Hello dystonia Europe I wish you’d be providing us with more information here, cause this is what we all want. We want to be able to live with it without pain and all time medication. I’m just 31 and my pain is making me go insane already. I’m not looking forward to getting older so hearing about this technique gives me hope. Why not sharing it with us? This would be a gamechanger. I’m really desperate cause of what my dystonia is doing to me
Hey friend I see you wrote this about 2 years ago but definitely reply if you’re still active on CZcams. I learned how to cure my own dystonia using neuroplastic proncipals. I had to rebuild everything from the ground up but im getting everything back! Have zero pain besides the tension from being out of alignment. I train for 10+hrs a week at the gym. I can play guitar again, everything. I can even do things I couldn’t before dystonia. Had I listened to my doctors I would not have recovered. Write a reply if you’re interested in what worked for me as I don’t see why the same principals couldn’t heal someone else!
This was excellent in information & presentation. Understanding self help more & more is so vital. I'm in Houston area TX & 2 of the PT facilities I have been to did not know of CD. Will bring Info to them Thank you.
Hallo Bettina Starke, ein Film, in dem gezeigt wird, wie die Behandlung abläuft, wäre sehr hilfreich. Vielleicht könnt ihr das aufnehmen und einstellen hier auf CZcams? Vielen Dank vorab, es wäre schön, mit einer so relativ einfachen Behandlung eine Verbesserung der Symptome herbeizuführen zu können. Liebe Grüße, Ingrid
@@melbeaton1501 Sorry I didn't get any notification of your response. She got temporary relief and went on Botox. She also got some relief from that but still struggling. I need to contact her to see how she's doing.
I have a similar tool from Edge Mobility. I have cervical dystonia, but I have never used this tool for my dystonia, I love to work out and lift weights and I use it on my sore strained muscles from my workouts, but never my neck, because massages seemed to make it worse, I'll have to try this.
I have torticollis dystonia on my right side of my neck. I would love to talk to you about how long it took for the muscle to release. Thank you for posting this it's giving me HOPE!
I really would like to know what it is exactly what you do with this tool. Rubbing one neck muscle? Does the tool have a name. Is there a video with those exercises? Thank you for your story.
In Deutsch wäre mir SEHR geholfen, verstehe leider nicht alles. Ich leide seit 13 Jahren an Torticollis/Spasmodicus ... die Botox Injektionen helfen mir nicht wirklich. Wäre sehr dankbar über eine Antwort! Happy New Year 🍾🥂🐷🍀
I know that in USA similar tools are called "Graston". You could also look up "Gua Sha" and watch what the practitioners do because The Graston Technique and Gua Sha sound just like what she's talking about. Go to an Asian Market and buy soup spoons or little porcelain bowls and you can use those as tools! I prefer the very little bowls (maybe spice bowls?) since they have a smoother edge than the Chinese soup spoons. Hope this helps!
@@marionpaterson772 It really would Marion, the closest I found was an edge mobility tool, it's stainless steel, edgemobilitysystem.com/collections/best-sellers/products/edge-mobility-tool
@@jpd464 Wow, thanks Joe, that would have been really helpful had I received a notification for your reply last year, still helpful of course, I had actually been using a Gua Sha before I got the edge mobility tool as it was the only thing I had that was suitable as I'm in Ireland and the edge mobility seller is in New York so purchasing during a pandemic left me waiting half a year. These are great alternatives.
Such a great news!!!! what us this tool called? where could I buy it? bless🙌✨🙌
Hello dystonia Europe
I wish you’d be providing us with more information here, cause this is what we all want. We want to be able to live with it without pain and all time medication. I’m just 31 and my pain is making me go insane already. I’m not looking forward to getting older so hearing about this technique gives me hope. Why not sharing it with us? This would be a gamechanger. I’m really desperate cause of what my dystonia is doing to me
Hey friend I see you wrote this about 2 years ago but definitely reply if you’re still active on CZcams. I learned how to cure my own dystonia using neuroplastic proncipals. I had to rebuild everything from the ground up but im getting everything back! Have zero pain besides the tension from being out of alignment. I train for 10+hrs a week at the gym. I can play guitar again, everything. I can even do things I couldn’t before dystonia. Had I listened to my doctors I would not have recovered. Write a reply if you’re interested in what worked for me as I don’t see why the same principals couldn’t heal someone else!
Hello, i am french, what is neuroplastic proncipals please? Thanks 😅
Ich würde gern, ein Video sehen, wie die Massage gemacht wird
I would love to see a video of your procedure
Would be helpful to let people know the name of the tool and how to do the massage.
Ms. Starke thank you for this wonderful information. You have been so very forth coming with truly helpful information .
Hello and thank you for sharing your story. Can I find a video showing this massage or self massage?
This was excellent in information & presentation. Understanding self help more & more is so vital. I'm in Houston area TX & 2 of the PT facilities I have been to did not know of CD. Will bring Info to them Thank you.
Hallo Bettina Starke, ein Film, in dem gezeigt wird, wie die Behandlung abläuft, wäre sehr hilfreich.
Vielleicht könnt ihr das aufnehmen und einstellen hier auf CZcams?
Vielen Dank vorab, es wäre schön, mit einer so relativ einfachen Behandlung eine Verbesserung der Symptome herbeizuführen zu können.
Liebe Grüße, Ingrid
Bettina, thank you so much! I have a new client with neck dystonia and I want to do everything I can to help her.
Are you having success with your client?
@@melbeaton1501 Sorry I didn't get any notification of your response. She got temporary relief and went on Botox. She also got some relief from that but still struggling. I need to contact her to see how she's doing.
I have a similar tool from Edge Mobility. I have cervical dystonia, but I have never used this tool for my dystonia, I love to work out and lift weights and I use it on my sore strained muscles from my workouts, but never my neck, because massages seemed to make it worse, I'll have to try this.
I have torticollis dystonia on my right side of my neck. I would love to talk to you about how long it took for the muscle to release. Thank you for posting this it's giving me HOPE!
Did you receive any answer
I really would like to know what it is exactly what you do with this tool. Rubbing one neck muscle? Does the tool have a name. Is there a video with those exercises? Thank you for your story.
so helpful can u please upload the procedure for curing cervical dystonia
I use heat rub and have an electrical massager.
Would love to talk to you about this! Thank you for sharing!
In Deutsch wäre mir SEHR geholfen, verstehe leider nicht alles. Ich leide seit 13 Jahren an Torticollis/Spasmodicus ... die Botox Injektionen helfen mir nicht wirklich. Wäre sehr dankbar über eine Antwort! Happy New Year 🍾🥂🐷🍀
What is the tool called?
I know that in USA similar tools are called "Graston". You could also look up "Gua Sha" and watch what the practitioners do because The Graston Technique and Gua Sha sound just like what she's talking about. Go to an Asian Market and buy soup spoons or little porcelain bowls and you can use those as tools! I prefer the very little bowls (maybe spice bowls?) since they have a smoother edge than the Chinese soup spoons. Hope this helps!
It would have been so helpful to have been given info about this massager
@@marionpaterson772 It really would Marion, the closest I found was an edge mobility tool, it's stainless steel, edgemobilitysystem.com/collections/best-sellers/products/edge-mobility-tool
@@jpd464 Wow, thanks Joe, that would have been really helpful had I received a notification for your reply last year, still helpful of course, I had actually been using a Gua Sha before I got the edge mobility tool as it was the only thing I had that was suitable as I'm in Ireland and the edge mobility seller is in New York so purchasing during a pandemic left me waiting half a year. These are great alternatives.
@@nedi1150 Please let me know how it goes!