Drs. Pedram Hamrah, Anat Galor, and Gabriela Dieckman Discuss Neuropathic Corneal Pain
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- čas přidán 28. 10. 2018
- Ocular discomfort is one of the most common reasons for patients seeking ophthalmic care, with millions of patients diagnosed as dry eye disease. However, a subset of these patients have chronic neuropathic corneal pain (NCP), that are related to diseases and surgeries, as well as systemic conditions and therapies, that may mimic dry eye disease and are thus under diagnosed. While NCP is highly debilitating and poorly understood condition, it is a treatable condition if diagnosed properly, through a combination of nerve regenerating eyedrops, oral and device treatments changing nerve function, amniotic membranes, and life style changes, among others. Early intervention results in more rapid improvement in patients. Drs. Pedram Hamrah, Gabriela Dieckman, and Anat Galor explain the disease, discuss treatment options, and provide several patient testimonials.
I’ve had over two dozen eye visits since April 2021. I self-referred to a local corneal specialist who diagnosed this in September 2022. I’ve tried about everything he can think of, so I’m scheduled to go to Boston late summer. This gave me some hope. Fingers crossed.
I cried when I watched this video. I have had excruciating eye pain for three years with no help from the many ophthalmologists I have visited all over the country. My last corneal specialist always insisted that my eyes look great. He never believed me- he thought I was an hysterical woman. I found Dr Hamrah by reading the article about him in The Wall St Journal. Finally a doctor can possibly help me. I look forward to my appointment with Dr. Hamrah!
That has been my life story for the last 26 years after a hair dye chemical burn in my eyes 😢
what do u feel?just pain in the eye sometimes its severe and sometimes its not?
Im suffering for this too
@@husseinrahawy8683 its sudden
@@schillerclan 😭 i feel you but i did not surrender until right now
I'm experiencing the systems of this disease. Thank you for this video. It brings me despair to realize this is what is happening to me after LASIK but at least there is some hope.
THANK YOU SO MUCH FOR CREATING THIS VIDEO! I've had CN for 16 years. I remember the Stone Ages when no doctor believed me and would just tell me I had a little dry eye and they couldn't understand why my pain was so severe. "Pain without Stain". Ugh. Heck, just recently my, now former, neurologist told me to do mindfulness meditation after he tried only 2 "different" pain meds on me (gabapentine and Lyrica) both of which had severe cognitive side effects which I'm still recovering from a year later.
This disease has destroyed my life. I didn't meet the love of my life before the pain started so I still haven't met him. I'm 43 and apparently hitting peri-menopause so it looks like I'll never have kids unless I adopt. But the disease has also destroyed me financially since working is extremely difficult. So without a way to support an adoptee, no one will let me adopt.
I feel like a total loser because I live at home with my parents. They have to do so much for me including simple things like running errands. If anything happens to them, I don't know what I'll do.
I admit I'm sooooo angry at the medical community for tossing me aside. I desperately want help and I desperately want to go to Boston but I don't have the money and my life is slipping away.
Nevertheless, I'm so happy to see progress in the awareness of this condition so that future sufferers can get help before their lives are ruined.
@Sad Gamer The only thing that has had any affect for me is Cymbalta. It's taken the edge off. I suggest chatting with some people in our support group here: facebook.com/groups/1713169018917451/
We share all kinds of treatments we've tried. Each person seems to have different reactions to different treatments.
Kids, even after you know what life holds? don't even try. Life is of no worth
Did you end up being able to go see Dr. Hamrah?
@@alizavirani3593 I have. He will prescribe serum tears and lotamax.
Awesome! That’s what he prescribed me and it’s working. Sending you lots of positive energy.
A great and comprehensive information about this new corneal disease
whats the feeling of it ?
Im six years suffering for this and im so thankful for this video
Problem solved or not
I'm 99% sure this is what I have 😢😭 3 months in suffering & constant pain ... I will definitely be getting tested!!
what do u feel ? just pain in the eye sometimes its severe and sometimes no?
@@husseinrahawy8683 did it resolve?
@noorul Huda nope just little of management
@@husseinrahawy8683 what steps you took for managing this issue? I think I have this but its only my right eye which is problamatic
what do you feel now? I also have pain in one eye
@@noorulhuda4729
This disease is truly a nightmare..3 years and still going..
what do u feel do u feel just painin the eye and sometimes its severe and sometimes no?
do you think lasik is worth the risk?
Thanks for researching about this nightmare disease. I live in Montreal and since I have so much trouble working because of this disease, I dont have enough money to get a trip to Boston and meet dr. Hamrah and get myself checked up by the confocal...
Hi Christopher,
Check out our support group: facebook.com/groups/1713169018917451/
There are a lot of us in that exact same boat (including me). And we're trying to compile a list of doctors/clinics in different parts of the world. It's still in it's infancy but we try to add to it every week.
Plus we want to hear your story and support you in any way we can.
Hi Christopher, Im in the same boat as you! Im also from Montreal and I cant seem to find a specialist that has any idea why I have eye pain...
I’m so sorry this’s very overwhelmed
what do u feel? just pain in the eye sometimes its severe and sometimes no?
There are doctors at Vancouver General Hospital I believe that assess neuropathic pain, but I'm sure there must also be someone in Toronto. Try looking for a neuro-opthamologist at your local hospital and tell them you think you have corneal neuropathic pain. Finding someone who believes you is half the battle! It's worth it though. I saw Dr. Hamrah and am halfway through the treatment plan and have had no pain for the last three days after a year of suffering.
What is the specific name of the machine they look at to see the nerves in this video ?
Confocal microscope 🔬
Really painful to have this thing, cannot even work or do anything
I suffer from this disease, I was 6 months without knowing what it was that made me feel so much pain, I am a little better but without living a normal life (I can not see screens for a long time for example). I hope you can find the cure or an effective treatment that reaches the whole world, I am from Argentina and it would be impossible for me to go there to try some of their treatments. I know many people from less developed countries that suffer from this and without knowing yet that they have, I try to help him at least in South America.
How are you doing now?
I am from Brazil and I also cannot visit doctor Hahram. Did you get better? What can I do? There is serum tears in my country but there isnt a doctor like Hahram. What can I do? Pleass help me.
Unfortunately, corneal neuropathic pain seems to be very rare or unfamiliar to doctors here in Africa. As a result, I have been struggling without proper treatment and in extreme discomfort.
The pains I experience on a daily basis have been debilitating.
lam reaching out in hopes 🥺that someone may know how I can obtain proper treatment or management for this condition. Any referrals to specialists, resources, or advice would be greatly appreciated.🥺
I’m having a severe eye pain problem after lasik surgery. I have done all the treatments of dry eye but nothing works. Today my doctor told me that you might have corneal neuropathic pain and it’s not curable.
Please let me know where are you located so I can see you!!
I’m so tired of my problem. It’s been over 5 years now. Please help me out
No that’s not true call this Dr. I have friends around the world who have virtual appointments with this doctor and they have improved 90% IVIG is one of the treatments. Please don’t please do not give up I can help you with the information
@@Betzabeth87006 Which Dr.?
Ur problem solved or not
Which refractive surgeries did the patients in this video have? LASIK or PRK? He got pain 5 years after surgery.
Of the post-refractive surgery patients Dr. Hamrah has diagnosed with CN, how many are PRK patients as opposed to LASIK patients? Is there any notion that PRK is less likely to cause Corneal Neuralgia than LASIK?
It can happen to both PRK and LASIK patients. I developed it following PRK in 2016
0:17 Surgery for what?
He is probably talking about refractive surgery like Lasik or PRK.
Interesting how they leave out the fact that it was probably LASIK or PRK. We need even more doctors speaking out against what these surgeries do to people.
This video was a revalation to me today ,since having catheract surgery x2 years ago began having severe eye pain 4 months after surgery,went constantly back to Opt asking why I was getting this pain,he kept telling me it was migrains,I told him 'pain not in my head' but as though eye ball was going to blow up,the pain was so bad,',then a year later went for an eye test and told me sight in my right eye was as bad as before had surgery(said it hadn't worked,so he booked me in for laser treatment,which I went along with his recommendation,now 4 months has passed now since this treatment and the pain has come back even worse now.I live in the UK and at a loss to find anyone to give me a definate answer as to what is wrong.The pain is so debilitating ,I actually groan all day long,eye watering ,feel as though there is glass in my eye.If anyone knows who to go to in the UK I would be grateful to find out what's wrong.
Moorefield's eye clinic Dr. Clarke in London has confocal microscopy. There's a doctor in Newcastle as well (Professor Figueiredo) but he's probably got a longer waitlist. If you get into Dr. Clarke for the imaging you can then possibly book a telephone appointment with Dr. Hamrah. Dr. Hamrah's treatment seems to be working on me and I'm only halfway in - so there is hope.
Gabapentin 3 times a day
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