Chinese father makes own medicine in desperate bid to treat son’s fatal genetic disease
Vložit
- čas přidán 24. 11. 2021
- Subscribe to our CZcams channel for free here:
sc.mp/subscribe-youtube
In China’s southwestern Yunnan province, two-year-old Haoyang may only have a few months to live because he suffers from a rare genetic disorder called Menkes syndrome. In a desperate effort to save his dying son, Xu Wei has assembled a home laboratory to try and create a treatment for his child. The disease is incurable, and an experimental drug that could help ease his son’s symptoms is not available in China. Xu says he was left with no choice but to teach himself to recreate the drug.
Related story:
His son’s rare disease turned this Chinese father into a home-grown drug-maker sc.mp/86ss
Support us:
subscribe.scmp.com
Follow us on:
Website: www.scmp.com
Facebook: / scmp
Twitter: / scmpnews
Instagram: / scmpnews
Linkedin: / south-china-morning-post
#scmp #China #Chinasociety
This man took “Fine. I’ll do it myself” to a whole different level.
This commentator just won comment of the year award.
here b4 the comment blows up
czcams.com/video/bpGDJF8Py9I/video.html..
Papa?
As he should!
He tested the drug on HIMSELF then his son.. wow
This man is the epitome of responsibility
The terror of getting something wrong has to be insanely strong, too, and he perservered and studied anyway. That's even more insane to me.
But I'm thinking as an adult the medication may react on him differently than a baby
Where does genetic disorder came from? He is rich of course.
@@768jefiline7 Mutations can occur which can cause genetic problems. Him being rich doesn't mean you can avoid genetic diseases.
@@768jefiline7 ??
"even if it fails, I want my son to be on the path of pursuing hope" - this line just hit hard.
really though it sure did hit hard
Yes, there is always hope
The best line ever from a parents.
his son doesn't even have self awareness yet, this hit me like he was talking for himself, not his son
@@YM-zf8mt One is part of the other.
Dude as a former molecular biologist, this guy is nothing short of a genius. The type of lab work he was doing can be difficult even for someone with a master’s degree, but he achieved it in a meager SIX MONTHS from secondary school level with his own equipments! After he finishes taking care of his son, he definitely should get a formal education in that field, because he is truly gifted.
@@titanattackbee1985 Source: Trust me Brother
@@titanattackbee1985 why would they put out propaganda that shows their country's healthcare system is this bad lol
@@titanattackbee1985 Of course. Chinese propaganda where the video admits China doesn’t have the resources to help him 🙄
6 weeks
@@titanattackbee1985 Chinese propaganda? for what purpose?
What a true dad. Learning chemistry and biology for the sake of his son's survival.
Look ♫ Look ♫ Look ♫ 💕 ✨ 😊
May the ducks heal you 🦆✨💕
@@tvm-manducktv8375 🤨
@@tvm-manducktv8375 🤨
A Himmler stan saying this. Unbelievable. I thought they were all evil
Thats crazy, what a gangster
As a biomedical laboratory technologist, I have mad respect for this father. The things he does are really difficult, and him doing it without a degree or anything just shows how desperate he is to save his son. RESPECT
As someone who have PhD in analytical chemistry, i really envy the father's utmost determination.
Zombie apocalypse soon
@@adityakaran6622 no don't worry your dad is probably not a chemist
@@KFC431 what does that have to do with their comment
Although he has no degree in medicine, he looks like he holds a PhD degree in some other field as he knows how to set up a lab by reading academic papers.
The kid is now 3yo, the doctors said he would only live for 18 months. It's insane to see what a father with parental instincts can do.
Was looking for this!
YESSSSSS
@@Marserona my guy, look it up yourself. I can easily say the opposite. Yall really out here just taking info you want from others without any proof. It is so easy to manipulate your type. All anyone had to do was say anything regarding this and boom, now it's legit? Pathetic
@@guy2006 ok I looked it up and verified it. Why so quick to criticize when you don’t even know the facts either. People don’t usually lie about stuff like this on purpose
I understand Chinese so I watched an updated interview with the dad. His name is Xu Wei if want to look it up. What impressed me even more is his method of treatment, not purely pharmaceutical but also psychological, using mood therapy to ensure optimal epigenetic mRNA expression. Great to hear
@@bdstudios6088 that's not the point of my comment. It isn't talking specifically about this video here, but the idea of how easy it is to manipulate people. Social media, major news, work of mouth, and people just listen to it and then spread missinformation everywhere. The fact that you didn't get that in the first place already lets me know that you are the same as these other people. I never once mentioned I knew the facts of this video here. Reread my message again and stop thinking so surface leveled. Now try again. Original comment just said something and regardless if it was true or false that is not the point of my response. It was that the other people just believed it without question. It seems like such a miniscule issue, but its that exact thing that shapes the world into the horrible state its in these days.
"I do not want him to wait for death in despair. Even if we fail, I would want him to be on a path pursing hope." The depth of love between this father and son is out of this world.
💛
The fact that he's willing to do anything for his son, that's the purest form of love.
czcams.com/video/bpGDJF8Py9I/video.html..
Look ♫ Look ♫ Look ♫ 💕 ✨ 😊
May the ducks heal you 🦆✨💕
@@Memecious POV u have no life
Fr, it is heartwarming to see
@@Memecious Even on a video of a father creating diy treatment for his son’s disease, you still have the audacity to self promote your dogshit channel
“Best father of the century” award goes to this man. Unbelievable.
Yes I agree
Of this century maybe, look for Lorenzo Odone's story
Ah yes, instead of let him go painlessly, let’s prolong the child’s disease. Maybe we can let him live till adulthood so he can suffer more and become a burden to society. Best dad evar, also let’s film the whole process to virtue signaling to everyone.
@@kiepnguoi5058 Life has infinite value
To prolong life is an honorable thing
@@kiepnguoi5058 and this is what it's like not being loved by your own family.
update: the son is said to be stable given his father's medication. Xu Wei also realised that there have been successful cases of cure abroad so he worked hard to help his son.
Ty for the update
🙏❤️thank you
Thanks for the update
source?
@@BruisedWater I did a search on the Chinese search engine, came from a news article. A year ago though so forgot the actual source
When people say they did everything they could, they don’t mean everything, they mean everything that’s in their current knowledge, but this man. He actually did do anything he could.
"I don't want him to wait for death in despair, even if it fails, I want my son to be on the path of pursuing hope." ..... This quote brings tears to my eyes.
It was designed to to exactly that
You hit the nail on the head, incredible…
🙏
@@VangelisGaitatzis Haha. Whats ur issue here??
@@Bug-sg1li hooold on there isn't any issue mate --Read it again but slowly. They weren't actually trying to argue. They were in fact, agreeing with gwei. This is actually another way you can agree with another person in conversation. Some other examples that i could list in the top of my head( i just woke up pls excuse me my brain still needs to fully wake up as well) that are in similar fashion & intent are, "And so the tears did fall", "Never was there such a quote that brought such a reaction too", OR EVEN "As it was meant to do so" (meant to bring tears into their eyes).
Feel free reading gwei's comment again but replacing it with my examples. You'll obeserve something similar there.
I thought he was already a chemist or scientist but he only had a secondary school education. Mad respect for his dedication and love.
This actually proves that scientific papers should be open to all. Researchers never got any royalty from papers instead they need to pay some money for their papers to be published. And here this man, with only secondary school he could do this amazing thing. This is what researchers hope for. For their work to be useful for a lot of people.
@@SF-ud4ej It is kinda scary tho? you'll never know if that will just cause more deaths ? People are different, some are desperate not knowing the process or skip some process and make mistakes.
But if it comes with responsible people, yeah that will helps a lot more.
i think it should have some restrictions. otherwise, people will abuse it
It is very inspirational as someone who only graduated high school. I'm a 28 y.o. self taught mechanic working full time fixing cars but I have plans on going back to university to finish my computer science degree. I have been learning AI using python and I'm having a blast learning something again and I love it, hearing a 30 y.o. man say he wants to also go back to university despite being 30 is giving me a massive confidence boost, just knowing you are not alone in your situation is so relieving.
I hope he succeeds and his son is OK. Some may say it is incurable but maybe this man, with his dedication, can succeed where others have failed. He literally dotes on his son and I wish them all the best
We all start out as ordinary people, it is the path that makes one extraordinary
I don't think humans can get more amazing than this . The father is really an inspiration
It’s which way you look at it , I think it’s selfish to have children, risking them getting a genetic disease, I ain’t a father but I think this person is an inspiration because he had children knowing that he will give it all and he’s smart enough to study and I respect people who are smart enough to study
This guy is going to be an absolute legend if his son ends up living.
Or if he doesn't that man deserves a statue
Even if it won't happen, what he has done is already remarkable.
He’s already a legend, let’s hope the son survives
@@Trathaal yeah
@@potatoeater9499 We cant help you with your son...but we can make a statue if you want.
Everybody talking about his love for his son, and here I'm also wondering just what an intellect he is. To make medicine at home of such rare genetic disease, armed only with secondary level education, is _truly admirable._ *Hats off to this Genius Father.*
Asiana are usually genius
@@irisviel_Einzbern Racist stereotype
@@irisviel_Einzbern i dont think being an asian is relevant for this guy's perseverance and hard work let's praise him for what he's done i just dont like how being an asian is equals to genius
sry if it came out as aggressive i apologize i just wanna get my thoughts out there
He is not a genius, he just had the will to do what he wanted to do, and found the way to do so. A veces creemos que hay cosas muy lejos de nuestro alcance, y este padre en su bondad y amor infinitos es la prueba viviente de aquello. Still, it is indeed truly admirable.
Update 28th Feb 2023 (Economic Times): Haoyang is now four years old and taking part in a first-of-its-kind experimental gene therapy.
Thank you for the update! ❤
Best luck for him!
You know I have got this feeling that this man is not only gonna save his kid but also save the world from this disease. I have got a strong gut feeling. Let's pray for its success
Just to clarify. There was a cure for his sons disease. But due to covid 19, the father was unable to get any. So he essentially googled how to make the drug and then recreated it. Still insane he was able to do that.
@@quemzzy7397 Thanks for the clarification
@@quemzzy7397yup, with a secondary school education at that. He must have spent countless nights working on it with no regard for his own safety or health.
"Even if it fails, I still want my son to be on the path of hope." That hit hard.
A father's love for a child is so great it moves the parent to create something out of nothing.
Srilankan burned in pakistan for disrespecting quran. czcams.com/video/gxYPb5MGltA/video.html
@@carnage6661 stop spamming there is always someone killing someone for something it happens every minute in every country
I will sacrifice my life for my children as a father
@@carnage6661 so what ?? 😂😂😂😂 no one cares 😂😂😂
@@uhuhu523 Please don't actually die or anything, but I wish you a happy family! Live for them instead, maybe? Make sure you've made yourself into a reliable parent who understands and cares for them, and that they are confident that you love them and that they can rely on you. Sacrifice makes it sound like you won't be around to live life with them for whatever reason, and that may not be as helpful as it sounds.
There’s no “ethical grey area.” This is his child and he’s going to lose the child without treatment. He’s doing his duty as a father to care for his child and he’s going above and beyond what the average person would do.
It is because if he makes it wrong it could be far worse
@@Hoaxe72 he won't make wrong move
@@raptourn9578 but if he had, it would be far more dangerous to the child to consume poorly made medicine
The one who tries may lose. The one who doesn't try has already lost.
The one who tries may lose. The one who doesn't try has already lost.
I'm a pharmacist and have got to say "wow". Very inspirational ! Hope his son makes a full recovery and has a long fulfilling life.
one of the most respectable men I've ever read about. Not a philosopher, inventor or a billionaire. Just a father.
The father is the epitome of "If there's a will there's a way" was a person.
Srilankan burned in pakistan for disrespecting quran. czcams.com/video/gxYPb5MGltA/video.html
@@carnage6661 why are you spamming this in comment sections of this video? This is completely irrelevant and mad disrespectful of the father and the child of this video. You're using them to spread a literally irrelevant content. If you want to share it so badly just go into else where like idk the comment sections of fake animal rescue videos.
*If there's money there's a way
Facts. Prayers sent out for him and his son. I hope many of us pray for him.
@@slavicprincess If there's a will there's also money
My tears can not stop, seeing the love of this man for his son….
nah man hes playing doctor as if its a joke! it ll fked up his son even worse
@@jake9854 if he didnt do anything his child would have most likely died with the year. There's either death or a chance at saving his kid, most parents would choose the latter instead of just watching their kid die.
@@jake9854 ??
@@jake9854 clown
A secondary school grad, looked up all available information to save his son, and you call him a joke. I wonder what will you do in his shoes. Let your son die due to your reluctance to lift a finger or your lack of knowledge and bother to find the final solution that can radically change the situation.
You are a joke. He is more than impressive.
This Chinese man is a real man willing to do whatever it takes for his family. It warms my heart to see this video.
I heard a great quote from a man who was talking about supporting his wife through her illness; he said "I'm willing to wear a mask for my family, and I'm willing to wear a cape for my family." This man does both.
Also, his parents' support is top tier.
I genuinely wish this father and especially his child the best.
I truly wish for this man's dedication to save his kid.
first
And thanks to him many others
@Dreadnought 1997 troll
Genetic disorders are caused by inbreeding.
@Dreadnought 1997 he may hate china but he doesn't hate the Chinese people, he probably know that it's not the people's fault
This is straight out of a comic book. Look at him go. My dad wouldn't even help carry my casket if I died tomorrow. Best of luck my friend. We are all rooting for you.
@S w and how did you get that from the comment yk some people have bad parents right idiot 😢
🙏🙏🙏🕯️💜🌹
@S w Why do disrespectful children become disrespectful S w?
@S w way to jump to conclusions. How do you come to such a horrible conclusion with such little information?
@S w Bruh-
Heart breaking watching this as a fellow father. And heart warming seeing the essence of love and the highest level in human spirit.
This is what a proper father does... got me in tears...praying for his adorable son...no parent can imagine going through what he is going through
From the bottom of my heart I hope that his child gets cured and wish both the best in life. An amazing father.
aamiin
Ameen
Amen
it's a genetic condition, so you can't "cure" it. it can only be kept in control by giving medicine. there are some genetic conditions where the bone marrow therapy and gene therapy can help, but i don't know if this is such a disease.
@@livelife2324 but maybe in 40 years there would be a cure. Until then you take medicine
anything a father could do to save his child is truly remarkable.
Only asian father
@@daniellsitio no
AMEN!
@@user-nu3sd7zb2j curb harder
Yeah my father beat me up in my hand,head,torso,and leg truly remarkable
this father's love is so commendable, seriously i cried the whole video
Give this man a crown for being the best dad ever existed 👑
In tears, as a mother and as a scientist, I hope his son gets cured.
As someone who has a baby brother that is suffering from a different illness, I'm in tears as well.. I hope he's successful in creating a cure.
Amen
nah a rat is a scientist???u guys are the one experimented on u trippin
He’s a amazing dad
It's sick in a world of abundance ths is happening
When I think of people saying that men doesn't have this natural thing for taking care of their child, this man is the proof they're wrong. That's called infinite love and dedication
Only men with weird moral in Western society has that though. Father usually sacrifice themself to help their kid. Not some baby father, a real men in a family is the one take the bigger burdence
No many people think that, young people etc...
@@Eriniiatopaze mostly westerner, and also some influence in Asia. But traditional Asian family still trained their kid to honor old values, it is always about next generations.
Not to western society sadly.
Fathers do sacrifice though. The media LOVES getting clicks through drama and virtue signaling. The role of a father is underappreciated.
He's a genius without a degree and a father who is a hero in a simple package!
I come back to this every year. It’s so touching. Makes me want to be a better parent.
Is there an update on this little guy? 💗
This is a man who won't stand idly by watching his young son die from an incurable disease. Kudos to him. Also for his parents & family to be able to afford the (expensive) lab equipments he used. Now he also has something he is interested with and will pursue to tertiary education. I applaud this man's devotion.
Look ♫ Look ♫ Look ♫ 💕 ✨ 😊
May the ducks heal you 🦆✨💕
Yes well done now get off CZcams and let’s all try do the same
@@mr.crowgamer6250 Try to do what? make kids?
@@mr.crowgamer6250 I think you are projecting here
@@dogifish0078 projecting? In what way?
This is not desperate, This is called Pure Love for his child
Pure love leads to desperation
aka desperate. It's the same thing.
that’s literally desperation
@@Ray-ng3ke yeah so??? You make it seem like a bad thing
@@LeafyBreezes just listen to the op man. He's got more likes than you and im the 440th like of his comment
Necessity is the mother of invention. Hat's off to the father and his parents. 👌👌💯💯
If you are wondering the child is cured and safe now.
Mad respect to this guy, this is the kind of father we all needed
Hey u should be proud of your own father too.Just think if he sees your comment then what will he think ,he might feel that maybe he didn't tried hard enough to make u happy that u are saying u want a dad better than him.
All dad are great
@@jaydevpaul3361 im very proud of my dad, but i respect this guy too cuz he literally built a home lab just for his son
699 likes perfect
Bruh, every father is a great one. At least in my country. (Saying this cuz ik in Western countries sometimes go to buy milk.)
@@jaydevpaul3361 What about people who have toxic father ???
Christ, though it's against the odds, no one can fault this dad's genuine love for his son. Not many people can say they became a full-time chemist on their own to try and fight a rare disease.
I know there's a lot to be said about the Chinese government but I gotta respect the fact that they're not interfering and letting the father try and save his son. In some countries they'd send a commando and confiscate all the equipment.
Hope he gets a phd after this. I’m serious
Secondary education is already advanced enough to learn basic concepts in post graduate level
@@adriansimsoongleong8878 There are probably at least a few undergraduate classes he would have to take to get a deeper understanding depending on what the PhD would be in. But I imagine he would get very readily accepted into a PhD program after displaying this level of initiative.
The latest update was from 2023. Xu said even though the medicine doesn't make his child any better but it prevented the condition to get worse.
This is probably one of the most amazing accomplishments of a father for his child that I have ever read.
This feels like what we think only in movies, but it is real life.
Reminded me of Darren Aronofsky’s The Fountain. Wasn’t the biggest fan of it but it was a compelling film nonetheless. It’s about a man trying to desperately find a cure his wife’s cancer himself, that’s his life’s work, until she dies. And he has these visions of his ancestors, of him in another life where similar tragedy happens. Until his wife inevitably dies, and he comes at peace with the fact that it’s too late, and he should have spent more of time with her instead of curing her.
Not that similar to the movie but close enough. I do hope for the best for him and his son.
@@paradise_valley @• Imo, I think that movie is much more than that, I couldn't comprehend it completely at first, I might be wrong but I'd still suggest you to watch this video & tell me your opinion, if you have time 😅
(CZcams is keep deleting my comment, am I not allowed to paste youtube vid link? tf)
@@paradise_valley czcams.com/video/MdzlCZ69APc/video.html
Reminds me of Lorenzo’s Oil
I saw the title and thought it was for a movie recap video
The reversal of Breaking Bad. Even with only secondary school education and lack of chemistry knowledge, he still can manage to create the formula to save his baby child. Mad respect.
Absolute respect for the guy indeed. However, given the fact that he's ventured out and learned enough pertinent things in biology and chemistry to try and engineer a cure for his son's genetic disease, constraining his education level to that of being secondary school level and his lack of chemistry knowledge at the time of synthesizing said formula is incorrect.
Learning and mastery isn't mutually exclusive with formal schooling, and you often consolidate the majority of your actual education through your work/career.
@Angie S Those years are extremely useful if you want to work in a field and be prepared to tackle every problem possible in a short amount of time from when it is presented but if you only need to learn one specific thing you can just learn that specific thing.
Of course you may often need to backpedal but internet has everything for those who know how to search (for example if you add a university name to a subject you want to study chances are you will find a pdf of the class material for that subject)
@Angie S his case is not common. Teachers are there to help if you make mistakes but people who study on their own needs to check for their own mistakes. They may also be unaware of specific keywords necessary for research that a teacher can elaborate in 5 minutes. Education is extremely important, it's just that his circumstances are so dire that he forced himself to learn everything
@@12801270able I think they meant specifically that he only had till highschooler's level of education in the fields of biology and chemistry. he most probably has a university background in another field, given his way of speaking and his home feels very upper middle class well educated to me.
@Angie S imagine some ignorant create a Dangerous chemical
He’s a genius. Desperation and ability are different things, he has both, and that’s what led him to his goal
Father of the century. Said "Fine, I'll do it myself." and saving his son's life. Beautiful 💙💙💙💙💙
An amazing story of how much parent gave to their children.
Look ♫ Look ♫ Look ♫ 💕 ✨ 😊
May the ducks heal you 🦆✨💕
Parents and grandparents! The grandparents is the rich one here supporting 2 generation!
I'm glad authorities didn't arrest him or something, it is clear to everyone he is legit trying to save his son despite the odds. He is operating in an ethical grey area, but gosh... his reason for it brings our humanity and sympathy towards him.
If he cross the line, he will be put into the test of legal system. You are absolutely right, it’s ethically…very grey… but where is the line? How do you define the line? In what way the law allow this father to save his son, in the same time prevent abuse, is still not clear. Our society has to figure this out.
@@cyberywayne3128 yada yada sjw all talk
@@cyberywayne3128 True, but at the same time im glad the local authorities aren't intervening.
They aren't intervening but they should help him get the medicine which is available abroad.
@@hibiscussunflower5916 usually developing countries get subsidies on medicine when importing but not China cuz western blockade, making certain medicine extremely expensive...and China can't produce locally cuz IP rights, then the West will scream "China steal our tech".
What an incredible story! Hats off to this dad. He will be an awesome molecular biologist. I hope his medicine continues to work so that his son can have a normal life.
This father is a hero ❤
A real man. Anyone can fight or suffer. Takes a hero to solve a difficult problem.
No a hero fights at great personal risk while knowing that there is a strong risk that they will suffer and fail anyway.
@@Lotsielots ok
He fights not with a weapon but with his intellect
@@Lotsielots you mean Martyr?
And my father would never take the time to ask if I was ok. This isn't fair This family deserves that boy, and the boy deserves to have this family for the rest of his life.
You're right, it's not fair, but that's how life is. What matters is how you can still achieve what you want, despite your personal circumstances
Hey, I love you! Live on nd succeed in life! You got it✌🏻
His loss tbh, you should only think about yourself and the people that are around you daily, they matter, even if they are not same blood as you :)
Ur father didn’t take the time to ask if u were ok? Ok and that makes him bad? Lol what a snowflake
@@SK-tr1wo don't be bad, who knows what other family issues or other problems he's going through. Parents ignoring or disrespecting their child can have a very big influence on them
That is so noble. A parent's love is the most unconditional and boundless of all. I'd do the same for my kids if we are in the same situation.
Ps. He and his son is lucky in a sense that his family actually looks rich.
Jfc, that's actually amazing. The chances of this scenario of happening is so rare. To first, have a child with the disease, second to have someone with the resources for the medicine, and then third, someone with enough willpower and dedication to learn from the ground up. Wow.
If he did manage to save is son and become a doctor, He would be a hero.
Even if he didn’t, he would still be a hero.
He is a hero for attempting. What a remarkable spirit!
Regardless he is still a hero. Trying such a thing is unimaginable but with the kind of inspiration he has... he is trying everything he can. If it goes south he can literally say he tried everything.
A pharmacist is the profession you're looking for but regardless of the job title he would still be a hero
He would not only be helping his son but others with the same condition. I hope his efforts save his son.
Tough times like this brings the best out of people.
*"Tough times never last, only Tough people last"*
I wish you the best of luck dude!
Tough times can bring the best and also worse of people. This child is really blessed to have a father who genuinely loves him deeply and is so determined, while also intelligent enough to self teach himself on how to develop the medicine his son needed for survival.
Joeybtoonz
When the going gets tough,the tough get going
Can't take this comment "serious"
Why so serious?
He's an amazing father. Respect from Canada
This guy was determined to save his kid. Learned a specialized field of study in a very short time
Could we please get updates on his son’s condition? Regardless of whether it works or not, I’d like to see his journey. His dad is an amazing man, doing anything for his son’s survival ❤️
Bro its been 3 days
@@atrik1st716 🤣🤣🤣
@@atrik1st716 Three days since posting. Most likely been awhile ago when happened. I would like to know, too! Googled this man and his son. The picture of him holding his son was taken in October of 2021. The little boy has been ill since birth and he is 2 years old. The life expectancy for this disease is 3 years old. I wish some other country would help him. Bitterly sad.
I would like to know too!!
@@atrik1st716 this story was probably recorded months ago of not years ago.
I am SO GLAD his government didn't stop him from making and giving the medicine to his son! I was afraid for a minute they would. Excellent job Papa!
Knowing chinese govt I believe there's benefit to them too, by letting him be, at least they can verify the medicine effect and also the govt kept their reputation
@@Fikri_A777 Right. Makes sense! Chinese everyday people are wonderful, hard workers and smart!
@@davidcopperfield-notthemag397 their government on the other hand not so much
@@Floaty8008 Agree. Brutal.
This isn't the USA. They do not overcharge for the medicines or ban generics that could threaten corporate profits
so much respect for this guy, may your child be healed, you're an inspiration!!!
Among many disgusting stories about horrible parenting, even as far as cancel your own healthy child’s life, this man shines brightly as a beacon of hope and inspiration. To let everyone know what a true parents love is like. This was from 2 years ago, we need an update.
He's the Dad that every child deserves. I truly wish them the best and hope things work out.
@@mitzikolo Is it really worth arguing over semantics? It doesn't really matter if a child deserves it or not because at the end of the day the common point you both made is that fathers should be responsible and caring.
@@mitzikolo if that's the case then maybe you shouldn't have replied to the main comment or mine either since you're 1 month late and 10 days late respectively
He looks like he comes from a wealthy family. But I bet he would be willing to give up all of his wealth for the health of his child. Honestly, that makes me tear up.
Yes i wonder why he only achieved secondary level of education when their house looks like that of a wealthy family's
@@patty_pb2986 he's dropoff from top biochem college and built a successful business
@@patty_pb2986 maybe thats why?
@@petervan7372 what
@@patty_pb2986 Many wealthy family kids don't give a fxxk about degree. In my own state we've rich kids with no college degree but they're wealthy because of their business or inheritance of parents or family's connection.
Meanwhile people like us with lot of degree had to go through tough exams to get a job + always working under someone. Middle & poor class people life is different.
This man should be the head of world health organization. Power to the people who deserve it...
The amount of love and dedication this man has for his children is truly inspiring. I hope his son recovers and lives a full life.
This is not only impressive but also the fact that he refuses to give his own medicine to other parents with kids of the same condition shows that he is a very responsible person.
He would be sued and shut down otherwise
@@mallowtonmouse Bruh, not just sued. He'd probably be thrown in jail.
@@taoliu3949 Bruh not just thrown in jail, this is China, he’d be slapped
@@crustymalone if by slapped you mean executed, yeah. i didnt want to go that far but it's probably true
@@crustymalone There is no well developed legal regulation concerning this specific case. That’s why it’s said to be a morally grey area. If he did produce medicine for other children, it would definitely be a legal dispute that will last for years, but it’s unlikely that he will be sentenced to death.
What a great father he is, hope he can succeed in this treatment.
Me too
Maybe not totally cured. But love can make people living
The best dad I ever see
As a father, i can fell him feeling. May Allah cure your son disease, In Shaa Allah.Aamiin.
You are no "ordinary" man, Xu! You are an EXTRAORDINARY man! You're an inspiration & a HERO to your child & those that will be touched by you in the future!! Praying for your son's complete & speedy recovery! Best Wishes to you & your family!!
Amen
An extraordinary ordinary man
This is insane, like its from a movie but its actually real life.
Whatever the result is, and whether his son survives or not....he will always be a hero to his son for his efforts
He became an alchemist to save his son's life. I'm in tears man.
Real life superhero. May his kid survive and get healthier
This actually showcases the fact: “Necessity is the mother of invention”
quite literally the father of invention actually.
That's not the correct quote. You are not very smart.
It's curiosity I guess
@@chrisdawson1776 that wasn't nice you're a mean person
@@Ryan-nn1kl Yes.
I wish I had a caring father like him... He is an angelic father .
Look at the bright side of life. He can be an angel in a different form. Learning and growing doesn’t have to come from the sweetest of environment… cheers and may you be what you want to be one day… :)
Different fathers show love in different ways because people are different. Or perhaps your view of him caring for you doesn't coincide with his view of him caring for you.
Parents with sick child especially the one who is terminaly ill like him, are more likely to developed PTSD and will get ultraoverprotective towards their children once they got older, if the kid able to survive their childhood. I hope he can recognize the limit when he reached it someday and make a peace out of it... Cause afterall its genetic flaw that his son developed. Life in this world are short and what human can do with it is just to do the best they can on what ever situation they are in and whatever the result is, everyone dies eventually its just a matter of time...
@@cb250nighthawk3 You look like an expert, can you explain to me what kind of care/love my father had for me and my family when he left us when I was a small child? Please enlighten me. Thanks
@@timminh468
I wouldn't be able to tell. I've to listen to his side of the story and not through you obviously. There are always 2 sides to the story.
I'm speechless, numb... so much love and determination. A world of respect for this dad.
Only a father can understand how to protect his son ...well done bro ....if there is a will there is a way...from a father to a father
The love of a father for his son is immeasurable.
He's an amateur chemist. Please read articles of him before cheering and rooting for him.
@@user-ti6ix5tn2o Could you elaborate?
@@UnityAgainstJewishEvil I read the article. He is an amateur chemist. he turned his gym into a laboratory. And he's doing home therapy by making medicine by himself. There are now companies willing to help find a cure or treatment for his son. His story became a sensation and that is what prompts companies trying to help him. Which is lucky for him but he is still doing home therapy. He needs to give up on home therapy and just go with the doctor's prescriptions/recommendations
@@user-ti6ix5tn2o How does that take away from what he's already done for his child? And if the medicine he has is the same thing, why does it matter?
@@meowmur302 he is making his own compared to the experimental medicine he needs to buy but not available in his country. Both medicines; the one he is developing on versus the fda approved experimental drug that is available but hard to get are similar but made by two different people. The dad is an amateur chemist with only a high-school diploma while the experimental drug is made by a team of scientists and researchers that knows what they are doing.
The fact that he tried it on himself first. He was willing to die for the chance to save his son. There is no greater love.
He did try it on some poor rabbits as well..
@@fluffylittleclouds1 you dont know how this world works, are you ?
@@fluffylittleclouds1 i mean they multiply like lightning so killing a few has no effect on the species.
@@fluffylittleclouds1 at that point is either your child die or some pet that you don’t know die
FluffyLittleClouds “He did try it on some poor rabbits as well..” what’s more important to your father, you or rabbits?
My son just turned two… I can promise you I would do the same thing for my son if needed! I pray and send nothing but positive energy to them! Wow ❤️
He is so amazing, the things human can achieve as long as we are dedicated and focus! Even if he ain't immersed in the field still he finds way more than anyone else. This is love. It made me tear up
hugh respect for this loving father.
we would do anything to protect our family & see them grow and become successful in life
Look ♫ Look ♫ Look ♫ 💕 ✨ 😊
May the ducks heal you 🦆✨💕
i can't watch this without tear in my eyes. this remind me to my dad. for three years he drove me to see a doctor, to cure my weak heart. the amount of money he spent on me were beyond what i can repay in my entire life.
Your life is priceless to him
@@glenlee1693 As it should
money cannot be compared to a life and for a parent there kids are like heaven
But our parents doesn't care about our repay ... They only about our love and respect towards them .... Be with them in their old age , same way they were with us in our childhood 🤍🤍 ( sry fr my English bro / sis)
This is so touching, the love as a father. The ultimate love and sacrifice.
Im blown away by his dedication to his son. I wish all fathers had this love for their kids.
Huge respect to this father. Hope that succeeds in his endeavours
This father has the will power to save his son! I pray that his son will be well soon 🙏
A fathers love is the most powerful thing on this earth!!
This man may put the pharmaceuticals out of business. I can imagine this will inspire others to do the same according to their needs! Unbelievable determination!
It's pretty risque though and not something that I think should be condoned. His treatment hasn't even been confirmed successful and with only 6 weeks of creation with such a short test on rabbits, there's so many possibilities that aren't accounted for. I wish him the best, but medicine is not something to be taken lightly and casually made by just anyone. From the lack of proper testing, the production of the medicine in a gym, and the lack of experience, there is so much possibility for error. At least with this guy he has the funding for top of the line equipment. If an average person tried doing this then there's a 95% chance that they just end up producing something terrible to be injected into a body.
Unconditional father's love. He stated that even IF he's fail at least he is in the process of pursuing HOPE for his kid!
告诉大家一个好消息，他的孩子刚过完3岁的生日！当时说活不过19个月！现在这位伟大的父亲创造了他和孩子的奇迹…
May his efforts not be wasted🌸 he is a wonderful father.
This made me tear up. Unbelievable Love and Dedication!