Beyond the Stories: A Conversation with a Vulvar Cancer Patient
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- čas přidán 6. 11. 2022
- Introducing "A Conversation on Vulvar Cancer", the third video of our Beyond the Stories video series, funded by Michael Smith Health Research BC.
This video features Dr. Lynn Hoang, an anatomical pathologist and Carly Allen, a GCI Patient Partner. Carly sheds some light on the vulvar cancer journey and her experiences navigating life after vulvar cancer treatment. She talks about being able to make a difference and share her story through her Instagram and blog called "Ostomate and the City". Dr. Hoang also shares some of the existing challenges in vulvar cancer care and research, highlight some areas of current research interest.
Thank you to Carly Allen and Dr. Lynn Hoang for making this video possible. Thank you to BC Women’s Health Foundation, VGH & UBC Hospital Foundation, BC Cancer Foundation and UBC Faculty of Medicine for supporting this project.
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What you can do today:
To decrease your risk of vulvar cancer:
- Get the HPV vaccine, as some forms of vulvar cancer are HPV related. If you are concerned that you have vulvar cancer: 1) Please ask for a referral to a Women's Health Clinic or a gynecologist 2)
Ask the provider you are seeing "Would a swab or a biopsy be appropriate?
If you have vulvar cancer:
- Ask your gynecologic oncologist: "Is my vulvar cancer HPV-related? And how does the HPV status of my vulvar cancer affect my treatment?"
- Less aggressive surgery has been shown to be more appropriate in HPV related vulvar cancers. - - More aggressive surgery is associated with improved survival in non-HPV related vulvar cancer.
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Learn more about Ostomate and the City:
Instagram: / ostomate_and_the_city
Blog: ostomateandthecity.com/
Learn more about the GCI: gynecancerinitiative.ca
Learn more about MSFHR: www.msfhr.org
Follow us on social media!
Twitter - bit.ly/3jsViHM (@GCI_Cluster)
Instagram - bit.ly/3dRQsCF (@gynecancerinitiative)
Facebook - bit.ly/3knUgOw
You are an inspiration
The voiceover bits over the interview audio are headache producing. But thank you for this video, since there isn't enough education/information on Vulvar cancer.
Thank you so much for sharing. I'm waiting for biopsy results as I've been suffering for a long time.
Im having a similar problem. Diagnosed in 2014 with cervical cancer. Went through chemotheraphy and radiotherapy. My problem back then and even now is that GPs don't take you seriously. They prescribe medication and antiotics that don't work. After 18months of bleeding and severe pain I insisted that I be seen by a gyneacilogist. Only after seeing her was a biopsy done and it was determined to be cervical cancer. I have since changed my GP. Apart from eveything else I am having excruciating pain in my vulva. He has prescribed antibiotics for the third time. I suggested me seeing a gyneacologist and his response was we can fix this theres no need to see a gyneacologist. How much longer should I suffer before I get help. Since 2018 I have been to the ER 3 times and on each visit I was admitted for 5 days or more. But the hospital investigation was for a blocked colon and kidney problem. I will take it upon myself to make an appointment with a gyneacologist to have a biopsy done so we can figure out what the problem is.
What an amazingly strong woman. Yes, there’s no choice but to go forward, but what she had to deal with…
This story is important to be shared for all women to know that you can struggle to get diagnosed with vulvar cancer even now in 2022/2023.
And sadly, her statement that employers now vs then isn’t true. Work is still shit and people will still be treated like replaceable cogs, even requesting a selfie at the er.
There are sections with overlapping voiceovers - it makes that section incomprehensible. Like around 11:00 minutes in when the radical vulvectomy is being explained.
After a year, i finally went to see my doctor. He told me i had cancer and was referring me to specialists asap. They did a biopsy and was told it was vulva cancer. I went through the exact same emotions and pain from my operation and radiation. It was a long, hard road. I recently found another tumor, and yet another biopsy was done. I'm waiting for the phone call.
My gyno is trying to send me to a Dermatologist. I'm not wanting to go to them, I've been in pain for 10 months. 😢 what would you suggest?
That is strange but not so surprising. Your gynecologists trying to get rid of a more complex work and responsibility. Might as well call dermatologist office to see if they would be helpful with whatever your condition is. Otherwise, maybe change your gynecologist.
That’s the problem I knew that’s automatically what the doctor via nurses automatically assume about vulvar cancer is it’s warts and it makes you uncomfortable to even have it looked at and it’s hard to concentrate
I wonder if many women with vulvacancer have used corticosteroid ointments with BHT on their vulva in the past?
Hers was hpv related. And steroids do not cause cancer, but not using them with some certain conditions can certainly cause cancer.
@@augustek5382 corticosteroids and BHT do cause cancer, diabetes and Cushing. A percentage of the women who use these ointments get cancer.
@@augustek5382 Its a lie. Promoted by Phamacy
@@augustek5382 Hers was not HPV related. She says it clearly in the beginning.
The other way to avoid is to avoid any kind of intimate relationship your answer is automatically no
Wow
OMG. You actually listened to this video and still posted it. The AUDIO is terrible. So unprofessional.