I was very recently diagnosed with this, and it’s gonna take some getting used to lol! I feel pretty lonely and isolated to begin with since I have other health problems that I deal with daily, but it’s relieving to hear I am not alone in this, which I really thought I was up until only a few weeks ago. This is great news! I hope that we all can find relief from this in the near future! ☺️ I am trying to learn as much as I can about this and how to deal with it the best way that I can, this channel is truly helping me! Thank you!! ☺️😊
Trust me on the fact that you aren't alone. I've been dealing with this since March 2022 and it's been a journey on learning to live with this. I notice that some days are tolerable while some are not. As of recently, I've been feeling decent but I get a spout of anxiety here and there still, used to be pretty bad. I have the static and afterimages on a moderate level, a little bit near severe but not quite. I did get diagnosed myself as well, hope everything is well for you, just remember that we all are dealing with this, I won't let this condition stop me from doing things in life. Stand tall
Hi there, We are glad to hear that you've found some comfort and relief in learning about your recent diagnosis. It's completely understandable that adjusting to a new health condition can be challenging, and it's natural to feel a mix of emotions during this time. Remember that you're not alone on this journey.
Not diagnosed, but I see static like pixils 24/7 and have seen this my whole life. Mostly happens in the dark. I stare at tec. screens all the time so I can pretend I am normal and just seeing the pixels of the screen. Going to a dr in dallas area soon, he also treats my brother with another rare eye desise so hope he helps me a little.
Im not a medical professional by any means but as someone who developed VSS after months of mind-blowingly severe migraine auras, my neuro wanted to check my heart to see if I had patent foramen ovale which I happened to have. Medication for PFO relieved my migraine auras a lot, helped VSS a little. Not saying this is the same with everybody but just something to keep an eye on.
I am going to share this here since I have been trying to find someone to talk to about this. If you know someone, please PLEASE send them my way. I have all these symptoms with visual snow. I honestly think something is going on with the 5HT2A receptor. Previously, I was prescribed dicyclomine for stomach issues, interestingly, this medicine made me extremely calm, and worked 1000x better than any panic attack pill I have tried. This medication also impacts the 5HT2A receptor. I asked my doctor and psychiatrist about this and they told they do not know why it causes me to be so calm. I have tried reaching out to researchers about this, but I haven't heard back. I'm not an expert in neuroscience, but this is so interesting to me. I really wish I could talk to someone about this..
Thank you for sharing. Disclaimer: it is advisable to consult a medical professional before taking any medication so they can provide you with personalized insights based on your specific symptoms and experiences :)
When I was an undergraduate student at my degree, I visited a medical professional and suggested me vitamin supplements that help brain function, especially vitamins that boost cognitive capacity. The product that we have in my country is called EVIOL Brain function, and you can google it to see details. It helped me a lot, since I had reduced cognitive performance (probably because of my VSS, although i'm not diagnosed yet) and had a lot of anxiety and stress. I would also suggest you pay a visit to a specialized doctor/medical professional before you take any supplements.
I’m glad more is being found out about VSS! Also, I have a question. I have medium VSS (Close to severe VSS) and I’ve noticed that when I stare at something without blinking for a while, my VSS starts becoming stronger and stronger until I blink again. There was one time I was staring at something and was able to not blink and almost everything was just complete static, why does this happen?
Hello! We are so glad to see your interest in the ongoing research regarding Visual Snow Syndrome. For a more accurate and detailed explanation, it's advisable to consult a medical professional or an expert in the field of neurology or ophthalmology. They can provide you with personalized insights based on your specific symptoms and experiences. For more information please email info@visualsnowinitiative.org
@@AverageMitch1987 I dont know if that is a symptom, but sometimes light flickers. I feel like this could belong to vss. My VSS is also in different colours (ifk how to describe)
@@aprilg4116 the thing is...I'm not convinced since I was on Gabapentin before from neurologist and I didn't see much of an effect...unless they develop a drug to specially target the areas in the brain.
Thank you for sharing. Disclaimer: it is advisable to consult a medical professional before taking any medication so they can provide you with personalized insights based on your specific symptoms and experiences :)
Could you please write some updates if those supplements have a positive effect! Would be GREATLY appreciated ☺️☺️ I have hope that one day we will all be able to see clearly again without this annoying static in our vision.
Hello! It's great to hear that you're interested in exploring treatment options for VSS. It's important to remember that responses to treatments can vary widely from person to person. What works for one individual may not work the same way for another. If you're considering trying GABA or any other supplement or medication for VSS, it's crucial to consult with a healthcare professional. They can provide personalized guidance, monitor your progress, and ensure that it's safe and appropriate for your specific situation. Also, VSS research on this and more treatments are ongoing, so staying informed about the latest developments in the field can be helpful in your journey toward managing your symptoms effectively.
Do the results of this study suggest that any specific supplements or medications could be helpful for Visual Snow Syndrome, or are we just one step closer?
Hi there, more research still needs to be conducted to come to a concusion on supplements or medications It is advisable to consult a medical professional before taking any medication so they can provide you with personalized insights based on your specific symptoms and experiences :)
Hello, Thank you for reaching out to us. To provide you with accurate information about your specific symptoms and concerns, we recommend checking our Diagnostic Criteria section on our website. www.visualsnowinitiative.org/diagnostic-criteria/
Hi there, We will find out through more research. Any potential future treatments would likely need to be thoroughly researched and tested before they could be recommended for clinical use. Hang in there! We are one step closer
I have been seeing static for almost 2 years, not only statics but tinnitus as well. Idk if I have light sensitivity. I don't experience any other symptoms of vss. Do i have vss Or something else?
Hi there, To know if you have VSS, please check our diagnostic criteria on our website: www.visualsnowinitiative.org/diagnostic-criteria/ As well, it is always best to check with your Doctor
Can anyone recomend a specialist or at least a Doctor that knows this condition exists in Portugal? I went to at least 6 oftalmologists and they knew 0 about this
Hi there, We understand how you feel. Many Doctors are still unaware of VSS. We re dedicated to spreading more awareness, education and resources for VSS If there is no Physician in your area, you can show our VSS Diagnostic Criteria, which can confirm a diagnosis to your Doctor at your next appointment. For more information please contact info@visualsnowinitiative.org
Really good news, proud of all of you guys
The best part of my day: reading visual snow news
Cool news! I've had VSS as long as I can remember so this is really neat to see.
I was very recently diagnosed with this, and it’s gonna take some getting used to lol! I feel pretty lonely and isolated to begin with since I have other health problems that I deal with daily, but it’s relieving to hear I am not alone in this, which I really thought I was up until only a few weeks ago. This is great news! I hope that we all can find relief from this in the near future! ☺️ I am trying to learn as much as I can about this and how to deal with it the best way that I can, this channel is truly helping me! Thank you!! ☺️😊
Trust me on the fact that you aren't alone. I've been dealing with this since March 2022 and it's been a journey on learning to live with this. I notice that some days are tolerable while some are not. As of recently, I've been feeling decent but I get a spout of anxiety here and there still, used to be pretty bad. I have the static and afterimages on a moderate level, a little bit near severe but not quite. I did get diagnosed myself as well, hope everything is well for you, just remember that we all are dealing with this, I won't let this condition stop me from doing things in life. Stand tall
Hi there, We are glad to hear that you've found some comfort and relief in learning about your recent diagnosis. It's completely understandable that adjusting to a new health condition can be challenging, and it's natural to feel a mix of emotions during this time. Remember that you're not alone on this journey.
I feel so lonely too, my family doesn't believe me 😭
Thank you thank you!! I’m so grateful to have these highly intelligent people to spend their time and effort into researching this.
We are so glad to hear! Thank you for your support!
Not diagnosed, but I see static like pixils 24/7 and have seen this my whole life. Mostly happens in the dark. I stare at tec. screens all the time so I can pretend I am normal and just seeing the pixels of the screen. Going to a dr in dallas area soon, he also treats my brother with another rare eye desise so hope he helps me a little.
Great study hopefully someday you can fix me
We hope so! Hang in there
Im not a medical professional by any means but as someone who developed VSS after months of mind-blowingly severe migraine auras, my neuro wanted to check my heart to see if I had patent foramen ovale which I happened to have. Medication for PFO relieved my migraine auras a lot, helped VSS a little.
Not saying this is the same with everybody but just something to keep an eye on.
I am going to share this here since I have been trying to find someone to talk to about this. If you know someone, please PLEASE send them my way.
I have all these symptoms with visual snow. I honestly think something is going on with the 5HT2A receptor.
Previously, I was prescribed dicyclomine for stomach issues, interestingly, this medicine made me extremely calm, and worked 1000x better than any panic attack pill I have tried. This medication also impacts the 5HT2A receptor.
I asked my doctor and psychiatrist about this and they told they do not know why it causes me to be so calm.
I have tried reaching out to researchers about this, but I haven't heard back. I'm not an expert in neuroscience, but this is so interesting to me. I really wish I could talk to someone about this..
Do it make any improvement in visual snow symptoms
Totally showing this to my doctor!
Keep up the good work! God bless
Thank you for all your support!
Such a good news 🙏🙏🙏🙏
Thanks
Great news. I’m buying the GABA supplements to help the serotonin and glutamate levels.
Thank you for sharing.
Disclaimer: it is advisable to consult a medical professional before taking any medication so they can provide you with personalized insights based on your specific symptoms and experiences :)
if this works tell me bro
When I was an undergraduate student at my degree, I visited a medical professional and suggested me vitamin supplements that help brain function, especially vitamins that boost cognitive capacity. The product that we have in my country is called EVIOL Brain function, and you can google it to see details. It helped me a lot, since I had reduced cognitive performance (probably because of my VSS, although i'm not diagnosed yet) and had a lot of anxiety and stress.
I would also suggest you pay a visit to a specialized doctor/medical professional before you take any supplements.
Magnolia Bark and Black Seed oil are also good as GABA is not methylated in some people!
Disregulated doesn't mean you need more. It's really frustrating how poorly medical science is communicated with the general public
Thank you!
You're welcome!
I’m glad more is being found out about VSS!
Also, I have a question. I have medium VSS (Close to severe VSS) and I’ve noticed that when I stare at something without blinking for a while, my VSS starts becoming stronger and stronger until I blink again. There was one time I was staring at something and was able to not blink and almost everything was just complete static, why does this happen?
This happens to me, I cannot keep my eyes open or stare anymore. Have to blink constantly
@@aprilg4116 Glad I’m not the only one, I wonder what it could mean.
Hello! We are so glad to see your interest in the ongoing research regarding Visual Snow Syndrome.
For a more accurate and detailed explanation, it's advisable to consult a medical professional or an expert in the field of neurology or ophthalmology. They can provide you with personalized insights based on your specific symptoms and experiences.
For more information please email info@visualsnowinitiative.org
@@VisualSnowInitiative Thanks! Will do.
the same happens with me!
Epic
im curious if there could be a link between vss and aspergers/autism as someone with both
well i have it, my twin sister has it and my uncle. So this is no news to me 😅
What do you struggle with symptomatically the most?
@@AverageMitch1987 I dont know if that is a symptom, but sometimes light flickers. I feel like this could belong to vss. My VSS is also in different colours (ifk how to describe)
I've just bought GABA supplements as this is apparently proven to decrease Glutamate.
Me 2
@@aprilg4116 the thing is...I'm not convinced since I was on Gabapentin before from neurologist and I didn't see much of an effect...unless they develop a drug to specially target the areas in the brain.
Thank you for sharing.
Disclaimer: it is advisable to consult a medical professional before taking any medication so they can provide you with personalized insights based on your specific symptoms and experiences :)
Could you please write some updates if those supplements have a positive effect! Would be GREATLY appreciated ☺️☺️ I have hope that one day we will all be able to see clearly again without this annoying static in our vision.
I would also like to know if you could update us in the future for any changes. Thank you.
Hey VSS community! I’ve seen a few comments about GABA. Has anyone tried this and had good outcomes?
Hello! It's great to hear that you're interested in exploring treatment options for VSS. It's important to remember that responses to treatments can vary widely from person to person. What works for one individual may not work the same way for another.
If you're considering trying GABA or any other supplement or medication for VSS, it's crucial to consult with a healthcare professional. They can provide personalized guidance, monitor your progress, and ensure that it's safe and appropriate for your specific situation. Also, VSS research on this and more treatments are ongoing, so staying informed about the latest developments in the field can be helpful in your journey toward managing your symptoms effectively.
Do the results of this study suggest that any specific supplements or medications could be helpful for Visual Snow Syndrome, or are we just one step closer?
Hi there, more research still needs to be conducted to come to a concusion on supplements or medications
It is advisable to consult a medical professional before taking any medication so they can provide you with personalized insights based on your specific symptoms and experiences :)
Why do you know that GABA works? Can I read this in the study?
Hello Visual Snow Family I have been struggling with Vss for 3 years. My balance problem started recently. Is this a symptom of Vss?
I've had vs my whole life and I've never experienced any balance issues... maybe get your hearing checked 👍
Hello, Thank you for reaching out to us.
To provide you with accurate information about your specific symptoms and concerns, we recommend checking our Diagnostic Criteria section on our website.
www.visualsnowinitiative.org/diagnostic-criteria/
❤❤🎉🎉
I'm starting to think I have this. So could future treatments involve drugs that target serotonin and glutamine signaling and receptors?
Hi there,
We will find out through more research. Any potential future treatments would likely need to be thoroughly researched and tested before they could be recommended for clinical use.
Hang in there! We are one step closer
@@VisualSnowInitiativeVocês vão conseguir, eu acredito!
finally an advance
I have been seeing static for almost 2 years, not only statics but tinnitus as well. Idk if I have light sensitivity. I don't experience any other symptoms of vss. Do i have vss Or something else?
Hi there,
To know if you have VSS, please check our diagnostic criteria on our website:
www.visualsnowinitiative.org/diagnostic-criteria/
As well, it is always best to check with your Doctor
Am I only Indian here
Me
Me
🤞🏻
a w e s o m e
🤞👍😺
Can anyone recomend a specialist or at least a Doctor that knows this condition exists in Portugal? I went to at least 6 oftalmologists and they knew 0 about this
Hi there,
We understand how you feel. Many Doctors are still unaware of VSS. We re dedicated to spreading more awareness, education and resources for VSS
If there is no Physician in your area, you can show our VSS Diagnostic Criteria, which can confirm a diagnosis to your Doctor at your next appointment.
For more information please contact info@visualsnowinitiative.org
😇👍
Nobody really cares tbh my doctor wouldn't believe me if I told him
Thanks for doing all this
It is our pleasure