#99: Skeptical about taking Parkinson's medication?
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- čas přidán 10. 04. 2024
- Check out our latest interview with Dr. Patel where we talk about MDS's approach to medication with their patients, their reaction to taking or not taking medications, and much more!
You guys have been such a great source of information! I am a 36f just diagnosed a couple weeks ago. I’m on carbidopa levodopa 3 times a day and it’s been a huge difference on how I feel- been having issues on it not lasting the whole day so we are working on possibly going to 4 a day but I honestly didn’t even realize how bad I was until I took the meds and felt more “normal”. Thanks again for doing these videos it’s so nice to not feel alone on this journey 😊
Good topic! At some point, we will likely deal with severe off periods. I feel like the severity is due to my addiction to the medication. Like withdrawal symptoms. Perhaps starting later after diagnosis will extend the addiction severity further into the future. We must make allowance for so much they don’t yet know.
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Movement Disorder Neurologist Dr. Patel is helping us along our PD journey.
Great video!
Four years since diagnosis and no regular medication being used here but that may change soon due to the dystonia I'm now getting in my hands and neck.
Great discussion. The insensitive doctor that initially diagnosed me suggested C/L. When I said I would like to hold off for awhile and see if through exercise I could wait a bit he looked at me as if I was crazy and said, "You'll be in a wheelchair in 5 years"! I was scared, I had just rec'd the diagnosis and needed to digest hearing, you have parkinson's disease. There is a very legitimate reason why meds scares me (long story) but I also only have one kidney and my fear is side effects of meds taking a toll on my liver and or kidney. I have since started on C/L and it's made a huge difference. My fear is the progress of the disease and more and more medication and again the side effects. I'm thankful for C/L but still fear when the time comes to add more medication and the possible side effects. Anyone else out there with one kidney, if so have you notices issues?
The way it was explained to me by my neurologist was that the carbadopa levidopa is the gold standard of Parkinson’s meds but that eventually your symptoms will progress and the c/l will not keep up with the progression so she suggested I start with mirapex and azilect until my symptoms get worse. I started falling and breaking bones about 3 years in and my doctor suggested I start the c/l and I did. Now 6 years in and when my meds wear off, I basically don’t move or I move in slow motion and my neck and back pain come back immediately.
I was falling for several years before diagnosed. why so many surgeries before a suggestion of PD ?. There needs to be much more even with The MDS
Love this podcast. Thank you sooooo much. Diagnosed almost 2 yrs ago. Take C/L 300 mg 3x a day. My problem is FOG and falling. Is there anything else I can take for this? When I first was diagnosed the Dr prescribed 1.5 the first week followed by .5 increase each week. Ended up with 3 pills (300mg) 3 times a day. Is there a max of C/L per day dosage? I have found that if I add 2 pills at
I was diagnosed with PD 1 year ago, tried cl, it made me so sick to my stomach, switched to Mirapex , much better. I don’t have tremors but I freeze up a lot. I’ve got OA too, so I’m very stiff anyway Gets depressing sometimes
How do you measure the meds to the exercising to the parkinson's? How did you know you're sore from meds or parkinson's or exercising? I increased my exercising when I started my meds; both are tools to wellness. 🤷♀️ i don't know what I'm doing... how do you?
Does anyone know if michael J fox had DBS?
Dhivy
Not Skeptical. I do not yet have tremor. As soon as I do and the shaking interferes with my handling things I'll start on meds.