COVID Long Haul My Story - Part 1
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- čas přidán 28. 06. 2024
- My why? I started this channel to help those with long covid. My flavour of long covid is neurological so I will be touching on that a lot. I have begun making videos because at the beginning of my long haul I was finding information on Reddit and Facebook groups but there was so much text I couldn't get through it! I was able to watch videos or at the very least listen to audio. My hope is that these videos will help those suffering from what I have suffered.
This video is a brief introduction to what I have gone through with Long Haul Covid over the last 12 months. I briefly go into my worst symptoms and the things I did over the past year to help.
I will be making more videos to go into these things in more detail, but for now, this will have to do as I was reinfected about 10 days ago and am currently focusing on my recovery from COVID round 2.
Please leave any questions in the comments and I will do my best to get back to you. Wishing you recover from this hell very soon!
0:00 - Intro
1:56 - No magic pill...sorry
3:07 - Constant fight or flight
3:55 - Types of Long Covid
4:20 - Reddit
4:38 - Symptoms
5:32 - Brain inflamation
7:49 - Journaling
8:30 - Reinfection
9:24 - Sauna & DMSO
10:53 - Nervous system
11:17 - VNS
15:36 - Reduce inflammation
17:36 - Mental health
17:57 - Wellbutrin/ Fluvoximine
19:14 - Aromatherapy
23:16 - New neural pathways and hobbies
25:06 - Music!
26:18 - reinfection
26:45 - Time
27:35 - Open up
28:55 - Daylio
I know this is long and sometimes with long covid, the info is hard to all digest at once. I hope breaking it down this way will allow you to skip to the parts that are most relevant to you at the time.
All the best,
Adam
#longhauler #longcovid #postcoronavirus #postcovid #postviral #longhaulcovid #longhaulers #vagusnerve #vagusnervestimulation #parasympatheticnervoussystem #polyvagaltheorie #polyvagal #polyvagaltheory #covidlonghauler
Omg, I’m so so glad I found your channel 🙏🙏!! I’m 6 months in to my long Covid journey and also experiencing mostly neurological symptoms. I think one the things I’ve hated about all this is how alone it makes you feel. You can try and explain my symptoms to people but they just don’t quite get it. Listening to you helps relieve that feeling of isolation.
I’ve also thought about starting a CZcams channel, but it’s sadly too much for my brain to handle just yet.
Can’t wait to watch more! Thank you and keep up the awesome work 🙂❣️
I’m so happy you found my videos and they are helping!! 7 months for me things started to change and I started to see the light. Hang in there and make sure you check out my other videos with specific tips 😀. If you have any questions or need to talk I’m here. Come back and let me know. Hang in there! Back when I was first long hauling I couldn’t find any long COVID content here! Hoping this helps 🙏🏻❤️
Absolutely start a channel but not until you are fully able! Even then you will see long stretches sometimes in between my videos and last video! That is when I’m having a hard few weeks and can’t make videos or edit ✍🏻
Just now watched your second video. Everything you talk about is just so relatable.. I really appreciate that you’re speaking of your own experience from the heart. It’s so much more encouraging than watching a random video some doctor made a year ago explaining spike proteins and the blood brain barrier (not that that information isn’t important). I also feel that the video format works well for me and my super foggy brain. Reading articles can be really difficult to focus on.
It’s crazy how little awareness there is in Canada re: long Covid. I think of myself as someone who is fairly current, but wow, I just had no idea what the real implications were. Thanks for all that you’re doing ❤️!
All this misery from a gain of function virus. Thank you eco health alliance & Fauchi.
Yes absolutely awful. I read a book about a year ago that begun my long COVID recovery called “what the hell is long COVID”. Written by a lawyer in the US about his struggles with long COVID. He talked about realizing that this was a bio weapon and we had to start treating it like that. Spike protein is spike protein and it was made to damage. Now we have to rid our bodies of this if possible.
Thank you a million times over for making this video. This curse struck me down 8 months ago and the first 3-4 months were like a living nightmare (primarily neurological LC). I couldn't even take refuge in sleep because of the night terrors/waking dreams. You spelled out my journey almost to the letter and it's SO important to know that others are going through it - also that we will overcome it. I'm not all the way back yet, but I have come so far that I know it will end eventually
*Edit: following a low-histamine for three weeks elicited a massive improvement in my condition. It calms the inflammation down
I’m sorry to hear you are struggling!! Yes those first 3-4 months were hell! I’m happy you are doing better. I like your optimism, keep pushing and we got this!! Yes so much of the anti inflammatory and anti histamine diet are similar and so good for us long haulers. All the best to you❤️
Im in my 11th month of LC. My symptoms are all related to neurological problems as well. I realized for a few days that bevor my covid infection I was living a unhealthy stressful life. Constantly in a survival mode. I think that I had already a sick nervus system years bevor the infection. And then came covid and did the rest. Now I realize why I have LC and everything makes sense. My body stoped to funtion and said to me, hey, you cant live your life like you lived bevor, change your lifestyle and start over a new stressless life with a meaning to live for. I hope the time will bring the recovery.
I can relate a lot to this!! I also lived like you with a stressful life before COVID. I think when I got my second infection I was in way more of a relaxed state that that helped me heal and not make my long COVID worse.
You are ahead of alot if you know what’s going on with your nervous system! Took me 6 months. I really wish you all the best in your recovery.
I just realized a few months ago that i was having a nervous breakdown prior to getting ill with sarscov in early 2020.
I was taking care of my dad who was slowly dying from different issues and my mom was having multiple eye surgeries and she had to keep staying at rest and i was just nonstop running allover, takjng care of multiple acres of property and doing tons of laundry daily and i was up at all hours day and night helping my dad as he was so restless and having to get up like nearly every hour to go to toilet and i was hardly sleeping more than two hours a day and when i did fall asleep i would automatically wake up on alert whenever i heard them needing something or calling for me.
So i was on high alert mode and stressed out constantly with anxiety for many years started back when we took care of my grandma at our house and i think that started my lacking sleep with being up on alert to help my grandma all night.
So this was all over 6-7 years almost continuously with super stress and anxiety as i wasnt getting my business work done and that added even more stress and emotional problems.
So, i wasnt taking care of my health properly, wasn't taking my supplements as i should and i felt so fatigued.
I was just on sheer willpower and fortitude forcing myself to operate when i needed to because i couldn't let my parents down as i was the only main family helping them as i could be there at home at any time to help.
So i got sick with what i thought at the time was just a really bad flu, but it was the worst flu id ever had and had a bad fever, which i dont ever have much with cold n flu, and i had the worst chills like complete loss of muscle control and shaking so hard i couldnt even pour something to drink.
At the time, early 2020, covid was still supposedly an illness in another country on the other side of an ocean and i lived mire toward the middle of the country, so it never occured to me i had covid, but not until a year or two later had i heard all the symptoms list and it sounded like i had about all the major ones other than a lung infection or serious lung congestion. I had really bad coughing and severe sore throat and nearly a sinus infection but fortunately i didnt have any of the serious lung issues other than a bit of light congestion.
I guess i damaged my brain and nervous system due to the nervous exhaustion that i never really got treated for as it was a constant ongoing thing, and then the covid took advantage of the weakening of my nervous system to do even more damage because i felt like i was so brain dead i could barely think straight or comprehend reading or remember things if i has too many things to recall or i just had a serious bogging down, the brain fog, all the time and i still do on some days.
But ive lost eyes quality function and lost dexterity in my fingers and my dizziness, balance problem is worse and i feel much less coordinated.
My muscles lost a lot of strength and i just have no stamina hardly. I just have near constant exhaustion feeling and it makes my thinking worse when im so body fatigued. Many days i still feel like i have big weights attached to my legs and arms and body like gravity feels so much higher as im so weakened still.
Ive been this way still since 2020 and thought i was going to die as all this kept going worse, although i have some improvements, i still feel basically the same dysfunctions. Im doing a little better as far as brain functioning, but it comes and goes and some periods of days I'm just really disabled feeling, like i just practically have to stay in bed and other days im okay enough to go do a couple housecall jobs and take care of work and do errands but then im just back down to nil the next day or so.
Im still studying on different supplements and natural medicine.
I just found out about NAC and benfotiamine and ashwaganda and other herbs and supplements for nervous system healing.
But its just hit and miss as far as these things help it seems.
One of my biggest problems is just not able to get away from stress as its always daily thing dealing with my business and i am still so far behind after my dads situation and my illness then my mom passing away suddenly recently, and then having to take care of all her estate stuff.
My depression state got worse then i just get into bad miserable feeling periods feeling theres nobody left now, and its just unreal feeling, like its just not right.
At my age from what i can gather from some of these neurological research organizations working on this, i may not recover back to what i was, as i dont have as good immune system rebound.
I still have a lot of muscle issues, pains , already have a old back hernia injury i never had anything done about, which all the other stuff just seems to exacerbate it into a near constant jabbing pains.
I think all my nerves have gotten damage abs i still have a lot of problems with sleeping. Most of the time im just restless and cant stay sleeping as my pains wake me, or when i do sleep i dont feel at all like ive rested, i feel just as exhausted
Exactly the same for me, I have also made lots of changes,
Hardest thing that I had to overcome,
I hope 🙏 everyone with long covid feels better soon,
@@beatinglongcovidAdam do u still have heart issues or did they resolve? Can u describe them please
if you think it's long COVID, think again. It was always the jab. Us unjabbed people are all fine.
Thank you for taking the time to share. I emphasize with all you are going through and find it most reassuring that I am not alone. What a nightmare for those of us that are dealing with this.
Thank you for your kind words. I’m sorry to hear you are experiencing this as well. Please know you’re not alone. A vast many of us here were just normal folks before COVID did this to us. Please know you’re not alone!
How long have you been dealing with this for?
try taking #1. N-Acetylcysteine (NAC), also take: #2. quercetin and zinc together. #3 vitamin C
Has anyone had vision problems with long Covid? Eye pain associated with headaches going up and down on the back of the head?
Also, this virus can affect any system of the body.
Yes, this is due to micro clotting and vascular inflammation. It is also possible that there is endothelial damage but all seems to be due to lingering spike via viral debris or viral reservoir. My eyes clear up when I take clopedigril which is a blood thinner. The clots are a downstream affect of the inflammation from the immune response to spike. Step one, inactivate spike, there are multiple ways to do this ((BromAC)), step two mitigate and control the inflammation, step three thin your blood. While doing these, take cold showers, eat anti inflammatory foods, reduce sugar, slightly increase salt, watch your blood pressure do not exceed 135 on your systolic. Slowly increase your exercise. The truth of this is it needs to be rid from the blood. This needs to be regularly done until your body can take control back over all your autonomic processes. ((I’ve had LC for 3 years and I am finally recovering)) if you need help, reach out to me bryan0725 at g mail dot com
Yes and with my body its always something different everyday.
Hold tight. I'm also going through this thing. 😔 almost one year as well. Nowadays I also have neurological issues.
Thanks for the comment and encouragement. I really hope you start to improve soon. You also hold tight my friend!
Nice to run into this! I’ve been long hauling for 5 months, and I have ok days and bad days and weird days and scary days. It’s a nightmare, I miss my old self
I’m happy you found the video! I’m glad you are already having some ok days. As time passes and you incorporate more things to help you are going to see more and more ok days, and then maybe a couple of good days and then hopefully lots more good days. Hang in there friend.
Thank you so much for sharing your story. It resonates so much to what I am going through. Your tips are very much appreciated.
This is literally my symptoms. My anxiety is non stop since Covid. Ativan doesn’t touch it. I have derealization and I just don’t feel like I’m me anymore. It’s terrifying.
Hey Nicole I’m sorry you’re dealing with this as well. How far are you into this?
@@beatinglongcovid I’m just going on month two. This is the hardest thing I’ve ever dealt with in my life. I’ve never felt this bad. I’m relieved to know that there are others who have had similar experiences.
I miss ME.
I’m at a year long hauling now. I have neuro and cardiac and totally agree with the three subtypes. When you mentioned reading it was like BAM, right, I remember not being able to read or comprehend and at some point that came back for me. I also journal every day and I can’t emotionally go back yet, because my Long Covid was compounded by so many other terrible things like infant loss etc. but it was nice to be reminded that I have come forward in the year even if it feels slower than molasses. Thanx for the video’s, I totally agree that long haulers probably need audio over written word at the start for sure.
Hey thanks for coming by and watching! Wow you have both cardio and neuro! That must be so hard to handle. It is crazy to think how hard it was to read and comprehend at the beginning. I really thought I was losing my mind and didn’t have much time left..
I’m glad to hear someone else is also journaling, it’s so helpful to get the feeling down on paper, it also serves as a great gauge of our progress.
I am truly sorry you had to go through something so terrible as infant loss😔. I can’t imagine the sadness you are and have gone through. I hope that you can heal and recover from not only long COVID but also your deep loss.
You are very welcome for the videos. Im glad I could remind you on how far you have come 🙂. Some days when I have a flare or crash, it’s so hard to look back and see how far I’ve come, but it’s true look at how far we’ve come!
Please keep coming back and watching! Have a wonderful day.
Waa people just can’t believe what means to wake up everyday to long covid. I think the hardest thing I am dealing are the doctors who just don’t understand. People around who just forget that I am not myself. You did sooo much. I feel soo angry because this is my second LC. And I say to myself just go to sauna. But then I just don’t want 😂 Like a little kid. Thank you for the tips. I need to put extra energy to change something. The everyday pain is just to much. Respect for you, Jesus you have a newborn baby. This life is crazy. You even put effort to film your story. Thank you
Thanks for watching and leaving a comment! It’s hard when the doctors we visit don’t have a good understanding :(. I am sorry to hear you are going through a second long haul! So awful. Just do something everyday and you will get there again :). Yes having a newborn has been quite hard but I live on for him and my family.
Wow this is really great! A video I wish I had 2 years ago when I was first blindly going into this chronic illness.
Thanks for subscribing Josh! Sorry to hear you are also dealing with this for 2 years now 🙁
Amazing, I was also journaling (it's my habit for almost 10 yrs now) and it helped immensely with my mindset during long-covid. Thanks for this video and your channel!
Thanks so much for stopping by and leaving a comment. I love your channel as well and what you are trying to do. The journaling helped me so much. Even though I am new to it [1 year] it’s been so helpful as I really blocked out the first 3 months of my long haul. It has helped me to work on and relive that trama and work on getting through it and the PTSD long COVID has caused.
@@beatinglongcovid I think as well that trauma plays a huge roll in LC. For me the infection felt like a life threatening moment in my life. I thought I would die and had panick attacks because of that. And now Im here in my sympaphetic state.
Hey Matt, how are you? You suffered from LC two years and now you are fully recovert, right?! Greez from Germany
@@germanside7890 Yup, that's right :) I'm feeling awesome, thanks!
Hi. Your experience sounds very much like mine. It’s been exactly one year on. Mine began a few weeks after… burning in my temples, head pressure and surges of anger feelings for no apparent reason. It was bizarre but that was only the beginning of things that got so much worse. I had a rapid set of intrusive thought OCD which plagued me every waking minute of the day, I landed in a&e several times, suicidal, racing heart, derealisation, adrenal rushes which made me nearly crash my car, body aches, pins and needles in arms and hands, feelings of doom. The first 5 months were the hardest. I really didn’t want to be here. Every morning I woke up I’d dread the day ahead. The last time ended up in a&e I was prescribed mirtazipine which I’ve been taking alongside diazepam when required. But I must say at the begging it was constant for months now it flares up for a couple of weeks the I return to my normal self for a couple of weeks it’s like clockwork. Your video is a great help thank you
I’m so happy the video has helped you! You are not alone! I know what you mean, the first 5-6 months were so rough for me. I also shared those feelings you felt. They can be so hard to deal with and it truly was hard waking up every day knowing that the day was going to be so bad.
I’m happy to hear you found something that is helping you. Benzos are extremely helpful to those of us in this situation.
Hang in there. At the year mark is when you start so see some big changes 🙏🏻❤️
@@beatinglongcovid I’m
Having for days feeling like myself which honestly is the best feeling. I’ll never take for granted feeling “normal” I’m just hoping one day it fully goes away. Thanks again and take care ❤️
Thanks for shy your experience. You will help lots of people.
I have no words to describe how grateful I am to have found your channel. Thank you for sharing
YOUR story!! The same one my boyfriend has been struggling with for almost 3 years now (the neurological long covid). You give me HOPE for the first time in FOREVER!! Is there any way we can get in touch? I wish my boyfriend could have a quick chat with you… he is losing hope in Life.
Hi Valerie! Thanks so much for the kind words! I’m sorry that your bf are struggling ❤️🩹.
Yes absolutely please find me on Facebook. I will also be launching my new website this week.
Www.beatinglongcovid.com.
Will be lots more resources there soon.
Fastest way tho would be Facebook.
Hi Adam, thank you for getting back to us so quickly!! Johnny here (boyfriend)… trying to find you on Facebook. What is your Facebook page? Very much grateful. 🙏🏼
Just search my name you should find me. Adam Langdon.
Thanks for the video Adam I am only a month after Covid and off work due to fatigue and needing daily two hour naps sometimes four hours ! Wakes the pots and cooked myself some food and was shattered after that , reading definitely takes up some energy so watching a CZcams video is essential funnily enough I have been listening to my old music again 💗
Washed the pots
Washing the pots and eating is a massive step! Remember that. A little bit each day will help you in the overall long term. Time will be your best friend.
@@beatinglongcovid yeah I am playing old Finch songs and Underoath songs that I use to love as well the music is so soothing for me trying some of the apps tomorrow as well that you recommended thanks so much 💗
@@lizzielonglegs1980 I love hearing this! Same taste in music I think! Senses fail, Underoath, Rise Against, Hawthorne Heights and many more helped me get through my teen years which were rough, they are again helping me get through this mess!
Please come back and let me know if any of the app suggestions help you!
I’m so grateful for you for sharing this. I’ve suffered for a year and a half then as soon as I was getting better I got sick all over again😢
Of course! I am happy to share my journey if it can help someone. I am so sorry to hear that you’ve been suffering that long. I am close to that timeline now. I relate to the getting better than getting sick again :( that happened yo me as well. Got COVID back and December again and have had a backslide in my recovery.
Litterally had the same issue. Day 1 of long covid was panic attacks and it continued everyday for 2 months. Meditation saved my life! I was moving a bit backwards recently but you have reminded me to keep to the plans and get back into the grove of meditation and wellbeing
I’m so happy I have helped you! I to find myself forgetting to do my daily wellbeing activities and I have to remember to bring them back.
They defiantly help calm the nervous system and keep me out of symptom flares.
I hope you get back to feeling better soon!
Found your channel through Raelan’s interview and I feel like our stories are 100% the same. Ive had CFS for 9 years and was managing well, but then had Covid twice last year had an episode of serious anxiety and recovered but this last May I had a stomach virus and everything triggered and went haywire in my nervous system. I’ve never felt such mental anguish in my life and this entire time I thought I was having severe anxiety until I saw your video! I have hope now and will be taking all of this advice.
Ps- I used to love that Sense Fail album haha such good days
Ok ok ok. I have to just get into this!! You loved let it unfold you to! Jeeze. Soooo amazing.
Fun sorry time. I was able to attend their latest show in Toronto last November with still some LC symptoms. I bought upper balcony seats because I was worried about over stimulation. My ass was able to make my way down to the floor and sing my heart out to every song. This was a massive win in my LC recovery timeline. There were tears lol.
Please keep up the hope ❤️
Keep doing everything you can to heal your nervous system! It will help but it’s not an over night fix. It takes months and months to make small % improvements.
I wish you the best healing and the new senses song hell is in your head is great to listen to for us!
If you want more help find me on Facebook and hit me up I’m happy to give you more support.
I was obsessed with that album when I was like 15 haha it was all over my MySpace page of course 😅 and that’s amazing you were able to see them! Such a big win!!
And thank you so much this has been such a battle and I can use all the extra support I can get.
I tried to find you on Facebook but wasn’t sure if it was your profile?
@@HannahLucia it’s me holding my little son sitting on the bleachers at a football field 😀
Perfect! Just sent you a message
I also think I got long covid because I was working out already while I had covid and trained like a mad man. Thanks for sharing your story 🙏🏻
I feel your pain! I wish we could have known about the dangers of this sooner!
It’s awful and exhausting with long Covid. I’ve had it since last year started in February after I had Covid in January. I still have brain fog, headaches, head pressure and stay tired. It’s like I have energy for awhile then I just want to lay down. I already have dystonia and chronic pain and it made it worse. When I get headaches my pressure gets bad and I get dizzy and tired. I have to stay in a dark room with relaxing music or sleep. Also Tylenol helps. It’s like ibuprofen doesn’t do to good anymore. I hope you get some relief. I also noticed b12 vitamin helps my head pressure and headaches and allergy medicine.🙏🏻
I’m sorry you are also struggling with this!!
I also take a B complex and found it helps.
Best thing for my head pressure - ice hat on Amazon and peppermint halo roll on from saje.
Thanks for a very good summary. That could be my story, except that I also have MS - which in no way has made this journey any less painful. With MS came a numbing MS fatigue, dreaded by all. But the fatigue after Civid19 cannot be compared. I can easily sleep 18 hours a day. I'm glad you made it, and can only hope I see improvement soon because this just can't be lived with much longer.
Hi there. I’m so sorry you are dealing with long COVID along side your MS. I cannot imagine how awful that must be. How long have you been struggling with long COVID?
My nana has MS and I saw how hard that was for her. I cannot imagine your challenges. I’m sorry my friend that you are dealing with both.
Have you tried anything that has helped yet? Have you had any improvements at all of your long COVID symptoms?
Over three years in now. My LC was very similar to yours, but, thankfully, it is mostly now a thing of the past. If I eat a lot of sugar and overdo it re: lifting and exercise, a little bit of the mild symptoms can return. Had two subsequent bouts with covid, but no more LC. It DOES get better.
I’m so happy to hear this!!! Congratulations on feeling better! Amazing that you are back to lifting and exercising. Can you share some of the things that you think helped you the most?
@@beatinglongcovid Hard to pin down which variable made the biggest impact as I did a lot of supplements: Vit C, D, K2, selenium, zinc, Nigella seeds with honey, NAC, Quercetin, and a daily low dose aspirin + regular walks, and generally healthy diet (felt best when limiting calories--lost a few pounds).
Great info, thank you for sharing this. I'm wondering if they did a CT or MRI of your brain and if anything showed up there ? Also, did they do an EMG, testing nerve function? Keeping you in my prayers 🙏.
Hey thanks for the comment! Yes I had a brain 🧠 CT and MRI and all normal. That’s common for most of us long haulers I guess. I really feel like my nervous system is way out of wack. I have not had an EMG but will look into this one more with my GP, might help explain the tremors and wet sensations I am getting? Thanks for keep me in your 🙏🏻😀
So inspiring. Thank you. I do not necessarily have “long Covid”, but I have not been the same since becoming ill in 2018/2019. I have a lot of the same issues, weird symptoms that come and go, some get worse, it migrates through the body… just weird. Like an animal living inside
I’m sorry to hear you have been struggling since 2018! Any theories on what may have caused your chronic symptoms? Honestly when I think back I was having some issues in 2018/19 as well… even found old health journals I was doing and the symptoms were similar to what’s going on now!🤷🏼♂️ our bodies are crazy!
I have in total had 6 different versions of this, my first encounter with it was in Nov 2019 it had been around since June of that year but people were unaware of its existence and it affected my lungs, stomach, head after recovering I had constant stomach ache like food poisoning then it went to every couple of weeks then would go.
I think a videos on Vagus Nerve Stimulation, Brain Inflammation, Diet And Supplements, also how deal with the pain
Hey there! Thanks for the reply. I will add these video topics to the top of my list!
Dude I appreciate this video. I'm on the better end but the brain inflammation and sleep disturbances. Any ideas to alleviate this?
Thanks for the comment! I’m getting ready to put a bunch of individual videos together. Took a few weeks off to focus on a family.
I’m happy to hear you are on the better end.
For the brain inflammation I used a strict anti inflammatory diet, turmeric, an ice hat (honest amazon this, it was the best relief for the flares), Ativan.
Sleep wasn’t my worst symptom but not amazing. I used melatonin, sleepy time tea,
Sage diffuser with bedtime essential oil and a cold pack as needed.
Wishing you all the best! My biggest progress was in month 11!! Keep fighting
I had to make a clip of this for my wife. For months I've said "It's like a demon sitting on my chest", referring to when I have these adrenaline surges... It literally feels like something evil is spread across your chest, arms and neck. Probably where "Old Hag Syndrome" came from. Brain inflammation!
Absolutely I’m happy you were able to show your wife. Sometimes it’s hard for them to understand what we are going through.
Brain inflammation you got it!!
Do everything I did to calm that shit down.
God Bless you for the video. LC infection 😬 sound like my meningitis B I caught in 2021 April 28. The symptoms are similar to mine. The long term effects horrible 🤣. Copying skills, counseling (final in December 2022, on a waiting list), art 🎨🎭 therapy, music 🎶 , diet and exercise.
I’m sorry to hear you are struggling as well! Just looked it up and so many of the symptoms of meningitis are similar to long COVID! How did you find out you had meningitis? I hope you get better soon!
@@beatinglongcovid I found out while in the hospital 🏥. They did some test (spinal tap). I stayed about 3 weeks in the hospital and 2 weeks in rehab. The doctor 's 💊 request me to be off work for 3 months. I couldn't go back to work. My leave time was used up and later terminated from my job.
I get the neurological shit show about a week after infection (reinfection)..its like a delayed reaction....thanks for sharing LC 1 1/2 years now😒its like my nervous system gets jacked up..so hard to sleep. plus tinnitus HELL. HA when i was bed bound all I had was a vanilla tealite candle! The depression is chemical imbalance and dude...i was nordic skiing in alaska! then fking got nailed w it😢
I am a year in as well.
I’m sorry to hear you are also dealing with this demon. I got Covid over Christmas last year so just coming up to the one year mark. How are you doing now?
I’m going on almost 3 years all the same symptoms you had. Been on Zoloft which has helped but hate antidepressants but I can’t handle my symptoms with out it. Do you think I could recover while taking antidepressants then wean off?
Hey James. Happy to hear Zoloft has helped you. I also hate medications in general so I get what you’re saying. If you can’t handle your symptoms without it yet I think you still may need it. For me I tapered off my Wellbutrin and Ativan slowly. I had to get to a point in my journey where I was able to take that discomfort. Withdrawal from these things is no fun or joke so unless you are stable I think it’s best to wait.
As for your last question. I think you can recover while taking them. I was recovering slowly while taking both of the above meds I mentioned. When my recovery got to a point of like 75% normal feeling that’s when I started with one med. then tapered the benzo over like 4 months. Now I don’t need either but know they helped at the time.
Wishing you all the best and I’m here if you have more questions ❤️🩹🙏🏻
Where you currently vaccinated, during the infection?
I feel like I'll never get better... :( did you have any cardiac issues? Muscle weakness?
I can’t promise you will but I can give you hope! I had racing heart at the start. Not so bad as it would be pots, but it was there. I have muscle pain more than weakness. I have use ice packs for that and my heart symptoms as well.
I have muscle weakness and dizziness.
@@gentlebreeze_4842 u ain't the only one.. ...suxxx
Isn't fluvoxamine meant to be taken long term like other SSRI? And benefits start after 3 weeks or so? Or is it different? Thx
Hi there. In some protocols it’s used short term to reduce inflammation. If it’s used for OcD or as a regular ssri then yes it would be used long term to see those beneficial effects.
Old study and I’m sure there are newer ones by now:
www.thelancet.com/journals/langlo/article/PIIS2214-109X(21)00448-4/fulltext
Doesn't help when you have Fibromyalgia and Long Covid. I have symptoms I didn't know existed. Nothing seems to help. Some days the battle gets the best of me.
I would like to find out if Ivermectin will help long covid. I had covid and was hospitalised for 3 weeks. 5weeks later long covid cicked in. I went through a lot of negative simptoms but now i have bad itching rash. Tried lots of meds and creams but nothing helps. It is getting winter here and nights are cold. I can not get under the blankets because if i start warming up i start scratching. I see there is very little mention of covid rash. Have you any idea of what will help.
Hi there Marie. I used iver and pax during my long haul and acute phase. I was doing so much at the time that I don’t know forsure if it helped or not.
Haven’t heard a lot about rash but have heard it mentioned. Let me point you to the longhaulers Reddit. Please search rash in the top search bar.
www.reddit.com/r/covidlonghaulers/?
Could you please direct me to the info for DMSO and inflammation? Thank you.
No problem!
I found out about it from this book:
amzn.to/3TxrLRd
Here is the second book I got that talks even more about dmso!:
amzn.to/4awNArg
SHARING WITH A DEAR FRIEND WHO IS NOW RESORTED TO MEDICALY INDUCED 20 HR A DAY SLEEP TI GET THROUGH.....I.M VERY FEARFUL AS IT IS SLOW SUICIDE...TEARS
I’m so sorry they are experiencing this! I hope they make it and pull through 🙏🏻❤️🩹
Can you go into a little more detail on some symptoms? Im having a hard time figuring out what I have going on. Im on the long haulers FB pages but I cant get anyone to approve my posts.
Also do you have any v&x? I didnt not receive any j@bs.
Thanks
Hey man. I can forsure go into more detail for you. How long have you been dealing with these strange symptoms.
To answer your first question no.
These platforms even CZcams delete comments with anything to do with this so may be best to reach out to me on Facebook. Or you can email me at adam.s.langdon@gmail.com.
I will do my best to try and help and go into more detail.
Try organic thyme ,steeped in hot water ,cleared my chest in two days ,it works , three cups a day ,two days .
Had any experience with the ”impending doom” feeling?
Absolutely. Early on that one went hand in hand with my constant fight or flight and dp/dr!
It was a hard on to get through. Time was the best for this and it slowly faded away. I also used Wellbutrin for this and think it might have helped.
Reducing my brain inflammation also helped all of my mental health symptoms.
@@beatinglongcovid My God.. Its something else, like fear beyond fear…
Did you have fiber neuropathy? Like my veins on hands and feet were more pronounced and felt tingling
I am not sure what to call what I had in terms of my nerves. But I can tell you I had and still have bulging veins on my feet. I also had a wet sensation for months with my right toes and foot. It went away, but since reinfection a couple of weeks ago has come back! LC is such a mysterious disease 😕
@@beatinglongcovid I had this sensacionion as well in my toes. They felt like oily inside. Completely, I can't explain exactly, and also my feet started burning, but at the beginning I didn't associated it with covid, since the acute phase was very mild. Nowadays when I look back I think, like you, my biggest error was going back to gym and sport activities very fast after the acute infection. To be honest I have tought it could affect me in the way it did. I was also feeling safe because of being vaccinated, but...as we see the jabs did not help that much.
I also 100% think when I went right back to the gym a couple of days after getting COVID that brought on my long haul. My brain was already under attack and super inflamed from COVID and then I put extra exercise inflammation on top of all that! Recipe for disaster. With my reinfection thank god I learned over the lasts years lessons to not repeat my mistakes. Have been radically resting for the last 3 weeks.
I to had no idea that all these things that were happening to me were long COVID in the beginning and was so scared! Hoping these videos help others see what we are going through sooner than it took us to find out.
@@beatinglongcovid Think I made this same mistake. Argh ! 🤦🏾♂️
Hopefully you recover quickly, and thank you for creating this channel.
Honestly wondering - is it at all clear whether "LC" is from the Spike protein found in the virus, or the Spike protein generated by the shot? I've heard both are feasible, so I'm genuinely interested. Are there people here that have LC who have never had a covid shot?
That would be me.
To me they are one and the same.
Damage from spike is damage from spike unfortunately 😔
@@beatinglongcovid I only hope the general public understands what you just said very soon. I'm sorry that happened to you...I'm worried about my sister, as she works in healthcare, and has had five doses so far :(.
Do you find that people aren't open to calling it "long vaxx" instead of 'LC"?
Just contracted Covid yet again...3rd times, unbelievable..Fatigue , balance issue's...suxx
I’m so sorry to hear that! Make sure you follow a good protocol to get you back to optimal health and get some antivirals!
I just passed reinfection, been about 2 months since that. Doing ok now.
@@beatinglongcovid What anti viral would u suggest
I would try and get pax or iver. I’ve taken both for my reinfection in December. Nothing is off the table when it comes to avoiding long COVID again (or making my LC worse) for me.
@@beatinglongcovid pax? N ivermectin?
Did you have bad reactions to meds or supplements? Like they flare up your symptoms? Thx
Some medications made my symptoms worse. Mostly ssris. Some supplements like 5htp also did. Something to do with the serotonin pathway.
Are you having bad reactions to everything you are trying or just some?
@beatinglongcovid i don't know if my neurological symptoms were caused by covid or from an SSRI. I suspect the latter. I took an SSRI for a year for anxiety and panic disorder and, after tapering off, ended up with neurological symptoms. I got covid at the same time, so I'm not sure where the damage came from. I react badly to almost everything, from meds to supplements and even foods. I'm currently on a low histamine autoimmune paleo diet and have seen some improvements with my symptoms but still in pain. How have you been doing?
@beatinglongcovid 5htp made me feel awful. And i took a microdose. As for SSRI, my doctor reinstated twice because he says i had a "relapse" in anxiety. The first time it didn't work out, the second time with a different SSRI I did found some relief after a while (the first 3 weeks where terrible) but ended up stopping it a year later because of side effects , sometimes paradoxal reactions and simply not wanting to be on it for the rest of my life. I'm very frustrated with the medical industry, especially psychiatry and neurology, for not trying to at least understand what is going on and blaming it on mental illness. There is no shame in mental illness, but I would know if my symptoms are anxiety based or not.
I apologize for the rant... I'm just putting my thoughts out there.
On a last note, people with long covid or SSRI and benzo withdrawal and chronic fatigue syndrome seem to have very similar symptoms, so I'm wondering what is going on and how to fix it.
@@Eliokd aw I see. I think your taper withdrawal had you in a weakened state already and the CNS was probably in overdrive. Then you got hit with COVID which also screws up the cns and brain so you got a double whammy and your brain didn’t have a chance to catch up.
What ssri were you taking for a year? Did it help?
How far along into this now are you?
I’m doing better thanks for asking. Things have been quite hectic for the last 3 months but I’ve seen an uptick in my life over the last 1-2 weeks.
@@Eliokd absolutely! When I first put in my symptoms I needed up in the benzo recovery subreddit. They are so similar! I was taking Ativan at low doses when I was fist dealing with long COVID and didn’t know what was going on. Ended up taking for about 6 months and then tapered off with the Ashton manual.
I have a colleague at work who came off an ssri last year and had an awful time with withdrawal and more horrible anxiety. It’s so hard but he is doing better now. Hang strong you will get there
if you like music.... prezence good artist he makes alot of anti-gov/jab video's - the song scam is good
How many shots did you get? Me and my entire family got Covid once, took a few supplements had no real illness, never caught it again,
0 shots for us and no reinfection
Hi Helen. I didn’t have any. I’m happy you guys never got reinfected. I have had Covid 3 times now. I have little ones who brought it home from daycare unfortunately. Wishing you and your family well.
@@beatinglongcovid thanks for the reply, yes ours came from the kids as well, there seems to be a huge correlation between received and un received on reinfection and health afterwards between my close friends and family. Seems to be a massive amount of censorship online and a lack of transparency, I do feel cvd was made and released on us! glad you have improved health wise and good luck
What about your heart rate nowadays?
It has defiantly been higher since my reinfection but has slowly been coming down over the last 2 months. There have been some days when I couldn’t get it to calm down and I have utilized my low dose beta blocker.
Did anyone get any gi issues as well?
I have strange pain in my gallbladder area and have had it checked at the hospital and I’m all good. It’s strange it only comes up when I’m in a flare. I’m thinking it’s to much inflammation. How are you doing now?
It's nervous system. A lot of people say the same. When you know what it is, the recovery happens.
🎉 Best wishes
@@carolnascimento7494 absolutely so imperative to treat the nervous system!!