They drained fluid from my belly! Getting rid of the malignant ascites. Cancer Vlog #3 Aug. 31, 2022
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- čas přidán 31. 08. 2022
- The tumors from ovarian cancer is causing fluid (ascites) in my abdomen to build up. That creates pain and pressure within the abdominal cavity that needs to be alleviated. The fluid is drained via guided ultrasound. This is my experience with paracentesis, which removes the malignant ascites from my abdomen to provide some relief.
#cancer
#ovariancancer
#ascites
RIP Maria, you did fight hard.
😢😞😞😞🙏🏽
She passed? Someone using her photo just posted on a page I follow and mentioned her cancer journey. Odd.
@@58queencharlottei wouldn’t be surprised if it was a scammer. Her family did confirm her passing a fee months ago and her channel has not been updated since then.
Here I am crying over someone I never knew. Your spirit is truly beautiful & still alive in those who loved you & you loved. & me. Rest easy now🌸
I was diagnosed with stage 4 Ovarian cancer 6 and a half years ago. Been on and off treatment ever since. I had my first paracentesis in Dec. ( also 4 litres) and am due for another one. I hope that the chemo dries yours up and will never have to do that again. I unfortunately will need to do this forever. Sending love from a teal sister ❤
R u ok now?
My heart goes out to you! Bless you and I'm praying 🙏
Brave soul, rest easy..
Hiya, I am in the same position. Had 3 drains. Thank you for your video as its a great help to me. I don't know what to say as its a bad day today. Pray God will help us all to cope and give ya strength and dignity in this difficult situation. With love.
I think what frustrated me the most is that I heard from so many people that they are ascites dried up as soon as they started chemotherapy. That wasn’t the case for me, however, after about two months of chemotherapy I am finally seeing a reduction of the amount of fluid that these tumors are creating. The worst days are definitely a couple days before the parencentesis, as the fluid just makes things so unbearable. I do hope that yours is controlled soon and we both are able to never have fluid accumulate again and say farewell to parencentesis forever.
May God give you the strength and peace you need on this journey - please know you are not alone- God bless.
I’m really sorry that you are dealing with this. My prayers will include you 🙏❤️
She died in Jan. 2023.
Thank you for your bravery to win your battle. You have to know how you’re helping others going through this. I pray you’ll improve day to day🙏
She died in January of 2023, 6 months after diagnosis. So sad. She lives in the next town in MA and I have serous EC similar to this.
You are in no more pain ❤️
Having had a cancer diagnosis myself, I send you much love and hope your way. All the way from the UK. Subscribed to follow your progress.
Thank you so much for your support Mary!
My neighbor had cancer with terrible fluid build up. She had all the same complaints and symptoms as you. Sending love.
I’m sorry to hear about that- I would never want anyone to experience this fluid buildup. I hope it resolved for her. I look forward to the day it is gone.
Hello I’m from Florida and I have end stage liver failure. I have Ascites that I have to get drained every 5 days. I was taking strong pain meds but didn’t want to become dependent so I stopped taking them. This made my Ascites pain almost unbearable on day 4 and 5 but I’ve had at least 30 Paracentesis and I’ve gotten used to it. The needle does suck but if done slowly and given time for the lidocaine to take affect it’s not bad. I wish you luck and send prayers your way. God bless you and keep you safe. You will overcome this and be a wiser more aware person.
Oh wow, that sounds awful. I’m so sorry you’re going through this pain. Will you be getting a drain installed so you can drain it at home without a hospital stay?
My dear, one day at a time...that's how you have to fight, hold on to get better...I admire your courage, I think of you a lot!
Thank you!
My great grandmother (98) is now suffering from this. They removed the same amount of fluid from her stomach. It’s been confirmed that she has stage 4 cancer. We’re now emptying these fluids ourselves. Thanks for sharing your experience as it gave me insight on how she’s feeling.
Keeping you in my prayers.
Thank you so much!
Thank you and hope you recover soon
So sorry to see go through this, my wife has stage 4 uterus cancer with ascites .. will do chemo soon.. very painful.. thx you for sharing your experience.. praying for you.. thx
i also experience elevated sensitivity as fluid builds up. i've had nearly 100 paracentesis. i'm 38, no cancer, no history of heavy drinking. wish you the best
It is almost a Gallon of fluid. That had to be brutal to have all that fluid in the abdomen, the pressure, wow. It's good they drained so much. Good Luck with your chemo, it is starting pretty quick after that procedure.
It is awful when it builds up. Nothing really controls the pain and then it is also so hard to breathe! It accumulates way too quickly right now and I needed to have another drain a few days ago where they took out 5 L. Basically, every 7-9 days I need to get it drained. :-( Hopefully after my second treatment it will stop.
I just found your page and started watching your videos. I was diagnosed in July 2016 with stage 4 ovarian cancer. I'll probably comment on other videos too as I'm watching them. Hang in there. It does get better. Feel free to ask me anything.
Her family updated on her last video. She passed away in February 😢
@@n.b.0212 I saw that too. It's so sad. I wish I was able to talk to her and help her through the side effects.
@@mjohnson8472 Hi please I need advice. My wife is going through very same thing called ascites. She in a lot pain. Please help give her some advice to control the symptoms.🙏🙏
Thank you foring sharing. Make me understand what
I am going through You look beautiful ❤
Hello from London you poor lovely lady I truly feel for you what a horrible thing to be having to go through that. I'd just come across you and I'm sad you are having to do this I hope you are not on your own sending hugs and love your way I shall now be following keep positive be strong 💕🌹💕🌹💕🌹
Thank you so much for your support. It really helps as I fight this cancer!
Hi 💔❤️ I am deeply sorry that you are going through this. 😞 There is no words for what your going through. Being positive and strong is a very powerful mindset 🙏🏻
I found your channel because I’m here in bed thinking about my mom. Hoping to find something to ease her pain. She’s going through the same thing as you.
They have to drain the fluids out of her belly every 2 weeks and it’s really heart breaking to see her cry and scream when they do it to her 😭
If you need someone to talk to, I’m here. I hope your chemo goes well and you stay strong !!! ❤️❤️
I’m so sorry your mom is going through this too. The pain of the drain placement is truly awful so I truly try to focus on how much better I will feel after it’s drained.
I use ice on my belly when the fluid starts to build up, which helps so much better than heat. I am hoping chemo will eventually stop the ascites. She’s very lucky to have you supporting her. ❤️
I can’t imagine the pain u guys are going through. I wish no sickness ever existed!! I hope chemo helps u as well ❤️😭 my mom starts chemo next week. I will be praying for both of you
@@fernandezvanessa95 how is your mother doing? Did she get relief from the ascites?
@@explaincauseidontgetit3294 Thank you for asking but she’s not doing well. She never got the chance to start chemo and now it’s to late, because her body is to weak. So her fluids keep building up and drained every week or so.
@@fernandezvanessa95 I hope she’s able to find some comfort. 🙏 it’s hard to accept that such suffering has a purpose. It seems so unfair. But I believe all God’s promises are true. Keep strong in your health as you support her.
Just wanted you to know that I am thinking of you, and praying for you, from Australia
I am searching on internet as my sister had stage 4 breast cancer but metastasise spread in her liver, colon & rectal… a few days ago she told me that her stomach & legs swell up like 4 mths pregnant. Her on oncologist doctor never tell her anything about ascites, only they said the cancer has spread. She lives in Philippine…I live in Australia.
I researched and I am certain that it is an ascites… please let me know the progress of your journey… I want to help my sister ❤ she’s young with small kids…
Thank you 🙏 I pray to god to heal all patients who suffer from cancer or any illnesses. Pls god put your hand into & bless them, in the name of Jesus amen.
Hiya MzMaria , I found your channel by chance / it was fate I do believe. Sending up prayers and positive energies along with good vibes & happy thoughts with blessings surely to follow. A new frnd from West Virginia .
I’m very thankful for your good vibes, happy thoughts and blessings!
Hello from Wales, I have stage3 ovarian cancer with peritoneal spread. I'm in remission. I had 6litres drained from my abdomen. The ascites stopped after my 3rd round taxol/carboplatin. Its a hard road, but you can do it. Do not be discouraged. (Have you had genetic testing yet? I'm BRCA1+, but this means a good response to BRCA1+ specific treatment is possible) . Sending cwtch from Wales... ❤️
What great news that you are in remission - congratulations! It sounds like we have similar organ involvement so that really gives me hope! My stage is 3C but that is without surgery. They need to shrink the tumors first and then the big surgery, then maybe chemo or something else. Genetic testing is in the works.
Good. That's why I reached out, when I was 1st diagnosed and started researching I didn't find or feel much hope. I had no idea what was ahead. My mind was in turmoil.. I had to tell you that there is hope. ❤️
I'm trying to look at it as a chronic disease that we can manage until we can't. I'm also 3c.
This was my regime:
5 x taxol/carboplatin (every 3wks).
Full hysterectomy, ovaries and omentum
3 x taxol/carboplatin
Last taxol/carb they introduced Avastin (that I'm still having every 3 wks until February).
Olaparib (taking until stops working). These are the BRCA1+ meds.
My Ca125 count (it should be under 35)
1st test (April 21)..828
2nd... 1144
After 3 x taxol/carboplatin.... 33
After hysterectomy (Aug 21)...6
Now fluctuating...6,7,8.
Loosing my extremely long hair was a major challenge, I've come through this also. I can no longer hide behind my hair, I've come out of my shell. I love my chemo curls ☺
I hope u get the ascites under control.. Its so horrible.
I'll be keeping up with your vids & sending best wishes. ❤️
@@OfficialWelshWoman8309 congratulations 🥳 official tree hugger.
@@OfficialWelshWoman8309 that's awesome. I had stage 4 ovarian cancer diagnosed in July 2016. I've had 2 recurrences but doing good 7 years later. There is always hope!
@@Redsnapper123 thank you! Just saw this. I'm so very devastated Maria didn't make it. I'm still doing well. X
I get fluid around my heart, but I can't imagine having it drained like that. Prayers!!
It's definitely not fun but it provides such relief once it is done.
Bless your heart! Sending prayers
Thank you so much!
My mom had a drain tube put in so it could be done when needed. I am very familiar with this procedure. My thoughts are with you and I will be following your journey. In prayer 🙏
I’m so sorry that your mom deals with this too. I’m so hopeful that chemo will stop the fluid accumulation so I don’t need to do it anymore. Has your mother had any issues with her drain tube?
@@MyCancerJourneyMaria No. she never had an issue with the tube. Sadly , we lost her. But she had chosen never to have treatments. She remained silent about her cancer until there was nothing they could do. It was always her wish. So sad but we had to respect her wishes.
@@JG-xo5tn I’m so sorry for your loss ❤️
@@MyCancerJourneyMaria thank you…she is with me still..everyday.
Such a nice lady. Why? Why? Why?
Hi there my daughter had a drain put in because of this that being their fault by putting wrong stent in she had same ,felt more comfortable,I’m so sorry you have to go through this my thought and prayers are with you take care god bless xx
Thank you so much. I’m so sorry to hear your daughter had to go through this too.
🙏🏻
🙏🙏🙏🙏
Having followed a few cancer journeys on yt, I'd suggest if it's at all possible, to get a second opinion from someone more reputable than whoever you're currently seeing, eg Mayo, Specialist centres etc. Whether they agree or not, seems to me the number of eyeballs on it leads to a better outcome.
You want your results blown up in front of twenty amazing doctors and have them come to a consensus like at mayo. I don't know if you have done that or not
Idk. Just seems like that to me. Good luck ❤️
I’m very lucky to be treated at one of the top cancer hospitals in the country and I have amazing doctors. Prior to them, I was certainly disappointed in the “care” I received. That said, since that experience of removing the ascites, I have received treatment from a different radiologist who does an excellent job numbing the patient and has made the last procedure very very bearable. Apparently, it doesn’t necessarily have to be painful!
I was looking into this cause I retain fluid other places and what I found out about it was that pressure is on your diaphragm which is right at your lung and the diaphragm needs to go down and it’s probably not allowing it to go down to go back up something like that so that’s also possibly going on here as well OK I heard the sad news I think yesterday so sad so sorry
I too have had this done 6 times it bloody hurts.
My sister also diagnos stage 4 ovarian cancer and have ascites. She almost suffer 2 months and she die its hard for us to accept that she's gone.
This is Maria's Dad. In reviewing posts this morning I saw your post from only a few hours ago. I am so sorry to hear of the loss of your sister. I pray that you and your family find comfort through your grief. May your memories of your sister support you at this raw emotional time.
@@bikingoldman hello Maria's Dad! Just wanted to say that Maria n I had similar diagnosis. I grew very fond of her through her videos, I could tell she was a treasure. I'm sorry for your loss and hope you and all her fam, friends n beautiful doggo are doing OK. Love from Wales. 💙
Thank you for your condolences. Our world was shaken with Maria's passing, we're all managing to do what we need to do and moving forward. This BikingOldMan created a CZcams channel, joined a team of bicycle riders raising funds for Ovarian Cancer research and programs at the hospital where Maria was treated, and has been dealing with CZcams and other scams copying Maria's images and videos for personal gain. MariasOlderBrother and I have created a video which we hope we will be able to post here on Maria's channel about our experience trying to maintain her channel.
@@bikingoldman thank you for your reply. How wonderful you are helping to raise money to fight this horrific cancer. Good luck with your efforts!! I for one would love to see your vid on here. Sending best wishes and a cwtch (Welsh for hug) ☮️ 💙💙💙 Ps, subbed to bikingoldman
My jaw dropped.
Yes the ascites is very painful and I have heard from my nursing instructor that they have drained 13 liters off a lady so it can get pretty bad. I know its hard but hold on and hold to God he will see you through
Negative 👎! Your god deity is a fictional character. Her outcome will be based on skill of medical professionals and luck. 😶
I can’t imagine having 13 L of ascites in me or how anyone can function with that fluid accumulation. How was there any room for her organs to function or her to be able to breathe?
@@alphaomega1351 so I am so sorry for you that you feel that way. Maybe you should watch the case for christ. My God is alive and well and still heals every seconds of everyday. He gives those of us in the medical field the knowledge we need to save lives but it is all his doings. Everyone is entitled to their opinion but I feel for anyone who doesn't believe. I've witness many miracles in my time and I don't need someone to tell me he is or isn't real because ikw that he is. God bless you and I hope that one day you will open your heart and see the truth and for whatever has happened to you for you to not believe in him I hope that it goes away one day
@@rhondawhatley1591
You should feel sorry for yourself and why you are so psychologically damaged you've decided to pretend the equivalent of Santa Claus 🎅 is real. Sad. 😶
if you are still getting para, you may find it less painful if they try bupivocaine, and maybe bicarb, in addition to lidocaine.
Over what period of time did your abdomen grow (visually?) I am 6'1" and had always been slender. With both of my pregnancies I never wore maternity clothing, as my belly never got that big: there was a lot of room for the babies to spread out! When my belly was growing from the ascites, I looked 40 weeks pregnant! I'll write & tell you my story.
It’s hard to tell. I noticed I was gaining weight and it was odd that it was primarily in my stomach area. Even after exercise, it just wouldn’t go down. So, there was a slow increase and then over a month period, I began to look pregnant and the pain was unbearable. I did end up buying maternity pants because of the ascites. However, that was after diagnosis when I realized exercise wasn’t going to change it - not that I had the ability to work out at that point.
Four liters? Holy s***
My mom just got diagnosed and she going through the same
I’m so sorry she’s going through this. The ascites is awful.
😢
I just had an injection in my hip for pain and the Dr Drew a couple of vials of fluid caused by the pain I had. But that's nothing compared to yours. I guess I didn't know pain causes inflammation but I don't know if your fluid is inflammation or something else.
The fluid in my belly is malignant ascites (it was tested). The cancer caused all that liquid!
But what is the fluid? Bile?
The fluid is malignant ascitic fluid. It is produced because of the tumors in my peritoneum creates too much, leading to a buildup, causing pain, breathlessness and distention. In addition to cancer, fluid can accumulate on people who have cirrhosis of the liver.
I've seen your video. I'm wishing you good health through the name of Jesus Christ 🙏 when you're getting ascites build up.. how has your appetite been throughout this whole time ? Do you have an appetite to eat, or does it make you feel less hungry etc. ? Thank you in advance