How Is Ehlers-Danlos Syndrome Neglected?

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  • čas přidán 8. 06. 2022
  • www.scarlitrose.org
    *News article/video clip: bc.ctvnews.ca/after-years-wai...
    *GoFundMe: www.gofundme.com/f/please-hel...
    *Video showing the report of my most recent confirmation of my C spine instability:
    • Recent MRI Results
    *BC Disability Article here: www.bcdisability.com/post/sca...
    *Autistic woman battles Ehlers-Danlos article: tremg.info/2021/02/12/an-auti...

Komentáře • 4

  • @ivana6141
    @ivana6141 Před 2 lety +2

    I'm in Australia and doctors look at me funny when I discuss my hypermobility. I have a labor intensive job and injuries never completely heal. Quality of life is getting worse every day.

    • @dreamerqueennotunderthemachine
      @dreamerqueennotunderthemachine  Před rokem

      Sadly I am not surprised, but so sorry you have to go through this kind of thing as well. We need change, so badly. It's not okay at all.

  • @BCSchmerker
    @BCSchmerker Před 2 lety +1

    +RosieTeaflower 😷🤕😞 *There exists a need for genetophysiologic specialists that the Dominion of Canada is not filling.*

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