Common Comorbid Conditions: Long COVID, ME/CFS/FM, & Post-Viral Illnesses

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  • čas přidán 8. 03. 2021
  • Note: The intention of this video is not to provide medical or clinical advice, but rather serve as an informational tool to help guide discussions with your medical care team, if applicable.
    In this one hour video, Drs. Bateman and Yellman address common symptoms expressed by COVID Long Haulers.
    While the event was provided for the benefit of the long COVID population, the topics discussed remain highly applicable to people with ME/CFS, FM, and other post-viral illnesses.
    -Long COVID symptoms/duration
    -Post-exertional malaise (PEM)
    -Orthostatic Intolerance/POTS
    -Dysautonomia
    -Small Fiber Neuropathy
    -Mast Cell Activation Syndrome/Hypersensitivity Triggers
    ****************
    This video is not intended to be a substitute for professional advice, diagnosis, treatment or the medical recommendations of your medical team.
    We advise viewers to carefully review and understand the ideas presented and seek the advice of medical providers with any questions you may have as it relates to your patient-specific situation.
    ***************
    Funding for BHC educational programming (which includes provider development & presentation time) is provided in part by: R. Harold Burton Foundation and the Joseph & Kathleen Sorenson Legacy Foundation.

Komentáře • 22

  • @dianecarubia1099
    @dianecarubia1099 Před 3 lety +22

    Thankyou Thankyou!! i am 18 years me/cfs and i wish someone had told me this early in my illness. I have had no treatment or care and dealt with this on my own. I feel it is now deep seated and i have had crashes at least 10 times per year some very worse than others. I am 57 and have lost most of my life but you have given me some great tips and a fantastic explanation of what is happening to me. Thankyou

    • @LauraBeeDannon
      @LauraBeeDannon Před 3 lety +1

      I was diagnosed at 14. EBV then Acute cfs. I've been up and down.

    • @Truerealism747
      @Truerealism747 Před 9 měsíci

      @@LauraBeeDannon do you happen to have eds I have had CFS 26 years fybromyalgia 6 more fybromyalgia nowadays

  • @petam6770
    @petam6770 Před 3 lety +6

    This is such a great overview! I wish there were informative vids like this years ago. I have not recovered from ME/CFS. It’s not looking likely now because it’s been so long & I didn’t get the early intervention I needed (or vids like these) to give me the chance of recovering. To all those who are only just beginning their journey with any of the above, do everything possible in the early stages, and you’ll have a much bigger chance of recovering fully. Thank you Bateman Horne Center!

  • @andreabengtzen643
    @andreabengtzen643 Před 2 lety +4

    This is amazing!! I am experiencing everything on here and it’s mostly post Covid long haulers. For months and months I have been so down and frustrated with myself for being so lethargic and unable to do anything, trying to make sense of my limitations and having no idea that what I have is the exact definition of chronic fatigue syndrome, stemming from the Covid viral infection. Thank you for making me feel validated and like I’m not crazy!

    • @jaynebailey
      @jaynebailey Před rokem

      Did you have the vac first before symtoms

  • @dianecarubia1099
    @dianecarubia1099 Před 3 lety +5

    ha ha!! loved the comment about PEM and family members telling you, That's just what my fam do!! lol!

  • @abbiefleuriau8518
    @abbiefleuriau8518 Před 2 lety +1

    Thank you so much for this information!!!
    My Dr.s have been Dx me with different conditions and syndromes. I have been experiencing all of these symptoms. I had Mono years ago. Got Covid in Sept. mild to moderate symptoms. Felt better for a week except for my eyelids and under eyes broke out in rash. Been 3 weeks since I was Dx as Post COVID Syndrome. Nobody has been able to put all the pieces together. 🙌

  • @KidCity1985
    @KidCity1985 Před 2 lety +3

    And lyme and gulf war syndrome.

  • @traiandanciu8139
    @traiandanciu8139 Před rokem +1

    At what tissue temperature did SARS COV2 better replicate in different tissues?
    At that question ,infecționist Christian Drosten indicate:a very low temperature atTWiV 659 at min29.
    Did SARS COV2 induce persistent infection?
    Did hiperventilation decrease mucoseal respiratory temperature?
    Did diabetic acidosis induce hiperventilation?
    Are obesity corelated with hypotiroidism?
    Did ,normal flow oxigenotherapy decrease mucoseal respiratory temperature?
    Did SARS COV2 infection induce low temperature agglutinine?

  • @missednoahsarc2654
    @missednoahsarc2654 Před 3 lety +7

    I think I have this mast cell thing going on right now. They keep testing me for lupus but ana is neg. Currently cant go out during the day without being fully covered. I could go on and on but I literally have every symptom lots of blood work it's all optimal. Previously diagnosed for 6 years with hypothyroidism, fibromyalgia, and ibs-d all d for 6 years.

    • @LauraBeeDannon
      @LauraBeeDannon Před 3 lety +3

      I hope you feel better soon.

    • @jaynebailey
      @jaynebailey Před rokem +1

      Did you have the vac first before symtoms

    • @missednoahsarc2654
      @missednoahsarc2654 Před rokem +1

      @@jaynebailey I had symptoms before the covid vax. I was also tested for covid as a blood test to see if I was a "long hauler" and before the vax I never had covid.

  • @jaynebailey
    @jaynebailey Před rokem +1

    I have had it for over a year 2 days after 2nd vac physer august2 2021 black diarea for 3 months cleared up can not think straight extreme fatigue now my legs feel like they are burning fire new symptom can not walk my mastiff any more can not make meals I have someone to do it for me lucky. I am totally tired after 3 hours have to lie down I was not like this in July I feel broken meals have changed no appetite for meals that were normally eaten only small meals asparagus ice cream cookies cheese lots of it can not stand to look at regular meat meals my meds keep me going about the pain although some people look down upon them it is the only way to relieve pain tylenol 3 plus 5 mill of oxy small amout but it works for me I fell or should I say collapsed 2 times one in garden face full of ferns lol and the second comming up 4 steps in home yikes it's been so long since I felt like me when will this end walker is now in place for me I never go out o ly to get the vac so was it the vac or covid I ask myself and hope there is a study on this did they take the vac first before getting sick or after with no vac

  • @amandachurchlemongrassspa7508

    So helpful thank you! I have a referral to pulmonologist and cardiologist for these issues is there another specialist I should talk to my PCP about?

  • @jaynebailey
    @jaynebailey Před rokem

    It is now November 1 2022 still have it got jabbed 2021

  • @PCMenten
    @PCMenten Před 3 lety

    The moment you cautioned about seeking care for Covid without a positive test result was the moment i stopped the video.

  • @user-jd3pr8bm1p
    @user-jd3pr8bm1p Před 2 lety

    All are psychosomatic. That's what they have in common.

    • @kerri-lynnpalermo7961
      @kerri-lynnpalermo7961 Před rokem +4

      Ignorance at its finest !

    • @user-jd3pr8bm1p
      @user-jd3pr8bm1p Před rokem +3

      @@kerri-lynnpalermo7961 exactly!

    • @Truerealism747
      @Truerealism747 Před 9 měsíci

      @@user-jd3pr8bm1p I hope mine is sycosomatic as Dr schubiner says hope of recovery sycosomatic causes alters in endocrine immune but we have to have the genes for myself Asperger's add heds to