Improve MS Walking Problems with Bionic FES Clothing - Cionic Neural Sleeve

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  • čas přidán 9. 07. 2024
  • Mobility problems can be some of the most challenging aspects of living with Multiple Sclerosis (MS). They can interfere with our family time, our work, & our fun! They can also be incredibly draining on us cognitively and physically.
    Cionic developed bionic clothing called the Neural Sleeve that uses functional electrical stimulation (FES) with personalized algorithms to deliver electrical stimulation right where we need it to help with our gait.
    My guest in this video is Jeremiah Robison, founder of Cionic. After experiencing the frustration of the lack of technology solutions to help his daughter who was diagnosed with cerebral palsy he decided to start Cionic to develop a tool to assist people with mobility difficulties.
    To see more about the Cionic Neural Sleeve visit their website here cionic.com/
    To receive $50 off your down payment use the coupon code evenso at checkout.
    *Please share this video*
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    The information on this channel is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. It is for educational purposes only. Always consult your doctor for professional medical advice.
    #MS #MultipleSclerosis #LivingWithMS #EvenSoItIsWell, #VickieHadge
    00:00 Introduction
    01:01 Description of the Cionic Neural sleeve
    05:00 How does the Cionic Neural sleeve work
    07:51 How long does it take to see improvements when using the sleeve
    11:34 Quality of life improvements with the Cionic Neural sleeve
    14:21 What does the Cionic Neural sleeve look like
    17:50 Can anyone with MS use the Cionic Neural sleeve
    19:16 Improvements with the Cionic Neural sleeve
    23:13 FDA approval of the Cionic Neural sleeve
    23:24 Ordering the Cionic Neural sleeve
    30:06 Coupon code for the Cionic Neural sleeve

Komentáře • 49

  • @EvenSoItIsWell
    @EvenSoItIsWell  Před 10 měsíci +3

    To see more about the Cionic Neural Sleeve visit their website here cionic.com/
    To receive $50 off your downpayment use the coupon code evenso at checkout.

  • @AnneMoshtael
    @AnneMoshtael Před 10 měsíci +8

    Love that he did this for his precious daughter ♥️♥️♥️♥️♥️

    • @EvenSoItIsWell
      @EvenSoItIsWell  Před 10 měsíci

      I agree! Such a wonderful thing for a father to do.

  • @jasbaksh41
    @jasbaksh41 Před 13 dny +1

    He describes exactly my problem what I’m dealing with. I had a stroke 11 years ago

    • @EvenSoItIsWell
      @EvenSoItIsWell  Před 13 dny

      Thanks for watching. Will you look into trying the sleeve?

  • @christineyleary1
    @christineyleary1 Před 10 měsíci +4

    Fascinating! The story as well as the device, and such an informative, well-spoken interview! And the pricing structure making it available to almost everyone, is pretty incredible! Thank you for sharing this!!!

    • @EvenSoItIsWell
      @EvenSoItIsWell  Před 10 měsíci +1

      Thanks so much for watching and the feedback!

  • @Nick60606
    @Nick60606 Před 22 dny +2

    I have PPMS and tried it for 4 months.
    It has 24 electrode pads, 6 each for the 4 muscle groups- Hams,Quads, shins and calves.
    The only ones that worked for me were the shin pads, which did help my drop foot.
    Always kept the other 3 groups off as they stiffened my leg.
    Wish they could come up with one just for the shin muscles.
    But thats just me and everyone is different especially with MS.

    • @EvenSoItIsWell
      @EvenSoItIsWell  Před 22 dny

      Thanks for the feedback! I am glad it helped with the foot drop.

  • @williamwesley3157
    @williamwesley3157 Před 6 měsíci +3

    I will be receiving mine sometime next week. I’ve used several FES devices over the years. I look forward to seeing how I benefit from this product. I am already impressed with how the team has been in terms of outreach and customer service. (1/6/24)

    • @EvenSoItIsWell
      @EvenSoItIsWell  Před 6 měsíci +1

      Oh I am so excited for you!! Please let me know how it goes!!

    • @ckahlquist2129
      @ckahlquist2129 Před 4 měsíci

      How is it working out?

    • @williamwesley3157
      @williamwesley3157 Před 4 měsíci

      @@ckahlquist2129In my case, it most definitely lives up to the hype. It gives me more natural foot-lift than the previous fes devices I’d used. It also helps me to properly bend my knee while walking. I have a great deal of stiffness in my leg, so this a game changer for me. The placement of the various electrodes really does make all the difference. It allows the device to be precisely geared toward your specific needs. While I don’t have the same condition as the developer’s daughter, I do share some of the same challenges. I can only speak for myself, but this device is like nothing I’ve used before. I have noticed some of the cognitive load reduction that the developer mentioned. I literally don’t have to think as hard to move around on my feet.
      In my case, I have found that it has taken awhile for me to get used to applying the device correctly. This is a small issue, but it is worth noting. The electrode pads do have to be replaced regularly. The app you use with the device is very straightforward. You also get to have virtual meetings with staff in order to assist you with the device. You will have an hour-long initial session before you start using the device. I’m still getting used to the device, but I am sold on its efficacy for me.

    • @williamwesley3157
      @williamwesley3157 Před 4 měsíci +3

      ⁠@@ckahlquist2129I’ve had it for a few weeks now. Once it arrives in the mail, you schedule a virtual meeting with one of the company’s team members. They are incredibly thorough with you. Your initial meeting lasts for about an hour. You can also reach out to them as you see fit. There’s ample opportunity for follow-up. The device uses an app which is very easy to follow. The device works great for me. As I previously mentioned, I have used multiple fes devices over the last 10+ years. Without a doubt, this is the best one I’ve used yet. Given that it focuses on several different muscle groups, it gives me a much more natural gait. If I were to have any complaints, it would be that it may take you a few days to get used to properly donning the sleeve. That isn’t a problem with the device itself. It just took me awhile to get accustomed to it. I will say that it is important to get your skin clean and free of oils in the area where the sleeve is attached. Such is important in extending the life of the electrodes. It’s also important that you pay attention to the app. It will inform you of anything you need to know, even down to whether an electrode is not applied properly. I can only speak for myself, but I am highly pleased with the device, and I look forward to seeing how much I improve over the coming months.

    • @EvenSoItIsWell
      @EvenSoItIsWell  Před 4 měsíci

      @williamwesley3157 thanks so much for sharing your experience.

  • @josephvered3991
    @josephvered3991 Před 10 měsíci +3

    Hi from Israel thanks for the interesting data gives a hope to Ms patients

    • @EvenSoItIsWell
      @EvenSoItIsWell  Před 10 měsíci

      Thanks for watching. I really is amazing isn’t it? It definitely gives hope.

  • @spencerd9325
    @spencerd9325 Před 6 měsíci +3

    I'm moving to America to get this sleeve 🎉

  • @AnneMoshtael
    @AnneMoshtael Před 10 měsíci +3

    Wonderful video!! Thanks so much, Vickie, for sharing this informational video. Amazing invention! ♥️🙏🏼🌹🌟🌟🌟🌟🌟

  • @msagoo29
    @msagoo29 Před 9 měsíci +3

    This is a wonderful device, it's like a more comfortable version of the Bioness system - and much cheaper. A shame it's only for people in the US.

    • @EvenSoItIsWell
      @EvenSoItIsWell  Před 9 měsíci +2

      I agree! It looks like it will be more comfortable than the Bioness. Definitely email them and let them know you are interested in international shipping. cionic.com/contact?a=info@cionic.com

  • @jasbaksh41
    @jasbaksh41 Před měsícem +1

    I’m really interested in this device

    • @EvenSoItIsWell
      @EvenSoItIsWell  Před měsícem +1

      Thanks for watching. Let me know if you decided to get one and how it works for you!

  • @leslievandine1078
    @leslievandine1078 Před 10 měsíci +1

    Thanks!

  • @joelgimenez4601
    @joelgimenez4601 Před 11 dny +1

    I live in Brazil and would like to know the price? I found it very interesting because I have a fallen foot.

    • @EvenSoItIsWell
      @EvenSoItIsWell  Před 11 dny

      You can find more information here cionic.com/faq

  • @ricdavlos
    @ricdavlos Před 10 měsíci +3

    this looks very promising, how does it compare to the Walkaide and the Bioness L-300?

    • @EvenSoItIsWell
      @EvenSoItIsWell  Před 10 měsíci +3

      Thanks for watching. The Cionic neural works on four muscle groups and the algorithms can be tailored to the user’s specific needs, whereas the other two work on dorsiflexion only to help foot drop only.

  • @ppksrico5083
    @ppksrico5083 Před 15 dny +1

    What is the actual price of this item if I wanted to purchase it right now outright

    • @EvenSoItIsWell
      @EvenSoItIsWell  Před 15 dny

      @@ppksrico5083 thanks for watching. It is a subscription basis product. You can see more here cionic.com/faq

  • @lynnweed6868
    @lynnweed6868 Před 10 měsíci +1

    Interesting. So, is one of the goals, - use the sleeve -- muscle pathways and muscle builds. Then, no longer need to use it ---? If so, sounds good.

    • @EvenSoItIsWell
      @EvenSoItIsWell  Před 10 měsíci +2

      Thanks for watching. For some people that can happen. Not all though. As the muscles get stronger and neuroplasticity take place there can be reduced need for the sleeve.

  • @user-xm1kl2dv3c
    @user-xm1kl2dv3c Před 10 měsíci +2

    Do you think it could be used for activities other than walking such as running, skiing, snowboarding etc?

    • @EvenSoItIsWell
      @EvenSoItIsWell  Před 10 měsíci

      Excellent question! They say it helps with gait so I am assuming it could definitely help with running. I am not sure about skiing & snowboarding as those are not typically 'gait' type activities. Definitely shoot them an email and ask! cionic.com/contact?a=info@cionic.com

  • @shamanagpal1631
    @shamanagpal1631 Před 8 měsíci +2

    Hello, I have multiple sclerosis my right leg is affected so this device will work

    • @EvenSoItIsWell
      @EvenSoItIsWell  Před 8 měsíci

      Thanks for watching. Let me know if you order one and how it works for you!

  • @brendalytwyn9518
    @brendalytwyn9518 Před 10 měsíci +2

    When will Canada be included.

    • @EvenSoItIsWell
      @EvenSoItIsWell  Před 10 měsíci +1

      Thanks for watching. I am not sure yet. With medical devices it can take some time for approval. Definitely sign up for their newsletter and send them an email expressing your interest!

  • @tahirrasul7839
    @tahirrasul7839 Před 5 měsíci +2

    Does this work if I have severe spasticity?

    • @EvenSoItIsWell
      @EvenSoItIsWell  Před 5 měsíci +1

      It may. I encourage you to talk with you doctor and send questions to the company.

    • @tahirrasul7839
      @tahirrasul7839 Před 5 měsíci +1

      @@EvenSoItIsWell thank you

    • @EvenSoItIsWell
      @EvenSoItIsWell  Před 5 měsíci

      @@tahirrasul7839 here is a link to their questionnaire that my help cionic.com/assessment

  • @crossroadsaogpmanny9729
    @crossroadsaogpmanny9729 Před 10 měsíci +1

    Can I use a Care Credit Medical Credit Card?

    • @EvenSoItIsWell
      @EvenSoItIsWell  Před 10 měsíci

      Thanks for watching. I am not sure but you can reach out to them here gozeen.com/pages/contact-us