My Rare, Lymphoma Diagnosis - Harjeet | Non-Hodgkin's Lymphoma | The Patient Story
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- čas přidán 3. 03. 2024
- Harjeet's life was turned upside down by a relentless fever, chills, ulcers, and an inability to eat. Despite countless emergency room visits, blood tests, and scans, her symptoms were repeatedly dismissed as a viral infection or flu. It took a grueling two and a half months of advocating for answers, undergoing aggressive tests, surgeries, and biopsies to learn she had a rare, non-Hodgkin's lymphoma.
In this cancer vlog, she shares her stage 4 non-Hodgkin’s lymphoma story, dealing with a rare cancer diagnosis of subcutaneous panniculitis-like T-cell lymphoma. She describes her treatment, including multiple chemotherapy regimens and an allogeneic stem cell transplant.
#cancerstories #cancerpatient #cancersurvivor #patientstories #thepatientstory #nonhodgkinlymphoma #rarecancer #bloodcancer #nonhodgkinslymphoma #lymsm #chemotherapy #cancersymptoms #tcelllymphoma
Non-Hodgkin's Lymphoma:
Non-Hodgkin Lymphoma (NHL) is a type of cancer that originates in the lymphatic system, which is part of the body's immune system. It involves the abnormal growth of lymphocytes, a type of white blood cell, leading to the formation of tumors in lymph nodes or other lymphatic
tissues. NHL encompasses a diverse group of lymphomas with various subtypes, which can behave differently and require different treatment approaches. Symptoms may include swollen lymph nodes, fever, night sweats, fatigue, and unexplained weight loss.
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The interview has only been edited for clarity. The interview has only been edited for clarity.
My Rare Cancer Diagnosis - Harjeet | Non-Hodgkin Lymphoma | The Patient Story
• My Rare, Lymphoma Diag...
Facing those biopsies must have been so difficult. They are just diagnostic, so much pain for what is not even a treatment. Your determination is awe-inspiring.
Thank you, Harjeet, for sharing this account of your rare and awful cancer, and how you and your family and doctors faced it and struggled against it for you.
Harjeet, you are such an inspiring and brave person. Thank you for sharing your journey and I pray you continue to feel well.
What a beautiful woman inside and out!! Thank you for sharing your story!! I just finished all my treatments for breast cancer a couple of weeks ago. Now, cancer free!! I totally understand how hard treatments are. Thanks again for sharing ❤
You made it through such a long and challenging experience. Thank you for being so open about it. Wishing you all the best in regards to your April scan, and life in general.
Thank you for sharing your journey. Wishing you the best!
GOD ALLMIGHTY WILL BE WITH YOU ALWAYS. I pray you get well soon and feel better 🙏
How frustrating it is when doctors do not know what is going on, you are so strong, God bless you and comfort you with peace in your heart and mind 🙌🏼🙏🏼🩷🌸
So Dr. Monica what should have been your response and what is the protocol for fever should have been followed.
@@xenon6947 I’m not a Doctor
I hear so many people who have had a difficult time with unknown diseases say that you really need to advocate for yourself. And that all sounds good, but sometimes a person just doesn’t have the mental or physical energy to keep on trying to find out. After so many years and times of being told all your tests are normal, it’s just too much to keep trying. Sorry to be a Debbie-downer, but I just had to get that off my chest after hearing one more person say you need to be your own advocate. I’m just tired of it.
I feel exactly the same...couldn't have said it better. I'm in the process RIGHT NOW of being my own "advocate," and I'm physically and mentally exhausted.
Hi Harjeet - Wow! You’ve done so incredibly well, despite the appalling lack of initial understanding, by the hospital doctors, that your ‘presenting symptoms’ ( consecutive high fevers and chills) definitely required further investigation for potential serious diseases!
We’d assume, in this 21st. Century, that our family doctors and hospital consultants would all be far more ‘clued up’, given the huge amounts of research data and info. on Cancer, now readily available, internationally - but, still, so many new patients seem to suffer frustratingly long waits ( including incorrect diagnoses and medications…), often in severe pain and discomfort, prior to gaining (eventually) appropriate investigative scans and blood tests….following which, their overdue ‘Cancers’ might ( at last…) be discovered - and then treated, successfully!
Thank goodness, Harjeet, that you were lucky enough to meet ( on the verge of your despairing trip back to India) a highly knowledgeable hospital doctor, who then scheduled a series of new tests designed to produce specific, crucial, answers re. your obvious ill-health…! No wonder, though, that you felt totally nonplussed by your diagnosis - such rare cancers, their names, symptoms, progoses and treatment protocols would be unknown to the majority of patients and hospital consultants ( bound to create additional fear and anxiety in any ‘Cancer’ patient!
Your brother’s role as your ‘perfect match’ stem-cell donor proved an incredible stroke of luck - serendipity, indeed, yeah?
In fact, your entire family’s love and support, throughout your ‘Cancer Journey’, to date, has, clearly, been crucial to your ‘coping ability’ and endurance, despite all of the ‘horrors’ your disease and treatments have forced you to withstand!
If only all Cancer sufferers could be granted such amazing loving families and close partners whilst navigating their own long, seemingly endless, paths towards remission ( or, even, Cure…); perhaps, then, the ‘Survival’ stats. might well improve…!
Wishing you continued freedom from the scourge of ‘active’ Cancer and the nagging anxiety those ‘monitoring scans and blood tests can bring - you deserve, absolutely, to be able to enjoy a wonderful future life - full of love and joy, together with your loved ones! Thanks so much for sharing your very positive outcome, along with your true account of the dreadful reality of your ‘Cancer’ battle as you experienced it - you merit enormous acknowledgement and respect for your courage and determination, throughout!
🦋🌷🎀💐🪴🤞🌈💚
I start Chemo in a coupe days! Very scary! 🙏🏼for you! ❤
Wow. You are so brave. Amazing. So glad you are feeling better.
Harjeet you are such a beautiful soul. Worried about your family hurting before yourself. Your journey and story is such an inspiration to others. God bless you darling ❤.
She is so beautiful...inside and outside. It's so sad that we ALL have to be our own "health advocates." The medical system is BROKEN! I can't imagine calling a drug..."the red devil." Ugh. I pray that she continues to heal.
In the USA, when insurance runs out, you go home.
Definitely wouldn't get a Petscan unless you have money.
So it's a blessing your Canadian. ❤
What are you talking about? Insurance doesn’t just run out. In fact, after you’ve met your out of pocket max, insurance pays for everything 100%. No, they don’t just send you home and deny you cancer treatment. I’m sorry if you’ve personally had that experience but that is not the norm and you shouldn’t be spreading misinformation and scaring people for no reason.
Actually he’s partially right. American insurance sucks and they love to deny tests even with insurance. My insurance denied my Petscan after my Dr suspected a hidden cancer. My cousin actually has stage 4 lung cancer AND brain cancer and had to appeal her denial for her Petscan.
My grandmother is suffering from NHL.
And she is really close to me. Just came here to see your journey till date. It’s really heart breaking when the doctors say we are not sure what will happen to the patient but every chemotherapy gives us a lead that something will be good. At some point in this video i resembled you as my grandmother telling her story.Really got a hope from your journey through this video because me and my family lost it all.
More power to you✨
There are heroes among us.
this what I'm going through for a year now. 4 times covid, pneumoniae, and 3 months kidney infection. I keep getting infection after infection and still no diagnosis. Also bloodwork is questionable but keep being told it's fine despite my lymphocytes, thrombocytes, leukcytes being on the high end and high cholesterol all across the board while not being able to eat. I've lost 30 pounds in 9 months. I literally feel like I'm on my way to the end.😢
I’m there too. I’ve had a sinus infection for 2 yrs. My IGM is high. Otherwise, I have rheumatoid arthritis. Have the IG blood panel checked. Best wishes ❤️🩹
🙏 ❤ 🙏
❤
peace be with you always🙏
This is terrible how can a person have a month long flu. They need to revamp medical school, this is ridiculous.
I've heard of that T Cell Lymphoma during my looking into these rare disorders as I developed Mycosis Fungoides which sounds like a fungal infection but unfortunately not it's a T Cell Lymphoma.They often don't show in the blood and a biopsy after an amputation caused by a tumour was how mine was discovered.I think now only a Stem Cell Transplant might work as everything else has failed to inhibit the progress of the Mycosis Fungoides.
Tylenol for a 42 C fever? what? I hope her doctor didn't say that....
♥️♥️♥️🙏🌹
Non hodgkin b cell or t cell. How us now .stem cell transplantation?
🙏🙏🙏✝️✝️✝️
❤💪
How many covid vaccines did you have?
Did you get the jab?
That is the only thing you can think of to ask?
She was sick in 2019
@@4BarbaraJit is causing Cancer that why they asked .
Her symptoms started long before the vaccine was available. You are so determined to make everything fit your view.
@@louellenstevens501it’s not true! Stop spreading g lies.
❤