I’m 56 and think that I might have lupus. I have a butterfly rash and it gets really bad if I get too hot. My knees hurt constantly and it’s moving to my right hip. I am fatigued. What would be the best tests and the best questions to ask my primary care doctor? I can’t take anti inflammatory because I donated my kidney to my sister. How should I start to get a diagnosis whether yay or nay?
I have had lupus for 35 years. I am 62 and I am simply exhausted! On benlysta and switching to saphnello. Have you had success with your patients with that? I am praying that it works as well as the benlysta did at the beginning.😊On plaquenal,steroids, crestor, and other usual suspects. I have horrible eye issues with inflammation. That is really troubling and I am pain. Yes, positive thinking is important but it is not practical on a daily basis when you were feeling awful and have UTIs and Covid and flu and sinus infections, etc. Anyway, I’m not trying to be a Debbie downer but I really like this channel. It made me feel like somebody really understands me. Have a wonderful day.
I’ve been diagnosed with SLE 6 years ago, and I do blood tests every 3 months. They don’t Measure my dsDNA because my Chromatin is elevated, not dsDNA but they don’t Measure my Chromatin either. They do look at my C3 and C4, metabolic panel, cbc w/diff, vitamin D in which I am very deficient, CRP, ESR, urinalysis, and….not sure if I am forgetting anything. Several vials of blood each time.
My ANTI-DS DNA is always above normal and positive. Historically, I've never had abnormal levels on the following: CRP, SED RATE, COMPLEMENTS.
@connectedrheumatology can you speak about this. Seems to be somewhat common.
This is one of your BEST videos ever! Ty
I’m 56 and think that I might have lupus. I have a butterfly rash and it gets really bad if I get too hot. My knees hurt constantly and it’s moving to my right hip. I am fatigued. What would be the best tests and the best questions to ask my primary care doctor? I can’t take anti inflammatory because I donated my kidney to my sister. How should I start to get a diagnosis whether yay or nay?
They start with an ANA. However, a negative ANA test doesn't rule out Lupus!
For your knees- try taking ginger & tumeric!
I have had lupus for 35 years. I am 62 and I am simply exhausted! On benlysta and switching to saphnello. Have you had success with your patients with that? I am praying that it works as well as the benlysta did at the beginning.😊On plaquenal,steroids, crestor, and other usual suspects. I have horrible eye issues with inflammation. That is really troubling and I am pain.
Yes, positive thinking is important but it is not practical on a daily basis when you were feeling awful and have UTIs and Covid and flu and sinus infections, etc. Anyway, I’m not trying to be a Debbie downer but I really like this channel. It made me feel like somebody really understands me. Have a wonderful day.
@@sdd123my mom used to do massages, acupressure etc that used to help her
@@sdd123I
I’ve been diagnosed with SLE 6 years ago, and I do blood tests every 3 months. They don’t Measure my dsDNA because my Chromatin is elevated, not dsDNA but they don’t Measure my Chromatin either. They do look at my C3 and C4, metabolic panel, cbc w/diff, vitamin D in which I am very deficient, CRP, ESR, urinalysis, and….not sure if I am forgetting anything. Several vials of blood each time.
😭😭😭😭😭😭😭😭😭😭😭😪😪😪 18 years I have no friends.
*hugs*