MY STORY: Young & living with Rheumatoid Arthritis | Auto-Immune Disease| Jessica Alzate
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- čas přidán 17. 03. 2019
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It has taken me a long time to feel comfortable enough to upload this video. And although it puts me in an extremely vulnerable position I hope I succeed in my efforts to help somebody and if not at least raise some awareness.
Thankyou for watching x
#RheumatoidArthritis
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I hate the phrase “ you’re too young to get arthritis “ RA is an autoimmune disease . it’s frustrating to always explain. I’ve had RA for 16 years and I’m 27 it’s comforting to know there are others 💖🥰Thank you for sharing.
Me 2. Everyone thinks sickness doesn't see age. I've been dealing with arthritis since i was 6. The doctor said it was growing pains. Bunch of BULL!!!! IM 40 and worser than ever!!! Lol
Same ive had this issue since i was a child and if it wasnt for my one doctor lol my best doctor i had probably still be figuring whats wrong with me and now i have scleroderma/lupus/fibromyalgia
I may have seronegative RA, or something similar like reactive arthritis. It's been a hard couple months. As a guy, at least I'm more unique. :P
Joyce Kapia I’m about to be diagnosed with either RA or reactive arthritis, which is the same essentially. I am so scared. I’m scared I won’t be able to have kids because of the meds, I’m scared I won’t be able to play sports again. Any advice? I want to be active, have a family, and drink a beer like everyone else.
@@edwinlangley7693 Hey Edwin, if it's ReA, it'll go away. Whatever happened to me is starting to subside, but the recovery after the fact is crazy. It'll take me a long time to get everything back together again. One of my big toes is permanently arthritic, two sprained ankles, sprains all throughout my body, really... BUT, even if you and I have RA, treatment will keep it at bay. Stay strong.
Just found out today I have RA. Everything you said with the pain & people lookin at you crazy cuz they have no idea. Your video really hit my soul. I’m a tattoo artist and worry this will end my career. But just like u, I refuse to believe it will. I pray for you, me, and anyone else dealing with RA. Thank you for sharing your story.
Joanna Gutierrez and thankyou for your comment, well done for being so brave and determined because i know it isn’t easy, but it matters xx
Contact Dr George his herb medicine cure it completely
God me pray it doesn't end your career it did mine as a stylist many blessing
joshua Shane who is this doctor you speak of ?
Nonsense, take your meds eat a Keto diet, dump Carbs and exercise, and you will be fine, also remember, bone grows and heals
I was diagnosed at 17, now 52. 4 joint replacements and 2 tendon repair surgeries later..I’m STRONGER than this disease...I’m a mom to a healthy 18 year old. An art teacher, business owner.. I admire your strength, your journey. I can relate to you. It sure helps to hear from others who go through this. I’m on xeljanz now, most days minor pain.
I just got off of xeljanz. How’s that working for you love?
Just diagnosed 3 weeks ago of RA. Am 51 years old. Really think it's caused by neck and shoulder injury from car accident. Yes the pain is getting worse so just did blood tests done and waitting to hear from GP On next Monday. Just learning what RA is
Happy for you :)
U r very inspiring...may Allah bless u with good health and happiness
@herpesgoddess6746 I can cure you. Don't sleep around. Boom.
I was diagnosed a couple of weeks ago. I'm watching this with tears in my eyes. I needed to know I was not alone in this pain and frustration. Thank you for this video.
Lizette Gomez you are most certainly not alone ❤️
Lizette Gomez I have it too beautiful, watch what you eat. For me certain foods flair me up.
@@JessicaAlzate7 what's your first symptoms? I know this is kinda late but I'm nervous
diagnosed 9 months ago, watching this physically makes my joints hurt more than they already do
I know what you mean
I forgot how it feels without pain 🥺
Wow, that really got me.
Me too, when I have 2 hours without a lot a pain I can’t hardly believe it. I’m prayful that anyone with RA pain is going to be blessed bc we go through this and not to mention sadness over it. Each day I wake up I’m thankful for mercy and grace bc someone somewhere is even worse.
Jesus bless us with knowledge from you straight to our Doctors.
Same. When I'm not in pain its actually harder for me to balance. The pain gives me perspective. I dont sweat the small stuff. Its held me back so much. People dont get what it's like to be sick when you are so young. Be grateful for every day of living.
Me too
I know 🥺 I just found out like 5 month ago. I forgot what are hands without pain.
I know exactly how you feel! I am 26 years old and just got diagnosed with RA. The pain is horrible but the loneliness in that pain is the hardest part. Thank you so much for sharing this video!
Molly Craft you’re really not alone!!!! I know how tough it can be when those around you have no idea how you’re feeling, but so many of us do! I know exactly how you feel, keep fighting 💪🏼❤️
Whats the status of ur RA now?
Iam also suffering. Any tips 4 me.
@@ash-qs7jk I started taking Prednisone, which was rough. My hair started falling out I was nauseous all the time and now I can't drink beer anymore because it makes me feel awful. But, the pain went away almost instantly. Weaning off the Prednisone was a tough time as well but now I am taking leflunamide and I haven't experienced any side effects and the pain is completely gone. Only when the weather changes do I actually feel any joint pain. All that said, if you don't have health insurance or access to affordable medication you're going to be paying a lot. Before I was able to get on Prednisone I used Kratom, which is a natural opioid. That helped with the pain immensely. Before taking it I tried playing basketball but I could barely move, after taking Kratom for a few days I could run around for like 10 minutes without feeling pains.
I am also 26 years diagnosed with ra. Yes loneliness is hardest part. No one can feel your pain. Everyone want to see your smiling face 🙂
MOLLY IM 56 . IVE HAD THIS SINCE IVE BEEN 33 WHEN I GOT MARRIED. JUST READ GET A GOOD RA DOC. I TAKE HUMIRA AN INJECTABLE. THERE FINDING OUT THERES A CERTAIN BACTERIA WE HAVE IN OUR BODIES THAT PRODUCES RA. METHOTREXATE MADE ME LOOSE MY HAIR
IM A RETIRED HAIRDRESSER NOW. CANT WORK ANYMORE. IT ATTACKS EVERY ORGAN IN UR BODY. I HAS OPEN HEART SURGERY 5 YRS AGO. MY MAIN VALUE AN 1 BYPASS ANIT ATTACKED MY BOWELS ALSO. JUST KEEP ON TOP OF THINGS. YES IM LONELY ALSO EVEN WITH A A HUSBAND WITH RA AN MY MOM HAS OSTEO . MANY NITES I LYE AWAKE AN THINK BOUT HOW I USED 2 GO OUT ON THE WEEKENDS AND DANCE AN GO 2 KARAOKE. FOR ME SAT NITE IS THE WORST. DONT WORRY WERE IN THIS TOGETHER. PRAYERS GOING UR WAY
I’m crying while watching this. Especially when u said you like to take control. I’m the same. Hearing you talk about this damn disease it was like a mirror. it’s hard I feel your pain literally and mentally. I thank you for making this video I’m 32 and everyday I struggle with RA and fibromyalgia. I’m a mother and some days I feel like even a hug is too painful. I hope your feeling better hun.😞❤️
Amaryllis H thankyou for your comment. And i’m so sorry to hear that you’re in so much pain. I know exactly how it feels. I am feeling a lot better thankyou. I recently posted a health update regarding the new medication i’m taking. I’m also trying to make a lot of life/diet changes etc. I hope you feel better soon, sending you lots of love ❤️
For 6 years I been dealing with pain I didn’t understand why my hands cramp a lot why my leg’s cramp a lot why ankles always swell the minute I get pain in my ankles first thing I think of is gout but it’s still bendable I can still wiggle my toes it’s not tender but the minute I put pressure that first couple steps is rough
Long story short I told God just 2 days ago what father God if you want me just take me already I tired of feeling this pain
I have RA too. I am 24. And I hate when they say "the pain will go away, you are too young have an arthritis." Much love to you 💕
I had RA at 31 years .lhad gone through all that you have gone through.I am 72 .l took Arava .now I am taking leflunamide.It helped me a lot.
I just turned 20 and was recently diagnosed. I 1000% understand your struggle. Thank you for this video and know that you aren’t alone in this battle.
Thanks for your comment. I'm sorry to hear about your diagnosis, I wish you lots of motivation to keep pushing forward every day, it's worth it! x
eloisa lopez Im 20 and I know how hard it is to live with RA, stay strong 💪🏼 💜
hi eloisa im Romi i think i have some sort of arthritis yet to be confirmed this January i will confirm it with my doctors cuz reports and lab test yet to be forthcoming and i just 24 closer to 25 hope we all can have a better life ahead #staystrong sis
eloisa lopez I turn 20 in April and I was just diagnosed with RA. If anyone has tips on how to live through this please let me know. I am constantly tired and before I was diagnosed I was confused bc I loved to workout and be fit but now even the though of the gym tires me. I have stopped doing little daily things.
Lacey Smith trust me it gets better at some days but bad some days still feeling the effects of the pain and medications last year july which is 2019 july i felt a pain and having a back pain ever since some times in legs some times joints
but tips are
do daily cardio and endurance excerciz
and do daily run if u can
stay clear of fast foods carbo foods and salts and stuff
I’ve had RA symptoms since I was 7 and was diagnosed at 9. Thank you for sharing your story because it’s important for young people who are recently diagnosed to know that they aren’t alone.
Thank you for this video, I admire your strength. I have had RA for 8 years, I was diagnosed with severe RA in my last year of college and it was something I was so unprepared for. I felt into a severe depression, lost a lot of weight, among other things. Luckily I have always had the unconditional support of my family. This disease has taught me to appreciate the little things in life and also the important like my relationship with God. I'm a believer of faith and even though doctors might say there is no cure I do believe in the higher power and for me he has the last say. God bless!
Yes, faith is very important. I can totally relate to you as I have RA too.. I am not crazy about allopathy medicine which has many side affects. I am following alternative remedies which really work : Please look into plant base diet, look into Dr. Brooke Goldner protocol. In addition, look into Moringa and Turmeric, yoga & meditation. Peace & Blessings!!
Do you have joint damage?
I was diagnosed with RA a year ago at 27. I was alway in pain but doctors always thought it was something else till the pain was unbearable to where walking and going up a stair was painful. Unfortunately I was going through separation at the time. When I told my exwife she thought and still does that I made shit up even after she knew I was alway in pain driving the car . A week later I ended up living in my car for a month. At work I was working overnights at a pipe coating company 12 hour day . I would stay late after work waiting for Everyone to leave so I could use the restroom sink to take a bird bath I then got let go because i couldn’t stay up anymore and my pain was not helping.
Fast forward a year I lost 28 pounds started running up mountain trails( same guys who couldn’t jump an a trampoline with my 5 year old and 2 year old .. I hitting the weights covid didn’t stop me from losing the weight and turning plant base I can say I feel healthier than I did in the past 10 years .. over all I can finally run around with my baby’s and yes I can get on that trampoline now with them. Yes The pain is there almost all the time. But I learned to take control of it along with my life .. I got out of my financial situation . I do personal training and try to help ppl break out of that shell of felling worthless.
life doesn’t happen to you it happens for you.
So keep your head up proudly and know your worth the fight.. take care everyone.
❤
I am 28 and diagnosed with RA 2 months ago. And even though I am myself a doctor and I have studied the fact the RA can happen at any age, I needed to feel that I am not alone at this. I hope you're doing better now.
I’m 24 and an currently going trough the beginning stages, & it’s been really really difficult, crazy to think that this is something that can happen to someone, & so young also. But like you said, it is helpful hearing that other people understand this pain. Keep growing strong, you really are an inspiration. Appreciate this wholesome & honest video, so glad I got to see this video, TY! 💗
Jeanette Gijon thankyou for your message. Hang on in there, it can get better, i promise. 💪🏼❤️
So grateful to see several young people surviving arthritis! Imagine having to care for a baby with arthritis in both shoulders and couldn't hold my pain with excruciating pain. I avoided having a child for so long. Thank you for sharing your story!
I can only imagine It’s only been almost a year for me and I’m a mother of 2 toddler boys one of which is 2 in diapers still. I can only imagine life with an infant and having our disease. I admire you.. tip my hat off to you.
I was diagnosed when I was 15. It was terrible. Things have only gotten worse for me. I’m now 22. I’ve tried to maintain a healthy lifestyle, exercise, eat right and focus on my mental health. It’s definitely one of the hardest things to deal with. Thank you for sharing ❤️
Hi I’m 15 and just got diagnosed. I get anxious allot of the times does it have to do with anxiety or mental health? Are taking medication?
me too i got diagnosed when i was 14 and it’s always a struggle. but never give up and stay on the healthy lifestyle! i know days can be hard and you need rest also. we’ve got this 🤍🫶🏻
@@perlapamela2023 yes on plaquenil
@@pamelajodhan9106 im on plaquenil too, im better now!!
@@pamelajodhan9106 im on plaquenil too, im better now!!
I was diagnosed with RA one week ago . I'm 33 and a single mom . Thank you for sharing your story .
Love the video. I’m 28 and I was diagnosed with ra on March 20 2024. My birthday is dec 13. So when I first started getting pain in January of 2024 it started off with my jaw, then hands, then shoulder, then ankles. It really impacted my life. Had to call out of work, not eat, no gym. Was prediabetic cause my body was so under stress from the pain. I started to get depressed and say “why me”, “what did I do wrong”. Coincidentally pain started happening right after my 28th birthday so I was linking the cause to me getting old……but with the help of my rhumetology and your video, it help me get back to my regular. Just hearing there was young people like me who also have ra made slightly happy. Just to able to relate to others made not blame myself. So hearing your story and many others help me recover my mental state. I currently have little to no pain and working with my rhumetology in order to not let the disease take over my life. Just wanted to share my story to you and any other people who read this and thank you for sharing your story and personally help me from my lowest point of my life. Love from the U.S❤
I was diagnosed when I was 18 years and I am 57 years old. I am praying every day because I don't live with people who understand. I have to push myself to get through the day...sometimes it feels like you literally fall apart into 1000000 pieces and nobody knows and understands because it is not showing on the outside. I still need to support myself as I am alone...dark future because there is no cure....depression is also something you have to deal with because of the pain...
I feel for you so much. I was diagnosed with RA when I was 17, I’m 20 now. Every time I tell someone they think I’m joking which is quite hurtful. The doctors didn’t believe me, it took a while year before they took me seriously and sent me to a specialist. I hope we can all find someone that can relate. Thank you for this 💓
keep speaking your truth! i was diagnosed at 22 with ra. much love💕
My wife results came positive for RA factor its bit high . But she never complained about joints pain or knee pain only a pain where is located around the chest pain could say rip-cage . I hope its not something sever where shes going to struggle in the future . Btw shes 23 .
I’m 19 years old and I just got diagnosed with RA and put on methotrexate and watching this video has made me so happy to hear someone just talk about exactly what I’ve been going through mentally and physically. This has helped me understand a lot more about my chronic disease so thank you. 🙏🏽🙏🏽
Herbal medicine is the best treatment for Arthritis sister I’ve been living with Arthritis 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel 👉 @dromocure
🎄clink 👉 youtube.com/@dromocure
I'm 30 and was diagnosed with RA, yesterday 🥺 I'm tearing watching this because nobody knows the pain it is to take the cap off deodorant or open door knobs or to do my daughter hair or to drive or at times walk bc it feels like the back of my ankles is trying to explode and bust through my skin
Thank you for sharing your journey! I'm 43 recently diagnosed. The worst part other than unbearable pain is no one understands. I'm very alone and in this daily struggle of ups and downs. I keep fighting and praying! I pray anyone who reads this God helps and sends us the answers we need to get some type of peace. God bless you!
czcams.com/channels/ZJJR-LpB1SVD09hQkt1-GA.html
Hello sister I can recommend you to use dr Omo herbs which help me get my peace back after 2 years with Ra
I had the same reaction and got diagnosed at 18. Its so frustrating and made me feel crazy!
Going on 5 years of RA & 2 with OA & im 43 now I've been on a few medications & Remicade infusion has made a huge difference along with others. I recently had to have emergency surgery due to RA & was in hospital then to a Rehabilitation Facility to learn to walk on my leg again ( I couldn't move it after surgery) . I just had my last home care therapy and they want to see if going in clinic will help more strengthening & bend my knee. ( been home for a mth now , walk with a walker & have to use a wheelchair because I can't go to far due to the pain from the surgery but also with my overall health. I once had no mobility on my arm it felt like dead weight & trying to use it was horribly painful. I can go on. Im glad you listened to your body & kept pushing to get an answer. There aren't many people , channels or support groups 🤔 its sad & glad you opened up about this. Keep pushing forward & my God Bless you on your journey 🙏
Herbal medicine is the best treatment for Arthritis sister I’ve been living with Arthritis 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel 👉 @dromocure
I’m 15 and was recently diagnosed with juvenile idiopathic arthritis I resonate with almost everything you have been through. From doctors saying your too young to have arthritis, unbearable pain especially in the morning, hair thinning from medication, crazy swelling, everything. Glad to see someone that I can relate to.
I was diagnosed with ra when i was 20 I'm 24 now and it's a daily battle and for the first time in 4 years i feel like I'm not alone. I have 2 baby boys and everything you said is so relatable. I'm literally crying right now.
Your video really helped me. I am 35 years old, and I was just diagnosed with RA on Friday, so it is still sinking in. But it is great to know that I can relate to this video in so many ways. Thank you for this! 💖
Me toooooo prayers
I was 28 and half years old when I started with pain in my fingers. At first I was diagnostic with tendinitis and started to to take ibuprofen 200mg. Then I started to feel pain in my feet. I had to walked with the edges of my feet and doctor send me ibuprofen 400mg. Then pain continue in my hips, elbows, shoulders, wrists and jaw. I couldn’t even eat because I couldn’t open my mouth. I started to take ibuprofen 600mg. I was in severe pain for seven days and one day I couldn’t even get up from bed I got fever so I went to the rheumatology got a blood test and they told me I have rheumatic arthritis. I am 33 years old now and there hasn’t been one day without pain. Even with the medication. Most days I’m just too exhausted and don’t want to get out of bed.
I so appreciate you for sharing your story. I felt so alone the first years with this disease specially because people around me didn’t (still don’t) understand the pain I feel. Now and days I just put on a happy face and keep going..some days are ok some days are simply terrible.
Thank you for sharing your story💕 I’m 22 I was diagnosed with RA exactly six months after giving birth to my 1 year old son. Means a lot to know I am not the only one fighting this battle ❤️
Thank you Jessica, I was diagnosed 21 years ago. I was 37. I’m on Methotrexate , Humira, and Prednisone. Occasionally pain medication. 2021 had Plantar fasciitis surgery on both my feet as a result of RA . People just don’t understand that arthritis and RA are two completely different things. I stop trying to explain.
Wishing you all the best!! 💕
Hi! I get you 100%. I got diagnosed at 20, I am now 30 with a bad flare up for about a year and a half now. I understand your state of mind regarding the pain and frustration, it totally does help to know there are others living like we are. Regarding the medication, I have taken most DMARDs out there (haven't gone into biological meds yet) and they can all work, but only to a certain degree and for a certain time. What really helps on the long run is a lifestyle adjustment; exercising (pilates and swimming do wonders with no impact to the joints) and a non inflammatory diet are the things that have improved my pain. I know the automatic reaction we may have to feeling limited is a bit of denial and desire to refuse to change our lives around RA, but in my case coming to terms with this condition (by working around it and knowing what triggers and aliviates it) has been so good for my mental health. We are not defined by it :)
Hey! Thankyou for your comment. With regards to changing our lives around RA, I totally agree. I have taken some foods out of my diet, but have a long way to go still, it really does require a lot of discipline and courage to admit that our lifestyle and diet may have to change, but it's important xx
Angélica Villamarín Hi! Iwould love to know more about non inflammatory diet. I migth do wonders for my 30yr old hubby with RA.
I'm 12 and I use biologices 😢
Hi angilica i m Rakesh from india. Same my wife 34 year old RA patient. Pls share you non inflammatory diet. And i would like to know more information for cure RA. My wife is very depress now. Pls
@@enigm8530 Hello, I'm so sorry it took me a whole year to see this comment. If it's any help now, an anti-inflammatory diet consists in avoiding food that triggers inflammatory responses in the organism. You can find many regimes online by googling 'anti-inflammatory diets'. In general, they exclude animal products, specially red meat, pork, and dairy. Chicken and fish can also produce inflammation in the body, but in lower levels than the ones I mentioned. Highly processed foods are also highly inflammatory, so it's best to remove them from everyday meals. These include junk food, fast food and any food that's very rich in sugars. For some people, products with wheat (and you guessed it, gluten), can be inflammatory. Lastly, some vegetables can also trigger this response in the body, like nightshades and tomatoes, for example. In my experience, the key to succeed in finding what suits each RA patient best is trial and error. After a while, I figured I can have cheese once in a while in moderation, but cannot consume any pork whatsoever, for example. I hope this is useful somehow for your husband and others, I wish you guys the best :)
Thank you for sharing, it is frustrating explaining the difference between RA and osteoarthritis, I was Diagnosed when I was 40 I'm 63 , I'm a hairstylist and still working but from home that last 5 yrs. 20 yrs ago my right wrist fused and this past fall I was being switch on to a infusion that didn't end up working and ended up with more damaged to my joints, I love my job so it keeps me going even though I hold my scissors different you just learn and adjust, I'll probably retire when my body tells me to ...which I think isn't too far away. I wish the best for you and hope you find something that works, it can be such a difficult road
Jessica your presentation about your experience is amazing. You articulated not just your personal experience but your knowledge of RA in a succinct manner. As someone who has lived with RA since their 20’s (now 57) ii can sympathise and empathise with you whole heartedly. If I can give you any advice it would be to be very kind to yourself. As you said despite having support it is a lonely journey and you need to be your own advocate. Knowledge is power and you are doing a great job. I wish you well and hopefully with more research there will be even more relief available to you.
I was diagnosed 2 years when I was 18 and I find it very comforting to watch this and someone else have similar struggles and issues. My doctor only really talks about the physical issues but I've learnt that my fatigue and lack of motivation can also be a part of it even when my physical pain is under control from medication
I’m in the process of being diagnosed atm. This video has put a little light in my day as I’m finding it hard today. Everything you say I can understand and it’s the exact same feeling I have. Thank you for sharing your story ❤️
Thank you so much for posting your story! I literally felt like the only young woman in the world going through this so early! I can’t thank you enough! I’m inspired to share my story now. Blessings to you and yours ❤️
thank you so much for posting this video. everything you said is exactly how i feel. it helped me so much hearing it out loud. i’m 25 and haven’t been diagnosed but i’m convinced i’m suffering from some type of arthritis. thank you again for posting this, it really helped hearing someone else with the same complaints as me! it validated me.
I am completely bawling, I’m in the process of finding out if I have it. Waiting on blood work and etc. But this is exactly what I’ve been going through and my doctor never listened to me a couple years ago when I brought up the pain in my feet and knees, now it’s my hands. Thank you thank you for this video!.
Every feeling , every detail is 100% on point. Thank you!! 🙌
Thank you so much for sharing your story, everything you said is exactly what I'm going through and feeling. Im 27 and just newly diagnosed with RA. Its comforting to know im not alone. Thank you thank you thank you.
You're not alone Jessica.. I have been diagnosed with RA lately. I am 50 years old. This disease has changed my life drastically....Looking forward to go back to my normal life but I don't think it will happen sooner than I thought❤ Sending hugs to those who are suffering the same.🙏💕
You've taken all the words out of my mouth on explaining how it feels to be in pain daily, physically & mentally. Thank you for sharing ♥️ you are a superhero mama 🥰
Thank you for this💕 everything you mentioned has happened to me and is only getting worse.. I’m on methotrexate too and I feel like I’ve been feeling worse but I have hope it’s going to get better.. mines started at 20 and I’m 27 now my right pinky and elbows will never be the same anymore :( but thank you again for making me feel less lonely 💛
I’m 30, started feeling symptoms when I was 29. Took so many doctors about 8 months to diagnose me. I’m not sure how it is in the UK but here in the US it takes 2-3 months to get an Initial appointment with a Rheumatologist- so you’re living in pain untreated. Because of the pain and fatigue, I had to quit my job and completely change my lifestyle. Ive been struggling. I have support but as you said- they’ll never really understand. I also don’t know a single person my age with this disease- but I do have a friend that suffers from something similar. Thank you for posting ❤
Herbal medicine is the best treatment for Arthritis sister I’ve been living with Arthritis 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel 👉 @dromocure
Thank you so much for being vulnerable and sharing your story with the world. I been having incredible pain in my feet, ankles, and knees. Hearing you say your symptoms makes me feel for the first time like there may be a actual reason as to what's going on with me. The pain has gotten so bad I have got a drs appointment tomorrow to figure out what's going on. I have two sons myself so I get it when you speak about how difficult things can be because of the pain. I'll be praying for you.
I was just diagnosed with RA today, I’m 19 years old. Today has been so hard and I’ve been really down. Thank you so much for posting this!! It’s so comforting knowing that other young people are going through the same thing and we’re all in this together 💛
I’m so sorry to hear that you are struggling! Please know that there is hope, i hope you feel better soon ❤️
@Abby Redway how are you doing now?
I've just had my diagnosis at the age of 22. Just came across your video and I can't explain how much it clicked, and helped me to know as lonely as it feels, I'm not alone. Thank you, and stay strong💜
Literally feel you! I was diagnosed when my little boy was 2. This year is a flare for me! Stress and panic isn't helping at all. I'm at uni and a teacher so being tired is really impacting. I understand entirely that feeling of not having control. It is heartbreaking. We've got this though! Xx
Thank you SO much for this video and being so real. I have all the symmetrical symptoms (and some others) and I'm most scared of losing mobility in my hands. I'm scared of so much. Your video felt like a big hug. I'm extending one to you as well.
I was diagnosed with RA this week at 26. This video makes me feel less alone. I have all the symptoms you spoke about. I’m really scared but holding onto hope. Thank you for this video.
Thank you so much for sharing your story in this video. I have recently been diagnosed with RA, it has been a struggle adjusting to the way my life is now. We can tell people how we feel, but no one truly understands and it can make you feel lonely and even defeated at times. You have definitely helped me mentally knowing I am not alone.
Big love and support, thank you for this video and your strong soul, you totally describe how I am feeling recently without crying, I respect how strong you are, I wish I could get this far of accepting this disease after I was diagnosed last month. Thank you so much.
I was diagnosed at 25 and I'm 32 now. I went to the GP so much and I was treated the same. All tests came back normal, in the end I demanded to see a rheumatologist after about 5 more GP appointments of being ignored and low and behold, they knew I had arthritis right away. I started with palindromic arthritis but it went to full blown RA about 2 years ago. I'm 7 years in and the drugs I've been on so far are Hydroxychloroquine, Sulphalazine, Methotrexate, Adalimumab, Infleximab and now just about to start a new treatment which I have yet to make a decision on as I've literally just got back from seeing my consultant and was researching medication videos when this popped up! Just want to say hi to another young arthritis sufferer. Arthritis has really made a mess of my life and has taken a lot from me.
Thank you so much for this, it feels so validating (yet horrible) to know that it’s not so unusual to be young with this disease. I am currently waiting to be assigned a rheumatologist after testing positive for a high rh factor and I am only turning 18 years old. While I do not yet have a diagnosis, I relate so strongly to everything that I see about RA that I am about convinced that they’ll find what they need in my X-Rays to diagnose me at this point. The wait is awful but it’s comforting to know that I’m not alone in this, so thank you for making this video.
Thank you for taking the time to help people understand what you are going through. You describe this disease so perfectly. I was diagnosed with Psoriatic Arthritis (basically Rheumatoid Arthritis) at 19. I'm 49 now. I moved away from Allopathic medicine 20 years ago due to all the side effects. I have had some great success with Homeopathy, and Counselling has helped me to cope with the huge impact this disability has had on my mental health at times over the years. Much love to all who live with this debilitating disease ❤
Thank you for taking the time to do this. I have recently had blood tests that indicate RA and await a rheumatology appt to confirm. It's a worrying time, but this video has been so helpful, informative and inspiring for me. Good luck with your treatment. x
Thank you so much for sharing your story, I was diagnosed at 21 and also got that "too young" comment! Thank you so much for sharing how RA has impacted all aspects of your life
I’m crying right now because now i know that I’m not alone in this painful situation thank you for the beautiful and specific video...the best wishes for you ❤️❤️💝💝
Thank you so much for posting this video. I'm also 26 and I'm about to go and see a Rheumatologist next Tuesday after suffering with stiff ankles, feet pain and debilitating fatigue for 6 years. This year it's progressively got worse and is now in my hips and my knees and I also struggle to raise arms and complete simple tasks like putting the washing in the machine. I've been reading up on Rheumatoid Arthritis a lot and feel very lonely that there's no one that I can talk to really that understands what I'm going through and sometimes make me feel like it's all in my head or its "not that bad". You hit home with everything you said, sending you lots of love and well wishes xx
Thank you for making this video and open up . I been living with RA the past 11 years after my first born it’s truly a challenge , sending you love and support you are not alone . I’m 32 years old
Hi ! Thank you for sharing your story. I’m 30 years old and I’ve had severe rheumatoid arthritis for 10 years. I hear you !!! It’s so helpful for others who are dealing with the same thing to feel understood by someone. Talking about having a hard time with brushing your hair and everyday things is especially helpful. You rock ! It’s so hard for me to talk about it because I always feel like people don’t fully understand or believe me and I appreciate you sharing! I’m on humira now and I feel SO good. ( I tried the same medications you did and they didn’t work for me either) . I hope your new medication changes things for you as well.
Thank you so much. This video is very helpful. I'm 29 and was diagnosed with RA four years ago. It was very important for me to hear your story. And i don't feel so lonely anymore.
Thank you for posting this video. I am currently being assessed for RA. I currently have been diagnosed with fibromyalgia, osteoarthritis, anemia and endometriosis. The pain you are describing it so familiar to me. The struggle of being a mom while chronically ill hit home. I am a single mom of 2 kids with no close family or friends. I often feel like I am denying my kids of a fun mom. The mental health impacts of being chronically ill are enormous. Gentle hugs to you. You are not alone.
Hi, I'm 22, I was diagnosed with RA about 4 months ago and I watched your video then and I cried through most of it because it's so relatable and touched on things I am scared of. I just watched it again and it gives me comfort to know I am not the one young person around with this. To hear someone else's story. I really think a support group, especially for young people would be very helpful. Thank you for sharing 🤗🤗🤗
Thank you for this video. 🙏 I’m 33 and have been diagnosed since I was 18. No one understands and they see you as a young person so if you don’t do things your labeled lazy. I have went over and above to work more then most people to prove that stereotype wrong but when you look at this disease it is so excruciatingly painful. And thank you for posting your story. It makes me feel less alone. I’m in a flare up right now so having to push through all the little things like you said is exhausting. Thank you.
Hello,
I definitely understand how you feel, I was diagnosed with R.A. when I was 16. I am 21 now, its been painful to deal with this disease some people don't understand at times. They think I'm not in pain, my meds don't help at times but I am dealing with it as best as I can. I'm so glad I found your video its great how your making awareness. People need to know what it is.
Thx for sharing your story! I was diagnosed with JRA which stands for juvenile rheumatoid arthritis because I was diagnosed at 15 months old and I just turned 44 years old. So I’ve pretty much had it my entire life. I started having problems early on in life and when my parents started taking me to the docs they didn’t know what was wrong with me and arthritis was definitely not on the docs radar because like you had mentioned...arthritis was an old person disease. At that point docs put me on prednisone which did wonders from what my parents told me. It’s a drug with a lot of bad side effects but at that time very little was known about arthritis in children...JRA...that my doc only knew prednisone was the best drug at the time that would probably help me and the pros about taking this drug would outweigh the cons. I’ve taken this med my entire life along with others over the years. Finally, long story short, JRA was the diagnosis for me at 15 months old and continues to be called JRA as an adult because it is a little different than being diagnosed as an adult. Everything you said in your video is very relatable and for the past 5 years my JRA has gotten really bad. I’m not saying that’s gonna happen to you. A lot more is known about arthritis in young people now than it was when I was diagnosed and there’s a lot more better known drugs you can take. You and your doc will just have to find what works best for you. It may take a little time to find the right combo for your body...it will be trial and error. Being twice as old as everyone else on here and with more life experiences I would say is to take one day at a time. I’ve live a very independent life up until about 38 years old. I was married at age 24, had my first baby girl at age 27, then had my son at age 29, and then divorced at age 30. I lived as a single mother, on my own with my two kids until my JRA got so bad I had to move in with my father with my two kids to get extra help. My daughter is 17 years old and my son is 14 years old. I’m so thankful to have my father who helps me daily. I also have my siblings and their wives who regularly help me but like you mentioned in your video...no one really understands what you go through. What I really want to make sure and tell you is to be patient with yourself and try not to stress because I personally believe that it will affect your health, also pay attention to what you eat because that can also flare you. Like maybe do a process of elimination by keeping a food journal. Those are some of the things I wish someone could of told me and back then there was no technology that I can use to do research or find others with similar stories so I’m hoping that me sharing just a little of my story would help you. Stay positive, don’t stress, and keep researching!!
Jeannine Zamudio thank you so much for your comment. I’m sorry to hear that your JRA has worsened. I hope you feel better soon, I appreciate you telling everyone your story! Sending you lots of love ❤️
Thank you so much for your video and your openness. I was diagnosed with RA this year and feeling so many things that you’re feeling. I’m finally getting some help from methotrexate but this is an incredibly difficult journey. 🙏❤️
Thank you so much for posting. You hit the nail on the head for me and this video helped me with my new battle.
Listening to your story has helped me so much. I was diagnosed with Rheumatoid Arthritis the end of 2018 and I’m 17 years old. I was depressed recently and just watching your video has helped me so much. I feel your pain cause I could never walk. My knees couldn’t bend, my fingers are swollen and it would hurt so much. I feel your pain so much and sometimes I forget but I just needed to watch with someone about others stories and how they cope. I take prednisone, folic acid, hydroxychloroquine and xeljan. I’ve been doing joint injections every half a year or so. I used to take Humira and Orencia but they would never work. Chemo therapy was optional but because I was only 16, I couldn’t do it where I live. They tried to put me on methotrexate but I have liver problems and I’m kind of overweight for my age so i would need to work on it.
I’m 30 and was suddenly hit with pain in every joint at the beginning of the year. I was really confused. I knew I had chronic back pains, but this was different, and I had no idea what was happening.
Spending more than an hour to commute to work was killing me, and having a job that required me to be constantly lifting, twisting and standing/walking felt like hell when I was limping the entire time. It was especially bad in my particular case since in order to get to my 7am shift, I had to wake up at 4am, but after the ra hit, I needed more than an hour to see if maybe the pain would subside, and it just wasn’t going well with work.
It got worse to the point where I couldn’t even change clothes on my own, because even a shirt was too heavy for me. Then my jaw got affected so much that I often couldn’t eat. I became unable to really take care of myself, and it frustrated me.
When I finally went to some doctors, they were taken aback by how much difficulty I had with walking, considering my age. They all kept saying it looked like I had lupus, and I was like I don’t think so but it still sounds scary wth man
I’m finally on medication, but even with that, I’m struggling to stay awake due to fatigue, and most of the problems I’ve been having, remain. The only way I can get exercise right now without feeling like death is by being in bed and slowly flailing around. Honestly though, the one main thing I’m worried about now is employment.
Thank you so much for sharing! This popped up on my feed and I’m so thankful to be able to listen to your story. I’ve been living with R.A. for almost 2 years now and it is a constant battle but I’m not giving up.! 💜
I'm so glad to hear you have such a positive attitude, you really need it to get through this. There is light at the end of the tunnel x
Your video really touched me. I recently was given a prognosis of RA so they put me on the same medication as you, which hasn’t helped too much but I pray for you and thank you for sharing your experience for all of us young people out here living day to day with this disease. Wishing you all the best!
Thanks for sharing! May God continue to empower you with the strength you need on your journey!
I really appreciate this video. I can relate to everything you said and you articulated how it feels very well.
I’m grateful to have found this video, I’ve been having everything you just mentioned (the pain is 😓 ) currently waiting for testing confirmation, I just turned 30 and have heard from most doctors that I’m too young to have Arthritis. A kind nurse was helping me understand this possible diagnosed and referred me to holistic practices (which I trust). Thank you for posting this ✨ sending you all the healing energy ✨
Thank you for sharing your story, reminds me how I am not alone in this. I am 31 and diagnosed 7 months ago after having my third daughter. It is a daily struggle and know you are not alone, we are all in this together! We are warriors
Thank you so much for sharing you story! I feel like it is so hard to find information and community with other young people who suffer from this. I got diagnosed with RA today (I'm 24) but I suffered from the symptoms since freshmen year of college (I had to move home and transfer to a university in my home town) and after going to every specialist known to man for 7 years, I've finally got an answer to my "mystery symptoms." I'm starting prednisone (short term), methotrexate, and folic acid so I'm praying that I will FINALLY feel some relief from these problems that I've had for years. I'm praying for you and your journey with this as well. Prayers and positive thoughts...
I hope your RA is under control now. Sending you lots of love x
I was diagnosed at 34 and can totally relate. A lot of people don't realize it's a auto immune disease. I feel also it's hard for loved ones to understand because you don't really look sick/disabled so it can be hard for them to understand, I'm also on Methotrexate along with a few others. I also have fibromyalgia and neuropathy. It's been a real roller coaster Trying to find my limit and not over doing it with daily activities or I crash because the fatigue is horrible! Stay strong fellow R.A patient's!!! Gob bless!!!
God bless. My RA has progressed to Interstitial lung disease. 🙏🏻
I can relate to you 100% . I am 24 and I've had arthritis since I was in middle school. Very painful and definitely very upsetting when you can't even get up and do your daily tasks specially having a child and sometimes the pain won't even let you carry your child when he/she is sick. No one understands the pain we go through specially at night time. Feels good to know there is people out there that understand thank you for sharing ! 💓
Thank you for sharing. I was diagnosed 8 years ago when I was 26, I was in remission for about 5 years but now I’m in pain everyday and my fingers are swollen, I can tell it is spreading. You’re incredibly strong. X
Thanks for this video, I am 21 years old been going through pain since I was 14 years old and was diagnosed at 19 years old. I am currently going through a very depressive state as my flare up are so frequent nowadays I'm literally going through a pain crisis. I'm also a university student and I notice that when my stress level elevates I experience excruciating pain, not to mention the pain and struggle I go through to get out of bed in the mornings.
I’m so sorry to hear that you’re struggling. I hope you are put on a correct treatment plan soon. Check out my other RA videos if u haven’t already xx
I myself was recently diagnosed with RA, recently turned 28. I haven't got the treatment yet because of the healthcare benefits. I cry alot because of my pains you mention in the video.
This has helped me and clesrly so many other people here. Thank you for gracing us with your story. This is so raw and real. You spoke the words i fear to explain to people. They think im crazy or faking it or lazy. You're such a great mom! I can tell 🙏🏼❤
Thank you so much for your comment. I see you and I hear you. Sending you lots of love, i hope you feel better soon ❤️
Hi Jessica, I am 28 and I was diagnosed with RA in February of this year. Thank you so much for sharing your experience. It helps to know that I am not alone in what I am going through, and it helps to hear from someone my age. I hope that you have finally gotten the relief you deserve from your medications!
Stay strong. Thank you for sharing. Because I have it and it must be so much harder for a mother.
Thank you for sharing this. It means so much to know I'm not alone in what I've been going through. I'm 32 years old and I've recently been diagnosed with RA. I was told by my rheumatologist that I am young, healthy and active but despite all of that.. it can come up at any time and cause your life to change completely. I am about to start treatment (Methotrexate injection) but am worried about how it's going to affect me and if it'll help.. What you said about the pain is 100% what I've been feeling myself. Some days I feel good but when I get flare ups they can last for days and days and I feel pain all over and can't even open a bottle of water or wash my hair. The struggle is real!!!!
Your symptoms started with stiffness, swelling or it was only pain ?
Thanks you, I'm having a really hard day and I needed to know someone else is out there! I'm 31, I'm a single mom to 2 kiddos! Thankyou
Diagnosed at 18, and am now 22. Still struggling to find the right medicines but i believe one day I will. Loved this video and has helped me realize I am not alone in this battle. Hope you’re doing well. Thank you for posting this 💕
I just got diagnosed with RA after years of pain and doctors dismissing my symptoms. I am 32 years old and in remission from hodgkin's lymphoma 2 and a half years.Your video is so comforting as I see myself in your shoes. Sending you My love from Casa Grande , Az 💖
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I understand how you feel, I have RA and have taken so many medications but nothing helps. I have 5 children and take care of my nephew and it’s not always easy but I manage.
Thank you for the video. I was diagnosed at 3, my RA was very active (in knees and ankles) as a young child and teenager but was in remission in my 20s. Now in my mid-30s it seems to be activating again. It’s luckily quite a mild version of RA, I don’t live with daily pain.
I’m 39 and got diagnosed at 32. I can’t believe you are so young and have this illness. 😞 It’s very inspiring to see someone so open about this illnesses. Living with pain is very frustrating. The only thing you can do is manage your attitude. I wish all of us with RA could have a group hug. 💕 💕💕
I was diagnosed at the age of 2 with JRA, I’m 19 now and it’s nice to know people understand the pain I live with daily, anything with heat is my bestfriend for my joints 😂
I hear you and can truly emphasize, I have Lupus which shows up as 'inflammatory arthritis'. They also started me on methotrexate which I failed, then leflunomide which I also failed. Now. I am on Imuran which has brought a lot of my inflammation down to where I don’t have to take steroids anymore.
Doctors can be so frustrating, especially males. They like to pat us on the head like we are stupid and scoot us out the door. It is hard, I understand.
I’ve been having pain on both my knees and both my hands elbows for a year and a half and today I got diagnosed with arthritis I am 29yrs old. I just wanted to say thank you very much I’ve been overwhelmed and depressed because I have had to tweak the way I do things before I was very energetic and I will do a lot of things but I would also have to pretend that I wasn’t in pain because people will think that I was being dramatic when I couldn’t open a jar or brush my teeth but now that I got diagnosed and I saw your video I cried because at least someone understands and hearing it from someone else it is helpful and I don’t feel alone. Thank you! Have a great day!
Thank you so much for sharing! I was diagnosed at 20 and it has progressively worsened. I also feel the frustration of my body limiting me and others forgetting my daily struggles. This video and the comments below make me feel like I'm not alone!
Jacqueline Lopez you’re most certainly not alone. Whatever you may be feeling regarding your RA i promise you i’ve probably been there. Keep strong ❤️