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I have a 7.5 cm mass that has been diagnosed as a reoccurring Berlin cyst. I’ve had two marsipuplizations and both times it came back within a month. This time I’ve let it go for three years as it wasn’t causing any pain just discomfort. It wasn’t until I learned about vulvar cancer that I became worried and went to my gynecologist. He immediately said it’s a Bartholin cyst, and will do another marsupialization July15th or a complete gland, removal, depending how it goes when he’s in there. i’m terrified of being misdiagnosed as his reason for thinking it’s not cancer was because I’m not yet 50. I am 47 in June! I feel doctors don’t take you serious and this could ultimately be serious. I had a hysterectomy at 27 so never went for Pap smears, either then discomfort and constipation. It doesn’t really bother me often. It helps to sit on the toilet at work to relieve pressure because of the size but I’m sure they don’t understand because comments have been made. What symptoms have you noticed before being diagnosed, I have constipation and occasional sharp pain in the groin leaving me struggling to walk at times. I am so scared because it’s been so long with the mass and how often and fast the reoccurrence. The dr was shocked by the size but said “it’s not the largest he’s seen” Please don’t mind the grammar and spelling as I’ve been Listening toyour video while driving. I have to use talk to text so if this comment does not make sense, please understand. I’m not trying to compare I just would like to know some of your symptoms before you were diagnosed officially? If it’s too personal to discuss, I totally understand. I want to thank you for reaching out and sharing your story because of you, I am having my surgery July 15.

You are an inspiration

OMG. You actually listened to this video and still posted it. The AUDIO is terrible. So unprofessional.

Thank you very much ! ! RS, MD, FRCS Canada

After a year, i finally went to see my doctor. He told me i had cancer and was referring me to specialists asap. They did a biopsy and was told it was vulva cancer. I went through the exact same emotions and pain from my operation and radiation. It was a long, hard road. I recently found another tumor, and yet another biopsy was done. I'm waiting for the phone call.

My gyno is trying to send me to a Dermatologist. I'm not wanting to go to them, I've been in pain for 10 months. 😢 what would you suggest?

I was recently diagnosed with stage 4 vulvar cancer. So scary.

Im having a similar problem. Diagnosed in 2014 with cervical cancer. Went through chemotheraphy and radiotherapy. My problem back then and even now is that GPs don't take you seriously. They prescribe medication and antiotics that don't work. After 18months of bleeding and severe pain I insisted that I be seen by a gyneacilogist. Only after seeing her was a biopsy done and it was determined to be cervical cancer. I have since changed my GP. Apart from eveything else I am having excruciating pain in my vulva. He has prescribed antibiotics for the third time. I suggested me seeing a gyneacologist and his response was we can fix this theres no need to see a gyneacologist. How much longer should I suffer before I get help. Since 2018 I have been to the ER 3 times and on each visit I was admitted for 5 days or more. But the hospital investigation was for a blocked colon and kidney problem. I will take it upon myself to make an appointment with a gyneacologist to have a biopsy done so we can figure out what the problem is.

The voiceover bits over the interview audio are headache producing. But thank you for this video, since there isn't enough education/information on Vulvar cancer.

I wonder if many women with vulvacancer have used corticosteroid ointments with BHT on their vulva in the past?

If men had fallopian tubes this issue would have been recognized and dealt with long ago. How long did it take for breast cancer to be given the high profile it deserved? A long time because it was a "woman's disease. You may think we've come "a long way, baby" but in fact woman's health issues are not a #1 priority to the medical world.

That’s the problem I knew that’s automatically what the doctor via nurses automatically assume about vulvar cancer is it’s warts and it makes you uncomfortable to even have it looked at and it’s hard to concentrate

The other way to avoid is to avoid any kind of intimate relationship your answer is automatically no

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I agree being single is better and heck why take a risk on a guy that will cause your cancer to be worse or the reason why you got the hideous vulgar type cancer in the first place because the guy is definitely at fault and needs to be cast out and using a bidet is the most ideal.

This story is important to be shared for all women to know that you can struggle to get diagnosed with vulvar cancer even now in 2022/2023. And sadly, her statement that employers now vs then isn’t true. Work is still shit and people will still be treated like replaceable cogs, even requesting a selfie at the er. There are sections with overlapping voiceovers - it makes that section incomprehensible. Like around 11:00 minutes in when the radical vulvectomy is being explained.

What an amazingly strong woman. Yes, there’s no choice but to go forward, but what she had to deal with…

Wow

I’m also red & inflamed down below. Please 🙏. I’m very worried. 🙏

Hi . Iv had burning down below for 2& half years. Iv been given estrogen but it’s not working. Iv tied lots of creams but still burning . My doctor doesn’t seem to be able to help me . Please reply to me as I’m worried . Thank you. I’m in Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 . X

Thank you so much for sharing. I'm waiting for biopsy results as I've been suffering for a long time.

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Thank you for this video! I just had a salpingectomy this week to prevent ovarian cancer and pregnancy. I have a gene mutation - wondering if any studies show if the risk reduction for those with a mutation is as significant at those without?

It's has been a great improve on my life and health since I started using herb I'm proud to say i Beat Cancer with his herbs thank to Doctor Alued on CZcams

It's has been a great improve on my life and health since I started using herb I'm proud to say i Beat Cancer with his herbs thank to Doctor Alued on CZcams

Maybe a weird question, but would it be possible to replace the Fallopian tubes with another tissue. This way younger women at risk and willing to get pregnant could still have a pregnancy ?

What about women getting ovarian cancer at the age of 30 or younger ?

Awesome work Gillian and team!

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Thank you from Sri Lanka.