Asking this early In The video so maybe you will cover it . What can a DM patient do if immune suppression is making wbc rbc platelets and specifically absolute neutrophils to be critical low? This is after more than a year in it and it fine. My drs can’t tell if this have a blood disorder or if it’s the medication or autoimmune itself. I have a light chain ratio high at 1.91 but no M proteins. It really concerns me. They don’t see enough to think Multiple Myeloma or MGUS so they just say wait and watch. The oncologist says he thinks it’s between autoimmune and medicine so. Can go back in immune suppressive meds. I got so sick while I was low I thought I was dying. I’m really afraid. Does anyone know anything about any of this? What
Asking this early In The video so maybe you will cover it . What can a DM patient do if immune suppression is making wbc rbc platelets and specifically absolute neutrophils to be critical low? This is after more than a year in it and it fine. My drs can’t tell if this have a blood disorder or if it’s the medication or autoimmune itself. I have a light chain ratio high at 1.91 but no M proteins. It really concerns me. They don’t see enough to think Multiple Myeloma or MGUS so they just say wait and watch. The oncologist says he thinks it’s between autoimmune and medicine so. Can go back in immune suppressive meds. I got so sick while I was low I thought I was dying. I’m really afraid. Does anyone know anything about any of this? What
I think the question on remission wasn’t fully answered on how you know if you’re in it.
I am diagnosed with sIBM
Do I have chance to participate in any trial going on
Where do I contact