The Negative & Hard Parts of Autism | Autism Mom Struggles
Vložit
- čas přidán 14. 02. 2023
- My struggles and hard days with my high needs autistic son.
#autismmom #nonverbalautism #autisticchild
AMAZON PRODUCTS MENTIONED
‼️AFFILIATE LINK‼️
www.amazon.com/shop/rockingth...
Exclusive merchandise only at rocknstims.com
Join our Membership to support our channel:
/ @rocknstims
__________________________________________________________
Harkla:
harkla.co/?rfsn=4876231.9c052d
Use discount code Rocknstims for 10% off
My son is 28 years old and I still baby him too much. He is acting defiant and has been sneaking food, etc., which is a good thing because it means he is asserting his independence. I love your videos, you are such a strong and intelligent young woman. Keep up the good work.
It’s so hard not to baby our kiddos! I get it, I try to have him do more things for himself but it’s such a battle to get him going. I will keep trying tho! Thank you for watching! 💙
I haven’t been in public with my friends with autism but I been with one of my friends with Down syndrome and I knew people saw that people had a disability and i looking at something ( we were Christmas shopping) I turned and saw a lady talking to him and laughing with him and i smiled, lots of thanks and love to that lady for accepting the fact that he had a disability and didn’t care ❤❤
Your hard work and perseverance for your son is so inspiring. I can relate to you so much especially with the negative headspace and feelings. Just know you’re not alone you are helping a lot of autism mamas out here ❤ no one knows our babies like we know them and it’s up to us to fight for them regardless of what doctors insurance etc say. Love your channel keep going! 💪
Thank you so much! 💙
Your videos are so relatable and helpful 🙏🏾💞
The amount of appointments and things that is as parents have to do and have follow through we all get worn out don't forget it's okay to take breaks we need them just as much as our kids do.
Muchas gracias por compartir con nosotros cómo te sientes creo que es el sentir de la mayoría de los papás especialmente cuando empiezan a creecer y como dices es más notorio. El doctor holistic te va a ayudar mucho más de lo que piensas Solo que necesitas estar preparada para demasiados cambios para toda la familia que si es muy difícil vale la pena.
Saludos a toda tu linda familia
I appreciate you and your family .thank you for your videos from Cruz mom :)
When you said "it's so hard to always follow through" I felt that! That's my daily struggle. I constantly feel like I'm not doing enough either. Our doctor wanted us to try the Daytrana patch with my oldest (he'll be 8 next month), but I ended up not going that route. I felt like with him being nonverbal and not being able to tell us how it was making him feel, I just couldn't do it. It's so hard to know if you're doing enough. 😭
Me too. Every task feels like a boomerang task and it comes back to you and multiplies.
I just looked up a little info on it and I feel like it would be so hard for my son to not mess with something like that. First time I hear of a patch. Your so right how do I know if the medicine is affecting how he feels (nauseous, headache ect) 😭
My son is getting 11 hours of ABA. He seems to like it but we will see! I feel confident he will learn and thrive 😊
Yes! I’m sure he will 💙
Hey Hope all is well love your videos
My 2 year just got diagnosed with autism too ❤
I know how emotional getting an autism diagnosis can be. I know even with our older kiddos being autistic it still is a lot to process. I’m happy you were able to get the process started fast. Sending you love and positive thoughts 💙
My son was diagnosed last Monday he’ll be 4 in two months. Up until till Monday we had being told by many doctors and specialist that he was just speech delayed; he always scored just below the cut off point for an autistic diagnosis in all the test they preformed since he was 18 months. But now that his almost four i do see the huge difference between kids in his class and him. The development pediatrician told me that he is on the mild side of the spectrum and that he probably wont get more than 10 hours of ABA a week. He already gets 2 hours a day of Special Instructor and 30 minutes of speech three times a week at his regular preschool. I feel like he difenally needs more speech but thats the max they can offered him in a regular class setting 😢. Im debating whether to keep him in his regular preschool or move him to a special needs school. I don’t think an ABA center is particularly the setting for him from what i have researched but im going to tour a couple places and see, but i also feel like he needs more than a “regular preschool “. Im so lost on what to do………..
Have you considered private speech therapy outside of school? Speech therapy can be covered by insurance and be very beneficial! I know how hard this process after a diagnosis is. Sending love to you, whatever you decide will be for the best of your son 💙
I will definitely start calling my insurance and see what they tell me. You're such a wonderful mama. Blessings to your family.
I’m trying to learn how to shadow and mimic an ABA instructor, so I can give my kid more attention. Is anyone else trying to do this? How’s it going?
In what way? When they are doing table work or in regards to working on communication? Are there behavior concerns you wish to her support with?
I was under the impression that as the people get older and older... the level and amount of services are reduced.
Yes that is the goal. As your learning the goal is to be able to reduce hours because they are progressing but it should be based on each individual. Christian still needs lots of support.
I would advise you not to stop the cbd. Specially now that he is getting older and he will go through puberty.
Hello I’m currently struggling with ABA around my area … can you let me know what’s the name of the agency? Also does your son attend school? Does he get overwhelmed with ABA? My daughter is high function and non verbal as well. I stopped ABA because of school and now that I’m trying to get her back on it. It’s hard 😢
Good luck on everything and thank you❤
He does not attend school. We opted to homeschool and do 32 hours of aba instead of school. I’m sorry I don’t give out his clinic Information for privacy reasons but I know most places have a wait list for after school hours. Lots of parents seek those times to do both. I think when he was doing school and aba he was a bit more overwhelmed 💙
My son just turned 6 and he’s only getting 6 hours!! Lack of staff, and he should be getting 19 hours. Whatever they can’t fill his ABA company told me he’s SOL. My son is lower functioning and has a looooong way to go and they want to drop his hours to 9 this summer. He needs the help or they feel like he’s a lost cause. Which he’s not! They want to free up their waitlist….so you push kids that need it? I’m super pisses so I get it!!! I hope things get better for you!!! 🤗
Unless you trying too help him I bet you say I wish I can help him more my mom is the same way with me and I be like mom just let me try to do it first my sister be telling my mom that she got it just let her do it she grow and thing after she told her that my mom let me do it by myself💙
That’s horrible! It does feel like often a lot of companies want to avoid the kiddos with high needs 😭. Our kiddos are never a lost cause! I hope things go better for you as well 💙
Love your hair
Ty!!
Did you find answers from the microarray or WES?
I did. He had a delation in chromosome 8(tiny piece missing). We still have to do the more in depth testing for more info.
Is your younger son hitting his milestones?
As of now he is. 💙
What was the age u start CBD?? Why did u decided start homeschooling??
We started cbd when Christian was 7 and fully committed to it when he was 8. My son has high needs and the school couldn’t provide the proper support. Christian does in center aba which helps him develop more life skills and breaks things down to step by step for him to learn things easier and with more time.
Does your little one have Autism too? Sorry haven't seen your videos in a while. My daughter who is severely autistic getting worse 😔 not sure about my son who is 17 months old 😞 house is literally beeing destroyed.. I just can't keep up no more 😪
Right now he is developing without delays. I do try to make sure I’m aware of any signs I may see as I know how important early intervention is if there are delays. Even with that being said just having him be so active destroys my house and some days I feel so overwhelmed so I get how you feel. Hang in there! It will get easier with time 💙
32 hours weekly or monthly?
He does that weekly
What are your thoughts regarding iPads? I feel like my almost 4 year old has thrived a lot this year. She knows a lot more words and communicates her wants and needs more when she has the iPad. I mostly have learning apps for her and she loves them. When i see her repeat, back numbers and words makes my heart happy 🥹. I know alot of people are against iPads, but I feel like it’s helping her more.
I think what they are watching makes a big difference! Sebastian has learned sooo much through the CZcams education videos! I think it’s equally important to model what they are learning throughout the day. I am not the type to be negative about any type of parenting as long as it’s safe 💙