My Cancer Keeps Growing Back Even After 3 Remissions | Tatijane's Leukemia Story | The Patient Story

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  • čas přidán 19. 03. 2023
  • Tatijane first knew something was wrong when she started having pain near her ribs. Her pain became so severe she was rushed to the ER and was then diagnosed with acute lymphoblastic leukemia, both B and T cells, with mutations. At 24, she was then given 6 to 8 weeks to live.
    She shares how she processed her shocking diagnosis, the different treatments she’s undergone including a double CAR T-cell therapy clinical trial, and how she’s giving back to the cancer community.
    Full story & transcript → www.thepatientstory.com/patie...
    The interview has only been edited for clarity.
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Komentáře • 150

  • @party518
    @party518 Před rokem +78

    Thank you all for watching this video and for all your wonderful comments! ❤ your all so amazing!

  • @kailynguilieri9478
    @kailynguilieri9478 Před rokem +40

    I went to high school with her and she was always the sweetest and kindest soul! She stayed so positive during her treatment. May she Rest In Peace 🙏😇

    • @keishasemelfort811
      @keishasemelfort811 Před rokem +13

      Oh no, she passed away. Sorry to hear this.

    • @nesekitty9703
      @nesekitty9703 Před 11 měsíci +4

      😢🙏

    • @barbcosgrove64
      @barbcosgrove64 Před 10 měsíci +3

      🙏❤️🙏❤️....

    • @godschild3640
      @godschild3640 Před 9 měsíci

      @@keishasemelfort811😭😭😭😭😭PLEASE 😭ANSWER😭 ME ….😭I have stage 4 non small cell lung cancer. On Keytruda only it shrinking. Can it grow back ,,can I be cured ..

    • @MrsOverthetop341
      @MrsOverthetop341 Před 9 měsíci +1

      Oh my 😢

  • @marilynhendry2061
    @marilynhendry2061 Před rokem +59

    You are absolutely amazing! When i was diagnosed with cancer, i was totally dysfunctional for months. You have a lot to offer this world young lady❤❤❤

    • @HelenAbalos
      @HelenAbalos Před rokem +2

    • @sherrybutts5947
      @sherrybutts5947 Před rokem +3

      Yes cutie pie u are amazing and so much stronger than u knew!! Hang in there for a full healing😅

  • @hollypaduano8032
    @hollypaduano8032 Před rokem +23

    Watching this as I just finished my 3rd chemo. You are a SuperHero! OMGoodness!!

  • @debrarouth855
    @debrarouth855 Před rokem +24

    My son had the same thing. ALL. Got it in 2014. He had CAR-T after it came back after chemo, then Bone marrow transplant in 2017 and he's fine today. CAR-T was his trial back then when it first came out. Saved his life!

    • @party518
      @party518 Před rokem +5

      I'm so sorry he had to fight ALL. But he's a warrior to! I'm so happy the treatments worked!

    • @FathimaSaleem-qp8uw
      @FathimaSaleem-qp8uw Před rokem

      Car t is it costly

    • @debrarouth855
      @debrarouth855 Před rokem +1

      @@FathimaSaleem-qp8uw His insurance paid for it.

  • @barbaragalletta3030
    @barbaragalletta3030 Před rokem +19

    She is an incredible young lady. To get that news at any age let alone 24 & covid time. God bless her with good health.

  • @Howiefaye1996
    @Howiefaye1996 Před rokem +5

    That’s my amazing,strong, and beautiful warrior cousin!

  • @AS-yz2iz
    @AS-yz2iz Před rokem +30

    Someone needs to pay the price of all the people who were forced to experience traumatic health situation without support.
    Good luck to you. You're very strong. My son had Acute Myeloid Luekemia in 2019.

    • @macpduff2119
      @macpduff2119 Před 9 měsíci +1

      America needs universal health coverage for all traumatic health events costing more than $5,000-$10,000. Major hospital bills are the major cause of bankruptcy in this country.

    • @AS-yz2iz
      @AS-yz2iz Před 9 měsíci

      @@macpduff2119 No, we do not

    • @k9khodi363
      @k9khodi363 Před 3 měsíci

      I went to the ER myself and was told I might die (unfortunately I didn't). I went on to get a head injury I had to deal with myself and had to take care of my terminally ill 130lb dog myself while dealing with the head injury. Lots of people have ZERO help or people who harm us instead of help.

  • @ChrisKlein0
    @ChrisKlein0 Před rokem +24

    6-8 weeks to live at 24, I have no idea what I would do if I was told that so young.
    It sure seems cancers are getting more and more common and hitting people younger and younger…

    • @kailynguilieri9478
      @kailynguilieri9478 Před rokem +5

      Unfortunately she passed just a few days ago. Still so young, only 26.

    • @btudrus
      @btudrus Před rokem

      "I have no idea what I would do if I was told that so young"
      I have several ideas I would try. For example several weeks of water fasting...

    • @btudrus
      @btudrus Před rokem +2

      @@okamiamaterasu5416 "that's deadly wth"
      depend on the length of the fast and your fat storage. an average adult can certainly do 4-5 weeks without any problem... someone who is overweight can even do half a year...
      my own "record" were 32.5 days of a waterfast, i know what i'm talking about...
      letting the cancer grow is definitely more deadly...

    • @SM-zm5hz
      @SM-zm5hz Před 11 měsíci

      @@btudrusso true . Fasting starves cancer

    • @btudrus
      @btudrus Před 11 měsíci +1

      @@SM-zm5hz "Fasting starves cancer"
      Not really. Fasting changes the cellular signalling. Saying that fasting starves cancer ist too simplistic and not really true...

  • @cathytauscher6760
    @cathytauscher6760 Před rokem +31

    You are definitely a warrior and your positivity is amazing. You are DEFINITELY making a difference ❤

    • @nesekitty9703
      @nesekitty9703 Před 11 měsíci +2

      sadly she passed away.😢.may she R.I.P. 🙏☮🕊🌹🤍🧚‍♀✨

  • @stacydavis1682
    @stacydavis1682 Před rokem +8

    You are a warrior in every sense of the word. Just said a prayer for you.

  • @OscarsMama
    @OscarsMama Před rokem +12

    You have to be the most chill, amazing person I've ever seen. If I had your diagnosis, I would probably just crawl in a hole and die. GOD BLESS YOU!

  • @valorieoathout6956
    @valorieoathout6956 Před rokem +12

    You such a strong lady. Admire you a lot! God Bless❤

  • @faithf5846
    @faithf5846 Před rokem +12

    Beautiful brave girl. Thank you for sharing your brave story. You got this! Cancer will be a memory.

  • @130crowd
    @130crowd Před rokem +17

    Know we are out here cheering for you. Thank you for your generosity, your bravery and your strength. ❤

  • @mariatoth2649
    @mariatoth2649 Před rokem +9

    You are an incredibly brave and amazing girl ! and you're helping so many people. My daughter is also fighting a rare form of cancer, I call her "my hero" !. You are one also, a warrior ! keep this beautiful spirit. God bless you. ❤

  • @sueu6263
    @sueu6263 Před rokem +24

    You’re incredible and so is your art! Wishing you the best💕

  • @clairebeever3038
    @clairebeever3038 Před 10 měsíci +2

    What a beautiful young girl the world can be such a cruel place … well cancer is ! ❤❤❤ thank you for sharing it so helps me dealing with cancer myself …. Amazing talented positive caring kind beautiful girl ❤

  • @e.agoraphobicdickinsonpoet660

    What a lovely young woman. ❤

  • @agaaga2578
    @agaaga2578 Před rokem +10

    YOU are AMAZING! Wishing you the best of luck, pretty girl!

  • @michelles9897
    @michelles9897 Před rokem +15

    💟 thank you Tatiana for sharing. I so enjoy watching your story.

    • @ThePatientStory
      @ThePatientStory  Před rokem +2

      Thanks for watching!

    • @godschild3640
      @godschild3640 Před 9 měsíci

      @@ThePatientStorycan 🥶cancer 🥶shrink 🥶then 🥶grow back 🥶

  • @qratorn
    @qratorn Před rokem +10

    ❤❤Love from me in Sweden and the southest Town called Ystad.

  • @ElephantsRock19
    @ElephantsRock19 Před rokem +4

    You are such a bright light, I feel blessed to have come across your story and wish you nothing but peace and love...🕊️🙏❤️🕯️ETA: I meant to add that 1 of my sisters very recently had mixed phenotype A.L.L., and your story and grace and positivity has helped me tremendously, thank you! 🙏❤️

  • @kellyfarley9678
    @kellyfarley9678 Před rokem +7

    Amazing you are
    Keep fighting

  • @kathyerb3134
    @kathyerb3134 Před rokem +8

    So proud of you. I wish you every success in your continued cancer journey and helping g scientists and other patients now and going forward. You are a star girl. Keep rocking. Love your personality. From Canada 🇨🇦 😊

  • @deirdrekiely6187
    @deirdrekiely6187 Před rokem +10

    Don't let doctors weight shame you into blowing off the proper care you should receive them. If a doctor attributes *all* your problems to weight then get a new doctor or ask the Dr. if this is the care plan they would give a thin person.

  • @nesekitty9703
    @nesekitty9703 Před 11 měsíci +3

    her friend
    @kailynguilieri9478 posted here 2 months who went to high school with Tatijane commented sadly she passed away.😢.may she R.I.P. 🙏☮🕊🌹🤍🧚‍♀✨

  • @alohatvj
    @alohatvj Před 8 měsíci +1

    Thank you for sharing your survival story. You are a very strong woman. I am sending love ❤️ 😍 💖 and look forward to the day you are finally in full remission.

  • @lucyadams2521
    @lucyadams2521 Před rokem +4

    So incredibly courageous

  • @sawdust2556
    @sawdust2556 Před rokem +6

    ❤🙏Sending you hugs. You’re amazing.

  • @vivianjones5904
    @vivianjones5904 Před rokem +9

    GOD BLESS YOU!!!❤😂

  • @suchitraroy1758
    @suchitraroy1758 Před rokem +3

    Prayers for your complete recovery.. 🙏 Thank you, for volunteering for this trial..

  • @maryellenblount6376
    @maryellenblount6376 Před rokem +5

    Your story is amazing and you are so courageous in that your desire is to help others. God bless you in your journey. You are such a beautiful spirit! ❤️🙏🏼

  • @jenniferboughton5966
    @jenniferboughton5966 Před rokem +2

    I’m praying for you my friend! Thank you for sharing your story

  • @yasmeen66
    @yasmeen66 Před rokem +3

    Tatijane… You are a lovely person. I love your attitude.
    I wish for you the very best.❤️🌻🤲

  • @donnajanecastle4807
    @donnajanecastle4807 Před rokem +5

    Thank you for sharing this. You're a great person!

  • @helenbennett4391
    @helenbennett4391 Před rokem +3

    Wow!!! You are an amazing human being, if only there were more people like you, our world would be a far better place.
    Keep strong, keep fighting.
    I will pray to the universe for you.
    God bless ❤

  • @Ceerads
    @Ceerads Před rokem +3

    Thank you for this video. It’ll help many. I wish you everything good in life.

  • @sarahdermody6665
    @sarahdermody6665 Před 11 měsíci +1

    Wow! You are such a kind and grateful person. Your positivity is inspiring ❤

  • @Leah.says.the.things
    @Leah.says.the.things Před 10 měsíci

    Thank you for sharing your story ❤

  • @journeywithjan4388
    @journeywithjan4388 Před rokem +4

    I'm told the same thing. You need to lose weight! Drs need to listen to the person who has lived in the body for however many years. Praying for you and sending hugs. You are amazing.

  • @jmnightingale9055
    @jmnightingale9055 Před rokem +2

    I have AML Leukemia with the MECOM mutation and so I was given a Stem Cell Transplant in August of last year, after five days of extreme chemo which I believe was similar to what you went through. It sounds like you either had fewer side effects or you are just tougher than me because my experience was extremely traumatic while you seem to have glided through it, well, relatively. And you are right, that it is best to share everything with the docs, without worrying about TMI (too much information). I really admire your spirit and your resilience. Hang in there!

  • @macpduff2119
    @macpduff2119 Před 9 měsíci

    I was diagnosed with the rare CMML -2 leukemia - 4 months ago. One week on Azitadine chemo and 3 weeks off. Thank you so much for posting this video - it's a big help for others like me. I am sad to read that you have passed away.

  • @Begging-xm6iz
    @Begging-xm6iz Před rokem +1

    You have such a positive spirit, and I will pray that they will find the right treatment for you and others going through the same diagnosis.
    You're a beautiful young lady inside and out, and your family has to be so proud of you, putting yourself out there to help others and the doctor's, I wish you a positive recovery & remission. God bless you.🙏💕🙏

  • @createwithlinda5181
    @createwithlinda5181 Před rokem

    Wow, you’ve been through it…God bless you! I will add you to my prayers…stay strong!🙏🙏❤️

  • @dianataylordeguerrero3888

    Love, sending prayers and wishing you the best from Mexico.❤

  • @lindasalera5650
    @lindasalera5650 Před rokem

    Prayers for you to keep fighting, you are amazing!🙏❤️

  • @user-wb2yv7ll9d
    @user-wb2yv7ll9d Před 11 měsíci +1

    What a brave and good person.

  • @HWolfe
    @HWolfe Před 10 měsíci +2

    Rest In Peace ❤️.

  • @peggysue7898
    @peggysue7898 Před rokem +7

    Do you have your own CZcams page? If so, I would love to follow your journey and give you as much support possible. Sending you prayers for healing 🙏❤

  • @susiebilk9905
    @susiebilk9905 Před rokem +6

    You are wonderful ❤

  • @FredaFlynn2008
    @FredaFlynn2008 Před rokem +3

    Such a strong woman you are and I wish you a full recovery given time, I know this can’t happen over night. Sending love and best wishes from the UK and hoping you’ll stay strong to kick cancers *ss!

    • @macpduff2119
      @macpduff2119 Před 9 měsíci

      According to newer comments this lovely lady has passed away. Prayers for her family

  • @nikkihines3652
    @nikkihines3652 Před rokem +1

    God bless you dear. You definitely working on your soul mission 😊

  • @truckerhill
    @truckerhill Před rokem +8

    Wow youre my hero

  • @malshamaldeniya7997
    @malshamaldeniya7997 Před rokem +4

    I'm also reciving t-lymphoblastic lymphoma.. I can feel you❤ lets fight together..

    • @party518
      @party518 Před rokem +1

      You got this! Ur a warrior 💪🏼 ❤️

  • @myrnajoven9339
    @myrnajoven9339 Před rokem +2

    Let’s keep on praying to overcome the cancer . God is Good and Trust and Believe in His Healing hands.

  • @jimig399
    @jimig399 Před 4 měsíci

    So tragic and heartbreaking.

  • @ronlample4407
    @ronlample4407 Před rokem +2

    You are such an inspiration to all of us fighting cancer . Love and blessings to you ! You help all of us cope by showing how brave you are❤

  • @tarawhite8847
    @tarawhite8847 Před rokem +3

    I too have cancer,,,,,I hope all the best for you

    • @party518
      @party518 Před rokem +2

      I'm sorry you have cancer to. But you got this, ur a warrior! ❤

  • @deborahevans1052
    @deborahevans1052 Před rokem +8

    Yea keep going your doing great 👍

  • @Mimi92818
    @Mimi92818 Před 11 měsíci +1

    What a beautiful soul❤️🙏

  • @sweetsharie66
    @sweetsharie66 Před rokem

    What a beautiful spirit. 🙏🏾💗

  • @NikhilSingh-ev8zw
    @NikhilSingh-ev8zw Před rokem

    You are amazing. God bless you Mam 🙏❤️

  • @clairem3543
    @clairem3543 Před rokem

    Sweetheart you are making a difference already.❤ Hugs to you.

  • @countrygirl366
    @countrygirl366 Před rokem

    Prayers sweetie ❤️🙏❤️🙏💖🙏💖🙏❤️🙏💖🙏

  • @carolirvine3367
    @carolirvine3367 Před rokem

    I hope you know how many people across the world are rooting for your wellbeing x

  • @tracymcgrath1192
    @tracymcgrath1192 Před rokem +1

    So sorry. Not fair. 🙏🙏♥️♥️🌹

  • @momo43momo66
    @momo43momo66 Před 6 měsíci

    May she rest in Everlasting Peace 😔🕊️❤❤❤❤❤❤❤,

  • @splash6427
    @splash6427 Před měsícem

    🙏 ❤️ 🙏
    For You
    Always & Forever

  • @Sheila612Miller
    @Sheila612Miller Před rokem +2

    I'm so sick of doctors not listening and thinking they know your body . It's so frustrating. Your amazing and you deserve all good things and a long long very long life. Life can be so unfair. Always fight . You rock girl. I wish you were my friend,you seem so fun. I love crafting and mermaids too( but u won't catch me in a mermaid tail lol.)

  • @kriscomer7118
    @kriscomer7118 Před rokem +4

    Brave! Super woman! ❤

  • @Ida-Adriana
    @Ida-Adriana Před 10 měsíci +1

    Lastly, please see Serrapeptase also and Nattokinase (poweful enzymes) and Lumbrokinase and their anti carcinogenic actions.

  • @A.L.I.S.O.N
    @A.L.I.S.O.N Před rokem +5

    2yrs kickin butt, you've got this girl! The food looks delish & I'm craving that now, lol. I had my uterine lining come out all at once. It was like giving birth to me. We didn't know what was going on so we took it to the ER & they confirmed it was my uterus lining. It happened bc I was on birth control so I was told I can't take birth control anymore bc it's too dangerous. I'm wondering what the dr will say about yours.

  • @janroach1852
    @janroach1852 Před rokem +1

    So angry at your doctors for ignoring your health problems and automatically blaming it on your weight with absolutelly no investigation. Your positive attitude is pulling you through, sheer will.

  • @jessicamariee5466
    @jessicamariee5466 Před 8 měsíci

    Hunny you are a special woman and very strong prayers to you ❤

  • @crimenexdor
    @crimenexdor Před 9 měsíci

    It drives me insane that doctors keep dismissing symptoms. They should be held accountable!!

  • @cindyhouston6789
    @cindyhouston6789 Před rokem

    You are a beautiful, strong woman. Trust God with everything and keep your pleasant , positive attitude. I'm praying for you!.

  • @exboyjr
    @exboyjr Před rokem

    ❤❤❤🙏🙏🙏 You are beautiful!

  • @danielliu9616
    @danielliu9616 Před 10 měsíci

    RIP

  • @ginaesperanza8239
    @ginaesperanza8239 Před rokem +1

    im colon cancer stage2 diagnose last march 2022 had my operation with colostomy,done 8session of chemo biopsy is negative,my 4th ct scan done last march and its ok.but in blood there still trace of cea..and my oncologist refer mi for PET SCAN..Any one experience same mine?

  • @kevanhubbard9673
    @kevanhubbard9673 Před rokem +1

    Sadly it, the cancer, often does find a way to get around the treatments.

  • @sylvietezier4374
    @sylvietezier4374 Před rokem +3

    Je dénonce les diagnostiques stade 4

  • @ElizabethNoelleK
    @ElizabethNoelleK Před rokem +4

    ❤️❤️❤️❤️

  • @lidiawroblewska1184
    @lidiawroblewska1184 Před rokem +5

    ❤❤❤

  • @KS-yp1jl
    @KS-yp1jl Před rokem +2

  • @margaretcoyle4224
    @margaretcoyle4224 Před rokem

    🙏🙏🙏❤️❤️❤️🏴󠁧󠁢󠁳󠁣󠁴󠁿

  • @DutchEVP
    @DutchEVP Před rokem

    Tatijane sadly died on May 4.

    • @danielanderson204
      @danielanderson204 Před 9 měsíci

      Oh No, was it the cancer or the therapy that she died from...
      It's so Upsetting we don't have cancer Cures in this day of Technological Advances!!!
      Beverly - breast cancer Thriver since 1-2-19
      ( on my hubby's YT account)

  • @katrinagodfrey9931
    @katrinagodfrey9931 Před rokem

    🗣🗣🙌🏿🙌🏿🙏🏾🙏🏾

  • @tarawhite8847
    @tarawhite8847 Před rokem +3

    Were you on immunotherapy or targeted therapy at all?

    • @party518
      @party518 Před rokem +1

      I'm currently on an immunotherapy. The double car-t was a targeted therapy because it targeted my 2 cells that were infected.

  • @Gesundheit888
    @Gesundheit888 Před 3 měsíci

    Go on a Lion diet! and look at the interview between Dr. Seyfried and Dr. Ken Berry.

  • @avm1645
    @avm1645 Před rokem +7

    I pray for your healing in The Name of Jesus.
    Ask the Lord Jesus to help you and be in relationship with him as your Lord and Saviour
    He has healed me from cancer, Thanks Be to God the Father 🙏

    • @party518
      @party518 Před rokem +2

      Thank you, 🙏🏼

    • @avm1645
      @avm1645 Před rokem +2

      ​@@party518 You are more than welcome Tatijane.. praying for you always 🙏

    • @donnarobertson252
      @donnarobertson252 Před rokem +3

      A young man had stage 4 colon cancer and just ate no food. He didn't feed the cancer. He occasionally had protien like a t-bone steak once every week, but the fact that he had no sugars that cancers love to feed on healed him. His cancer diminished. He fasted for a few months. His cancer shrank to a fourth it's size and that's when he had radiation. Cured.

  • @dennishassler605
    @dennishassler605 Před 10 měsíci

    TRY TOTALLY changing your diet? We all pray for you, too!!!!

  • @nikkisolo9080
    @nikkisolo9080 Před rokem +5

    I wonder if she took the jab since this happened during Covid.

    • @annmarie1689
      @annmarie1689 Před rokem +4

      All these super cancers ..God help this woman.

    • @Ceerads
      @Ceerads Před rokem +1

      Stop saying idiotic things on this site. 🤮😡

    • @keishasemelfort811
      @keishasemelfort811 Před rokem

      Who cares about a covid vaccine. Is that what's important here? Something is wrong with you.

  • @sharonlovely4653
    @sharonlovely4653 Před rokem +1

    Dr Lorraine Day

  • @madonnaanderson3877
    @madonnaanderson3877 Před 6 měsíci

    🙏🏻🙏🏻🙏🏻🙏🏻♥️♥️♥️🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻♥️♥️♥️♥️♥️

  • @nesekitty9703
    @nesekitty9703 Před 11 měsíci +4

    @nesekitty9703
    1 second ago
    ...and so many turbo cancers over these past 2 years...even moreso lately on a MASSIVE scale...instantly/SUDDENLY so agressive and widespread throughout thr body
    stage 3 but mostly 4😢 ... youtube,social media is with flooded so many new cases

  • @luislallave9666
    @luislallave9666 Před 3 měsíci

    Have you tried vitamin C infusions?