Observations on long COVID through an ME/CFS lens

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  • čas přidán 17. 01. 2022

Komentáře • 30

  • @billtoogood4979
    @billtoogood4979 Před 2 lety +19

    Thank you! Very helpful information. I've been dealing with covid longhaul issues since September of 2020. Finally seeing a "Longhaul" physician in February. Finger's crossed.

    • @LDR01
      @LDR01 Před 2 lety +1

      Please let us know how you are! I've been struggling with ME/CFS for years, so I understand. Sending you good wishes.🤞

    • @LestoFremo
      @LestoFremo Před 11 měsíci

      How u doing.?

  • @josephtpg2205
    @josephtpg2205 Před rokem +1

    THANK YOU. Your advice has helped me with my long covid. Since March 2020.

  • @denisabytyci9202
    @denisabytyci9202 Před 2 lety +2

    Thank you so much for this! Good work!

  • @FORTRAN4ever
    @FORTRAN4ever Před 6 měsíci

    I can be called a ME/CFS long Hauler. I got "sick" back in 1988. I have gotten better but nowhere where I was when I fiat got sick. Some symptoms like chronic sore throats and swollen glands have gone away others have been less severe such as night sweats and cognitive dysfunction (though still very disabling). However, my intolerance to aerobic exercise will result in a crash that will set me back for several weeks. Also what has changed is a medical community that remains skeptical of the actual existence of ME/CFS and blow me off by saying "so what else is going on with you?", despite mountains of evidence that ME/CFS along with Long COVID are metabolic disorders resulting from dysfunctional mitochondria.
    I am sure that when a definitive ME/CFS diagnostic test is made available, doctors will be forced to get out denial about the existence of the disease and be forced to take their ME/CFS patients seriously.

  • @printerpr0n
    @printerpr0n Před 2 lety +7

    Long hauled twice. A year the first time and second time was worse. Recently found the MCAS protocols and now almost back to normal.

    • @mustafanaser9789
      @mustafanaser9789 Před 2 lety +1

      What are the mcas protocols?

    • @marionharris5952
      @marionharris5952 Před 2 lety

      ?

    • @Ex-expat
      @Ex-expat Před 2 lety +9

      Most likely Mast Cell Activation Syndrome. Mast cells are the controllers of how the immune system gets triggered.
      1. D vitamins/ NAC/ Bioflavonoids may help
      2. FODmap diet to find trigger foods.
      3. Avoid histamine or histamine triggers (anything not fresh or like aged meet, salami, red wine, Whisky etc are high in histamines)
      4. Other triggers may be heat or other

    • @Whocares0009
      @Whocares0009 Před 8 měsíci

      @@Ex-expatDamn you’re expert on this, thanks pal.

  • @bell4textu973
    @bell4textu973 Před 2 lety +23

    Long covid and post infectious ME/CFS is the same. Both make people disable, even mild to moderate illness.

    • @bell4textu973
      @bell4textu973 Před 2 lety +3

      Yes, and it is an autoimmun disease.

    • @sherrybutts5947
      @sherrybutts5947 Před rokem +1

      Why are they not studying the pathology of cancer and the blood coagulation similar in both diseases

    • @Turtledove2009
      @Turtledove2009 Před rokem +1

      @@sherrybutts5947 They are.

  • @SweetiePieTweety
    @SweetiePieTweety Před 2 lety +3

    This was OUTSTANDING 👍👍👍

  • @lasarod
    @lasarod Před 2 lety +8

    I have ME/CFS and now my son is having Long COVID symptoms. 😔

  • @traiandanciu8139
    @traiandanciu8139 Před rokem +1

    May low temperature agglutinine occur after SARS COV2 infection and induce erytrocyte aggregation at low blood temperature? inducing capillary subobstruction.

  • @traiandanciu8139
    @traiandanciu8139 Před rokem

    At TWiV659 at min29 Christian Drosten indicate low tissue temperature better to replicate SARS COV2.

  • @c.k.1530
    @c.k.1530 Před 2 lety +2

    Try L Arginine for Chronic Fatigue Syndrome gave to my dad he seems better not as tired

  • @bitegoatie
    @bitegoatie Před rokem +1

    Thanks for the video, but please, please stop dropping -al suffixes. It’s distracting listening to science talks with the combination of adjective overuse combined with truncated suffixes in those gratuitous adjective instances. It’s a community problem in the sciences, and it has begun to creep outward into other fields by way of the web. Do your part. Say “immunological”, for example, because chopping off the suffix results in a word with no use (unlike the noun “logic” for example - generally, the raw -ic and -ics words are nouns, not adjectives).
    On content, thank you - this is good stuff.