting stuff back together with gold is a Japanese thing actually.)
Thank you so much for shedding light on this horrific but totally preventable disease, Briana. I'm about a year into TSW and there were and still are moments where I feel so alone and frustrated. With amazing and compassionate people like you, I'm positive that we can make a change.
Briana, thank you. Congratulations on this wonderful accomplishment. May this documentary be spread far and wide and help end the suffering of TSW. Amen.
Thank you for your work in raising the awarness. Truly inspiring, educational and heartwarming, even it didn't downplay the agony of going through it a bit. Thank you
This is so well made and so incredibly needed as a voice for so many of us suffering through this awful PREVENTABLE condition. Gaining knowledge from this and feeling like I can finally watch something where I see myself and my experiences described by so many people is invaluable in a world where we are largely silenced and brushed off. Thank you Briana, and thank you to those who shared their stories. It’s been such a support for me and so many others I’m sure too. You’re quite literally saving lives. Can’t wait to see our voices grow and hope for healing and change for the future.
Thank you so much for raising awareness Bri. I’m now on the other side of TSW and I often wonder what state my skin would now be in if I hadn’t found itsan back in 2011.
Im so proud of you! Thank you for your effort in preparing this. Lets spread the awareness of tsw so that our future generation not ned to go through this! Thank u for letting me know that there r a lot awesome ppl out there going through this and i am not alone.
I cried like a baby as I shared your years of pain in this video, Lyndsey my daughter your strength to go through this is truly amazing, Lee my son-in-law, Standing by Lyndsey all these years I salute you, your more a man than I could ever hope to be XXXX
Im so glad I met you guys, and thank you for doing this! I know how hard you worked on this and how challenging it was while being one of the individuals who is experiencing this as well. 💞✨🙌🏼😭
Briana, you’re so amazing! Thank you so much for putting in all your hard work while having everyday problems with TSW.. it’s not easy but you did it. I can’t thank you enough, this documentary was Great. Happy healing Briana, keep being the badass woman that you are 💛
Thank you, thank you, thank you for making this documentary! And you did it all by yourself, respect! Raising awareness for this condition is so important. Keep up the great work!
This video is making me feel so grateful! My heart goes out to every one of you brave souls. Thank you for your courage to share your suffering and your triumph with the rest of us.
Thank you for telling our story. I don't know where we would all be today without the support of ITSAN and people like you who have advocated for us and made us feel less alone.
Briana, so much thanks for your documentary! Very proud of you! Well done! Really really good work and I spread it in our support group. We were crying becouse we recognise every singel bit of it...the pain, the fighting, the consequences for our lifes and the lack of care. And we also were getting so mad becouse of the denial and sarcasm of doctors and also the loads of money they get to promote ts. Unbelievable!!! We wil spread the docu and the word in The Netherlands. Again.. very much thanks lovely lady!
Hugs❤️ brilliant work!!! As it is not easy to travel around when u r in that condition.. I am also a survivor frm TSW.. went through cataract at age 21. N all the trauma to my healing. I still rem it got so flaky n red that I have problem to board the plane..keep u in prayer!! thank for sharing n happy to know there r ethical doctor around..is good to bring awareness. as in my part of the world I do see increase of this problem.
Briana, thank you so very much for making this documentary. I am new to this journey and can not believe the path that has been paved ahead of me. You did an incredible job with connecting to all these folks and creating a place for them to all share their stories
Great doc! I cried like crazy. It brought back so many memories. And to see all these people going through this, it’s heartbreaking. Especially seeing little children going through it. It was the most insane and most brutally difficult thing I’ve ever been through.
Briana thank you so much for making this. I have had to pause this video so many times to stop and cry it has brought back so many feelings and emotions from my tsw journey. This is honestly the best documentation I have seen on tsw ❤
Briana, this was both wonderful and hard to watch. We are now 8 years post TSW with my boy, it’s almost a distant memory, but one I often suppress due to the horror of it and the struggle to get through it. This is so very needed and I only hope that with each year that passes the medical community wake up and actually help those that so desperately need it. Lots of love.
Thank you. Just....thank you. For pushing through the pain of TSW to create this documentary. I have so much respect for you, and I am so happy that I now have another resource to point people to when I talk about RSS.
Thank you, Briana! This is such a brilliant documentary. I am 6.5 years post steroids. TSW was the most traumatic time in my life. So good to see so many familiar faces and names from the ITSAN forum, Facebook group and Instagram. The support was incredible, especially when I was constantly told that TSW wasn’t a recognised condition. I recently nearly lost my life for a second time due to allergies and saw an amazing immunologist who said that, “TSW is definitely a thing”. To hear that was incredible. She said that the steroids compromised my immune system for sure. Anyway, thanks again. I’m confident that your documentary will continue to make a lasting difference for many years to come.
Wow!! Amazing! This is as good as a full team professional production and you did this by yourself. You should be proud of yourself. You are an inspiration and have shown the value of spending your time wisely and positively when all the chips are down. Well done!!
This hit home and I thank everyone for making me aware early into my journey. Mine never got this bad but has been a 5 year journey of trying to get help and finally going on my own
This is wonderfully composed, edited, and produced - well done! The message is really important too, of course, I just wanted to congratulate you on an exceptional solo project.
This documentary is incredible and Briana you are a very brave, powerful woman. Without people like you challenging arrogant doctors and medical professionals I would be in a worst state then I am today. I've stopped using steroids for about 6 months and my skin is improving so much. I hope this documentary gives hope to anyone going through this, you are not a monster, you are not stupid or crazy, you are beautiful and there is light at the end of the tunnel. From the bottom of my heart, thank you for making this.
Dear Briana. Thank you so much for raising awareness. This will help a lot of people. And it makes me have even more respect for my sister Maartje Schoormans who is going true this too.
The images showing her ezcema at 5:14 & 5:21 are nearly similar to what I have. Thank you for sharing your story it is incredibly brave of you! It also helps people like me and others who's extreme ezcema / TSW are very underrepresented in the media.
Great job on the documentary 🙂. I am glad you are getting better, and hope one day soon you will be completely healed. You are truly a wonderful person
As a primary care provider I believe TSW should be included into every medical school curriculum. We need a paradigm shift from sick care to actual health care that is preventable and empowering. Inspiring work. Thank you.
Agreed! Eduardo, can I ask where you practice? There are many going through TSW who do not have a supportive Doctor. I would love to be able to refer our ITSAN members to you for care
Who else is watching while going through this ?
EzzioFloTv Me!
Now is the time to get off the steriods. I am going through this now. I suggest since we can wear a mask to cover up ....go for it. I'm going on 5 months no topical steroids. I had no choice but to start Dupexient which has helps with the itch still getting flares but only 3 months in and have felt better and able to sleep. Thank you for doing this video and raising awareness.
@@lana7911 cells need oxygen focus in breath work helped a ton for me !
I wish you quick healing
@@lana7911 Actually you do have a choice. Dupixent is but another immune suppressant. I was too afraid to do it during Covid, not to mention it has some nasty side effects. We are on the approximate same time-line. But no judgment here, we do what we have to do. My go-to is Benedryl to keep me from itching. Take it, seems most days lately, but only when I feel a rage coming on. A 1/2 a one during the day mostly does the trick. Unless the 'night crawlies happen' then 1 tablet knocks me out.
I wish every dermatology and allergist had to watch this.
From someone who has been through this:
1. If you're using steroid creams, stop immediately.
2. Inform your doctor of your decision and the reasons why. Do not let them convince you to use steroids.
3. Focus on maintaining a healthy diet and regular exercise.
4. No matter how bad things seem, do not revert back to topical steroids.
5. Focus on yourself and eliminate stressors from your life.
6. Never forget that you will get better.
7. If your loved one is going through this, support them. You don't know how much it means to them.
3 years and counting I have been suffering from this awful condition CAUSED by the medical industry. There were days where I couldn't physically work through pain. Days where I couldn't get out of bed due to depression. And days where I did not want to leave the house because I thought I looked so hideous.
But I am 90% recovered now. At it's worst I was red raw with raised open sores over my entire face and body. I still itch sometimes, but it hardly bothers me, and I can now exercise without wanting to scratch my skin off. I moisturise sparingly after showering and before leaving the house, and my skin is getting stronger than ever. Each journey is personal but I found stress to be a major factor in making me flare. I went through a vegan diet, and cut out wheat and eggs and dairy but in the end I found what mattered most was having a healthy diet containing lots of fruits and veg. There was no need for me to eliminate whole food groups. But like I said you must try things, and see what works for yourself.
Have faith and don't give up.
I think this documentary may have saved me from TSW. My eczema was getting worse and I had just been prescribed a huge tub of steroids and began applying it rigorously. When I watched Preventable, I knew I needed to change course asap. I believe I avoided TSW because of you, Bri. Thank you ❤
Thank you so much for sharing, Amanda xx this means a lot to hear
I started TSW 5 years ago this July and it's something I haven't completely dealt with mentally or emotionally, I'm pretty certain I have PTSD from it. The rawness, pain and truth in this documentary brought me to tears, I was full on sobbing at some points. A huge thank you and congratulations, Briana! This documentary was incredible, YOU are incredible!
Have you completely healed? I'm also 5 years in and still recovering
I’m just starting this painful journey. I’m 67 years old. My skin on hands is thin to begin with. Nowwwwww the pain is horrible.
Briana, you make me so proud! Without the Topical Steroid Withdrawal community we would be lost. You help keep me strong enough to fight this.
I actually got lucky with my new Dr. I had run out of steroids and began going through tws. I didn't know what was happening so i went to her for the first time. When I showed her the pictures of my face in withdrawal she immediately asked me what I had been using. She became LIVID when I told her I had been prescribed lotrisone 2x daily for the past 3 years. Then she described a new game plan that involved weaning from steroids completely. I left the appointment upset but optimistic. She really heard me and understood what the reality was instead of just refilling my prescription.
Yes!
Lindsay, what did your doctor do for you and how are things with your skin now?
I really have to thank you for this video. It helps me to understand Red skin syndrom even more.. And the dammage Tropical Steroids did to my girlfriend. Now i can be more supportive to her knowing the hell she has been going through, and still goes trough. we've only been together for a year.. and she is in withdrawl for 3 years, and still fighting it..... Once again, thank you for this video. And i hope you get well soon aswell.
thank you!
This is amazing. Finding ITSAN saved my sons life. He is healthy and strong. He started a horrible TSW withdrawal that started when he was 4. He is now almost 8 and we hardly deal with his eczema at all. This experience was horrible, but had to happen. Thank you so much for your efforts. I will forever feel a debt to this community.
Briana - you define HEROISM in its most poignant definition. How you did this WHILE suffering THROUGH this is beyond on any of our imaginations. As for the technical clarity - you truly made a masterpiece that has the potential to DIVERT medical practitioners to reconsider their options. Ambitiously this documentary could actually be THE CALL TO ACTION for the entire medical / dermatology industry to go back to the drawing board and start all over again. Absolutely phenomenal job Briana - this will be one of many more legacies of yours. Sleep like an angel tonight...you've sprinkled your pixie dust into the universe. Your Mama Spice always ready to feed you on the west coast...
I love you so much, Mama Spice! Truly am blessed to have you in my life xoxoxo
Watching this and crying. I am you and you are me. Thank you for making this...I am now going to fight for myself and my life! Every corner I turn, nobody can help me. I will fight!!!!
🥊🥊🥊
Imagine being on steroids for almost 50 years, when you try to stop your body reacts violently, you end up in the ER, the Doctors don't even know what TSW is . We ended up with Dupixent injections. It has been a life changer. But not sure what the long term will bring
I too reacted violently. Delt with it on my own tho, it sucked really really bad. Shiver, oozing, itchy-sweats...was hell.
I’m studying to become a doctor and I praise patients who take their care into their own hands. It shouldn’t be that way, patients should be able to feel comfortable in denying a treatment if they feel it is doing them harm. And doctors are there to listen and to care for each human INDIVIDUALLY because humans are complex. I strive to always keep this mindset and so I want to thank you for reminding me that even though I’m going to school to care for humans it doesn’t mean I know it everything. For reminding me that science is an ever evolving line of work.
🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻
Hoping this gets into the hands of every dermatologist. My son is 2 years free of steroids and it literally saved his life. TSW was a horrific journey I would wish on no one but it was absolutely necessary.
One of the top dermatologists in MN told us he would be on steroids the rest of his life. He is now almost completely healed and eczema itself is just an afterthought.
Thank you for making this!
This was amazing! Thank you!
Thank you Briana!
Thank you for doing this!!!
Thank you thank you thank you Briana for creating this documentary! This is such a huge step in the right direction for our community! ❤️
Thank you from the bottom of my heart!
Thank u from the bottom of my heart for making this
Incredible... thank you so much for making this and giving us all a voice! ❤️
Thank you for this. Seriously. I will be sharing this everywhere
Thank you, Briana. This is a wonderful film!!
Thank you Briana for doing this for all of us. You are inspirational for making our voices heard x
Thank you so much! Finally have something to show people and help them understand. You are a gem 💎
Amazing, just amazing. Thankyou so much Briana
Thank you, Briana for all your hard work. A beautifully done documentary. You have made our voices heard!
Truly exceptional work Briana :-)
Beautiful! Thank you for your work.
Thank you so much for this Briana, it puts into words what some of us cant Express
What an incredible video! Thank you for all you do. You are such a beautiful person inside and out. I’m so thankful for our community and for people like you that have guided us throughout our journey. I couldn’t have made it without you 😊❤️💗
Absolutely LOVE your documentary....you are speaking for all of us TSW Warriors and give us such an amazing tool to educate and share our painful journey with our family and friends!!! Just think of all the people you can be saving from this painful process by passing on your story and others. You are my hero!!!! Thank you for all your hard work!!
I’m so grateful for you made this Briana
This is incredible! Words are not enough, from the bottom of my heart, thank you!
Thank you for doing this documentary Briana, outstanding work!
Thank you for your hard work, Briana! We’ve all been waiting so long for this. See a lot of familiar faces in this documentary and consider you all my TSW family. Hoping the world become more aware about the effects of steroids because it’s about time we do more research and learn more about this!!!
Thank you Briana for your efforts ,suffering and concern...
Amazing documentary Briana. Thankyou for doing this, and so amazed you did all this while still going through Tsw. Xx
Thank you so much for taking 2 years of your life to document this painful misunderstood medically induced condition. I so grateful I have a very tangible way to share my experience with others who may be on the same path or headed in that direction. You will probably never know how may lives you have impacted. May God bless you.
Thank you soooo much, dear ones, for all your good ( blessed ) works. I am sending love to you ALL.
Briana, Briana, Briana! You did an amazing job. So professional, so emotional, so much work you put in to this. You even went to Japan to talk to my heros. I'm still battling this but getting there step by step. Thank you so much, girl, for making this documentary and get our story out there. You are amazing! Much love and hugs!
Really awesome documentary 👏 you are a real hero to do this whilst going through tsw!
Wow! This documentary is so touching and heartbreaking. First time I've cried in a while. Seeing the horrific withdrawals you have all faced, and the courage to go through TSW and continue to tell your story is truly inspirational and keeps me going too! Wish I had found this video earlier, but just wanted to show my appreciation and gratitude for Briana and everyone else involved for making this incredible documentary. You guys are true heroes! All the best to everyone with healing, especially Morgan, my heart goes out to the young warrior.
Thank you for this 🙏 I finally understand what I’m going through
Yes!!! This is incredible!!!!!!!
Briana, the finished product certainly shows how much time, effort and yourself that you've put into the project. Well done ! Your videos and advice certainly kept me going through the worst of TSW. You are right in saying that it's horrible to go through without any support, yet I did and I'm thankful for all the advice I found online. This documentary should be viewed by anyone contemplating the us of TS.
Briana! Thank you! We're so grateful for this documentary. You did an amazing job, and of course brought me to tears. Thank you thank you thank you! This will be shared!
😭 thank you!
Briana! You’re an angel! Seriously! I have finally watched it and I’m amazed! You did such a great job! It’s one of the best documentaries I’ve have ever seen and so so so touching just because I feel you due to same journey we took on! Thank you very much for a huge research you have done to get to all these important people! It’s amazing! I’m so grateful and I will be for the rest of my life!
Thank you! You are a star! God bless!
I had to watch this documentary in sections as it put me in tears every few minutes bringing me back to my very very dark TSW days. Briana you are amazing. Love you and love what you have done. Forever grateful. 💜
Thank you so much Briana and everyone who contributed to this documentary. I finally took the leap and have been in TSW for 1 month. It hurts but time will heal me.
(P.s. Putting stuff back together with gold is a Japanese thing actually.)
It is an honor to know you. You are so brave and inspiring ❤️
Thank you, Renate!!!
Brianna, this is amazing. Your fellow warrior Megan Patterson .. much love xoxo
Yay, Brianaaaaa!!!!!Thank you for telling our story, I’m so proud of all of your hard work, and all the participants.
Thanks, babe!!!!!! Thanks for being a part of this process ❤❤
thank you for this documentary it was needed and it was perfect
Briana you are amazing and you helped me so much through my withdrawal. Thank for all you do.
Wow, wow and wow. This is incredible. I am so proud of you as well as each and every single TSW warrior out there. All my love! XOX
Thank you so much for shedding light on this horrific but totally preventable disease, Briana. I'm about a year into TSW and there were and still are moments where I feel so alone and frustrated. With amazing and compassionate people like you, I'm positive that we can make a change.
Thank you for this amazing documentary and to all the brave souls that participated in it. Much love and blessings to you all.
This video is Life Changing. Thank you Briana and everyone for this Saving message. I have Hope!
Briana, thank you. Congratulations on this wonderful accomplishment. May this documentary be spread far and wide and help end the suffering of TSW. Amen.
Thank you for your work in raising the awarness. Truly inspiring, educational and heartwarming, even it didn't downplay the agony of going through it a bit. Thank you
This is so well made and so incredibly needed as a voice for so many of us suffering through this awful PREVENTABLE condition. Gaining knowledge from this and feeling like I can finally watch something where I see myself and my experiences described by so many people is invaluable in a world where we are largely silenced and brushed off. Thank you Briana, and thank you to those who shared their stories. It’s been such a support for me and so many others I’m sure too. You’re quite literally saving lives. Can’t wait to see our voices grow and hope for healing and change for the future.
Thank you 🙏🏼🙏🏼
Thank you so much for raising awareness Bri. I’m now on the other side of TSW and I often wonder what state my skin would now be in if I hadn’t found itsan back in 2011.
I just want to thank you, for giving everyone who has gone through and is currently suffering from the living hell that is TSW. Bless you
Wonderful! Thank you for this! So important!!
I‘m one month in TSW.😊
Im so proud of you! Thank you for your effort in preparing this. Lets spread the awareness of tsw so that our future generation not ned to go through this! Thank u for letting me know that there r a lot awesome ppl out there going through this and i am not alone.
I also want to tell you that you are amazing and beautiful woman!
I cried like a baby as I shared your years of pain in this video, Lyndsey my daughter your strength to go through this is truly amazing, Lee my son-in-law, Standing by Lyndsey all these years I salute you, your more a man than I could ever hope to be XXXX
Im so glad I met you guys, and thank you for doing this! I know how hard you worked on this and how challenging it was while being one of the individuals who is experiencing this as well. 💞✨🙌🏼😭
So much love!!
Briana, you’re so amazing! Thank you so much for putting in all your hard work while having everyday problems with TSW.. it’s not easy but you did it. I can’t thank you enough, this documentary was Great. Happy healing Briana, keep being the badass woman that you are 💛
Sending love!
A much needed documentary on this horrendous condition; will urge our doctors to watch.
Thank you, thank you, thank you for making this documentary! And you did it all by yourself, respect! Raising awareness for this condition is so important. Keep up the great work!
Thank you so much!!
Muchas gracias por este bello documental.
This video is making me feel so grateful! My heart goes out to every one of you brave souls. Thank you for your courage to share your suffering and your triumph with the rest of us.
Thank you, Veronica!
Thank you for telling our story. I don't know where we would all be today without the support of ITSAN and people like you who have advocated for us and made us feel less alone.
Briana, so much thanks for your documentary! Very proud of you! Well done! Really really good work and I spread it in our support group. We were crying becouse we recognise every singel bit of it...the pain, the fighting, the consequences for our lifes and the lack of care. And we also were getting so mad becouse of the denial and sarcasm of doctors and also the loads of money they get to promote ts. Unbelievable!!! We wil spread the docu and the word in The Netherlands. Again.. very much thanks lovely lady!
Thank you so much for your love and support ❤❤❤
Beautifully done Briana you should be so proud of this. I hope it reaches many! Thank you
Thank you, love!!!
Hugs❤️ brilliant work!!! As it is not easy to travel around when u r in that condition.. I am also a survivor frm TSW.. went through cataract at age 21. N all the trauma to my healing. I still rem it got so flaky n red that I have problem to board the plane..keep u in prayer!! thank for sharing n happy to know there r ethical doctor around..is good to bring awareness. as in my part of the world I do see increase of this problem.
Briana, thank you so very much for making this documentary. I am new to this journey and can not believe the path that has been paved ahead of me. You did an incredible job with connecting to all these folks and creating a place for them to all share their stories
I am SO glad you connected with the film 💙💙 sending a hug!
Great doc! I cried like crazy. It brought back so many memories. And to see all these people going through this, it’s heartbreaking. Especially seeing little children going through it. It was the most insane and most brutally difficult thing I’ve ever been through.
Did you guys go through any diet change?
Briana thank you so much for making this. I have had to pause this video so many times to stop and cry it has brought back so many feelings and emotions from my tsw journey. This is honestly the best documentation I have seen on tsw ❤
Thank you!!
Thank you for being a voice for the voiceless! 🙏
As long as I know it helps!
Briana, this was both wonderful and hard to watch. We are now 8 years post TSW with my boy, it’s almost a distant memory, but one I often suppress due to the horror of it and the struggle to get through it. This is so very needed and I only hope that with each year that passes the medical community wake up and actually help those that so desperately need it. Lots of love.
sending love right back!
Thank you. Just....thank you. For pushing through the pain of TSW to create this documentary. I have so much respect for you, and I am so happy that I now have another resource to point people to when I talk about RSS.
Thank you, Briana! This is such a brilliant documentary. I am 6.5 years post steroids. TSW was the most traumatic time in my life. So good to see so many familiar faces and names from the ITSAN forum, Facebook group and Instagram. The support was incredible, especially when I was constantly told that TSW wasn’t a recognised condition. I recently nearly lost my life for a second time due to allergies and saw an amazing immunologist who said that, “TSW is definitely a thing”. To hear that was incredible. She said that the steroids compromised my immune system for sure. Anyway, thanks again. I’m confident that your documentary will continue to make a lasting difference for many years to come.
Wow!! Amazing! This is as good as a full team professional production and you did this by yourself. You should be proud of yourself. You are an inspiration and have shown the value of spending your time wisely and positively when all the chips are down. Well done!!
Thank you so much!
Thank you for making this documentary and helping us spread tsw awareness =) you are amazing and I loved everything about this video!
Thank you ❤❤❤❤
Amazing thank you for doing this you’re done a brilliant job
Thank you!
You’ve done us proud Briana 💕
I hope so! See your face ;) so much love!
Thank you for sharing your story and creating this documentary.
Thank you for watching. I am actually working on a second one as we speak.
This hit home and I thank everyone for making me aware early into my journey. Mine never got this bad but has been a 5 year journey of trying to get help and finally going on my own
Sending love to you, Guy
Amazing documentary. Have this problem in my family and this information will help my family members by curing.
I loved every bit of it . I understand how much effort it would have taken. So so proud of you dearest Briana. Lots n lots of love n hugs 😇😘❤️🙏🏾
Thank you!!!!
This is wonderfully composed, edited, and produced - well done! The message is really important too, of course, I just wanted to congratulate you on an exceptional solo project.
Thank you!
This documentary is incredible and Briana you are a very brave, powerful woman. Without people like you challenging arrogant doctors and medical professionals I would be in a worst state then I am today. I've stopped using steroids for about 6 months and my skin is improving so much. I hope this documentary gives hope to anyone going through this, you are not a monster, you are not stupid or crazy, you are beautiful and there is light at the end of the tunnel. From the bottom of my heart, thank you for making this.
Dear Briana. Thank you so much for raising awareness. This will help a lot of people. And it makes me have even more respect for my sister Maartje Schoormans who is going true this too.
Be there for her as much as possible ❤
wow wow wow. You must be so proud of what you have achieved. Thank you from the bottom of my heart. xx
Thank you for supporting!
The images showing her ezcema at 5:14 & 5:21 are nearly similar to what I have. Thank you for sharing your story it is incredibly brave of you! It also helps people like me and others who's extreme ezcema / TSW are very underrepresented in the media.
Great job on the documentary 🙂. I am glad you are getting better, and hope one day soon you will be completely healed. You are truly a wonderful person
Thank you Edgar, and thank you for contributing!