NCCN Patient Webinar: Inflammatory Breast Cancer

Experts provide an overview of inflammatory breast cancer and discuss its various treatments, as well as side effects, clinical trials, and available patient and caregiver resources. This webinar is designed for those facing inflammatory breast cancer, their caregivers, and their families.
Topics Discussed
00:00 Welcome and Introductions
02:09 Overview and Definition
03:33 Clinical Presentation, Imaging Characteristics, and Diagnosis
09:02 Staging Studies
11:40 Systemic Treatment and Histologic Subtypes
13:05 Breast Cancer Biomarkers
14:12 Estrogen Receptor-Positive (ER+) Inflammatory Breast Cancer
24:23 HER2-Positive (HER2+) Inflammatory Breast Cancer
27:21 ER- and HER2- (Triple-Negative) Inflammatory Breast Cancer
29:48 Role of Clinical Trials
31:30 Surgical Treatment
33:36 Modified Radical Mastectomy (MRM) with Axillary Lymph Node Dissection (ALND)
35:00 Post-Mastectomy Radiation Therapy
35:54 Surveillance and Summary
37:15 Advocacy and Inflammatory Breast Cancer 101
39:55 Inflammatory Breast Cancer Research Foundation
41:23 IBC Collaborative and IBC Scoring System
44:12 Advocacy, Resources, and Acronyms
Question & Answer Session
47:01 Introduction and Importance of Asking Questions
48:50 How often is Inflammatory Breast Cancer diagnosed in those assigned male at birth?
50:00 What are the ocular side effects of Tamoxifen?
51:04 What is the risk of recurrence after tri-modal therapy?
52:58 How do you determine what imaging to do?
53:53 Is the only surgery option Modified Radical Mastectomy (MRM) with Axillary Lymph Node Dissection (ALND)?
57:53 How does the referral process work to see a breast cancer specialist?
59:16 What kind of ovarian function suppression is used?
1:00:24 Are PARP inhibitors only used for BRCA mutations or do they work with other mutations?
1:01:19 How do you find a breast cancer specialist in a certain country or location?
1:02:42 Do we know why Inflammatory Breast Cancer has a higher rate of metastasis?
1:04:33 How do you recommend people advocate for themselves when requesting imaging? How do you make sure you are getting what you need?
The Patient Webinar on Inflammatory Breast Cancer occurred in July 2023. This informational program was created in conjunction with the recently added NCCN Guidelines for Patients® for Inflammatory Breast Cancer. Access the free patient guidelines: www.nccn.org/patientresources...
The NCCN Guidelines for Patients are available to read and download for free online and via the NCCN Patient Guides for Cancer mobile app. Printed editions can be ordered from Amazon.com for a small fee.
NCCN Guidelines for Patients DO NOT replace the expertise and clinical judgment of the clinician.
Supporters:
This webinar is supported through the NCCN Foundation and by contributions from our corporate supporter, AstraZeneca.
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About NCCN Foundation®:
NCCN FOUNDATION® is a 501(c)3 organization founded by the National Comprehensive Cancer Network® (NCCN®)-a not-for-profit alliance of leading cancer centers devoted to patient care, research, and education-to empower people living with cancer and advance oncology innovation. For more information or to make a donation, visit www.nccn.org/patients/foundation
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About NCCN:
The National Comprehensive Cancer Network® (NCCN®) is a not-for-profit alliance of leading cancer centers devoted to patient care, research, and education. NCCN is dedicated to improving and facilitating quality, effective, equitable, and accessible cancer care so all patients can live better lives. Visit www.nccn.org/ for more information.
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