Woman with Debilitating Condition Shares How Others React to Her

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  • čas přidán 10. 01. 2016
  • Amber, a young woman with muscular dystrophy, joins The Doctors to share how people react to her when she’s dressed up as a doll compared to when she’s not.
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    About The Doctors:
    The Doctors is an Emmy award-winning daytime talk show hosted by ER physician Dr. Travis Stork, plastic surgeon Dr. Andrew Ordon, OB-GYN Dr. Jennifer Ashton, urologist Dr. Jennifer Berman and family medicine physician and sexologist Dr. Rachael Ross.
    The Doctors helps you understand the latest health headlines, such as the ice bucket challenge for ALS and the Ebola outbreak; delivers exclusive interviews with celebrities dealing with health issues, such as Teen Mom star Farrah Abraham, reality stars Honey Boo Boo and Mama June and activist Chaz Bono; brings you debates about health and safety claims from agricultural company Monsanto and celebrities such as Jenny McCarthy; and shows you the latest gross viral videos and explains how you can avoid an emergency situation. The Doctors also features the News in 2:00 digest of the latest celebrity health news and The Doctors’ Prescription for simple steps to get active, combat stress, eat better and live healthier.
    Now in its eighth season, The Doctors celebrity guests have included Academy Award Winners Sally Field, Barbra Streisand, Jane Fonda, Marcia Gay Harden, Kathy Bates and Marisa Tomei; reality stars from Teen Mom and The Real Housewives, as well as Kris Jenner, Caitlyn Jenner, Melissa Rivers, Sharon Osbourne, Tim Gunn and Amber Rose; actors Jessica Alba, Christina Applegate, Julie Bowen, Patricia Heaton, Chevy Chase, Kristin Davis, Lou Ferrigno, Harrison Ford, Grace Gealey, Cedric the Entertainer, Valerie Harper, Debra Messing, Chris O’Donnell, Betty White, Linda Gray, Fran Drescher, Emmy Rossum, Roseanne Barr, Valerie Bertinelli, Suzanne Somers; athletes Magic Johnson, Apolo Ohno and Danica Patrick; musicians Tim McGraw, Justin Bieber, Clint Black, LL Cool J, Nick Carter, Kristin Chenoweth, Paula Abdul, Gloria Gaynor, La Toya Jackson, Barry Manilow, Bret Michaels, Gene Simmons and Jordin Sparks; and celebrity chefs Wolfgang Puck, Guy Fieri and Curtis Stone.
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Komentáře • 2,6K

  • @Algenie
    @Algenie Před 7 lety +722

    Kind of horrible that she had to make herself a living caricature of a woman so that people would respect her.

    • @AllisonLinner
      @AllisonLinner Před 7 lety +3

      Jess Stone yes thank you

    • @FoodieBbb
      @FoodieBbb Před 7 lety +27

      are you aware you are insulting an entire community by saying that she's a caricature . It's not because YOU have no style that others should be as blend as you

    • @Algenie
      @Algenie Před 7 lety +10

      Emma Chiwawa She is a caricature.

    • @MissesWitch
      @MissesWitch Před 7 lety +8

      she is doing what she loves ^^ if you dont like it, then go somewhere else!

    • @MissesWitch
      @MissesWitch Před 7 lety +2

      Buttered Lumps ohh i understand now ^^ i think it attracts a completely different audience, and those people like her ^^ like at comicon!!

  • @Vanillakimchi
    @Vanillakimchi Před 8 lety +879

    People are mean to her when she dresses normal, and nice to her when she adorns herself with ribbons and a pretty dress.
    People are shallow and stupid as hell -_-

    • @Vanillakimchi
      @Vanillakimchi Před 7 lety +17

      Trust me you wouldn't want a friend who would avoid you because of something like that. Real friends aren't shallow.

    • @Vanillakimchi
      @Vanillakimchi Před 7 lety +2

      It might be the city you're in. Some places are just bad (such as Seattle and it's notorious Seattle freeze)

    • @abbiexxmorganxx8188
      @abbiexxmorganxx8188 Před 7 lety +1

      Sorry to be that person but, 100th like!! 😆✨

    • @KimmyQueen
      @KimmyQueen Před 7 lety +1

      Totally. I don't even understand that shit...

    • @FoodieBbb
      @FoodieBbb Před 7 lety +2

      news flash . yes they are , shallow and vapid and stupid

  • @reenalathrop2143
    @reenalathrop2143 Před 7 lety +1955

    "We know you love anime and Comicon..."
    **gets excited**
    "So we're giving you UNLIMITED PASSES..."
    **gets realLY exCiTED**
    "to the Long Beach Comicon."
    **not as excited**
    **smiles politely**

    • @lalakuma9
      @lalakuma9 Před 7 lety +117

      lol at least she also got the stair lift

    • @lalakuma9
      @lalakuma9 Před 7 lety +3

      (wtf new youtube is misplacing my comment for another video. epic phail yt)

    • @insan8ty
      @insan8ty Před 7 lety +242

      They should've given her and her husband a free trip to Japan.

    • @brookexp4710
      @brookexp4710 Před 7 lety +111

      I know XD and her husband looked super disappointed as well lol

    • @PeelingFlame
      @PeelingFlame Před 7 lety +31

      I don't get it, is there something worse about the Long Beach Comicon compared to other comicons?

  • @alexandra72531
    @alexandra72531 Před 7 lety +507

    came because she looked like madoka in the thumbnail

  • @Temumimi
    @Temumimi Před 8 lety +472

    At first I was so afraid that they would say how unusual her style was, or how it just wasn't right, or demean it like other TV personalities demean comics, anime or alternative fashion. But instead they were so positive! Thank you to the doctors for treating her with such love and respect :) She deserves it!

    • @arandomperson2522
      @arandomperson2522 Před 8 lety +5

      Ikr!

    • @smileykiller4808
      @smileykiller4808 Před 8 lety +4

      true :)

    • @Hanohanohano
      @Hanohanohano Před 7 lety

      I mean she has a struggle ahead of her. I think it's great that she is living life how she wants and doing what makes her happy.

    • @indigothecat
      @indigothecat Před 7 lety +5

      Any medical professional worth their salt will tell you that even diseases with no cure that will eventually kill you seem to progress slower with a positive attitude.

    • @indigothecat
      @indigothecat Před 7 lety +3

      It's like a brain thing. You tell your body "I want to live!" and it does whatever it can to stave off death.

  • @chechensky
    @chechensky Před 7 lety +589

    THAT SMILE!!! If i had a wife who'd smile like that, it would brighten my day just having her smile at me like that, her husband is so lucky to have her.

    • @Angel-wg9jy
      @Angel-wg9jy Před 7 lety +5

      Noob Gamer ikr

    • @rafikplz
      @rafikplz Před 7 lety +1

      GO WARD

    • @arsaeterna4285
      @arsaeterna4285 Před 7 lety +20

      it really is a beautiful smile

    • @othiliag2496
      @othiliag2496 Před 7 lety +21

      I think her voice and the way she talks is amazing, it's so calm, classy, insanely sexy... Just amazing.

    • @NightWayke
      @NightWayke Před 7 lety +14

      I agree! She's soo beautiful and that smile makes me want to smile right back at her. She's a nice little ray of sunshine that's for sure!

  • @TheCMnews
    @TheCMnews Před 7 lety +135

    Let people do whatever the fuck makes them happy, as long as they aren't hurting anyone else or infringing on people.

  • @Punk3rGirl
    @Punk3rGirl Před 7 lety +960

    I'm just amazed by the double standard. Like she literally has to dress like this so ppl will stop insulting her for being too skinny.

    • @rebeccah3091
      @rebeccah3091 Před 7 lety +8

      Linds Tee I thought the same thing .

    • @bluebird4815
      @bluebird4815 Před 7 lety +13

      Linds Tee the world is so cruel

    • @ChaoYinn
      @ChaoYinn Před 7 lety +8

      what's the double standard?

    • @carolinespogli4077
      @carolinespogli4077 Před 7 lety +59

      people are either too skinny or too fat like no one can ever win lol its ridiculous

    • @kaylathellama
      @kaylathellama Před 7 lety +20

      Linds Tee if you're skinny or fat people will still hate you lmao
      Society id stupid asf.

  • @snatched.8135
    @snatched.8135 Před 8 lety +100

    As a disabled person, what her husband just said.. if my significant other ever said that about me, it would have honestly just destroyed me. One of my biggest fears about dating is becoming a burden for someone. And calling her a little kid and saying he's gotta take care of her... idk I just hope she doesn't feel the same way I do.

    • @zeinazebra123
      @zeinazebra123 Před 8 lety +5

      +SbGus I know i found it totally rude of the husband the the doctors talking about her the way they did

    • @snatched.8135
      @snatched.8135 Před 8 lety +17

      +Zeina R Hmm I actually thought the doctors were quite professional about it lol. They spoke in medical terms and explained the condition as it is. And they did share her story in a positive way. I just found rude how the husband basically called her a burden

    • @vanessaveiga9257
      @vanessaveiga9257 Před 8 lety +24

      +SbGus but it is a constant struggle. The way he looks at her and says how he keeps thinking about her well being mean a he cares a lot. like a little kid you think about them all the time. He's just like me as a person in saying the truth and it doesn't have to be bad. he's just an honest person. so what if he didn't say sugar coated sweet things. They really seem like a loving couple

    • @snatched.8135
      @snatched.8135 Před 8 lety +11

      +Vanessa Veiga No I know he means well. Otherwise he wouldn't be with her. I know he genuinely cares. My concern is he's acting like she's more of a burden and rather than a girlfriend. Which yes he's just being honest, and that's fine. It's just as someone who's disabled I'd never want to be a burden for someone the way he describes it.

    • @Ssookawai
      @Ssookawai Před 8 lety +2

      +SbGus except kids aren't burdens.

  • @elisesullivan4632
    @elisesullivan4632 Před 8 lety +199

    I'm glad they didn't judge her, unlike many other shows would have done.

    • @cloudcardrainbows7916
      @cloudcardrainbows7916 Před 8 lety +22

      Me too!!! Like Dr. Phill would have judge her and called her crazy

    • @moomimi
      @moomimi Před 8 lety +14

      Because she's such a sweetheart and she coped with her condition

    • @rdgloveshouse
      @rdgloveshouse Před 7 lety +1

      he only does that when it is interfering in their life....

    • @SuperMonaLisaBros
      @SuperMonaLisaBros Před 6 lety

      Elise .Sullivan She is so awesome!

  • @wontonwilson4199
    @wontonwilson4199 Před 7 lety +672

    sHE DRESSES UP AS KOTORI MINAMI OMG WHAT A CUTIE

  • @iSerginhoo
    @iSerginhoo Před 7 lety +10

    Its so good to see people not shitting on "living dolls"

  • @shanshan8687
    @shanshan8687 Před 7 lety +207

    her husband is handsome. I'm glad she has someone with a heart of gold and she's so sweet too

    • @rochaanime6945
      @rochaanime6945 Před 6 lety +12

      jeff jones better looking than you uglyass 😑

    • @BroFistMe123XoXo
      @BroFistMe123XoXo Před 6 lety +4

      Wow...there are some mean people......

    • @ajfire5366
      @ajfire5366 Před 6 lety

      jeff jones you might not be ugly... but your personality is.

  • @kimpaspossible
    @kimpaspossible Před 8 lety +207

    That smile could melt anyone's heart

  • @chizu4455
    @chizu4455 Před 7 lety +708

    Should've thrown in a Funimation membership

    • @CutieRingoJoy
      @CutieRingoJoy Před 6 lety +2

      Glitched Gamer Chadabox lol

    • @Deton8e
      @Deton8e Před 6 lety +16

      Or Crunchyroll

    • @Double44
      @Double44 Před 6 lety +5

      or tickets to see Kyary Pamyu Pamyu

    • @joshua7015
      @joshua7015 Před 6 lety

      Kissanime

    • @TeamLegacyFTW
      @TeamLegacyFTW Před 6 lety +3

      "membership" lol.. yall know there's free subbed sites out there.

  • @Batbimbo
    @Batbimbo Před 7 lety +298

    I think she looks very cute, If thats what maker her happy thats what makes her happy

    • @suhairawsaj3638
      @suhairawsaj3638 Před 7 lety +1

      PinkBaphomet she looks so adorable, like a kitten sorta girl, awwwwww ♡♡♡♡♡♡♡♡♥♥♥♥♥♥♥

    • @tinygameplay1997
      @tinygameplay1997 Před 7 lety +1

      Anime Robot
      Stop you're disgusting.

    • @user-vu4qp1py1n
      @user-vu4qp1py1n Před 5 lety

      she should dress her age...looks so desperate

    • @theindohpaw6067
      @theindohpaw6067 Před 5 lety

      Yeah

  • @AmberlivingwithDystrophy
    @AmberlivingwithDystrophy Před 8 lety +2905

    (/^0^)/ Thank you everyone with all my heart! Your support and kindness is better than any medicine I could take!

    • @mendmywings7238
      @mendmywings7238 Před 8 lety +26

      +Amber living with Dystrophy Such a beautiful person, with beautiful style x

    • @mendmywings7238
      @mendmywings7238 Před 8 lety +2

      Good point x

    • @MamaRaspberry
      @MamaRaspberry Před 8 lety +17

      You are so strong and beautiful all dolled up or not.

    • @kiiakiia8760
      @kiiakiia8760 Před 8 lety +8

      +Amber living with Dystrophy Only by looking at you, you make people happy and all " n_n ", and when you speak it makes you even more beautiful, such an amazing personality and sooooooo cute gosh!

    • @arandomperson2522
      @arandomperson2522 Před 8 lety +6

      You are a remarkable person. I am truly inspired by you. Btw, I loooooove your sailor moon tattoo! Hehe

  • @MyRevengeBitch
    @MyRevengeBitch Před 7 lety +101

    She has the cutest smile, face and voice aw 😍😄

  • @FaeKawaii
    @FaeKawaii Před 7 lety +204

    She looks like she is cosplaying as Madoka from the anime Madoka magica

  • @ham2629
    @ham2629 Před 7 lety +436

    I like her Sailor moon tatoo.

  • @ohhhshitson
    @ohhhshitson Před 8 lety +86

    She's precious! Her gratitude was adorable

  • @Jamaican_queen25
    @Jamaican_queen25 Před 7 lety +94

    Aww she's awesome. Humble and has a great spirit.

  • @sithotaku
    @sithotaku Před 7 lety +435

    Lolita is adorable and she rocks the look!

    • @Mimiki203
      @Mimiki203 Před 7 lety +13

      The Almighty s u c c. there are some people who get into lolita fashion due to historical influence rather then anime. I like lolita fashion because of my interest in Rococo and Baroque period dress, not for my interest in anime. there are plenty of others who feel the same.

    • @noirnekonation
      @noirnekonation Před 7 lety +25

      That's not Lolita. She's wearing cute fashion, but Lolita is completely different to this and is not called "doll fashion".

    • @kokeru
      @kokeru Před 7 lety +14

      I doubt she's really going for the lolita look, even if it's a lolita shaped dress. If she was she would be wearing a blouse to cover her shoulders and chest.

    • @calliehartman914
      @calliehartman914 Před 7 lety +2

      rainagainblog.files.wordpress.com/2015/10/lolita.jpg?w=1000 Just Google lolita

    • @sithotaku
      @sithotaku Před 7 lety +1

      stil lshe's Lolita-esque and adorable lol

  • @sympul
    @sympul Před 6 lety +5

    I wish more people were like this, brave enough to express themselves. Id love to have friends like this

  • @MiyukiCo
    @MiyukiCo Před 8 lety +123

    she's an amazing person with an amazing husband. they're both amazing people I wish there would be more people like them

    • @aura6485
      @aura6485 Před 8 lety +25

      her smile is so contagious! I hope she has ease with life and I love how they gave her a gift that not only would help her but would make her happy as she likes anime ^^

  • @domojose
    @domojose Před 7 lety +64

    HER SMILE IS SO CUTE!!!!

  • @rentherengend1306
    @rentherengend1306 Před 7 lety +88

    IS SHE A MAGICAL GIRL?!

  • @levischorpioen
    @levischorpioen Před 7 lety +19

    She's so adorable! You can tell that despite what she's going through (or maybe even because of it, in a way), she's just this little cute ball of positivity and light. It's so endearing, and to use her hobby and passion as a creative outlet to deal with her everyday struggle is just inspiring as hell. This is a true warrior.

  • @Nanancay
    @Nanancay Před 8 lety +42

    'We know you love anime and comicon'
    WHEN HAS THERE BEEN A PANEL OF HOSTS who don't laugh or make fun of someone for dressing like this omg. Other hosts would probably be patronising or they would seem inauthentic, but they treated her like any other person. I love this show and I only discovered it today.

  • @krissy0628
    @krissy0628 Před 8 lety +32

    She genuinely has a beautiful aura about her and she seems like such a calm happy person despite her health issues. Makes me feel bad for complaining over trivial things

  • @maeslifestyle2951
    @maeslifestyle2951 Před 6 lety +7

    Her husband was so sweet I'm actually crying

  • @Blueknight330
    @Blueknight330 Před 7 lety +76

    Its a Madoka that refused to grow up.

    • @dharcsu
      @dharcsu Před 7 lety

      thats why she became space.

    • @xxkaxyxx9703
      @xxkaxyxx9703 Před 7 lety

      She's a real life Madoka~!!!

    • @zvilemon
      @zvilemon Před 7 lety

      Angelica Garza I thought the same thing when I saw the thumb nail.

  • @101kittycatcool
    @101kittycatcool Před 7 lety +851

    IS THAT MADOKA KANAME

    • @mattfreede1313
      @mattfreede1313 Před 7 lety +14

      KPOP HAS TAKEN OVER MY LIFE fuckin weeb

    • @101kittycatcool
      @101kittycatcool Před 7 lety +37

      Matt Freede welp, you recognized that i said an anime character, so you're a weeb too ;)

    • @mirandapriest4934
      @mirandapriest4934 Před 7 lety +2

      Omg

    • @jesusfreakingamer290
      @jesusfreakingamer290 Před 7 lety +38

      Since no one in this thread actually answered, yes that is Madoka Kaname, goddess of hope. Kind of appropriate I think.

    • @Koronia047
      @Koronia047 Před 7 lety

      LOL I was just thinking that!!!

  • @whyjordie
    @whyjordie Před 7 lety +61

    her husband is an angel omg

  • @aquandarylife88
    @aquandarylife88 Před 7 lety +62

    I think she's adorable.

  • @D.Ronoa69
    @D.Ronoa69 Před 6 lety +3

    i imagine that whenever haters hurt her again, two armored angels will drop down n give'em an ass whooping.

  • @willcamick
    @willcamick Před 7 lety +87

    I was unaware of this illness :( Lucky for me I keep my harsh words to my self.

    • @jlong5987
      @jlong5987 Před 7 lety +4

      Bruh Steven Hawkins??

    • @jaypond4368
      @jaypond4368 Před 7 lety +39

      Ive learned that whenever you see someone who is different, they already know about it and there is no reason to point it out and remind them.

    • @willcamick
      @willcamick Před 7 lety +2

      True.

    • @novelmartinez6154
      @novelmartinez6154 Před 7 lety +1

      you deserve definitely more up votes

    • @xFictionAficionadax
      @xFictionAficionadax Před 7 lety +2

      +Joo-hyun Cha
      Bruh different condition??
      He has ALS, not MD :) And it's Stephen Hawking.

  • @jmystoganxo3137
    @jmystoganxo3137 Před 8 lety +15

    wow she's so genuine you could just feel that. such a beautiful smile

  • @himemochida2744
    @himemochida2744 Před 7 lety +73

    She cosplayed Kotori I'm ded af

    • @ShinobuSakurazaka
      @ShinobuSakurazaka Před 7 lety +9

      I thought it was Madoka?

    • @himemochida2744
      @himemochida2744 Před 7 lety +7

      Blake Belladonna The one she was currently wearing, yes. but in one of the photos she had cosplayed Kotori Minami from Love Live ~

  • @kuribo1
    @kuribo1 Před 7 lety +65

    She is a cutie and I hope she stays well.

    • @kuribo1
      @kuribo1 Před 7 lety +11

      Communism Is Death
      yeah well I was being positive and writing a nice message for someone going through a hard time.

    • @MickLoud999
      @MickLoud999 Před 7 lety

      deleted

    • @AnnatarCarvour
      @AnnatarCarvour Před 6 lety

      kuribo1 she is a cutie an I highly agreed with your comment it's sad to see people put others down when they don't understand conditions like this ..

  • @hectorpacheco5154
    @hectorpacheco5154 Před 7 lety +520

    don't let euginia cooney see this. it'll be a perfect excuse

    • @Bixsu-
      @Bixsu- Před 7 lety +17

      Maybe Eugenia has this??

    • @Espresso_plz
      @Espresso_plz Před 7 lety +25

      Brendan Smith If I recall, Eugenia has anorexia. But, this woman's medical condition makes her look anorexic.

    • @astridjohnson6244
      @astridjohnson6244 Před 7 lety

      omg

    • @Bixsu-
      @Bixsu- Před 7 lety +4

      Toxic Rabbitania How do you know she's anorexic? Do you have concrete proof? Like I said maybe she has this.

    • @smalllady1596
      @smalllady1596 Před 7 lety +15

      We know she is anorexic by looking at her past videos and pictures when she was at a healthy weight.

  • @GRAVYRAQUEPz
    @GRAVYRAQUEPz Před 7 lety +13

    respect to her! She's doing the best for herself to enjoy life without harming other people. I hope to see her at comic-con, A-kon or any cosplay convention!!! Bless your heart, my dear

  • @AntonioKowatsch
    @AntonioKowatsch Před 7 lety +16

    Man, this made me cry. Who's chopping onions?

  • @emilywhittle2146
    @emilywhittle2146 Před 7 lety +7

    Her husband seems like such a sweet caring and kind man. She is so lucky to have someone who loves her so much. And I feel horrible that she NEEDS to get in costume just to be excepted. I love her dolly look, no shade, just I hope that someday people won't be cruel to people like her so she, and other physically handicapped people can stop being thought of as "less than".

  • @MissXMalice
    @MissXMalice Před 7 lety +30

    Aw. She's so cute. And her Sailor Moon tattoo is giving me life.

  • @YasminMouse
    @YasminMouse Před 8 lety +15

    Big props to her husband/fiance Martin, it's not easy taking care of someone with an illness, I took care of my father for most of my teens and early 20's because he has Crohn's, MS, and a laundry list of other illness and now that I'm sick with a seizure and migraine disorder my fiance has to take care of me and it's not easy.

    • @kristalrej
      @kristalrej Před 8 lety +1

      +charmaine hansen im sorry i hope it gets easier good luck!

  • @xFlared
    @xFlared Před 7 lety +10

    Guess the moral of the story is that you should submit to pressure and change yourself so you get accepted by the mainstream public.

    • @Stings2pee
      @Stings2pee Před 7 lety +2

      My thoughts exactly.

    • @DahliaVonHellion
      @DahliaVonHellion Před 6 lety

      There is an area between 'accepted' and 'constantly harassed'. No doubt people bitch about what she wears now but it's easier to take than a direct insult about your body.

  • @absolutelyridiculous6743
    @absolutelyridiculous6743 Před 5 lety +1

    Her husband is a genuine sweetheart, let's not forget his total support as well!

  • @VanitySmokes
    @VanitySmokes Před 8 lety +39

    this is why you dont judge people. without knowing about her story and her disorder, people would have made her out to be some try hard freak

    • @kaisla782
      @kaisla782 Před 8 lety +5

      totally agree, though even if she didn't have a disorder, her lifestyle still shouldn't be judged. she's happy and that's all that matters.

  • @kdsstraighttalkotherthi5303

    I had 3 brothers with muscular dystrophy the oldest died when he was 14 and the other 2 died a week apart around Christmas time I miss them so much I'm very happy to see how you turned a negative into a positive

  • @Mountain_Drew
    @Mountain_Drew Před 7 lety +6

    "Please welcome, *the stunningly beautiful*, Amber Tiroso."
    this guy is _definitely_ a lolly.

  • @ZiIIous
    @ZiIIous Před 7 lety +29

    I don't get it. Why are those humans not hating on her dress like they do with other cosplayers?

    • @ZiIIous
      @ZiIIous Před 7 lety +1

      ***** whatever it's anime related and people can mix up with the two as I did.(what's the different anyway? I know the character she meant to 'cosplay' it's from anime)
      still, many people would complain and hate on her but surprisingly no one did(?)

    • @Haylla2008
      @Haylla2008 Před 7 lety +5

      Cosplay is dressing up as a specific anime/comic book/etc. character.
      Lolita is a fashion style that originated in Japan and takes influence from Victorian English traditions but is made cute gothic and/or cute girly according to the wearer's preference. It is never based on a specific character (or any character, really).

    • @DamnitMan88
      @DamnitMan88 Před 7 lety +7

      lol... humans...

  • @kimberleeroberts9873
    @kimberleeroberts9873 Před 7 lety +90

    I need to throw something out. Not everyone who has MD is thin like her. I myself have MD (as well as my dad) and we both are overweight because we do not have the energy nor muscle mass to exercise. (people actually do ask me why we don't exercise and well, we PHYSICALLY CAN'T) there are over 200 forms of the illness and some even cause weight gain

    • @ShiveringGaze27
      @ShiveringGaze27 Před 7 lety +7

      But you don't need to exercise to maintain a low weight...

    • @madeleine61509
      @madeleine61509 Před 7 lety +11

      you need SOME. normal healthy people can easily say "you don't need much exercise to stay healthy!" because most healthy people still get ENOUGH exercise to burn off the necessary calories without even realising it. you might burn a few hundred while walking from the train station to your school/place of work. if you are in school, they often require students to get a certain number of hours of exercise a week.
      for people with MD, it can be near impossible to get the necessary exercise to burn off the average diet (2000 calories/day) as even a short walk can be extremely taxing. for people with MD that has progressed very far (eg where its extremely difficult to even just stand up), they'd have to practically starve themselves to maintain a low weight.

    • @ShiveringGaze27
      @ShiveringGaze27 Před 7 lety +3

      madeleine61509 80% of jobs are sedentary/desk jobs. Most people drive everywhere even for a five minute walk. You underestimate how lazy the general population is, and how little exercise they get in daily activities.
      Also, if you can't possibly get any physical activity to the point of not even being able to stand, why would you need the average of 2000 calories a day to sustain yourself?

    • @madeleine61509
      @madeleine61509 Před 7 lety +6

      ShiveringGaze27 ... and most of that part of the population (which both have a sedentary job AND never walk or get exercise outside of work) is either overweight or obese and thus that point is irrelevant.
      fact of the matter is if you cant even get out of bed, even consuming just 1k calories will cause you to become overweight over time. even if you dont get out of bed, you still need to consume food to function but it wont be burned off properly because you arent doing anything to burn it off, thus causing the person to put on weight.

    • @madeleine61509
      @madeleine61509 Před 7 lety +4

      jadenight0 if youre talking to me then im just trying to explain how it would happen to someone ignorant. im not judging the original commentor on their weight but just explain that they would probably have to starve themself (or close to that) to lose weight which is a ridiculous thing to expect of someone.

  • @blackfeathercrafts
    @blackfeathercrafts Před 8 lety +27

    Shows that we need to stop judging people by how they look. Sometimes there are reasons....

  • @paytonpink
    @paytonpink Před 7 lety +205

    Wow I love this episode of Sailor Moon!

  • @JimCorrigan777
    @JimCorrigan777 Před 7 lety +2

    My depression makes me eat a lot of Cheetos in my bath robe.

    • @grimvee7102
      @grimvee7102 Před 7 lety

      I feel you mang... I am covered in a permanent layer of Cheeto dust.

  • @hanoh9293
    @hanoh9293 Před 7 lety +58

    This is sad to change herself so people accept her but I think she likes what she's doing

    • @filminginportland1654
      @filminginportland1654 Před 7 lety +4

      Everyone does, to some extent. You don't scratch your private parts in public, do you??

    • @mariesmosh1334
      @mariesmosh1334 Před 7 lety +1

      Filming In Portland what?! 😂😂

    • @xFictionAficionadax
      @xFictionAficionadax Před 7 lety

      Totally different :P

    • @seigeengine
      @seigeengine Před 7 lety +2

      It's not fundamentally different, no. Almost everybody acts, looks, etc. different in public compared to when in private.
      But yes, it's sad that people are that horrible to people they don't know enough about.

  • @SarinaValentinaxo
    @SarinaValentinaxo Před 8 lety +73

    She looks so beautiful!

    • @chantelleward23
      @chantelleward23 Před 8 lety +2

      +mike skinner gross

    • @teecee2988
      @teecee2988 Před 8 lety +2

      +mike skinner +Rose Ward fuck you she has a disease. hope u live a shitty life

    • @chantelleward23
      @chantelleward23 Před 8 lety

      +Tee Cee wtf I meant what mike skinner said very mature aren't you like you're so stupid

    • @teecee2988
      @teecee2988 Před 8 lety

      Rose Ward lol realized after i deleted my comment relaaaaaaax

    • @chantelleward23
      @chantelleward23 Před 8 lety

      +Tee Cee no its okay I'm just going to go back to my shitty life

  • @linlupin
    @linlupin Před 7 lety +4

    It's great she found a way to make light of an awful situation!

  • @platinum_tears
    @platinum_tears Před 7 lety +3

    Her smile is so pleasant to look at! It's so genuine!

  • @Biskwyy
    @Biskwyy Před 7 lety +27

    SHES SO BEAUTIFUL , ADORABLE AND HAVE THE SWEETEST SMILE EVER . Why do good people suffer T.T

  • @PlayLyss
    @PlayLyss Před 7 lety +16

    oh my gosh I am so glad God created this beautiful man to help her throughout her life and to care for her and love her like she deserves to be loved. God bless them. she is so sweet and I am praying for her.

  • @dxmxo9427
    @dxmxo9427 Před 7 lety +2

    Shes So beautiful and so Kind,Very good that shes being herself

  • @bekastehn5904
    @bekastehn5904 Před 7 lety +9

    she looks so adorable! Why make fun of a human that is just like you!? She's just different in a good way, if I could I would hug the day lights out of her!

    • @DamnitMan88
      @DamnitMan88 Před 7 lety

      She different in a bad way... lol!! It'a call an disorder, a illness. And don't hug her, you'll kill her.

  • @jenljune
    @jenljune Před 7 lety +21

    Every woman needs a husband like that! What true devotion.... lovely~

  • @haruno21
    @haruno21 Před 8 lety +35

    she is coping with a serious disease..... if this makes her happy, let her be. she has enough already
    people are so judgemental and mean

  • @Mangzorz
    @Mangzorz Před 7 lety +10

    She's fucking cool, instantly, because of her Sailor Moon chest tattoo.

  • @Mikoinv
    @Mikoinv Před 7 lety +24

    can we talk about her wig and how Madoka Kaname realness it is.

  • @Nooreissad
    @Nooreissad Před 8 lety +11

    she's adorable and when people see something out of the ordinary they react negativly

  • @kimberleecatena
    @kimberleecatena Před 7 lety +23

    Sweet husband. Sweet girl. God bless them both.

  • @shannonludden8283
    @shannonludden8283 Před 6 lety

    Do your thing girl!!! Many people with a chronic illness might sit around and get depressed, but this lady chooses to live her life the best way she can. Respect 👏👏👏

  • @jdunnatl
    @jdunnatl Před 7 lety

    She is really beautiful! I can't imagine how hard each and every day is for her. I have so much respect for her positive attitude, and I'm glad that she found someone with the warmth and patience to care for her like that. They're both very special people.

  • @ScrapDisk
    @ScrapDisk Před 7 lety +94

    Dressing like a living doll and having a disability. Wow, living life to the fullest. So awesome! Here's tickets to comic con!
    Dressing like a living doll and NOT having a disability. What a freak, why don't you dress normal? Do you have mental issues??
    Interesting to see how interviewers handled each of these situations :P

    • @BlairrWitch
      @BlairrWitch Před 7 lety +4

      why don't you mind your own business. she's happy with the way she is. she does have a disability as you heard and saw she has muscle problems were she is not able to move around as much and been down and she wanted to so take your ignorance somewhere else.

    • @ScrapDisk
      @ScrapDisk Před 7 lety +24

      BlairrWitch I'm sorry, you must have misunderstood my comment. Have you heard of Venus Angelic?? She was also interviewed for dressing and acting like a "living doll" but was met with a mountain of criticism and insults.
      I just find the two situations interesting. I don't have any problems with how this woman is choosing to be, and I'm happy to see that lolita culture is making her happy! I'm a fan of the style myself. It's just a little disheartening that one type of person is praised for dressing like that, and another type is mocked.

    • @AllisonLinner
      @AllisonLinner Před 7 lety +10

      Nadiali Yeah I have to agree in a way. She should most certainly dress that way way if she wants to, if anyone wants to he or she should. The thing that bothered me was she coped with people calling her a crackhead and horrible things by dressing like a doll--which would imply it was for everyone else or to make being social easier. I get it. I have a disorder called porphyria. If I decided to play up my vampire-esque features and I posted it all over social media as my method for coping I'd probably have a lot more friends. My issue here is HER happiness. I think she is absolutely a sweetheart dressed and made up as a doll or not. I just hope it's because she wants to each day, I know with her disease and my disease we have very limited energy and I wouldn't want her wasting it because people can be judgemental. I hope this makes sense.

    • @cbaelz120
      @cbaelz120 Před 7 lety +8

      That is exactly what I thought after watching this. Fortunately, there's another video that explains that she has always loved dolls and was dressing in a mild Lolita style before her deterioration. It sounds like having MD gave her the courage to go full on Lolita the way she wanted to.

    • @JoseHernandez-ql8vw
      @JoseHernandez-ql8vw Před 7 lety +2

      Being an Otaku is a disability

  • @USCBeastmode
    @USCBeastmode Před 8 lety +22

    I met Amber at this past Long beach expo and she was a real sweetheart... The thing that blew me away she was standing by herself in the cosplay area where there is professionals and she stood out like a living angel seriously... She blew everyone away with her look. I had no ideal she was sick she did have a cane but she made it look like a prop. What a sweetheart I hope someone can fine a cure for this disease and help heal her an others just like her!

    • @sooofunny37
      @sooofunny37 Před 8 lety +2

      +Jaime Jimenez I think stem cells can cure just about anything.

  • @lidu6363
    @lidu6363 Před 7 lety +15

    I clicked because MADOKA!!!

  • @EricSanchez
    @EricSanchez Před 6 lety

    She seems so sweet and genuinely kind hearted.

  • @BobbieDeming
    @BobbieDeming Před 8 lety +17

    What a BEAUTIFUL girl not only on the outside, but her beauty on the inside shines out so bright! Also, her husband is such a wonderful, loving, and supporting man! They both definitely found a perfect soul mate in eachother💖
    I'm a single mother of 3 disabled special needs children and sadly we also don't have the help or family that we could surely use. I understand the struggles and worries one can have. As parents worry about their children doing certain things, I worry about my children NOT doing some of those certain things. I never thought I could raise 3 special needs children myself. Especially when I'm unable to work because of 2 of their disabilities. My children are ABSOLUTELY AMAZING and my life!♡
    I'll tell you all! NEVER UNDERESTIMATE YOURSELF!! You truly don't know sometimes what you're capable of until you're doing it!!
    Thank you for sharing your story and helping others be aware of things they may not think about.
    *(BIG HUGS!!)*

    • @soonermimi53
      @soonermimi53 Před 8 lety +1

      It's sad that so few who need help actually get it. I admire you and your "can do" attitude. Many people cannot handle one special needs child and whine about it. Here you are with three. My mother in law (90 yrs.) and I are both disabled. Although she has a perfectly healthy daughter, "her house is just too small" and she cannot care for her. We have a large enough house because we bought one with my mother in law in mind! My husband works and cares for both of us, grocery shopping, doctors, house cleaning, cooking etc. I have always believed that where ever there is a will (or a want to) there is a way. Some don't have the "want to." My husband is precious. So are you.

  • @nikkiej.5875
    @nikkiej.5875 Před 8 lety +24

    She has such a nice and adorable personality. I love her dress, hair, and the eye contracts. She look so pretty. 😀

    • @fang-y
      @fang-y Před 7 lety +1

      contract - contract with that cute little demonic alien?

  • @JinxiiMinx
    @JinxiiMinx Před 7 lety +8

    They really need to rephrase that starting bit "Condition that turns woman into living doll"... I was really confused at first. It's a fashion choice, not a condition... xD But then they talked about the muscular dystrophy and it made more sense...

  • @theskeletonful
    @theskeletonful Před 7 lety +17

    Omg her sailor moon tattoo

    • @user-ey9ny9ie1r
      @user-ey9ny9ie1r Před 7 lety +2

      Awkward Jared makes me happy.. as but sailor mars is totally better

  • @KoolKickzTv
    @KoolKickzTv Před 7 lety +15

    beautiful beautiful girl. I love her smile, her energy, she really is a work of art with a pure soul.

  • @xJanegirlx
    @xJanegirlx Před 8 lety +5

    This brought me to tears and her husband is a fuxing sweetheart! I love Pixee, but I can understand why the reaction from the crowd, doctors, host(s) is so positive with this girl; this girl battles with muscular dystrophy, everyday, and uses dressing up to compensate/overcome the negativity, no plastic sugery folks: just good 'ol mind over matter.

  • @arcangelmaaze7804
    @arcangelmaaze7804 Před 7 lety

    This taught me something, it ended up very positive, and I'm glad to see her happy. She's awesome!

  • @JoeyWheelerKaiba
    @JoeyWheelerKaiba Před 7 lety +6

    I dress up in Lolita myself. :) I love lolita style clothing. Living Doll is different but we use the same style to express ourselves. It is nice she finds this style positive as well. That is what I felt. Even when I was overweight, I actually got a lot of positive comments when dressed like this. I have since lost a lot of weight and I am now in my BMI. It is nice. It is nice when people like talking to me...

  • @raea3588
    @raea3588 Před 8 lety +9

    I feel bad for her that people can be so cruel that she doesn't feel she can go out into the world just as herself and be accepted.

  • @lisaendress724
    @lisaendress724 Před 8 lety +4

    my mom had a form of muscular dystrophy, CMT. She kept her self moving and walked years after they though she would be able to! cancer got her in the end, she was 83 years old when she passed. stay strong and keep moving!!!!

  • @humanbean5878
    @humanbean5878 Před 7 lety

    this brought tears to my eyes. she's so adorable.

  • @MoriAnimations
    @MoriAnimations Před 7 lety +6

    She's gorgeous. I hope the best to her.

  • @ReineDeLaSeine14
    @ReineDeLaSeine14 Před 8 lety +12

    Disabled people aren't little kids. I hate that comparison. I'm also not an old lady. I hope she has a blast at ComicCon!

  • @chary361
    @chary361 Před 8 lety +17

    What beautiful souls...Both of them.

  • @PedroTawa
    @PedroTawa Před 6 lety

    Her spirit is so nice and she has such a great energy

  • @CFSWarrior
    @CFSWarrior Před 6 lety

    This makes me so happy. What a wonderful coping mechanism. I wish that I could find a mechanism to better handle my illness like this. She looks adorable.

  • @raz7573
    @raz7573 Před 7 lety +8

    She's so adorable! So glad they gave her the stair lift and the free passes to the anime events.

  • @LunarShift
    @LunarShift Před 7 lety +8

    What a nice way to feel more comfortable with yourself. Can't believe the negativity I'm seeing here. She and her husband seem like very sweet people.

  • @MR-zq5gt
    @MR-zq5gt Před 6 lety

    This is so sad... it breaks my heart that this girl was treated like this. But I am so glad that she is trying to see her condition in such a positive light and that her husband helps her ... so sweet!

  • @differentisbeauty4995
    @differentisbeauty4995 Před 7 lety +3

    Aww I'm so happy to see people like her she is brave and strong women I'm proud of you 🙏😘😘

  • @thecraftycyborg9024
    @thecraftycyborg9024 Před 8 lety +17

    I'm so glad to see that she got a stair lift AND a vacation. I was gifted a used stairlift almost 2 years ago by an elderly woman moving into an apartment and it gave me the gift of being able to do my own laundry and park in my (basement level) garage. It's been fantastic.
    As for the vacation she got? Love it. So often, as a disabled person, people over focus on the Patient and forget the Person. The gift of a vacation acknowledges that Person and acknowledges that we all deserve things like that. Going on a trip as a disabled person is difficult and expensive, and with daily life already being difficult and expensive (plus often times income is dramatically lessened), vacations often don't happen. I'm thrilled for her that she got that chance. My personal dream is to make it back to Rhinebeck for the sheep and wool festival again. One day.

  • @CalvinSeraph
    @CalvinSeraph Před 7 lety +11

    As a fellow Cosplayer I had to like this video to give her my support

  • @maybemammoth4783
    @maybemammoth4783 Před 6 lety

    My heart exploded when they gave her all those gifts and she almost cried

  • @BLFulle
    @BLFulle Před 7 lety

    The love that couple has for each other is inspiring and adorable