MassME 2023 Annual Meeting: ME/CFS - Changing the Narrative, with guest speaker Ed Yong

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  • čas přidán 13. 09. 2024

Komentáře • 6

  • @mogbma
    @mogbma Před 10 měsíci +8

    Thank you for posting the recording. This was a FANTASTIC event and Ed Yong did an amazing job. I hope this videos is seen by tens of thousands of people!

  • @KittenCasserole
    @KittenCasserole Před 9 měsíci

    Thanks to MassME and Ed Yong for this great presentation ❤

  • @solar979
    @solar979 Před 6 měsíci

    I am a mother of a severely ill daughter with ME/CFS. We live in a small country in Europe. Our experiences are the same as those of people all around the world. She's been ill for 14 and severe for 7 years. Our visits to doctors were very traumatic and damaging to us both. I've developed anxiety disorder. We are abandoned from our family and friends. People like Ed Yong have tremendous positive impact on our lives. We admire and respect him deeply.

  • @themupsmuppet
    @themupsmuppet Před 10 měsíci +3

    I want Susan Buckley to read every text to me from now on. And thanks to Ed Yong (who can read to me too) for shouting into the abyss.

  • @jeffreycliff922
    @jeffreycliff922 Před 9 měsíci +2

    Downvoted for being youtube standard license instead of creative commons. There is no justifiable reason why useful information like this should be restricted by copyright.

  • @m.c.o.3068
    @m.c.o.3068 Před 10 měsíci

    Postviral Experience Considerations
    For the adult patient, everything - social expectations, anticipated challenges - is the same; however the patient's ability to address and meet those realities half-way is altered.
    Awareness, lacking alertness - a diffuse versus discrete neurocognitive state.
    Evolution may have incidentally generated this immune mediated altered state.
    Afflicted early humans may have self-quarantined away from the group, partly because of a reduced ability to meet everyday realities half-way.
    The larger group's genetic character would have moved into the future - thanks to this self quarantine behavior, provoked by multisystem immune reactions - long before germ theory.
    Beyond that, a diffuse character of mind allows a kind of sensory and information overload.
    Some of the self quarantined early humans may have survived; because they had enough processing power to make positive sense of the cognitive overload.
    These, (self-quarantined), individuals, able to cope and survive, would have become a part of human genetic evolution as well.