Early Multiple Sclerosis Symptoms What it Feels Like
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- čas přidán 1. 06. 2024
- There can be many early symptoms of Multiple Sclerosis (MS) including numbness, sensation loss, vision problems (called optic neuritis, spasms, cog fog, fatigue and more. In this video I talk about my early symptoms before my MS diagnosis and MS symptoms in general. There are some symptoms that are fairly common and some not so commonly known ones such as L’Hermitte’s sing and McArdle’s sign. Because MS can affect the entire central nervous system (CNS) and can affect almost every part of the body. Check out this video to learn more about MS symptoms.
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Do you have questions about MS symptoms? Would you like to see more video about MS Symptoms?
I’m cancer survivor I’m blaming my treatment but I been in hell whit pain !!
Now all your symptoms are my 😞😔😫
@@sandramelara7664 congratulations on surviving cancer! I am sorry you are experiencing pain. I hope you can find some relief.
I got constipated and took a laxative and now my whole body has electric shocks happening and i just feel like crap overall. Did this happen to u
ive had other nerve issues before this but this is next level
@@attached3245 I am sorry you are experiencing that. I have not had the electric shocks over my whole body, but I have experienced Lhermitte's sign where I had electric shocks down my spine when I had my first relapse in 2006. To see more on Lhermitte's sign you can watch this video czcams.com/video/qa1fWt7Es28/video.html
Do not ever ignore foot drop, numbness, etc…I woke up one morning and my right hand didn’t work…thought it was a pinched nerve because I have so many spinal issues etc…and ignored it. I had had a STROKE. It got much worse after a few days and I wasn’t thinking correctly and was confused which you won’t realize is happening….My daughter sent the sheriff’s dept and it saved my life…do NOT ignore weakness and numbness anywhere!!!
Thanks for watching. Excellent advice!
Thank you so much for sharing your story. I was recently diagnosed. I am 44 and my first MS symptoms started at age 22. Mine started with vision loss/disturbance. I also would experience numbness in my left arm. The loss of vision was diagnosed as ocular migraines. I had frequent loss of vision throughout my 20’s. I’ve been pretty certain I had MS since age 30. My worst attack was in the beginning of 20/20. I woke up one day and have severe pain and weakness in both legs but primarily the left. This went on for months. I also experienced loss of bladder control. ER visits and still no diagnosis for why I could barely walk. After months I felt like I had to relearn walking. Finally a neurologist said fibromyalgia. He did do an MRI of the brain but again no contrast. Same with all the previous. I finally had enough symptoms for the 3rd neurologist to order an MRI brain and Cervical spine. I had an increase in old symptoms and many new symptoms. MRI read that I was having mini strokes in my brain and this got me admitted. I wasn’t having mini strokes. After an MRI with contrast it was undeniably MS. I was diagnosed 5/5/22. I go the MS specialist the 26th to discuss medication options.
I too had many symptoms I ignored but I also had just as many if not more that I was seen for. I’m proud of myself for handling this for so many years without help. I worked in the medical field almost 20 years. I was no longer able to work since 2019. I wish you so much happiness. ❤️🙏 we’ve got this!!
To all that are still searching for answers, don’t give up. Speak up and advocate for yourself.
Wow! Pais, your story is amazing. I am so glad you kept advocating for yourself. I hope that things improve for you now that you have a diagnosis.
WARRIOR.💪🙏😘
What do you think now in retrospect …. Was there anything else you would advise someone to say to their doctor early in this process? Do you think asking for the MRI emphatically could help or cause a reaction in the relationship with caregiver?
Went thorough at least 4 gp’s before getting a proper lab screen to find autoimmune issues and a parathyroid adenoma. I almost had really get loud to get the doctor’s to listen and they all have such a need to be in control that it took thick skin not to fall into depression deeply. I feel for you immensely.
My symptoms started years ago! Balance issues, migraines and vertigo. Back in 2017 I did have a fall but never hit my head. They sent me to a physical therapist and she asked me when I had the concussion. Told her I didn’t have a concussion. She said there was lesions. My doctor never told me about. Two years prior I had issues with moving my legs at all. They just wouldn’t move. Went to the hospital and they said it was an anxiety attack. Had been under stress a lot. So I just assumed that’s what it was. Fast forward to January 2023. Had what felt like my leg was giving out from under me when I walked. Then a couple days later my vision blurred on the left side and I was seeing double. Gradually progressed to dizziness to the point I couldn’t move my head without feeling the room spin. Husband picked me up from work . Thought for sure I had or was having a stroke. At that point I couldn’t walk and was having trouble with my speech. I would lose train of thought mid sentence. Took me to the ER . Ran test and found out I have spinal stenosis. Doctors still didn’t think it was causing my weakness. Spent 2 weeks in hospital. Got out did home care. Wasn’t getting any better. Went to a different hospital. Spent a week and then transferred to inpatient rehab. They ran a lot of test . Did a lumbar puncture. Did have some elevated numbers on a few test that came back. They did an ivig for 5 days. Then sent me home. This was in April 2023. Here it is June 2023. Still can’t walk without a walker. I’m doing physical therapy but don’t feel it’s helping. Something is nagging me telling me it’s MS . They did set me up with an appointment with an MS doctor They said in 3 months or the earliest available. Which I have one for Aug . Yet my neurologist says he doesn’t think I need to go. I’m frustrated and feel hopeless. Sorry I know this was long but I’m really struggling and I guess just wanted to see if anyone has experienced anything similar.
Oh I am sorry you are feeling frustrated. Keep advocating for yourself. MS and other auto immune disorders can be very difficult to diagnose. I hope you get answers in August.
Keep fighting for answers. Maybe you already have them but if not don’t get discouraged. 💪 wishing you all the best! ❤️
Hey how are you now? Any updates?
Yes…all of the above for YEARS
My sister has MS. Her first symptom was dizziness. Now fatigue can be overwhelming. She has to go down when that happens. She’s lucky to be coping well now.
I am glad your sister doing well now! Thanks for watching!
Yes fatigue is very bad my husband has mocked me for yrs sayin im sooo lazy
Asked for a divorce, wants to abandon his daughter 16yrs ,lupus condition ,n son with mystenia Gravis
Sad sad sad
Everyone seems to believe his side
Yet we r suffering
Something not right
I had no idea i had MS, my first symptom i knew of was going blind on holiday i had it happen twice when i came back. it was all ignored by the GP my sight came back though. Over the years from 2000 i had like you odd things. stiff legs, weird dead leg, nettle rash in hands, numb fingers, fatigue, bladder issues, but the worse one for me was my left foot being dead but not dead. over the years i had ongoing left side weakness and worsening mobility. they say MS is a snow flake disease everyone has it differently so that is why it is hard to diagnose. xxx very clear and precise video. x
I have had that “dead but not dead” feeling too! Like I don’t know where in space my foot or hand is sometimes. It really is a snowflake disease. Interesting about the rash, does it come and go? I have had two rashes this spring but put them down to allergies.
I am 20 years old. I have been diagnosed with trigeminal neuralgia. Prior to that, i got sharp shooting pain in my right hand that comes and goes, the doctor treated it with medication but couldn’t find a reason. I have vertigo everytime I change my position which causes me to fall sometimes. Every now and then I get a burning sensation in one of foot which also comes and goes. I get air hunger in summers which makes me feel like I will pass out soon. My blood tests are normal. I went to the doctors and they said I had hyperrflexia and referred me to the specialist who said it is all because of anxiety. I also get random emotional outbursts. I have had anxiety since I was a kid and I know enough to tell this isn’t it. I do think I have MS, but no one will listen
I have MS and now Trigeminal Neuralgia, a very painful condition that very few MS patients have. It's being controlled with high doses of Gabapentin. I hope you are spared.
Thanks for watching. I am so sorry you are experiencing that. I have heard how painful it can be.
I wish the garage or lyriva worked for me. Ive been in the most excruciatingly pain for 16 years it started in my neck. Now i can't even hold up my arm. My hair falls out and im so tired all of the time. I feel like someone is crushing my bones the nerve pain burns so bad from my left side of neck down my dorsal nerve under shoulder blade. Im miserable they have come 3 cervical fusions. They arent listening to me. So far only steriods and biologics have worked somewhat. If i didn't have 4 kids or any kids at all, id just want to die. The pain isnt normal. I feel like i should be in a hospital.
Me too.
Thank you so much 🙏🏾💪
I'm working to find out about my condition right now. I have all these symptoms and watching this while lying on bed because of fatigue and loss of balance right now
So sorry you are experiencing symptoms. Keep advocating for yourself. It can take time to get to a diagnosis.
I had a severe case of mono and was hospitalized when I was 17. Fatigue would set in terrible for about 2 days then feel okay again. I have osteoarthritis and scoliosis in my back. I just had 2 more MRI one on my neck the other the spine. My scoliosis is in my neck. I also have bone spurs everywhere. I see my neurologist in November. I suffer vertigo, pee all the time. Brain fog.
Thanks for watching. Wow, that seems like a lot. I hope you can get some answers and help from the neurologist. Keep me posted.
Are mono and scoliosis indicators for MS?
@@alyssakoch9068 Scoliosis is not an indicator of MS but there can be overlapping symptoms. Mono - or Epstein Barr Virus has been shown to be one of the causal links to developing MS. See this video on it czcams.com/video/OCsQRcrGF8o/video.html
Thank you for this informative video!
You’re welcome! Thanks for watching.
Loved this ❤👏🏻👏🏻👏🏻
Thanks for watching.
Great video.
Thanks for watching!
I was just diagnosed on Jan 19th. Had a brain scan, the Dr's office called that and I got "you have a disease called multiple sclerosis". I had gooflwd the results of the MRI, so I kind of knew before that call. Having my thoracic/lumbar MRI on the 9th. Lumbar puncture on the 8th.
So glad that my symptoms have a name.
Thank you for your videos, so much useful info.
Welcome to the club you never wanted to be a part of. 😉 Try not to worry too much (but it is ok and normal too worry), we can live well with out MS! I am 15+ years in and still doing well! Thanks for watching.
@@EvenSoItIsWell
15 years?? 💪🥰
So encouraging!!
You are an inspiration!!
An earth angel!!🙏🔥😘
@@themysticmuse Yes 15+ years! Thanks for the compliment! I hope that my channel helps people with MS to have hope and to live well.
Thank you for making sucha great video
You are welcome! Thanks for watching.
Thank you for the video. You are wonderful for making it.
Thanks for watching!
Thank you this has helped me so much.
Thanks for watching! I am so glad you found it helpful!
Thanks for this video. Just before covid I lost the sight in my left eye, my eye clinic could not find any cause. I have increasing problems with my balance, doctors opinion is that it's caused by cervical spondylosis. Now I find I have periods of double vision, blurred vision and eye pain, weakness in my left arm and more. I think I need to get these problems properly investigated.
Thanks for watching Paul. Keep advocating for yourself. Autoimmune disease /disorders can be challenging to diagnose.
The great video very inspiring. U have very positive outlook.
Thank you and thanks for watching!
Thank you for sharing. I feel like I’m always questioning myself and my symptoms come and go so my family thinks I’m a hypochondriac. The only tangible symptoms are the temperature intolerance in my feet that literally burn- like turn my feet bright red when the temperature of a shower is comfortable on the rest of my body.. so literally causes my legs to change colors with increased burning. The other tangible symptoms are sporadic- so hands get stuck or I drop things, I mean closed hand either won’t open or drops it without control. I am now experiencing bladder leakage, not urgency. I don’t even feel it to control it. Same thing with bowel but milder. I get hand spasms that are extremely painful- like my hand is moved in an unnatural position. I woke up with numbness around mouth. Vision became blurry overnight. Fatigue to the point I can’t get out of bed, can fall asleep after taking stimulant like Red Bull. I have word finding difficulty, can’t articulate words. Cognitive impairment to the point I thought I had add, memory issues that require alarm clock with task list and notepad to keep track- or things don’t get done. My daughter thinks I’m just a lazy inattentive mother. My husband thinks it’s all in my head and// or normal aging affects. I am 44 years old- I am a nurse, my job is very active, these are not normal things at my age. I am not having a sudden change in continence.. but so many of these symptoms really do make me question if maybe I am connecting things that are coincidental. I am at the beginning of an ms work up by my doctor and really scared. Part of me needs someone or something to validate my symptoms so my family will have more empathy abd support. Part of me is hopeful to find an answer so I can work or fixing this, I am the primary provider in my family. Part of me is scared of what happens next. These occurrences happen together, symptoms vary- but they seem to happen around the same times of the year. They are markedly worse this year. I really got scared with the numb face, I had diverticulitis, then peeing my pants when I ran, bowel leakage while I walked. Gross- but I was at work felt like I had to go, communicated I needed a break and without any warning, control- just spontaneously felt moisture- small enough to manage.. but scary bc it was completely spontaneous. I wasn’t trying to hold anything in, both bladder and bowel there was no heightened urgency to use the bathroom. It just happened. Bowel I knew I needed to go, but zero urgency there, most recent my vision blurred overnight.
Ugh, so sorry you are experiencing all this. Keep advocating for yourself and asking for referrals and second opinions. I hope you get answers soon.
I've got MS. Your symptoms sound like vitamin d deficiency. Which can cause all of the symptoms ESPECIALLY NUMBNESS AROUND YOUR LIPS/MOUTH. even if you're on d you may still need more and vitamin k2 to absorb it so it doesn't go into organs & cause damage. You should see an endocrinologist for blood tests.
🤯🤯🤯 I recently noticed that shower thing too! The water felt great and the rest of my body but so hot on my feet I had to move them!
@@purityandplants I’m in the process of pushing past dismissive doctors to find the cause and treatment. I will share my progress as it comes.
Your symptoms are absolutely valid! Don’t let anyone tell you otherwise and keep on advocating for yourself. 👍 Often the people closest to us are the least understanding and become frightened when for example the parent doesn’t „function“ anymore the way they’re used to. It’s understandable but soo frustrating. Don’t give up and get all the medical tests you need. ☺️ All the best to you ❤️
Love the video, i was diagnosed 4 years ago and i relate to many of the symptoms discussed. Btw the hanging wall decor is crooked lol. ❤️
Thanks Jeff. Lol! I noticed that too when I was editing. How are you doing with your MS?
Thanks for all this great info. I have had RA since I was in 8th grade so 13ish. Was diagnosed as JRA back then. So I have struggled with that seems like forever. I am waiting for a neurologist appt this April. When I look back I have had symptoms of MS for years. Lack,of sleep from leg issues have been around for years. Bladder issues started two years ago. As my general doc says, I check off a lot of the boxes for MS. A lot of the symptoms you talk about I’ve had and still have. From what I also understand having an autoimmune disease is like having an opening for having another. Thanks for the positiveness that you give. As a retired medical professional, I am a great caregiver, but when it comes to myself, I have no patience. Lol. I want the answers now so I can move on with a plan. So we hurry up and wait. Since I live in a very rural area, we have to travel 2 1/2 hours for almost any specialist appts, that’s why the long wait for appts. The lack of sleep for me right now is the worst. Leg cramping, stiffness, jerking, seems of course to be the worst at night, though I have noticed within the last few years I can’t go to see a movie, because sitting for that period of time will cause my legs to become stiff cramps and jerky. It is also interesting we live in a cold winter climate and yes it does get warm and humid in the summer. I do better in the cold than the hot weather. I’ve had more pins and needles in my arms legs and face more often than I’ve had before. So long story short, I have had symptoms for years so even though I am 67, and thinking you can’t have MS when your that old, I’ve probably had it for years and more symptoms are appearing more often now. Again thanks for your positivity. Your videos are getting me through this waiting period.
Thanks for watching. I am sorry you are going through all of that. I hope you can find answers soon. Although it is not common to be diagnosed at this age, it is possible. Keep advocating for yourself. Let me know how it goes!
This really helped me loads! Thank you! You discussed symptoms that most people don't discuss. What do you know about the "hot water test" that was used many years ago?
Thanks for watching! Years ago doctors would put people in hot water baths to see if their symptoms got worse as part of the diagnosis criteria. Thank goodness they don’t do that anymore!
Hello
Nice to meet you
New Subscriber here from Amman Jordan 🇯🇴
Great information
Always great to gather more medical information
Another Queen of Denial here too
Thank you 🙏
Thanks for watching Elizabeth!
Your experience is almost identical to mine. MS sucks, stay strong and take care ❤
U 2! Thanks for watching.
Please do more . I HAVE KNOWN SINCE 1997 I have MS BUT since I have a few other big health issues they have become so obsessed with them the biggest thing is toning to end me with a fall. I need your wisdom .
With an aching heart.
Paula marie
Thanks for watching Paula Marie! Hang in there and keep taking exquisite care of yourself. I will definitely keep making videos!
Thank you for your video. I have some symptoms but to be sure it's MS I'll keep an eye for others, and will not ignore them! ;-) Dominique
Thanks for watching. You may not experience that all but it is good to keep an eye on our symptoms.
Hello. I stumbled upon your channel and it has been so very informative. I am someone who is struggling for answers to symptoms that I have had for about 6 years now. I wanted to ask you if you had issues with doctors and loved ones treating you like its something else or if you are a hypochondriac? I am almost 50 and I get it must be menopause or shaking it off to just aging and not being able to do what “we” used to. This has been so hopeful and giving me hope to one day get answers and appreciate your channel. Thank you Nicole
Thanks Nicole. Yes, I have had people not understand including doctors and family members. In the year prior to my diagnosis I saw 5 doctors trying to understand what was happening. Keep advocating for yourself and asking for referrals if a doctor is unable to help or seek out second opinions as you are able. For family members, it can be challenging but try not to waste energy on explanations of your symptoms and just love them for who they are. I hope you find answers soon!
Thanks ❤
Thanks for watching.
Your videos are so informative but also relaxing! I'd be interested in you going into more depth on your foot issues - drop foot, pain, etc. Any & all foot symptoms. Thank you!
Thank you! I will definitely at foot drop and foot issues to the upcoming schedule!
hi there. i'm watching this video because a neurologist today told me she suspects i might have a central nervous system disorder, most likely MS. i am only 17, and i know that this disease is most common in people from age of 20 to 40. but anyway. i'm listening to what you're saying and i can relate to most of it. i have been "diagnosed" with mononeuropathy due to my tingling sensation & the loss of it, mostly in my arms and feet. i also have scoliosis like you do. i have had issues with muscle spasms, temperature intolerance, balance and bowel control ever since i can remember, but all of this has been brushed aside and blamed on my autism (i am diagnosed with it). recently i had been dealing with cog fog, sleeping issues and migraines too - i have been put on anti migraine medication & started taking it today. i'm getting an mri done most likely in may. i am now experiencing crippling anxiety because im afraid i might be over-exaggerating my symptoms & the uncertainty is getting to me...
nevertheless, i just wanted to say, that your video helped me. thank you
Hi Max thanks for watching. I am sorry you are experiencing all of those symptoms. Please do not think you are over-exaggerating your symptoms. Write them down and bring them with you to the doctor. Good luck with your MRI and keep advocating for yourself. It may take some time to reach a diagnosis, but keep at it. Also know that we can live well with MS! I am 15+ years into my MS journey and still doing well! Please let me know how things go.
The coming and going of the symptoms is a huge road block with medical help 😅 I ignored my symptoms more than I should have too haha. I have GP appointment number 4 today with hopes to get referred to neurology 🤞
It is so hard when they come and go. It is easy to put off appointments when they do that, isn’t it. Good luck with your appointment!
My first symptom was visual. I had hairline fracture at my coccyx because I wrongly estimated a distance. After that, my relapses will usually start with visual problems or more muscle weakness. Thanks for sharing your story.
Ouch! A fractured coccyx sounds painful. Sorry it started that way! Thanks for watching.
I really appreciate this. I’ve been going back and forth to the doctors. All of these symptoms are what I’ve been dealing with for the last 2 years. It’s been so hard. I’ll have my doctor check me for this next visit.
Thanks for watching. I completely understand how frustrating it can be to have a bunch of crazy symptoms and not have any answers. Keep advocating for yourself and asking for referrals and second opinions until you find answers. Good luck!
@@EvenSoItIsWell
Yes, I
will keep reading your replies...thank you
Hey, any updates? Hope you are well!
@@jadep4802 that’s so kind of you. I haven’t been to the doctor in quite a while. I was tired of being told everything looks fine, when clearly I’m not. Maybe one day I’ll find a practitioner that will take the time
Very Inspiring thank you!
Thank you! I am happy it inspired you!
@@EvenSoItIsWell I am going to put out content as well, Im on youtube and have shared some of mt MS journey snd that was just the beginning I plan on sharing a lot more
@@custodialwisdom6794 that is wonderful! I will check out your videos.
I been to several doctors over the past 6 years and still undiagnosed. I've only had MRIs, cat scans and x-rays. Nothing out of the ordinary on my scans. My symptoms started with sharp stabing pains in abdominal and lower back with muscle spasms/twitching and inability to hold urine. Symptoms improved after a couple weeks. Twitching and sharp stabing pain however never went away. Then twitching ( sometimes contant spasms/hundreds a day) spread to my main torso, back, legs and arms over 6 years. Along with foot cramping. Constant mid/upperback pain and not sure how it started but gets extremely irritated and worse when laying on it. I get numbness and tingling in my arms and legs. Then about 2 years ago I got spasms in my ears causing vertigo. Notice some weakness here and there but not Constant. Lots of tightness in traps/midback. Get super fatigued like I worked out for hours but didn't do anything (this mainly occurs in my neck and mid upper back). Involuntary finger movement begain about 2 years ago. Had two episodes where I could barley lift my head and couldnt drive because braking strained/fatigued my head to much. Then full arm and leg jerks/ Involuntary movement started this year. Now most recent I get a Constant lump in the throat feeling. Brain fog /slow to think sometimes. New symptoms just seem to increase and progress overtime. Most common symptom is spasms. I'm not sure what I have but definitely seems neurological. Looking to start seeing a neurologist again but so sick of no answers and being dismissed. Wish you all the best. Thanks for reading.
Keep fighting! 🧡🧡🧡
Thanks so much!
I have been getting all of the same symptoms other than the vision issues the last 3 weeks and can barely get out of the house because of it. I have been to hospital twice in 3 weeks for heart scans, bloods and blood pressure and have had bloods done at the GP and they're all coming back as normal.
The last 'doctor' I seen had the nerve to try and make out as if it was all in my head or if I was being melodramatic. The whole thing is really getting me agitated especially the fact that the NHS don't seem to care or take me seriously. Also my mum and brother are having the same issues!
Thanks for watching. I am so sorry you are experiencing all that. Keep advocating for yourself. Keep me posted.
Are you taking any medication. I’m currently trying to decide which one to go with. Again, thank you so much for your help 🙏🏾
Thanks for watching. Yes, I am currently on the generic of Copaxone and I take baclofen to help with my spasticity. I would be open to changing medications if needed. Choosing a medication is different for everyone. Work with your doctor and choose the most efficacious one that you are comfortable with. 🙂
I enjoyed your video. I heard a Lot of information that I needed to hear. I have a Lot of symptoms that you said. I haven't saw a neurologist yet. Or had a MRI yet. But I feel like I have it. Would you please respond. Thank you.
Hi Melissa, if you are having symptoms, please see your doctor. It could be any number of things but your doctors can start doing tests to confirm. Let me know how it goes!
I’m due to have an MRI scan in a week after having a migraine around the clock with severe vertigo for 8 months (I have been suffering with bouts of this for the last 10 years) I’d never even heard of MS but after just stumbling on this video I’ve realised I have no feeling in my two toes, which I just put down to wearing high heels (and maybe it still is) but I’ve lost some sensation in my arm and when I touch it, it feels like a vibration through to my hand, my mouth is also slightly numb and lately my skin has been crawling with tiny pin prick sensations with it. I have no idea why I have ignored these symptoms, I just accepted them 🙄 still hoping it’s just crazy migraines causing the problems 🤞🏼
Thanks for watching. These symptoms may be related to your migraines as well as some migraines can cause brain lesions. I hope you get some answers. Keep me posted!
Thank you… what kind of doctor can help with nephritis ? This is helpful. Yes another video more in depth.. how did you get your doctor to catch on so quickly?
Hello! A rheumatologist or the nephrologist could help with nephritis. Tomorrow’s video will include more information about my diagnosis. It actually took about a year and visits to 5 different doctors before I received my diagnosis.
@@EvenSoItIsWell you are so positive for having to weather all those doctors.
Thanks this is generous information sharing. So personal :-) … Your optimism is contagious!! TY!!
I had many symptoms that similar with ms. But, i recently got ana profile test, and the result is my scl-70 is increased (even though it is still on the borderline). I will go through another test to make sure what type of autoimmune i might have. I hope it would be something that is more treatable and i hope my symptoms will remain mild. Though, i know for sure we could definitely live a very fulfilling life even though we have autoimmune. But, at this point i still have so much hope. Thank you so much for sharing your story. Best of luck for all of us!
Thanks for watching and commenting. I hope you find answers soon and can work on improving your health!
Hey any update? Hope you're OK!
@@jadep4802 hey, thank you for asking. I can say that Im totally fine right now. I had already finished all of the tests and the doctor diagnosed me with mctd (mixed connective tissue disorder). I was diagnosed with this since there weren't spesific symptoms that related to any type of autoimmune. My only spesific symptom that related to autoimmune condition was body aches for 3 months. My other symptoms that I got tight headache every day for 3 months 🥲. The headache was so bad I even have to quit my job since I can't stand looking at the laptop screen even for just a few minutes. But now the symptoms is all gone.
The diagnosis was also supported with the increasing of my quantitive CRP Protein, which it was elevated to 23.5. The normal range is supposed to be
@@thendoftheriver_ oh my goodness bless you. Thank you for replying! I'm really happy you're doing so good! May I ask what symptoms of Ms you had? I have been referred for a brain mri and I'm so worried. I'm a 38yo mother of 4. I'm frightened I won't be able to take care of them in time 😩❤️
@@jadep4802 my symptoms that I thought related to MS was walking imbalances, vision problem, and headache.
At first I always feel like I'm about to fall every time I walk. Also with vision problem it was because at first my vision is more blurry and darkened. But after I talked with several autoimmune patiens, inflammation in connective tissue, which is related to some types of autoimmune like lupus, or maybe just mctd, can also cause vision problem.
I know waiting to get diagnosed might be a hard time. But, just know that there's so much thing you can do to improve your condition. We can totally adapt. I wish you best of luck!
I suspect my husband MAY have some MS symptoms.....I am watching to learn. His symptoms are cognitive decline, brain fog esp. when tired, cold all the time, exhaustion, ED, leg muscles/leg pain issues, loss of feeling in his feet and toes (could be neuropathy?) He was diagnosed with early cognitive decline by a Functional Neurologist (no MRI done) so we have been proceeding with that diagnosis in mind. Recently he has been slurring his words....not always but sometimes. P.S. I especially love your haircut!
Hi Donna, I am sorry your dear hubby is experiencing symptoms. Keep being his advocate and don’t be afraid to seek another doctor’s opinion. With these kinds of symptoms it can be challenging to reach a diagnosis. Thanks for the compliment on my hair! I have been growing it throughput the pandemic!
About 10 years ago I had an issue with eye turn. I have lazy eye in my left eye but one day I woke up and my right eye was straight but my left eye had turned. I went to the ophthalmologist who freaked out and sent me to the er. After the night in the hospital and a series of tests they sent me home and said I had 3rd nerve palsy. They mentioned ms but said they didn't think that was it. Fast forward to this last October. I woke up in thw middle of the night with a horrible flair. Dizziness, Nausea, nystagmus in both eyes, etc... After seeing several doctors and 2 trips to the er I was told I had MS. They treated me a ton of steroids and after 4 days I finally got to go home with another 5 days of steroids. When I finally got in to see my new neurologist, one of the first things he said was wait a second let's talk about the 3rd nerve palsy. Looks like they may have missed this 10 plus years ago. In a way it angers me because I could have been treating it for the last 10 years. But I am so thankful that God has carried me all these years. I also found out that the back pain I've been fighting the last 6 years or so was MS. I had no idea. My husband is disabled and I've been his caregiver the last 15 years or so. I was just blaming it on that. Hadn't ever even heard of the MS Hug. When they did my MRI's they found lesions all over my spine. I will start Kesimpta soon. Was wondering if anyone has had any experience with it? If so, what do you think?
Thanks for watching. I am sorry you are experiencing all that. I haven't tried Kesimpta.
Medications have killed off the people in my MS group faster than the MS, except for the deadlier forms. I am speaking of people in my support group with RRMS.
Thanks for watching. I am sorry you have lost members of your group. What medications have they been taking? The side effect profiles for most MS medications show they are quite safe.
@@EvenSoItIsWell There are so many drugs, and drug interactions, that I cannot recall whether some were taking Rebif, Copaxone, Betaseron, Avonex, etc. It varied, and some of these folks switched their meds, but those of us with RRMS, who took no drugs for it, are still alive, with the exception of an atheist friend, whose brother did NOT have MS, and hanged himself, then he, my unfortunately atheist friend, with RRMS, committed suicide. The police would not give me any details because I am not family, and did not want to lie, and claim that I am. It truly makes me sad because he was a very nice person, and I heard so was his brother, whom I never met, but saw photos of. I believe he did it due to poverty, and depression, though.😥😥😥
@@EvenSoItIsWell I forgot to mention their liver function, and kidney problems they experienced, after taking their prescriptions, which were not issues beforehand.
I also have possible lupus.
Many autoimmune diseases have similar symptoms and we are more likely to have multiples of them. Lucky us. 😉
Great video! Did you get an MRI of your brain to confirm your diagnosis?
Yes! I had an MRI of my brain, cervical spine, and thoracic spine.
@@EvenSoItIsWell did you have lesions?
@@alexandralowder4680 yes, I had lesions in my brain and in my cervical spine.
Well explained, xx I too put blame on scoliosis or thyroid disease.
Oh interesting! I have scoliosis too. I wore a back brace for 9 years.
I was jus like what you had... but i was having double visions and was mumbling...i went to my drs and ahe sent me to the hospital where i was getting tested and was told i have ms and was given tablets to take
Glad you received a diagnosis and are getting medications.
Your video was helpful. Were you ever diagnosed with peripheral neuropathy? Isn't it true that many PN symptoms mimic MS symptoms? Thanks and BE WELL!!
Thanks for watching! Excellent question. Yes, many of the symptoms are similar and I saw several doctors the year I was diagnosed. The second to last doctor that I saw was a neurologist that worked at the hospital for special care near me. He did extensive nerve conduction testing, asked a lot of questions about my symptoms, and reviewed the results of the dozens of blood tests I had done in the months prior to seeing him. He said to me ‘This is definitely not your peripheral nerves, it is your central nervous system. I am referring you to the Mandell MS center.” I was pretty sure it was MS before that, but that moment pretty much convinced me.
@@EvenSoItIsWell Thanks for the reply.
Managing "brain fog" is a day-to-day dilemma. I feel well when I sleep well, but when I don't, I'm walking in a haze. But I've learned that exercise and sleep are beneficial. Thanks for listening.
@@MrZimmmy You are so right! Sleep and exercise are incredibly helpful! Adding in nutrient dense such as dark leafy greens can help too!
I found out recently that I have more lesions in my spine and neck. I have bladder problems, pins and needles sensation in my hands and feet. Imbalance and feel heavy and numb by my stomach, chest area.
Sorry about the new lesions. It is amazing how unique all our symptoms can be isn’t it?
Hi what age were you beginning to notice symptoms what age were you when you were diagnosed? Im 38 my mom has MS.. ive been having symptoms and never took any pass of it till now.. im having most of all symptoms you can have MS is close to Lupus with symptoms. I went to my dr and told him my symptoms he’s sending me for AHA blood tests how accurate are they? Then he will send me to a neurologist. I wonder how they can tell between the two what you have.? I know my b12 is low 190 im on pills for a month now so im not sure if its come up.. im a stay at home mom of 4 kids im exhausted.. I was diagnosed with severe sleep apnea so i have my cpap now.. but still need 1-2 naps a day im useless. I hope i can find out soon whats wrong.
Thanks for watching. I was 40 when I had my first discernible relapse. I was not diagnosed at that time. I did not have another relapse for 10 years. I was diagnosed at that time. It has been 7 years and I have not had another relapse. You can see more of my story here czcams.com/video/zwgvcgwDT8I/video.htmlsi=Ot74UTxmgbNskip4
I can’t provide medical advice on my channel but both MS and Lupus are difficult to diagnose and require multiple types of tests. Keep advocating for yourself and seeking answers. Please keep me posted on how you are doing.
Yes, my son is psychotic it seems and he has the majority of symptoms
Thanks for watching. I hope your son can get treatment.
I enjoyed your video. I have a Lot of symptoms that you just mentioned. I've not had my MRI yet. I don't. Want to go around and around trying to find out what is wrong with me. I've really bad migraine headaches. Bladder issues. Don't want sex. My eyes give problems. My right leg goes numb. What I have in my hands I drop. Melissa Childress. Please respond. I've not saw a neurologist yet. I don't have insurance.
Melissa! I am so sorry this comment got by me. Apologies for the delay in responding. How are you doing now? Unfortunately it may take some time and multiple doctor’s appointments to find a diagnosis.
Can i ask how long it took them to diagnose you. I have alot of herniated buldging and tears. I see the lesions on my own mri. My muscle feels like a charlie horse all the time. Please tell me what test to ask for.
Hi Jennifer. I had a long diagnosis story, my first relapse was in 2006 but was not diagnosed at that time. My second relapse happened in 20016 but it took about a year after that to get diagnosed. Autoimmune diseases can be very challenging to diagnose and not all lesions are associated with MS. I would definitely talk with your doctors about your suspicions and ask them if they can recommend tests to either confirm or rule out MS. Keep me posted!
Here is a video more about my diagnosis story
czcams.com/video/zwgvcgwDT8I/video.html
OK, the lhermittes sign thong, I don't get that sensati9n when I put my head forward, but when I would walk, and look up at the sky, I spend feel tingles down the back of my legs, is it the same type thing? Oli also have sloght scoliosis and have forward head, and have just been diagnosed with cervical spondylosis, but also have the cog fog, dizzy zaps and eye movement pains, and have had thumb zaps, facial twitching, weakness down back of legs when standing up, hot ear sensations, etc and the Dr is dismissive
I am not sure if it is the same thing, but it could be. If you doctor is dismissive, don’t hesitate to get another opinion.
I have had these symptoms from 2010
My husband sent me to his doc n he said nothing wrong after doing mri spinal tap
Husband wanted a divorce cos he said i was lazy....his family was horrible towards me
My only surviving sister was the same ...
Now i went to my sons doc ,prof of neurology, n he said i have ms from 2010
N no treatment has increased all symptoms
Im now on treatment but its tooo late
My son saw my condition could nt bear the torture i went thro
The fatigue, heavy feet ,slow movements made things harder cos both my kids: son has mystenia Gravis
My daughter has lupus
I am the only parent who helps them
While we beg the father for things ....
Its sad sad sad😭😭😭
Oh I am so sorry you and your family have endured so much with all these autoimmune diseases. I am thinking of you.
@@EvenSoItIsWell thank u we take it one day at a time
Have you heard of Dr. Brooke Goldner? She reversed lupus and helps people reverse autoimmune disease! You’ve got to check her out!
@@purityandplants yes! I really appreciate Dr. Goldner! She is amazing!
Im a little confused on the scoliosis statements, is having scoliosis something a lot of people with ms have? Is that considered an indicator for ms?
Scoliosis is not an indicator of MS but sometimes other conditions/diseases can have similar symptoms or overlap of symptoms. Mono - or EBV has been shown to be one of the causal links to developing MS. See this video on that topic czcams.com/video/OCsQRcrGF8o/video.html
what do you take for the dizziness? I have had dizziness for 2 years daily, after haivng covid. I was previously diagnosed with fibromyalgia but now Im not so sure and the dizziness is new. I haven't seen a dr yet, and I notice when I exercise my legs burn and then the dizziness is worse. Ugh I'm scared to find out if its ms
I am sorry you are experiencing dizziness. I don't take any meds for dizziness. Definitely ask your doctor for something to help with it. Try not to worry too much about a diagnosis yet. It might not be anything bad. And if it turns out you do have MS you will be ok! I am 15+ years into my MS diagnosis and am doing well!
Hiii, I had COVID this time last year 2021 & I have lingering symptoms from COVID. Now I’ve started experiencing afew symptoms such as leg numbness, heavy legs, lower back pain, Night sweats, headaches, I’ve been super cold day an night about 4 days now and a weir numbness in my right arm and hands. And this dizzy feeling as if my room is spinning around me, funny thing is this sensation only occurs when Im laying in bed. Btw, Im 26 I made an appointment with a Rheumatologist. Am I overreacting?
@@estherthomas4205 You are not overreacting at all. Whenever we have new symptoms or changes with our symptoms it is a good idea to get checked out by our doctor. I hope you are feeling better soon!
@@estherthomas4205 your problem might be vertigo. Antibiotics can get rid of it completely
@@estherthomas4205 Hello, Just out of curiosity..How are you feeling now? Did you see the rheumatologist? What did they had to say? Is it post covid complications? I am having post covid issues since Sept this year,numbness& tingling of the hands,felt tremors/ vibrating sensations.
I do phyicical work for my job and Im feel 90% sure the more work i do the worse it makes my aches and pains.Im not sure of MS or just pinched nerves.But i have to stop working or i know i will be get worse.
I am sorry you are experiencing pains. I hope you can find the cause.
My left side of my body went completely numb...not a stroke first time lasted 5 min the next day ghat evening it happened for 30 min...this time all receded but my finger tips , left foot toes and left suddenly of my l I were face
Oh, I am sorry that happened. How are you doing now?
@@EvenSoItIsWell I'm very confused because the er does not know why...had an mri of my brain wo contrast seen nothing
@@EvenSoItIsWell the numb feeling feels like when the dentist numbs your mouth
@@nolalopez4260 ugh, I am so sorry. I hope you can find answers. Keep advocating for yourself.
My sis has ms and scoliosis. I have leg pain and weakness .been wondering.i am 58 my husband said I am to old for ms now ??
Hi Patricia. Although most cases of MS are diagnosed younger, it can definitely be diagnosed at age 58. It can be many other things from spinal,stenosis, to low vitamin B12, to Lyme’s disease or something else. Definitely talk with your doctor and ask for referrals if they can’t give you answers. Let me know how it goes!
I too wore a brace for scoliosis for 8 years and eventually had to have surgery
Oh wow! Do you have MS as well? How is your spine now?
@@EvenSoItIsWell I don’t have MS. My back is doing well! 2 rods 12 screws 3 hooks and one wire. Fused T2-L3
my right hand has started curling up. what's up with that? is that an MS symptom?
It could be. Definitely consult with your doctor. It may be spasticity. Muscle relaxers or physical therapy may help.
Hot; get insane, dizzy & twitch…but let’s talk about the cold….OH MY GODDDDDD!!!!! The pain in my legs is so bad I dry heave from it. Then there’s the freeze sweating. Dude the cold is my hell. When I say freeze sweat, I mean freeze sweat like I just got out of a pool. All that is weird bc I thought people with MS didn’t sweat; oh I sweat & yeah they’re sure. I’m brain lesions and a cervical & thoracic syrinx. Depression? Yes, major depressive disorder & GAD. Also doesn’t help that my ex husband of 15 years destroyed my life for getting MS. Been couch crashing now for just under 6 months. Yeah. Ps. Forgot to mention the unrelenting lower back pain for the last 8 years. Things are nice
Thanks for watching. I am sorry you are going through all that. I hope things improve soon.
How old were u Vicky when u we’re diagnosed
Thanks for watching. I was 51 when diagnosed but had my first discernible relapse at 40.
I had altered sensations, like water temperature felt the opposite. My legs would feel cold and tingly while exercising. This was years ago. I currently feel weakness in my legs when I begin a walk, or upon standing. A meningeoma was discovered and later removed. I was told it was all unrelated. didn't feel
Altered sensations are so odd aren’t they? Almost like we have trust issues with our bodies.
@@EvenSoItIsWell Very weird. Nobody found the cause.
I have what i hope is a sciatic nerve issue and not ms but i am very concerned because I have autoimmune issues that have not been pinpointed for a diagnosis and is ongoing…. I just heard you say you hoped it was a pinched nerve too :(
I am so appreciative of your posts and sharing your knowledge and experience ❤
Thanks for watching. Keep,seeking answers. It may be sciatic related.
Are symptoms worse when seated?
No, my symptoms are typically worse when I am exercising, but we are all different… like snowflakes. ;)
If it worse while seated you gotta suspect there is an herniated disk on your spine or maybe more than one.
I’ve had MS since 2009. I’ve done a lot of reading sine then. Read a story around 2012. Someone had been diagnosed with a cavernous hemangioma before they had ms. The tumour was removed because of its habit of bleeding int the space between the spinal cord and vertebrae wall. I had it in my head that benign bone cancer was the cause of ms. It would seem that I was half right. Benign bone cancer causes a massive immune response. So it looks like the Epstein Barr virus is the cause of ms but I think that ensign bone cancer is a trigger. Oh well half right is better than whole wrong.
Oh, very interesting! I am sure there are so many things that can disrupt our immune function. I had not heard of cavernous hemangioma. I. Will check it out. Thanks for watching!
Is it actually helpful to know that you have MS? If it is, in what way is it helpful?
Hi Eric, yes it is helpful to me to know as I can get treatment, have answers to why I was feeling the way I was, and I can take steps to support my body with diet and lifestyle changes.
@@EvenSoItIsWell
Oh, thank you, I didn’t know that effective treatment was available for MS.
@@ericstewart9742 there are a large number of treatments that can reduce relapses. There are also treatments that can help with symptoms such as muscle relaxers that can help with muscle spasms.
I have had my ms diagnosis 10years ago, I went from relapsing to progressive. Unfortunately there is no known cure for MS only some medication to relieve some symptoms. When you go to progressive there is none. MS takes many forms and the symptoms are very different for different people. The ugly truth is that very little is known about how it happened and when it when it happened. My advice is “live your life the best you can” if not possible anymore deal with it. I am getting very tired of those self proclaimed specialists and no I don’t belief that false hope is better than no hope.
I am so sorry you have advanced to progressive. I completely agree that we need to live our best lives possible.
I don’t have lesion in my brain and because of that my Dr. doesn’t want to give me a referral with the neurologist. I have brain fog, visual disturbances, back and neck pain, stomach issues, minimum incontinence my dr says is due pregnancies etc.
Is completely ok to ask for or seek a second opinion. I encourage you to advocate for yourself. A question I would ask my doctor's was "who else should I consult to help with this!"
I've never seen anybody going as happily as you about a debilitating disease. I guess it is all about calling out a large number of very treatable symptoms which must not be ignored but taken for paid treatment to increase revenue of the medical system, right?
Thanks for watching! Not necessarily going for paid treatment for every symptom. There is so much we can do with diet lifestyle changes to help manage our symptoms. Check out this video to see more
czcams.com/video/mYh8nF_M2OQ/video.html
Vegetarianism is not a proper human diet and certainly will not prevent or heal autoimmune disease, or anything else for that matter.
Good morning Michael. Thanks for watching. Eating a more whole food plant based diet has a lot of research showing it can help overall health, help us to manage our symptoms, and possibly prevent some progression. Check out this video next
czcams.com/video/X0il55TB4Pc/video.html
Hi, thank you for sharing your story, it really helped me. A neurologist told me that I shouldn’t worry unless I have difficulty to walk or a slurred speech, but that doesn’t sit well with me, so I really appreciate your video and would love to watch another one on these more subtle symptoms that make life challenging. 🤍
Thanks for watching Regiane! Here are two other videos that I did on symptoms czcams.com/video/qa1fWt7Es28/video.html
czcams.com/video/E4OVbmMN-Pk/video.html