Extraordinary Feats with Addison's Disease - Kevin's Story
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- čas přidán 10. 09. 2024
- Kevin's journey with ADDISON'S DISEASE starting at day 1 is far from typical.
Everything from his symptoms to diagnosis and the amazing things he has accomplished since diagnosis Kevin will leave you re-evaluating your disease management, leave you with a list of questions for your medical team and have you setting higher standards for your quality of life.
While most diagnosed with adrenal insufficiency fight for years with medical doctors not recognizing the symptoms, Kevin was fortunate enough to have an endocrinologist who quickly did a complete series of tests, including the ACTH stimulation test and discovered this UNWELL man had ADDISON'S DISEASE.
It was a 10-year progression of a slow decline in health as exercise recovery time increased, daily living became a struggle and Kevin's "LIFE GOT SMALL"
Having led a full active lifestyle with regular exercise, Kevin and his new wife started a slow and steady process of learning how to manage his medication with his active levels.
Disease management, planning, proper recovery, and common sense built Kevin's confidence to accomplish amazing things with Addison's Disease. Kevin is now in his mid-50s and with a supportive wife runs marathons.
ADDISON'S SELF HELP GROUP UK
www.addisonsdi...
BOOK "LIVING WITH ADDISON'S DISEASE"
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We are a family and as a family, we can make a difference.
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If you would like to share your journey on THE PICKLE JAR please go to www.chronicallyfitcanada.com for more information.
DISCLAIMER: The information from THE PICKLE JAR represents the experiences of the host Jill Battle and the individual experiences of each guest. No information is intended to provide or replace the medical advice of a medical professional. The host or guests are not liable for any negative consequences from any treatment, action, application or preparation, to any person following the information from the podcast.
Thank you for sharing! I need these reminders to keep on top of my daily symptoms and stress dosing. It’s a challenging disease so everyone’s story is important to hear.
Thank you Jill for the online resource you have created. Talking about the condition with someone else who knows was nice. What I got from reading the British online resource “Living with Addisons” was that shared experiences make a real difference for the small population with the chronic condition we have.
AGREE!! They are amazing...everyone should check them out!
Of course we can live a full life. I don’t want to consider myself sick and disabled.
@@kathya1956 yes we can ❤️❤️❤️
Thank you for telling your story.
@@eavision1 ❤️❤️❤️
My story was almost identical to kevins. I had many symptoms of Adrenal insufficiency. But not the skin pigmentation. But hard to tell as i have dark skin anyway? Yet my Endo diagnosed Adrenal insufficiency caused by asthma drugs?which i did not agree with.? Same Endo diagnosed me with cfs/ ME and hypoadrenal for 7 years?
So i recon i was in a slow decline heading toward Addisons? By Endo did no antibody tests at diagnosis. Just syncthen test. I have blurred vision. My symptoms got much worse after Covid. The straw that broke the camrls back.!! My Endo did not believe this? He also refused my request to scan my pituitary or Adrenals? Despite me kerp getting blurred vision? I also reacted really badyly to hydrocortisone.( i react badly to all steroids. And have had steroud phycosis many times) Endo refused to believe you can side effects from sterouds??? I got fed up arguing with him. He was just not listening to me. Not being very helpfull. Stuck in his ways. Hence i am seeking a second opinion. Withfull backing of my GP. Who has known me for 30 years. Seen me with steroud phycosis. ? And knows i always tell the truth. I cant stand Drs who dont listen.? I said to Endo" dont tell me how i am feeling? Have you ever taken steroids? Do you have Adrenal insufficiency? No. So you have no idea how i feel" " i suggest you listen to those that do know" 😂😂 I got cross. Hope my new Endo is a bit more up to date. Not so black and white. And actually listens.? Think they kniw it all. But actually we are the experts.😂😂
Keep looking to find someone who works with you. Good luck ❤️
@@kevinmckay1955 I will thank you Kevin. And i wont stop searching until i find the right Endo.xxFrom the UK.