Throat cancer symptom advice from a survivor, things doctors don't tell you once you start treatment
Vložit
- čas přidán 12. 05. 2014
- Advice from a throat cancer patient for people who are about to go through radiation and chemo treatments. Things I wish my doctor had told me.
I've made a few other helpful videos...
Easy homemade juice recipe that won't burn your throat: • Throat cancer advice f...
How to best numb your throat so you can finally swallow a few calories!: • Throat cancer advice f...
What to say and do to someone who has throat cancer: • Throat cancer advice f...
Radiation mask info: • Throat cancer advice f...
How to communicate with your nurses, doctor, and family when you can't talk: • Throat cancer advice f...
For free one-on-one online Q&A just join my Facebook group "Throat cancer advise from survivors". (Make sure to answer ALL 3 of the questions to join! We're very strict about this to keep the group legit with no spammers or "miracle" cure bullshit) Here's the link / 981336378564432
Who are the 10 assholes that would give this video a thumbs down. This gentleman is discussing perhaps the most difficult and personal of experiences of his life, for no other reason than to help others.
Thank you, Mr. Barker for sharing your hard earned experiences with us. I do wish you a speedy recovery and I hope that you are feeling healthier now.
there are always asshole pigs on the net, too bad some ended up here.
I believe they Google search cancer videos and go to town accusing people of faking their illnesses and telling them they should die. I've seen it over and over again. Very sick.
@leftovers THEY would be the (24) repugnant, sad soul suckers that deserve absolutely NO recognition of notice! Although SO tempting to give them the negative attention we want to give them, to THEM, it's better than NO attention. Making remarks is a catalyst
I just wish I had to power to make all these jerks walk a mile in my shoes for only five minutes. I assure you they would be crying like babies and turn into different people in less than one minute. The other four minutes of suffering would simple make them think about their actions. Maybe then they would start showing a little respect for people like me that has had to live with cancer day in and day out for years. I can't even wake up these days without wonder how much more time I have left to either die or possibly something happening to ease the all suffering. But I suppose no one will ever really know how others feel until they suffer with cancer themselves. I wouldn't wish my cancer on my worst enemy.
@@applejellypucci omg💔💔
Jason, you are an amazing person, to go to so much trouble to help others is an incredible effort. All the very best to you.
Can you tell me Jason what symptoms you had before you were diagnoced.
My dad had this cancer, it started with a cough that lasted 2 weeks but wouldn't go away. He is still here after radiation treatments and early intervention. Thanks Jason!
That's wonderfu. I wish you both all the best!
How many radiation treatments did he have someone I know just got stage one and we are scared of putting them through it.
Hi Jason. ..I had the exact cancer ..had the same systems and treatment ... I also had surgery to remove the tumour in my neck ..The mouth ulcers were heriffic ....It took me 2 years to fully recover from every thing...that was nearly 5 years ago...I couldn't believe when u said u had the same cancer...I had a bad reaction to plasters too...ur tips are brilliant ..They will help so many people. ..The only thing I can add is this treatment WORKS. ..I have a brilliant life I never even dreamed possible. ..I look normal ad feel good ..I can eat ad drink well...There were days I thought I would never walk again. ..but now I'm running around with my gorgeous new grandson and new dog ...The first thought I had when I got my diagnosis was ..I will never see my grandkids. .which I soon felt guilty about as I met younger cancer sufferers how only had very young children and were worried they may not see their children grow up ..I soon realised I was already lucky ..my daughter was 24 and my son celebrated his 21st birthday when I just finished my treatment. .I spent my 50th birthday in hospital very sick at the end of my treatment. .but Iv made up for it every Birthday since belive me...I am planning my gorgeous grandson Evan's 3rd birthday in a few weeks. ..I call him Evan from heaven.👼 ..I do feel terrible guilt when someone doesn't make it especially young people and children. ..I pray everyday for everyone going through horrible cancer..especially families who have lost loved one's. ...The only thing I can think to do is to live my life smell the roses for those who can't ...be happy with nothing. ..health is your wealth. .Jason I hope u continue to make a fantastic recovery. ..keep helping others ...I wish u a long and happy life full of goods supprises.. .😊👣❤💙💚🍀
Thank you for the kind words Mandy.
How are you Mandy I am in need of someone like you to talk too I'm going thru this at only 19
@@kevincastillo4734 Kevin how long did they take to diagnose you? What tests were done, and did they first give you a bunch of antibiotics thinking it was just a bacterial infection? thanks..
Grandkids are a gift from God when you're going through cancer treatments. They make you smile all day long and forget, at least for a while.
@@kevincastillo4734 how are you Kevin?
Jason,
You are such a kind hearted person. Having gone through the ordeal you are pre empting others from the avoidable pains. I salute you. Others have a lot to learn from this video. I definitely have. My best wishes to you for cent percent recovery. Thanks, once again.
Thank you Ananta
Jason, you are a true hero. I love you dearly and am so happy that you are doing so much better! You look amazing, and I can't say how happy I am to see you still kicking!!!
I'd like to add that eating at a buffet to find what you can eat. I wasted so much money ordering food I thought I could eat and found out I couldn't. A Buffet is the key to eat out.
Thank's so much for all your efforts and ideas and making this video. This helps people looking for answers.
You'll never know how much you've helped others. I wish all the luck to you.
Thank you so much for taking time to do this video. Wish you a full recovery. Blessings.
Jason I thank you so very much for this video. The love of my life has to go through this and I am looking into all this to be more than support and help for him. God bless you and so very happy you made it through and I know he will too!!! Stay Blessed 🙏🙏🙏🙏
I can't thank you enough for this video. I'm so sorry you had to go through this terrible disease but am grateful for your advice. My brother was just diagnosed with neck and throat cancer, stage 4 and is ready to undergo surgery in a week. If even one of the pieces of advice you shared works, you've done more than you know. I know this was done a few years ago and hope you are cancer free and living a wonderful, full life.
Noslenirol have her find my Facebook group by the same name. Over 1,000 survivors and current patients all helping each other get through these terrible treatments. Thank you for the kind words, yes I’m doing very well.
19 year survivor of the same cancer type, head and neck. Had all the same issues including the destruction of my salivary glands. Had I known of the results years later I would have pulled all my teeth for dentures since the radiation killed all my teeth and it was a terrible process to have them done after radiation. Also affected my vocal chords and epiglottis that after 10 years I am on tube feeding (aspirate when swallowing) and have lost about 80% of my voice (radiation). But it's better to fight and be awnry then to let it win. Exercise your vocal chords and practice swallowing constantly and you will keep it working longer.
God Bless and Good Luck
Kim sorry about your teeth issues. I guess I was lucky in that 5 years out my teeth are still perfectly healthy. But maybe because my salivary glands weren't totally destroyed by the radiation? I had horrible dry mouth for several months, but eventually they mostly started working again. I know technology on the targeting of radiation has come a long ways year by year.
@@kimoconnell4064 How can i contact you sir... Would you please give me your email id or something please
thanks Jason. I'm not a patient but someone I know is. you are a wonderful person for having shared this. I wish you complete and early health.
Im a smoker. Thanks so much for the explanation/ understanding of it. I'll keep you in my prayers. God is good!
Thank you Jason. You are a great help to all those going through this cancer. You're the best person to describe & give options of how to deal with certain situations. Thank you so much.💕💖💕💖💕💖💕
Thank you Mr. Barker for all of your help and I wish you all the best and healing recovery.
What a lovely man. Thank you . It's the little things people don't share.
Really appreciate you making this video, I have a friend going through this and your tips are really good.
Great video. Cool, calm and precise delivery of info. Very reassuring tone as well, this is going to help a lot of people, this is what the internet is for. I found this after my event and I just had radio, so I was very lucky, and I had good people in the NHS sort me out. Appreciate it anyway.
my sister was only recently diagnosed with stage 4. one cisplatin a week ago. radiation mon-fri. i do whatever i can, but now it seems there is very little i can do. it was comforting to find your video, just to know there are others who understand. i hope you are well.
Thank you for your honest story. I wish you the best Jason.
Jason, thank you for these helpful, practical tips. God bless you. I hope you are doing very well now.
Hope you are doing well & enjoying life to the fullest today... thank you for sharing
Good on you. Really appreciate you taking the time to help others. Starting my own journey right now.
How are you doing now Stu?
Hey, Jason. You are an amazing man!! Thanks for all the great info. You hang-in-there guy. All the best.
appreciate your input Jason , my father is diagnosed with throat cancer .. your video is very helpful in understanding after effects
Thank you for sharing. And my hopes are that you stay cancer free for the rest of your life.
Thank you Jason Barker. My brother was just diagnosed with throat cancer. We go to UAB in Birmingham Alabama on Monday January 25th. They will do a biopsy and give us that most dreaded news. I wrote down everything you said about what the doctors don't tell you. My brother is typically a private person. But I have done a lot of research on throat cancer and the things he could be facing. I appreciate you and your personal knowledge on your treatment and the fact you care enough to share. God Bless you.
Thank you for this video...my brother is starting this journey also. Hope you are now better & enjoying life. Thanks again.
Thank you for this content. It was very helpful for my loved one. God bless you through this journey. Much power to you!
Been there done that, your video is very good, appreciate you taking time to share this info.
You are awesome! My prayers for you! Thank you for your tips. Extremely helpful! ❤
It takes a pretty incredible person to want to help others, while going through your own battle. God bless you. I hope you are doing amazing and are cancer free.
Yes I am cancer free, thank you. I only wish I'd shot more videos during my treatments, that would've helped even more people. But 5 years ago CZcams wasn't as powerful as it is now so I just didn't think about it, plus it's pretty hard to film yourself when you're in that condition. Thank you for the compliment!
Just wanted to stop by and thank you for posting these videos. I’m about to start neck cancer radiation/chemo therapy. Because of your video, I became aware of the potential interaction with dental crowns. I raised the issue with my Radiation Physician who agree that it would be beneficial to remove a metal crown that is in the area to be irradiated. Just swapped the metal crown for a non-metalic crown yesterday. Thanks again for your efforts to help others! All the best to you and yours!
Jason, thank you for sharing your experience. A friend has recently been diagnosed with stage 4 throat cancer and is starting the journey. I just sent the link for your video to her and will pass along the facebook page info.
Just finished my radiation and chemo for the exact same diagnosis wish I had seen his first hope life is treating better
you are absolutely amazing dude
Thank you for sharing these tips. I hope you are doing well. Love, Peace be with you.💗✨🙏
Blessings to you. Hope you are doing well. Praying for you for your health.
You don't know how much I needed this video and the others and blog. My husband and I just found out he has throat cancer. So overwhelmed, but staying faithful. You helped me get out of bed today
Join my Facebook group called "throat cancer advice from survivors". Tons of support in there.
Reading all the comments you can see how much your video has helped people I am early 40s and I have one tonsil that is slightly larger than the other and I've noticed a swollen gland on the same side that feels like it has a hard BB/small pea stuck to it I have a appointment with the doctor in about 5 days and I am going to request a appt with a ENT regardless of what he thinks it might be. your video helped calm my nerves and I appreciate it and you sir thank you.
Thanks. Your clues are absolutely great.
Thank you so much for taking time to do this video. The points that u mentioned will definitely help people. I ll shared this with my contacts. I see that this video was uploaded 6 yrs ago & the latest videos are of 2 yrs back. Plz tell us that u are all fine now & fully recovered. Again thank u & may God bless you. 👍
Yes I am doing very well. I'm so busy I haven't made any new videos to help cancer patients.
Wow 😀 Great to hear that ur doing good nw. It's fine if ur busy & im not asking for regular videos like other CZcamsrs do. Becoz content is what matters & in future if u think some info will help people, plz do as it would be a great thing for someone somewhere.
God bless you and your family & may this year bring you lots of joy & smiles. 👍
Very practical and huge help to patients. Thnk you so much for sharing these learning which nurses or doctors never thought important and useful to patients. Its really vest to hear it fr someone who really went through it. God bless you.
great information and so kind of you to share the information with us... shaved my arms today, and beginning my journey this week... God Bless You...
The doctors gave me "magic mouthwash". It's pink and really helps with the mouth sores. I did not have a problem with fillings. You can win this fight and look back and say, "that is when I had my cancer."
I was given that too. The pink Magic Mouth Wash.
Jason, it was so unselfish and generous of you to share your experiences and to take time to make this video. I hope you are doing much much better by now and that the cancer will be gone completely.
Very good info, Jason. Thank you so much. Hope you are well & happy now.
Wonderful advice from a very caring man, thank you! I will be starting my treatments in a week and I'm sure these will help me and make life a little easier. Bless you.
Thank you Michael. Consider subscribing to my channel to see new helpful videos when I have a chance to make them. Also, ask to join my Facebook group called "Throat Cancer Advice from Survivors" for awesome real-time help from over a thousand survivors who've been through exactly what you're about to go through.
Jason Barker Hi again Jason, I will do that tonight. Thanks
Jason, thank you!!! You're so beautiful for sharing this stuff!!!😀
Hi Mr Baker! I hope you're healthy and all is well. Thank you for this video.
Thank you. Yes I'm doing awesome now!
Thank you sir for your story it's help me understand more of what I have to go through Be Blessed
Thank you for sharing sir, I have the exact same cancer and I'm getting ready for the same treatment in the same area. I have one more doctors appointment before all my treatments start. I'm a older sixty four year old guy that had all my teeth fillings taken care of years ago. Like you smoking wasn't my issue either, who would have ever guessed throat cancer would be an issue? Everything you've said is all new to me. Thank you again, it really means allot to people like me.
Denzil honestly it's a tough treatment regimen, but myself and thousands of others are proof that the pain is worth the cure. I am 4 years past treatments now and doing awesome with a normal life. I suggest you share this video link with anyone who will be near you during your treatments and recovery so they also have an idea of what you're going through. Join my free Facebook page also called "Throat Cancer Advice from Survivors"
Thanks for your reply sir, but if it wasn't for bad luck, I wouldn't have any. I had my first Chemo treatment on Aug 7th., I then had a major heart attack that night at 1:00am in the morning on Aug 8th. The only good news is that I'm still alive. I now can't find a doctor that will install the G-tube due to my heart issues. Since then I have passed out and dropped in the floor without warning and hit my head and really tore up my shoulder joint. I swear I now have bruises and horrible pain in places I didn't know I had prior to hitting the floor. Today I can hardly move or do anything due to being so sore. I just want to get on with my cancer treatment and get it over with, but at this point I don't know when or if it's going to get started. I'm also now on blood thinners because of the stints they had to install in heart veins. My cardiologist refuses to take me off the blood thinners and that also means I can't find anyone to install the G-tube for that reason. I swear it seems I'm now left with the choice of either dying with the cancer or the heart issue? Not really, I was told if I stopped the blood thinners I would likely even be at a higher risk to be put under for the surgery. Many are saying the G-tube isn't that big of a deal and probably could be install with a lesser drug than is normally used, but I personally don't know, I just know I'm now stuck at this point without my cancer treatments? I suppose life just sucks at times?
@@denzilritchie2806 life can suck, but we only find our true character and courage by being tested beyond what we currently think we can endure. You're being tested to the extreme!
Thank you Jason, I finished this treatment Aug5, 2020, life changing, lost 20 pounds, many people do ask, so many I know are getting this it is unreal
What were your symptoms
Great video, thank you for posting. Ahh the things they don't tell you! Like the lympodemia and the electric shocks down the legs and arms, which didn't start until after month 2 post radiation or perhaps I was just unlucky with the later symptoms. Well done and good health to you.
Great advice, THANK YOU Jason !!!
Keep us up to date may god bless you my friend stay strong 💪 👍🇺🇸
thank you for the tips i have a friend that just found out she has stage 3 in her neck . i will tell her your tips right away
The last tip is brilliant. Really its hard to tell the story and history over again. And also, friends who need to know your status particularly on the cancer will just go there and read. At least u dont get things mixed up. And the exchanges only deal about 1 subject. U get direct answers n queries too.
For anyone showing up here because they have a loved one going through this cancer I'd like to give a few words of THANKS as someone who just finished treatment (35 radiations, 7 chemos) 2 months ago with the help of a devoted loved one. The daily support of a primary loved one is so important when we are going through this experience. It is like swimming through oil just to move from one place to another. The energy is sapped. The thrill of eating is gone. Normal hygiene takes so much more effort than ever before. The will to live is shaky due to pain, nausea, and fatigue. I am so grateful to have had a wonderful support person (my significant other) who didn't push me to do anything, but just kept me moving in the forward direction throughout the therapy phase. Thank you to all the loved one who are making the progress tolerable.
You are doing a good work. Thanks for sharing.
My father just got diagnosed. I came on here to find out more information. Thanks for the insight.
Sorry for the diagnosis but keep researching. This cancer absolutely beatable and still have a great quality of life thereafter. You may want to subscribe to my videos to see more and get notified when I make more.
Thank you for sharing.. I wish you all the best brother
God bless you Jason, and thank you so very much!
I'm sorry to hear about everyone being diagnosed with cancers and such. It's truly a horrible thing. I am having trouble swallowing, food gets stuck at the top when i swallow and i usually get it down with a sip of water. It's been a nightmare, i'm steadily losing weight as well. Today i had two small ice creams and a bag of doritos which took me 3 hours to get down piece by piece. I no longer get hungry and that's is complete opposite of the normal me. I always woke up hungry and ready to eat now i just don't feel it, my stomach doesn't even growl. Depression has set in, you don't know what depression is until you lose your ability to swallow and eat normally. It's beyond describing. I'm set to have an EGD done to see if there is anything blocking or a stricture etc. I have smoked cigs in the past so i'm hoping it's not a cancer diagnosis. If it is, i'll be taking Cannabis Oil from Colorado or Seattle. I would never admit myself to chemo or radiation as they are very bad and only good at destroying your healthy cells and immune system etc. I encourage ALL who are diagnosed with ANY cancer, to look up Rick Simpson Oil on youtube and watch videos from REAL people who have beat their cancer with this oil. It's illegal in most states, and there is a reason for it. Legal Cannabis Oil would literally crumble the profit powerhouse of cancer. Not trying to say its your only option, but it should be our first option if possible. Do research and decide. It's the first and last medicine i would ever use for a cancer of any kind. Thank you so much for sharing this, you are a kind soul and i will update on he results of the EGD. Here's to hoping i don't get diagnosed with a throat cancer!
Could be H pylori too. Update us on your progress.
Thanks for sharing and good you made it through and fought it
Good info. I just started my therapy, same thing as you. My Oncologist suggested a mouth guard to protect my fillings from radiation. I am on my second of 35 treatments. I did not have my metal fillings removed, I hope the mouth guard protects my fillings, that sounds like a nightmare.
Wow. This is a very helpful video. Thank you!
Thank you so much for this information!
Wishing the best luck for you get better soon!!
I just had been diagnosed with the same cancer. Though I'm medically inclined, I cant help being scared about the outcome. Hopefully things turn out okay. Thank you for sharing your experience. God bless you.
How are you doing now? Its been almost 7 months later.
thank you for sharing, Jason. I also had the same cancer on the back of my tongue. 35 radiations and 2 chemos. kicked my ass. I'm 5 months post treatment...and doing well. I can speak well, but there is still a considerable difference in my voice. I am back to public speaking, but cannot sing yet (I am a preacher/song leader for a living).
Mike way to go making it through treatment! Keep your nutrition up and you'll continue to heal. My voice was weak for many months. My singing was always terrible so there was no difference there.
How’d you find out you had it?
I had felt a lump in my throat for a couple of years, I went to the doctor a bunch of times...finally I started having an ear ache. CAT scan and biopsy confirmed it. I'm over 2 years past treatment and doing well.
@@mikedesena5065 that’s good I’m glad you went thought treatment well!.. I’ve had a node on my neck for 7 years and I’ve gotten it biopsied and a couple of near by nodes as well to make sure of anything and it came out all benign.. but I’ve been recently worrying a lot about it again so I’m seeing doctors again
thanks for sharing your story! Do you know what type of HPV virus you had? Like HPV 16 or HPV 18?
thank you for sharing your experience
Hi Jason - I hope this comment finds you well and healed. Thank you for caring enough for others to share your experience. You also have a great attitude. Realistic, yet hopeful. You explain the negative aspects without being negative. You offer solutions. This is the type of information others need; information that doctors can't or don't always share. It would be great if upon a cancer diagnosis that a person would be assigned a survivor mentor (like those who have an AA sponsor). Someone to ask questions that doctors are unable to answer and someone to reach out to when a person needs emotional support that family can't seem to give. I have a great friend who worked in oncology research who felt exasperated with his patient load while interning because there was only so much that he could do for his patients. He would be on call for about 15 patients. The calls ranged from true emergencies to emotional needs seeking someone to listen. He couldn't do that; especially at 3am. At first I thought my wonderful friend had become jaded, but soon realized there was a great emotional need by cancer patients that was every bit as important as the physical; something doctors couldn't provide around the clock since their main concentration is the physical treatment. And waiting for a group meeting or waking a spouse or friend at 2am to talk doesn't fit. So it would be great if a person volunteered to offer this type of support to a person they truly understood. The mental-emotional aspect of cancer treatment is every bit as important. So thank you and bless you.
+Karen Lm Thank you for the input Karen. I started a Facebook page specifically for the needs you addressed. It's linked in the info above.
Thank u so very much, my hubby was diagnosed with HPV throat cancer in August 2019 and passed away in slightly less than a year. Fought it like a valient soldier. Hardly ever complained and only cried a couple times. We were together for 15 years. Now its another year and I guess its my turn. it seems so surreal. My ENT doc still hasn't got back to me with my ct scan results and this is
I'm sorry about your husband. Join my Facebook group called "throat cancer advice from survivors". Tons of support in there.
Thank you for sharing the video, God bless you, best of luck
I am just starting my journey, thank you and God Bless
Are you doing ok now? (You're in my prayers)
Me too. Chemo and radiation start November 1, 2021
@@tristanh8754 I am Blessed and happy thats behind me, thank you for your kind words, sorry I missed them for this long
Thanks I about ready to go through chemo and Radiation in a couple weeks, Its weird my lymph nodes were removed Monday . I be watching this alot
Sorry for what you are about to go through, but you can certainly beat this cancer! Watch and share my other videos with anyone who will be helping you during your treatments. Also, ask any questions you may have as you proceed through your regimen and during recovery. It's a long road but it's not insurmountable. Fight!
Throat Cancer Advice from a Survivor thanks my pt test came back now it’s in my liver ya now I need a biopsy on my live thanks I will beat this
Jason, thanks for making this. I'm in the "process" of getting diagnosed with what I think you had. So, I'm delighted to find the special moxy that patients have which physicians don't think about. If you know of online support groups, could you post their URLs here? When my daughter was dying from a brainstem tumor 20 years ago, an online support group of patients and caregivers was humongously beneficial for note-comparing management strategies. Thanks again!
muffypup the best support group is the Facebook link in my description. Absolutely amazing the way that group helps people newly diagnosed or currently going through treatments.
Thank you so much for the great advice!
Thanks Jason for sharing
Thanks! This was very helpful ... God bless!
i can't thank you enough.... kind regards, john
God bless you my brother
I’m finished with treatment for tonsil cancer. A major mouth cleanser for me was hot salt water with baking soda. Never had any mouth issues. I have a mouth full of metal. I am so thankful for my change of diet and precautions. My dr told me he has never had anyone take it so well. I wasn’t normal by any means but I am on the right side of the road now. Waiting for my pet scan now. God bless anyone with any cancer
thanks for this Jason - I'm about to begin radio/chemo over 6 weeks for throat cancer. I will def check on getting fillings replaced, although time is short. I've sent request on your FB group page...,. all the best
Hi Jason thanks for the informational video I have melanoma stage 3 in my neck and am about to start radiation therapy, I get my mask made tomorrow. I have metal fillings why are those an issue?
Thank you for this I'm so sorry you had to go threw hell! Stay strong love :)
Thank you so much for sharing your story. I am about to start my radiation and chemotherapy treatments and this is very helpful.
Thanks for the encouragement. Not looking forward to the next 7 weeks, but I am ready to give it as much firepower as possible to knock out all the cancer once and for all. This past year has already given me a new look on life so I am sure it will only get better once the treatments are over and done with.
Thanks so much for the advice and encouragement!
Thanks dude. this is helpful.
Thanks for sharing!
Thanks mate 🙏 🙏🙏🙏
All the best...
Hi Jason, thank you so much for sharing! It makes me feel less alone! If you don't mind me asking, how are you doing now?I'm wondering what your symptoms were at first, to make you realize something was wrong? And through everything, the cancer and treatments did your voice or speach change?
I'm doing great now! First symptom was a lump just under my jawbone that I noticed while shaving one day. During treatment my voice weakened but it's back to pretty much full strength now. However my tumor was not located o my vocal cord(s) like happens to some people. In those cases it is common for those people to lose their voice permanently.
Very informative. Glad you made it ok. Personnally, I "swish, gargel and swallowed" club soda. It helped with the ph in my mouth and reduced the mouth sores. I could have done it with a mixture of water and baking soda but the club soda was less yucky. A nurse from the cancer center had recommanded it. I used a child tooth brush (Power ranger! chosen by my son!). I also had fluoride trays and did a fluoride application daily. I will require to do this fluoride application for the rest of my life to prevent tooth decay. I also brushed (and still do, 29 months past the end of treatment) withint 30 minutes of eating/drinking anything other than water or club soda.
i'll have to check into that. thanks!
thank you for sharing this. My father had throat cancer, and it is one of my biggest fears. How are you now? I see it ha been nine years
Jason thank you very much... I start my treatment for throat cancer in 1 week. Definitely going to ask my dentist about switching my filling. I'm doing a video journal of my treatment for the same reason as you... help out others going through this. Thank you once again.
dumont2121 Good luck! Hope you'll be doing fine. Stay strong and brave, there are so many beautiful things in this life awaiting for you to try and live them. It's not going to be the most joyful expierence ever, and sometimes you might feel like giving up, but just don't! This will make you appreciate life and everything about it. Be graceful upon yourself. ❤
Any progress?
Had the same cancer as you. Some things I discovered that wasn't told but helped was instead of a pick line I had a surgical port put under my skin in my chest. Worked great and non obtrusive. Didn't have filings issues although I have a lot of metal from younger days, although I brushed at least 5 times a day and also used a hydrating mouth wash at least 3 times. Teeth and gums came through perfect. I elected not to have feeding tube and was best decision. Was tough last two weeks after third chemo but made recovery a lot quicker. Wish they stressed more about loosing all my taste for at least 6 months but it is now back. Also wish they said to do stretching exercises with neck and mouth mussels because of the radiation. Also get a second opinion! First DR. wanted to do neck dissection and partial tongue removal. Someone always graduates last in their class. Hope you keep on keepin on. Pat Fitzsimmons
thank you, sir. That is very kind.
Thank you for this video. I wish we could prevent these things.
beverly francis There is an HPV vaccine, so we can. :)
thank you jason so much.