Blood Matters - a Podcast for Nurses | Episode 14

In episode 14, hosts Michelle and Hilda delve into the theme of survivorship with two insightful guests: Hélène Schoemans (physician) and Pepijn van Leeuwen (survivor). They explore various aspects of what survivorship means, its importance in healthcare, and how it can be effectively communicated and understood. The discussion includes personal experiences, definitions, and the concept of excellence in survivorship care.
This episode offers a comprehensive look at the multifaceted nature of survivorship with practical suggestions and key takeaways for listeners. Tune in now to gain valuable insights and join the conversation on survivorship!
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Hosts:
Michelle Kenyon, EBMT Nurses Group President
Hilda Mekelenkamp, EBMT Nurses Group President Elect
Guests:
Hélène Schoemans
Pepijn van Leeuwen
Time stamps:
00:00:00 - 00:03:57= Michelle and Hilda’s introduction
00:03:58 - 00:06:02= Hélène - Current role and background
00:06:03 - 00:08:24= Hélène - Survivorship is a widely accepted concept used in many different areas and specialities and there are a range of definitions and interpretations. Is there a particular definition or group of words that captures this for you?
00:08:25 - 00:10:58 = Hélène - How do you describe survivorship to your patients?
00:10:59 - 00:13:17 = Hélène - Why is or should survivorship be important to health professionals?
00:13:18 - 00:19:27 = Hélène - If you had to choose one paper that describes survivorship
care as you identify with it, which paper would that be and why?
00:19:28 - 00:21:53= Pepijn - Experience and background
00:21:54 - 00:26:50= Pepijn - What defines survivorship for you?
00:26:51 - 00:32:05= Pepijn - Can you talk a little about what excellence in healthcare area or survivorship looks like for you?
00:32:05 - 00:36:28= Pepijn - Do you have any suggestions about how we might address this?
00:36:29 - 00:45:09= Quickfire Round
00:45:10 - 00:46:43= Goodbye to our guests
00:46:44 - 00:52:16= Outro and summary with Hilda and Michelle
Links Mentioned:
• Stovall, E., Greenfield, S., and Hewitt, M., editors. From cancer patient to cancer survivor: lost in transition. National Academies Press, 2006. doi.org/10.17226/11468
• Majhail, N.S., Mau, LW., Chitphakdithai, P. et al. Transplant center characteristics and survival after allogeneic hematopoietic cell transplantation in adults. Bone Marrow Transplant 55, 906-917 (2020). doi.org/10.1038/s41409-019-07...
• Rotz, S.J., Bhatt, N.S., Hamilton, B.K. et al. International recommendations for screening and preventative practices for long-term survivors of transplantation and cellular therapy: a 2023 update. Bone Marrow Transplant 59, 717-741 (2024). doi.org/10.1038/s41409-023-02...
Links for patients:
• CIBMTR: cibmtr.org/CIBMTR/Utility-Nav... Summaries
• Blood & Marrow Transplant Information Network: bmtinfonet.org/transplant-
article/late-and-long-term-complications-after-bone-marrow-or-stem-cell-transplant
• NMDP (Be the Match): bethematch.org/survivorship/
• National Bone Marrow Transplant Link: www.nbmtlink.org/
• Anthony Nolan: www.anthonynolan.org/blog/201...