When the Earth Moves (Quand la Terre Bouge)
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- čas přidán 11. 09. 2024
- Yannis's lifelong dream of traveling had finally become a reality when the unimaginable happened... his adventures were slowed to a halt by the sudden onset of mysterious symptoms. Yannis was suddenly living in a world that felt like it was moving all the time, even when he was still. That's because he had developed a rare vestibular condition called Mal de Debarquement Syndrome (MdDS). Yannis found himself trapped and desperate, unable to explain their condition to friends and family. However, a glimmer of hope began to appear when he discovered VeDA and started his mission to raise awareness. By spearheading the creation of a French-based VeDA organization, l'Association des Désordres Vestibulaires (ADeV), Yannis found a sense of purpose.
For more stories about vestibular patients on their journey to a life rebalance, you can watch the 6 episode docuseries the Life Rebalanced Chronicles:
vestibular.org...
This video was produced by Unfixed Media, a media production company that shares and elevates stories of humans living with chronic illness and disability. Explore more projects like these at unfixedmedia.com/
VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at vestibular.org...
If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit vestibular.org/
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This is a great testimony of who you are. MdDS Warrior here going on 5 years. I am not alright, but I carry on with my life.
Thank you for sharing your story. The one thing I miss the most is traveling through Mexico (lived there many years),Canada, and Central America. . Hopefully, I’ll gain that back soon.
I’ve become symptomatic again, but stories from my fellow Life Rebalanced cast mates is helping me.
Excellent job Yannis 😊
Hats off to Yannis for all he has achieved since developing MdDS. Suicide was never an option for me because I have familial MdDS and need to be around if either of my nieces or nephews ever get it (they have some of the predisposing factors, but not all, thank heavens). But MdDS can be a living nightmare so I am immensely grateful to the dedicated researchers who have done great work, especially in the last decade. I just hope all that screen work Yannis is doing won't prolong his symptoms and wish I could send him my remission as easily as I can type this message.
I empathize with you my friend. I have MdDS as well. Things can improve, keep trying. 🙂💕
Find out I’m not alone has been huge. Especially other young men with vestibular disorders.
I have pppd/mdds and vestibular migraine. 14 months now. I also went through the process of not wanting to be here at my lowest. I find driving and aeroplane travel make me feel normal again. Im ok but also angry. Im determined to get better.
All the best 👍