When life gives you Lyme | Halima Ibrahim | TEDxProvidence
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- čas přidán 25. 06. 2024
- Halima, a high school student in Providence RI, shares her poetry in this emotionally charged talk to help explain the past few years of her life and the struggles she's gone through due to her illness. Halima Ibrahim was called to leadership when, due to a chronic illness, she needed to attend the Women’s March in a wheelchair. She perceived “ableist” undercurrents in the activism community and spoke up. Halima is most known for the poem “Wake Up” she performed at the March for Our Lives Rally at the state house in March 2018. She hopes to inspire other young people to step into difficult conversations and make their voices heard. Her TEDxProvidence talk will take place 3 days after her 16th birthday. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at www.ted.com/tedx
We need a cure. This is so tiring. We need acknowledgement. It's a devastating and mind altering disease.
So true.... 💖 it's so sad.
Don't give up please. I love you "stranger" we will find a way. Please share these videos everywhere you can! ....
Children and people all need to be aware of protecting against ticks!!! Thats a start! Kids run around outside in the grass, in the wood... they need to protect themselves. Better safe than sorry. And sufferers will be there for eachother and continue to find not just a cure but help! I know we can do it.
@@ookipuki a cure would be nice
So incredible, only chronic illness warriors truly understand how beautiful and strong she is....
Very true
From one Lyme baby to another: thank you thank you thank you. Beautifully worded.
I am also sick of being sick.
You are not alone my friend. Stay strong
"You will learn to love your broken too." this is beautiful, thank you Halima.
I have Lyme disease and I wept this entire video. Thank you for your vulnerability.
Same 💚
You wanna connect?
I guess it's worse to not remember ever being healthy, but it makes me depressed to remember my healthy times and think I can't get back there...I was diagnosed at 28
I have never related to a Ted Talk more in my life. She spoke everything I was thinking. When she read her poem, “Dear Legs”, I cried because I’ve been struggling with the same.
Halima, you are amazing. I totally get it. Lyme since '88. So thankful you could stand there and do the TED talk so beautifully.
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I’ve been sick for twelve years. This is validating. I love the poetry.
I can feel your pain. I'm also sick of being sick.
Try Wisdom Healing Gi Gong...it helped me so much with the pain and tendon damage.
Just got diagnosed. Took ten years. My doctors “can’t promise me any results.” What a time.
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I know this is an old video, but I suffered just like described for 40 years before I finally found a way to be able to treat the infections. Severe Jarrisch-Herxheimer reactions kept me from getting "traditional" treatment. I now live with nervous system damage. Thank you for speaking for so many like us!
I love that someone thanked her for the use of precious spoons to deliver this awesome speech.
THATS exactly what happened to me ... wtf is wrong with people not believing us
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Keep fighting beautiful!
Fellow lyme warrior here diagnosed at 18 and now 24 with late stage lyme I can relate to everything you said.
I understand you're not alone.💚
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Fellow Lyme warrior - bitten at 17 in 1998, two big rashes but I was traveling and they faded before I got home and to a doctor. I was diagnosed at 21, treated finally at 26 for 6 years... breaking open biofilms made me worse than when I started. I'm 41 now and even through many different "treatments" I'm still ill.
You're not alone.
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I think you are so beautiful and such an inspiring young lady! I am a 53 year old woman with Lyme and never felt as strong as I do as this moment because of you! Your Legs poem made me cry by the way! You are amazing little woman, stay strong and hang in there!! I pray one day you find true relief!!! I hope we all do! 💚💚💚💚💚💚💚💚💚💚
Very tired of being sick - I understand no one gets it
I am touched so deeply by your story and the beauty in which you told it. Lyme is my constant companion. Lyme is my child’s constant companion. There are no words, yet you said it all. Thank you for your bravery. I hope you are well 💚
I wish your voice could be heard by every professional and they can live life through your eyes. We need a cure!
When you’ve hit rock bottom.. but look up. There’s light. BEAUTIFUL
You are awesome!! Such a great speaker! Thank you for this! You described life with Lyme so perfectly!
I feel every bit of her pain and life myself. It’s been three years after my diagnosis was confirmed,and nobody wants to deal with how sick I still am. This week I ask my doctor again to help me,and he point blank said I need a brain doctor. That was the end with that one. Four days a week I can barely walk ,an experience brain fog ,that is growing into times I can’t understand or think to speak. Recently can see myself clear minded,behind the fog,but not being able to express across it. If I don’t fight it,time slowly works out my scrabbled thoughts. I am so thankful I’m retired,because being alone saves me a million I’m sorry’s. I love this women,because she helps me love myself, in our spurts of inspiration,we mustard in our midst ,behind the fog and frail
I’m a 60year old mom with two teenage daughters, when a flare up hits they help dress and undress me, they help me lie down and sit up. I am so thankful for them❤
My pain can be so debilitating that I cannot stand or use my arm, my neck will hurt so bad I cannot turn my head much less hold my head up. I’ve had my diagnosis a month now. I will educate myself and get better
Such a beautiful angel repping all the sick babes!! Doing us justice xxx
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I was diagnosed two days ago, I don't know how long I have had Lyme disease for but I thought I was depressed all this time until I watched this... Thank you for the tear and thank you for giving me an eye opener about everything I have been going through.
I’m waiting on a test right now. Had a really scary episode last night after my doctors had already been wondering about Lyme. I’m having the same thoughts as you-all this stuff they’ve called depression, all this stuff they’ve called PTSD over the years, the chronic pain and cautious… what if it’s never been in my head? Western medicine is so invalidating and limited. We aren’t the broken ones.
How are you doing now?
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I am watching this brave girl while taking my daily 2hr Epsom salt bath and do my coffee enema. All thanks to late stage Lyme. I am 45, used to work in medical admin, started and ran organizations. I have been retired from all activities as muscular movement and cognitive stimulation cause seizures. I have been in the wheelchair now for about a year. I have had one remission-type thing that lasted about 4-5 months. I commend this girl for her bravery and the beautiful way she communicates. I hope that she may continue to carry this same intention forward in her life, as communion with Lyme, until a medical breakthrough, is the only way through the suffering. Continue to make Lyme your friend and invite it in to sit for a spell and have a cup of tea.
Did you get any relief from the first coffee enema? I tried once but nothing happened so... Also does 2 hour bath work better than 1/2 hour? thanks
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Tremendous, thank you so much. You are a great story. Always stay in the light.
Invisible chronic illnesses are the plague of the current century thank you for sharing this video and your experiences
Halima, you are extremely talented. You are a true wordsmith. Your words mean a lot to me and to many others - of this I am sure.
Also tired of being sick and feeling to apologize for something not being one’s fault
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I do feel your pain…I have those feelings all the time…thank you for sharing what us with Lyme feel.
Poor kid and I was thinking that I forgot what being well felt like.
I take you seriously.Thank you.
Omg this is absolutely beautiful!
I truly am sick of being sick also. Tired of seeing others suffer. Two of my children had cancer, I feel it’s all because of me, grateful they’re alive. So grateful, I’ve buried a few, I had no clue I had this disease. It can go in, if doctors would pay attention, this possibly can help many, and what we’ve dreamt of. I have grandkids now, however, what have I passed in, due to doctors with their judgment & ignorance, because they didn’t believe?
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Thank you for making this! I cried when you shared your symptoms because I had many of the same and feel so understood by you sharing your story
i got chills and have tears in my eyes. i so much feel for you, for all of you who have lyme. god bless
I am 35 still was told it's just anxiety.
I don't know if you have yet to realize that you are, in fact, an incredible poet. But more than that, you ARE poetry. Thank you for sharing your story. I hope that your health has continued to improve.
With so much love and respect,
Your sister in the chronic lyme battle
Today was a hard one. I needed that. Thank you ❤️
Oh, what a beautiful job explaining this horrific, life-altering illness and how it feels to actually live it! God bless your courage and excellent ability to teach! You are amazing! May God Bless you! 🤗
This is amazing. Thank you for speaking for those of us who cant. You are a beautiful and strong person. Thank you.
With all do respect our minds do play into our lyme ,I dwelled on my pain I had several surgeries due to cartilage damage I have it late stage as possible ,it is hard but i had to give it over to my higher power and stop dwelling on it and giving it so much power...good talk tho there was some good info ,good poetry..god bless🙏
Ive watched dozens and dozens of videos. This one!
I was inspired
I cried
Amazing speech given by a truly amazing kid ❤
Masha'allah sis, wonderful spoken word. Its definitely an I opener. I wish doctors would learn to trust their patience like how so many of their patience trust them (within the right context of course).
Have Lyme too.
You are the bomb!
♡ Chills and Tears ♡
I’m sick, too. I have had several tick bites I know of. A few years ago, I became too weak to walk or even sit up. My skin was on FIRE, everywhere, even my face. I felt like I had been doused with boiling water! I still do! Joint Pain roams my body. I’m suddenly told I have “arthritis”. I developed POTS. I will pass out if I get too hot. My eyes don’t work. I’ve been prescribed glasses three times and can’t see using any of the pairs I bought. I can’t think a lot of the time. I have trouble swallowing for days or weeks at a time. I’ve been tested for “everything”. Even had genetic testing. Finally diagnosed with Non Length Dependent Small Fiber Neuropathy. No good treatment for that..... I was tested for Lyme Disease but doctors won’t use another test to double check. I had four skin biopsies which all tested positive for nerve loss, which gave us the diagnosis. It took a year to be diagnosed, during which I was told I was fine but needed a Psychiatrist. I thought about ways to die. I already had an incomplete spinal cord injury, so don’t walk much or well and now am so dizzy it’s almost impossible and very dangerous. Severe shoulder pain (it’s been frozen for over a year) and hands that hurt so much mean I can’t use cane, crutches or a wheelchair. I’m homebound. I live in the mountains... 🤦🏼♀️🤦🏼♀️🤦🏼♀️🤦🏼♀️🤦🏼♀️
Look for Stephen Jarrod Buhner on Facebook etc, he has a Lyme protocol if you can afford the herbs. Apparently his patients have very good results with his treatment. X
I'm in the same situation as well they keep saying its depression and I've had strange thing with glasses I'm going to a surgeon now bc they don't work they say it's the same rx.
sick of being sick. cidp, mycoplasma and long term lyme. one day we'll get our answers.
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I’m 18 I’ve had Lyme’s for 2 years now, it really does ruin your life, feels like you have some sort of cancer growing inside of you. I’m only young these are meant to be the best years of my life and I’m sick. I wouldn’t wish this upon my worst enemy.
You inspired me to keep going, I desperately needed that
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Thank you for your bravery!!
I wasn't diagnosed but I'm also sick of being sick. I am too scared to go to the doctors because I don't want to feel again the feeling of someone dismissing my pain, sometimes more painful than the pain itself. I feel that at one point I will no longer be able to endure it anymore, it gets worse with every year that passes. I'm currently 23, I wonder if I'll get to 30 with my sanity or body intact.
I'll try to give it a chance one last time, after this epidemic will go away, I will go to see a doctor and do whatever it takes. But if it will not work, I think that I will never be able to trust any doctor again.
You can survive... I'm 30 now, my Lyme's has been in me since I was 17... I dealt with almost no symptoms aside from robotic fog for the 10 years, then it hit me hard 3 years ago... Almost died from body giving up, found a "cure" in silver and 80 hour water fasts and no sugar/gluten diet... And am almost "normally" functional again, but it will be with my the rest of my life... But it can be done
I see a LLMD (lyme literate doctor) and that is helping me so far.
Thornbad can you explain your robotic fog? Because I’ve been feeling brain fog and feeling little emotions for over 3 years now. I was bit when I was 23 I’m now 27 and still hasn’t gone away. I want to try the 80 hour water fast. I’ve done 24 hours.
@@hendersonpion7314 sure, for me it was I didn't notice anything, it was an extreme form of apathy and a hard time even thinking basic thoughts aside from pure survival... I'm kinda recovered now, but still occasionally it causes me physical pain to try think and learn something new, especially when I relapse. I have to make sure I take in zero processed sugar, because that makes it worse
@@hendersonpion7314 I was working construction, and would work really hard and get things done, but never learned the next steps in a really fairly simple job, would always have to ask what I needed to do next... Even though I was pretty smart when I was younger, it was shocking to realize
You are not alone...💚.. And I HATE my whole body.. but thats the next journey.. Keep on, never, never, never ever give up.. ❣️💚
I have Lyme’s disease. After being misdiagnosed as having Fibromyalgia; my body hurts so bad and right now I am on a 3 day flare up. It sucks.
I'm 19 and was recently diagnosed with chronic Lyme, Babesia, Bartonella, POTs, TBRF, and Long-Haul COVID. Recently, I've suffered from PEM and am essentially bed-ridden. I've never felt more broken and am discouraged to hear that so many people are unable to get into remission. I can't do anything anymore and feel like such a burden. I just want to be in college experiencing life, not in bed with debilitating symptoms, unable to talk without activating a PEM flare. These illnesses are so horrible and I wish there were treatment options/representation.
Praying for you, Miley. I am so sorry this is is part of your journey. There is light and hope, and there are healing testimonies. I have started a playlist on my channel, as I am on my own journey as well. Sending love, Sandy
This is a lot for one body to cope with! How are things now? A year on ...
No more tears of pain to any and All Lyme Victims - funny that Ticks in Mex & south America dont make people sick -something to meditate On - and so it is - Blessed it Be.
mashallah so so inspiring I'm so proud of you.
Amazing I can relate
Wow, great talk ❤
I was looking up Lyme disease after watching a Joe Rogan podcast and this came up
I lost quite a bit of my vision from Lyme last summer. I have the "dear eyes" conversation every day. Especially poor lefty who got the worst of it. Sometimes I say I just want to scoop it out with a spoon, but I don't really. I just want to see and feel normal again.
Brave and inspirationa! I can relate having Lyme and POTS myself.
I literally heard every word xxx
Amazing speech
The worst thing are the people around you because I look normal they think I m just not doing sports or going out working etc… why don t you do more. I would love to have a memory like her. Just sucks :(
Wow!
I Can Relate, Finally Someone that has a Similar History to me ❤️
To all my fellow lymies out there, know that you are not alone. I love you. You are strong and beautiful. I will soon be traveling to Envita clinic in Arizona with the hope of getting my life back. I will keep you posted on my progress. Hope in healing is a rare thing with Lyme. But I'll take all I can get. Hang in there my friends.
Joshua Johnson please let us know. God bless you 🙏
@@kristymichas7015 Thank you so much. I received the affirmative diagnosis from my doctor today showing positive lyme on 4 different tests. Envita and Igenex are what finally provided the definitive proof that I'm not crazy and my body has been invaded by borrellia. I will receive my treatment plan soon and and hopeful of getting my life back. Much love and hope to all.
How’s it going?
@@joshuajohnson7022 how are you now?
@@laurenliv148 I'm still alive. I couldn't afford 80k for treatment at envita and my insurance won't help. Go figure. I still suffer with nuerogical issues, joint, and muscle pain and some days I barely make it through. But I'm holding down a full time job and I'm able to do most of the things I enjoy. So I could be much worse. I use a device from Canada by fremedica called Wave 1. It does seem to help.
Telling my story I'm so 😞
Very brave girl !
Same.
Dogs get better lyme treatment than we do
I was told I needed to see a chiropractor and my doctor cracked my back and said I would be fine
I have been sick 4 1/2 years ☹️ I am a spoonie .i hate Lyme
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My Grandson was bit by a tic while mowing my yard. that was 10 days ago. He has a bullseye rash radiating from the bite mark. He is in college (even though he has asbergers) so no insurance at all. my daughter did a video doctor thing and he ordered Chris a 10 day supply of doxycycline. He is having trouble with throwing up and diarrhea from the doxycycline. I tried an online lab to get his blood tested, I hit a brick wall as the test is 159.00 and my husband of 30 years just passed away, I am on a small widows pension, I can not afford that. I am hoping someone knows of a clinical trial researching lymes disease. he wouldn't have been bit if he wasn't mowing my lawn. I feel so so guilty. He is truly a good Christian boy. There must be a trial going on somewhere.
can someone advise where I may find her poetry about legs?
4:12 😭😭😭😭 I share your pain as a Lupus warrior sister
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I did an ELISA test for Lyme and the IGG and IGM came back saying "Not Detected" with The Australian Rikkestial Reference Lab in Geelong. I then did the CLIA Lyme test with The Royal North Shore Hospital testing for IGG which said "BORDERLINE" and IGM saying Negative. I then the WESTERN BLOT test with the IGG saying not detected but the IGM said "Detected" for bands 39 & 41. My Doctor said I have a false positive result and that I don't have Lyme. From what I know in order to be diagnosed with Lyme Disease a patient must have a positive ELISA test and a positive WESTERN BLOT according to the CDC. If however the ELISA test is an old, out dated, non specific and low sensitive test, then does the WESTERN BLOT Lyme test become a better Gold Standard test for Australian Labs? Still undiagnosed after 3 years of being super ill
Keşke türkçe altyazı ekleseniz videolara🤔😞
Watching this made me so sad. I am another casualty. And they won’t try to cure it. They hide the cure.
I’m seeing a “lyme literate doctor” (LLMD). Hope this helps.
@@JennSarracenia not everyone can afford an LLMD. I know some that charge $3000 for the initial visit. I know others who charge $450 every 15 minutes. I don't know enough that understand most people don't have that kind of money. Nor can they pay out of pocket for treatment. We need a better general answer, unfortunately.
I hope you're as okay as possible!
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@@borreliaetc what a weird reply
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For Lyme Disease. (IgM is increased) detected for a few weeks, but I think it has been infected for about 3 months
Is it possible to treat WITHOUT antibiotics?
Please .. I need a correct treatment.. please ..
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Does anyone have her IG? I need to follow her
I just got Lyme. I'm struggling to get out of bed. I'm exhausted walking downstairs. I'm on antibiotics. Will I get better?
Yes you will improve. You may need a change in diet and rest more often. Lyme gave me atrial fibrulation it is no joke.
How are you nowv
I've also have Long Term Lyme.
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Help me please. I am not in USA.
I'm in this same place and there has to be help somewhere... I wish I could help you....
@@echosierra5131 thank you so much... I managed to get some antibiotics...but I would need more of them of course to beat this disease....
@@echosierra5131 i hope you will get better very soon !!
Understand exactly what you are saying... 💚 1 step at a time. I completely relate to her spoken words & experiences. Hold on & Let go at the same time. Painful, downright painful on levels "we" had no idea about.
@DariaRock are you in the U.K.?
I feel dumped on .
All Yas may need is Vinegar?
Raise Body Acidity pH
Drink 5% With Water
Consult a Medical Practitioner First.
I have lyme and be treated, I have no neurological trouble in a bad sense, I have no pain, and am quite oke, I had a ACA on the lower leg maybe I am lucky I had a bacteria string of borrelia who is active in the scin. But when not treated the skin will be look bad, it go not away, I have heard that the oshi root herb is very effective, but be aware this plant has a very poisoning nabure who look almost the same, this plant will kill you.
You make lymeonade
i think i tried
Halima's suffering is certainly real. Nobody can deny that. The question I can't escape - on the one hand, the doctors who told her she does not have Lyme Disease don't feel her pain first-hand, so maybe they don't believe she even has that much pain. That means, in a way, the patient really know best what's wrong. But on the other hand, how could she possibly know the cause was Lyme Disease? Because she believe so with all her heart? What is that based on? Once being tested and treated for Lyme, and then testing negative? Doctors don't do us a good service by just agreeing with our feelings and treating what we think we have. It has to be based on medical science, not patient's feelings (or poems, or picket signs, or votes, or lawsuits, etc.)
It was based on a test. She was positive for Lyme at 6 years old.
who’s here because of justin bieber??