What the heck is a stoma? (showing you my ileostomy) | Hannah Witton
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- čas přidán 16. 04. 2018
- I've had some questions about what a stoma actually is - so here's mine (aka #MonaTheStoma). Forgot to mention this in the video but a stoma/ostomy is basically an artificial opening. Mine is specifically an ILEOSTOMY. There are different types of ostomies depending on what part of the body it is e.g. colostomy (colon), ureostomy (for urine if you have your bladder removed).
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End music: Thursday and Snow (Reprise) by Blank & Kytt
That was 14 minutes of straight up courage. I can’t imagine how many people you’ve helped by making this one video and being openly yourself.
Was totally thinking the same thing!
Me too!
Really putting herself out there. Mad respect 🤜🏻🤛🏽
So? How this happen? First time to see, know about this.
Absolutely - brave lady - kudos!
Not everyone would be comfortable showing this to people. I appreciate your willingness to educate us.
MewWolf5 Love your avatar ^^
Your avatar :3
Love to see people showing off their ace.
Ace represent 💖
MewWolf5 Your profile pic! Are you ace?
Thank you so much. I am a 78-year-old man that just got the bag a couple of weeks ago. I have all of the things happening to me that you do. It is comforting to know I'm not alone.
Yeah your not alone... I have mine too... For about 6 years now... At first I thought that i will not live longer because of my situation... I was very frustrated that time... I was depressed for almost two years... I attempt suicides many times... But still i thank GOD that he saved me he never leaved me even during my worst time... Thankful in this kind of video... It's very helpful to overcome all the depressions... This kind of video it really helps me and think that i am not alone... Thank you for sharing... Love lots ❤
@@yzaanimeeditsgirls883 please don't take your life. Hope you and I and everyone facing these problems still find beauty in life and friendship.
I am facing an Ileostomy in about 6 weeks where they are going to remove my colon. I am blown away at how confident you are and how comfortable you are with your "friend". I am still dealing a bit with the unknown but the worst part for me is the psychological part, I just can't seem to wrap my head around having this stoma and all that goes with it for the rest of my life. I applaud your bravery,
i hope every thing is OK with you.
Hope you're doing good Emilia!!
At least you get to think about it ahead of time! Mine was after lifesaving surgery from a ruptured colon 2 years ago. I had to get used to the idea while at the same time, dealing with a huge pain problem! I wish I'd have had some time to think about it and to prepare my body so I could hold up under the pain. My pain, right before the surgery was at least 15/10!I've had many extremely painful experiences, but this took the cake!
I am a medical student and while studying about stomas i was wondering what one looks like. Your video has helped me a lot in understanding patient experiences which will hopefully help me manage my patients better and empathize with them. your attitude regarding your ailment is remarkable, you are a very brave and strong person. I wish the best for you and hope you get better physically and your mood gets better. All the best !!!!
I feel you, im a new nurse in general surgery and i have to care for patients with stomas so this definitely adds a new perspective!
The same satiuation, thank you for being courage and help us.
@@heyhey_mikaikai I am also a new nurse so this really helped. This was a great video. I also never thought about the phantom feeling of having to go poo or the mucous.
You’re a med student and haven’t seen one?
@@zippityzoop1478 ive seen a few in patients from afar. Can't really bother patients to show me their stomas without the bag.
I have an ileostomy and I have had it 37 years. I am 73 years old and I am pretty fit, regularly cycle 50 miles twice a week. So Hannah Witton, well done you for the video, you will keep getting stronger and stay positive which going by your beautiful personality on screen should not be too difficult.
Way to go Chris. If I may, were you able to get any sort of disability from the state as a result of your stoma? (Assuming you live in the USA)
@@Subfightr I am in no way disabled, So I would not claim even if I could and I live in the UK.
@@chrisriddles9460 glad to hear it. Good for you.
What a beautiful comment, I’m so happy people are being kind. Stay safe!
Hanna you should be an actress. Not only beautiful but great personality.
Thank you Hannah, I am a 72 year old man and I've been diagnosed with cancer of the prostate, bowel and lung, the prostate is being treated (if you can call it that) by killing the Testosterone to take away what the cancer is feeding on and the lung cancer is now suspect and may be benign but the bowel cancer is pretty bad and i'm due under the knife in 16 days. Despite seeing the Stoma nurse I was still unsure about a lot of stuff which is why I looked on CZcams in the first place, as you probably did, I have been supplied with a kit to familiarise myself with changing bags and so on but there was this 'red door stop' which I took to be an artificial Stoma and I was horrified at the size of it!!! I imagined this inch high lump sticking out of my abdomen and causing all sorts of discomfort, now I have seen Mona I understand so thank you. The mucus business is the first I've heard anything about but as a male i'll be happy to sit on the toilet and read, like normal. Like you, my mind is my biggest enemy and i'm having trouble with not feeling unclean and, as you say, is it all now a part of me or an attachment? Overall Hannah you have helped me immensely so as I have said thank you and good luck!
Hope you are doing well
9
Wishing the best of luck to you Peter, it would be good to know how you progress after your op.
i hope you're doing well peter!
I hope that fate is kind to you Peter and that your doing well ☺️
My mom was just told that she has a blockage in her colon and that she will need surgery. We are in a hospital now. I was looking for information on these stomas and I am glad I found your videos. They give me courage to continue. You are awesome. Thank you.
Good luck for you and your mother ❤🍀
I hope your mom is doing ok?!
My dad ten years ago wound up with a blockage himself.
He had a stoma for a year. He was reattached a year later.
If you need any advice I'm an inbox away. It wasn't easy emotionally. So I hear you.
But imagine if you did have a 9-5 job where you were told what to do, you wouldn't be going to work right now! You're still recovering, so give yourself that and don't stress yourself out - your body is telling you to keep taking it slow and give yourself the time to feel better. You're doing amazingly! Thanks for a really insightful and informative video!
This person knows
Actually, if you had a "normal" 9-5 type of job, a lot of workplaces would no longer be giving full sick pay, and it is likely that even the Statutory Sick Pay (SSP) would have stopped by now. Most employers in the UK don't give a lot of time for paid sick leave, although some are of course better than others. A lot of NHS employers, for example, give around 2 months full sick pay, and then a further two months on half-pay before stopping paid sick leave entirely. SSP is paid for up to 28 weeks of continuous sickness but is a very low amount.
I really struggle with whether this is "right", in that someone who is too ill to work, like in your case still recovering massively from your operation and previous illness, ends up getting nothing - particularly in cases of ill mental health, this forces people back to work before they are fully recovered and causes more issues down the line.
In most cases, anyone new to a job (i.e. within first 3-6 months of employment) won't be entitled to any sick pay which seems to be particularly harsh (although I get why many employers would be wary of people "taking advantage" even if it doesn't really happen as much as people think).
While the UK's employment rights are significantly better than a lot of countries (USA for example), I think there is still a long way to go to equalise these right particularly for groups who are unfairly disadvantaged by them (protected characteristics: gender; ethnic background; disability; etc.).
This isn't to minimise your absolute need to be kind to yourself and give yourself (both body and mind) the time and space to really get better, but to highlight that a lot of people in a similar situation face horrible struggles and have to make choices about whether to get better or to keep a roof over their heads.
تسویر
That's so wild that you can have an internal organ on the outside..
Very informative!
Technically the intestine isn’t an internal organ
Rachel M you learn something new every day! (Like I didn't pay enough attention in science).
Well it is her small intestine so technically it is an internal organ lmao
I know it's not entirely the same, but I have an insulin pump... which essentially is a digital external hormone gland if you think about it xD
All men have it haha;), but her's looks better I must say
So basically you've just mooned all of youtube? In all seriousness you're very brave making this video.
😂😂😂😂😂😂😂😂😂😂😂😂😂
Hi , my name is Dave and some years ago I had bowel cancer and I ended up with a bag for eight months.It was not very sexy , and going too the gym was a problem.The best thing was getting in the shower without the bag for a short time.I never had a problem with the bag and I was lucky to say goodbye to it after about eight months.Not sure how I would feel if I had it for ever.I am still alive thanks to the bag.I think you are a bloody amazing lady to make this video to show every one what you are going through.Take care.
Mine’s called Winnie the pooer! She lives up to her name.
Hahahh, 🤣
I laughed so hard at that pun, thanks.
Adorable
gingertiggercat hahaha that’s a great name I have not named mine yet and I have had mine for almost 2 years 😝
Since you decided to be brave and share, I think that i will too. I call mine "Rosebud ".
This is great haha
My dad has had a stoma bag for nearly 12 years now. It has never stopped him doing anything and life is normal. Keep doing what your doing Hannah :) let nothing stand in your way. Your an inspiration
What a brave young woman you are Hannah. You say you can only do small things, but this video can hardly be described as small. It’s really big. Power to you Hannah
My sister lived with having an ileostomy most of her life . She passed away at the age of 56 .. Your video reminded me of her. Your positive attitude is testimony of your courage . I am unable to express myself . My heart goes out to you . Stay strong , My thoughts and prayers go out to you .
Im a 6th year med student, but never been so emotional to see a patient before. Im kind of shocked. Your vid will definitely not only encourage people suffering UC, but also influence our health workers to be more caring and considerating.
I love that you named her... and gave her a gender! What a wonderful way to have a positive body image.
Shelagh Salisbury Agreed! I named mine Razzy (after a Raspberry)
Ya fellas are all a bit weird now aren't you.
I admire you’re courage to show the Internet this, even tho it is “natural” it isn’t easy to be open about. Both of my in-laws have stomas so I’m used to see it. But it can’t be easy to live with.
Keep it up and I’m glad to see someone who is not afraid!
My grandmother had one but nobody talked about it. I remember she wanted my mom to help her change it but my mom wouldn't. If I had been older and had more info about it I would have helped her.
You know I have one and can actually say I think it's easier. Can clean myself by seeing it and can release the gas at will without doing it at an inopertune time.....being around friends. Haha. AND if I eat something that gives me diarrhea....well, mishaps are at a minimum because all I have to do is keep emptying the bag. NOT BATHING AND CHANGING CLOTHES ....😜😜
I'm a 22 year old dude and I look up to you. Mad respect for doing this video.
I'm a student nurse and found this so fascinating from a patients perspective!also considering all the psycho-social impacts of having the surgery
Bethany Dunne yaaaaaaaaaaaas so helpful for us student nurses
And helpful for us student operating department practitioners!
here to agree as a student nurse!!
I hope you realise how much you're helping normalise stoma's! to me anyways
Not sure if normalize is the accurate word.
There's a medical condition and a medical solution.
What I'm wondering is what caused all of it and how preventable it is.
@@Mariostern1 people can have stomas due to colon cancer, anal cancer, severe diverticulitis, ulcerative colitis...etc. I commend this beautiful woman for sharing and educating people including myself on this matter.
@@Mariostern1 Ulcerative colitis is probably autoimmune. So not the patient's fault. A more immunological treatment would be ideal I'm sure but until then the stoma (which is the treatment not the disease) should be normalised so people like Hannah can still feel confident with their bodies and not like they have something to hide
Matthew Randell Yes, it is autoimmune and isn’t anyone’s fault nor can it be prevented. It’s when you’re immune system basically decides that your colon is an enemy, therefore attacking it and causing ulcers. I’ve had mine since I was a child despite the fact that I always ate healthy foods, so it’s definitely not food related. I now have an ileostomy as well.
That is exactly what she is doing, normalizing stomas. She is a trailblazer!! thousands, for a very long time will go back and look at this and marvel at her frankness, her ingenuity and her determination to make this normal. I don't have a stoma I don't know why it was in my feed here in CZcams but I'm glad I came across this. she is wonderful!!! Truly. ❤️
An elderly lady friend of mine has been fitted with one. Thank you soooo much for getting the picture, literally, that saves me asking her any embarrassing questions about it. You are providing a well-needed public service! Keep up the wonderful and courageous work!
This video made me feel sooo much better . I got an colostomy following a nasty car accident but I’ve gone through literally everything you’ve gone through except the inflammation part. I’m struggling in the mental side of things because I was in the hospital for 4 weeks also and I walked out of there feeling so different about everything. I almost feel dull now. I smile, laugh , and joke like normal but I still feel very numb to everything. Maybe therapy would help. I’m just glad I’m not the only one
I hope you’re doing okay Ricardo!
I change mine everyday purely for personal preference and very sensitive skin! So glad you shared this video - I’m still not brave enough to bare all so will be sharing so people I know who are really interested can see exactly what I have on my stomach!
Frankie Millard, I've got sensitive skin too. However, once I discovered Hy-Tape (weird pinkish orange colored tape for skin that is water proof) I had a lot less skin irritation and now only have to change my bag like every 4 or 5 days. I think the water from showering was causing irritation.
As someone with GI issues, I am really happy you are being so public and open about your health struggle. I don't think people give enough attention to their GI tract and how vital it is to see a gastroenterologist and make sure everything is working correctly. The Gut can kill you if you don't pay attention to it.
“Finger condoms” are used in most kitchens when you cut yourself to cover the bandaid. It’s funny to hear someone else also call them finger condoms
That's what I've always called them 😂
We use them in dog trimming lmao
I've always called them finger condoms as well, but they're called Finger Cots.
Just imagine what a wonderful planet this would be if everyone was like you. You are brilliant
My grandpa was once told that he might have to get this surgery and we all saw it as something so terrible, then when you got it I looked up pictures on the internet and thought it was so uncomfortable to see. But seeing you talk about it and show it on a video is like seeing it in a whole new light. Thank you for educating us more and giving us a glimpse into your life after your surgery, it has been truly interesting I love your channel so much!
a lot of people have that response, I've found (as an aged care nurse). I think maybe it has to do with the bright redness of it. It looks painful, even though as Hannah says, there's no nerve endings there. We must very strongly associate that colour and texture with injury or infection, you know?
That's my theory, anyway
Feraloidies yeah, I think that might have to do with it
This was so interesting!!! Thanks for sharing, Hannah! Hope you've got some easier days coming and you can enjoy resting and your vacation!
Omggg love your music!
I also have a video about mine and all the complications at the time following a burst appendix czcams.com/video/UBIt_g9mdhY/video.html
Thanks to show the video. I also had iliostomy and later total recto colectomy. Now it is total 12 years I am using iliostomy back.
I am a week from being 81 and I'm still learning all about this. Thanks for all the information to pass on to us.
I came across this after seeing a video of someone changing their bag on TikTok and having never heard of a stoma I decided to do a little research. Massive respect to you for sharing this. Your acceptance and attitude towards your illness is remarkable given the cards you've been dealt.
Same! This video also made me more grateful for everything I have...some people go through a lot of stuff. :( I have fibromyalgia, I basically feel like I’ve been run over back and forth many times and that’s basically 24/7 but, I’ve learnt to live with it without complaining. I just have reasons to be grateful for. Great video! Keep being positive. 🙏🏽
Have also come from TikTok am so glad I met her
Hannah I'm a gastroenterology nurse. If the bag has a good seal and doesn't leak then every other day sounds fine. Just keep an eye out for any skin irritation.
Sarah Darroch is this permanent?
this is so interesting! I get how it can feel very intimate so thank you for doing this video! 💛
My mom just had to have an emergency stoma and i am so glad I have watched your videos and I am not freaking out about it
In December 2016, I had emergency surgery for a blockage and ended up with a colostomy, which is very similar to your ileostomy. I traveled to France for 10 days the next spring with my friend, the colostomy bag. I had the reversal surgery in April 2017. Six weeks later, I traveled to France again, this time for six weeks. It actually all worked out well. My incision became inflamed during the summer, and you can't buy antibiotic ointment over the counter in France. I talked the pharmacist into selling me an ointment - but I had to show her my incision site! Now life is good and my poo is excellent. Big cred to all of us who have dealt with an ostomy!
Wow its actually much less complicated than i initially thought.
You are an astounding woman. I have major health issues for most of my life. 24/7 pain, neurological problems and bowel problems. It has taken till I am 61 to be like you about it all. I mean to be truly happy. I accepted my disabilities fairly early on until I lost the ability to walk in 2014. I am not paralysed and I walk indoors but I fall constantly so I am a full time wheelchair user. Yet I am happy and at peace finally. The disease is only part of the story. The horrendous growing up experience is what has 1. caused my problems (too many head hits) 2. has been the most challenging to overcome. The physical side has been a doddle compared to the psychological/emotional/spiritual. I love each day and look forward to it instead of hoping I don't wake up. Anyway, you made this old fart feel really good and despite not knowing you, feel really proud of you. You are a rare find and I hope your life just gets better and better. You have all you need in you, that just shines thru. Thank you so much for sharing yourself. It takes courage, real courage, to do as you do. I know. Just continue to be amazing and when you feel crap, no pun intended, don't berate yourself. You are allowed to feel bad. I am goin g to have to say it again: you truly are an astounding woman and I am so glad I saw this. Kindest regards, Colin.
Hi Hannah, I’m sending this from my daughter’s account because I just want to say how moved I was by your courage and openness, you’re truly inspiring and should be very proud of yourself. I was simply googling what a stoma is as a friend just had surgery and I wanted to understand what that was and I found you :-) It was good to meet mona and hear about your mucus issues, you are managing your situation very well. I want to wish you my very best wishes for the future, keep talking, keep sharing, keep on keeping on! With love and hugs, Rollie xxxx
I don't know what I expected, but somehow I didn't expect your actual intestine to be sticking out of your body (despite knowing that's how a stoma works). Thanks for sharing. I have a family member with a stoma and I have always been too shy to ask about it, so it is really nice to be able to use your videos as a resource!
Katharina Bille .
me too, my grandma has a stoma and my family always discussed it but i was too young to understand at the time and it seems rather strange to ask her to see it, as you said this video has really opened my mind to the wonders of stomas (and the weird and wonderful things they do)
Thank you for posting this, I'm a nursing student, and these videos have honestly helped me so much to learn more about ulcerative colitis and colostomy recovery etc from a patient's perspective, because until recently, I've only come across stomas and ostomy bags years after the surgery! Thank you!
sarahthellamaqueen high five, I'm on the same boat!
I appreciate how you are very matter-of-fact discussing these things without being embarrassed. I’m sure it helps lots of people with expectations who might be going through this. I’m not. I came across a FB Short where someone was talking about their bag and I wanted to learn more out of curiosity and landed on this video!
Love how she’s so open in all her videos , makes me feel really comfortable watching 😌
Mona seems lovely and deserves our utmost respect! :) welcome to the family Ms Stoma
I will admit all those thoughts crossed my mind when you told us about it but I never dreamed of actually asking cos, like you said, it feels like something very personal and intimate. However I am so thankful you did this as I feel it takes away some of that squeamishness and awkwardness that surrounds these kind of topics. Major respect for you doing this Hannah, you really are an inspiration and one of the most open, warm individuals I've experienced.
Skeets McGrew No, there is an inch of small intestine sticking out of her side near her belly button...didn’t you watch the video?
Marty Maloney No, I mean the remainder of whatever is attached to her butt
This is amazing! I have been in healthcare for 30 years and I LOVE how you just demystify what some feel shouldn’t be. Thank you for this video and mostly your bravery. Very informational and helpful
I had one, when I was 5 years old, for a month or so. It was "this" close of becoming permanent. I forget that many people around the world uses them. Very well done on talking about yours, there's a lot of courage there. Society is never ready for "new things", when a critical mass of people finally overcomes a hurdle, some individuals are way ahead already, some people like you. Very well done, all the best!
This is so interesting! I was diagnosed with ulcerative colitis last year, and I have to have a second emergency colonoscopy as soon as the NHS can fit me in. You have made me feel so much calmer about the whole thing and made me realise that it’s really not a big deal and that it is super manageable. Great work Hannah, thank you!
Emily EH You are definitely not alone. It's a crappy disease that's for sure. Hope all goes ok xxx
I've had ulcerative colitis for 12 years now. It is totally manageable! Eat low inflammatory foods and bone broth ( it helps me keep my flair ups/ inflamation under control) also if you have a problem don't wait too long to see the Dr. GO! I made that mistake before... Also you got this, this is a thing that makes you you. Welcome to the club ☺
I was diagnosed with UC November 2016, and had to have my colon removed a year later. I didn't have a choice really, but even if I did, I think I would have chosen to have my colon removed. I'm so much healthier, and everything is easier now.
Good luck to you. I hope you're able to find what works for you with this crappy disease. Pun most definitely intended.
I’ve had UC since I was 6 and it definitely gets easier to manage over time x
In hosptial recovering after my stoma op. I’m 30 years old and am so appreciative of this video. Really helped me feel a bit more normal. Thank you.
There is no normal anyway ;) Get well soon ❤
H Collins I wish you realize how creepy and inappropriate to say such things. Women bodies are not for your stranger man’s sex and desire. You’re sick, get help.
@H Collins ur disgusting for saying that. very insensitive. u better hope karma doesnt get ur ass and this happens to u. i bet u wont b saying that dumb shit then.
I love how much fun you instill into this video while broaching what is an otherwise frustrating, challenging, emotional and life-altering journey of being a member of the “Ostomates Club”. Thank you for your contributions in creating awareness and understanding to the public about the journeys that crohns and colitis patients face on a daily basis. I am now 6 months into this journey with my un-named stoma. Well done! 👏👏👏👏
You’re right, this is such a vulnerable thing to show, thank you for doing this, I’m sure this has made so many people going through the same thing feel so much better about themselves.
Best wishes and lots of love!
True because i have mine too for 6 years now... And this kind of video really helps me... Overcome all the frustrations... And help me understand that i am not alone facing this kind of condition...
I love how open you are with your recovery story so far! I've learnt so much watching you these past months. You are so brave and inspirational! Thank you for educating us!
I’m actually kinda really glad that you decided to put this up, I’ve looked it up online (but that is mainly a lot of drawings) so to actually see yours in fascinating and really informative but I’d have felt rude just outright asking for this video, because as you say it’s pretty intimate 😅 so thank you for doing this, I’m sure it’s a great resource x
I cant believe its been 2 years since your surgery. Hannah you're doing wonderful and important things, making the world a more empathic place. Love to you always
This is actually one of the coolest things about the internet.
How many thousands or millions of people are dealing with these sorts of things alone or trying to help a partner/family member and have no clue what anyone else goes through. But now we can actually have adult conversations about things.
I work for a medical equipment company and when I stumbled upon this video, I thought it might be interesting to take a look since among other things, my company provides ostomy supplies. Two days after I first watched this video, I found myself in the position of being able to educate a coworker who would otherwise not have known what documentation to look for to get a patient his supplies. Thank you so much for being so open about your experience!
One thing I find is that some stoma supplies create a lot of packaging waste. For example the adhesive remover is a small spray can and comes in a cardboard box with instructions every time. It's small size is great for traveling but I'd also like to be able to get a larger size for home use to reduce packaging waste. Sure they can be recycled but it's better not to create it in the first place.
Hi Mona! Happy to meet you!
In nursing school currently. Just watching to gain preceptive but I find you to be very positive and informative. I love your honesty and willingness to be transparent. Keep going!
I have a close friend that said she was scheduled for a reverse ostomy which I didn't understand until I saw your video Hannah. You are a beautiful young woman and I pray that you will continue on your journey to complete health.
Premise 1: Orly angels don't have poop coming out of their butt.
Premise 2: Hannah doesn't have poop coming out of her butt.
Conclusion: Hannah is an angel.
False analogy fallacy. Still true
Zogg still lives :O i loved ur vids!! Would love another
@Rolly101 It is indeed something obvious, it's a typo of "Only angels".
Lol
Hi!! Colostomy since 2000, 3 "relocations" since. I'm 67, and still living as well as I can. Colostomy is left side/large intestine, after colorectal cancer surgery, and yes, high waisted.
KEEP GOING, DEAR!!!
SFsc616171 yes I have a colostomy due to rectal cancer. Since December 2017. And I’m 67 as well. I also have other health issues. Each day is a gift. Thankful to be alive.
So many incredible comments... It's awesome you're making such an impact, Hannah. Such a brave woman, inspiration to many. Thank you for contributing to changing the world and making such an impact.
My grandad had a stoma! My grandma had to help him change it because he couldn’t do it himself. He passed away 22nd March 2019, he was 75 years old. I miss him everyday. 😕😖🥺🕊
My grandmother had one and believe it or not lived to be 97!
I thing the bag is an accesory, but like a necesary one, kind of like wearing glasses or a hearing aid
Mónica Bv that makes sense!
And you can pick what colour it is and different brands that are better but it is mostly practical. :)
I dont have a stoma but this makes so much sense and i think explaining it this was makes people understand it better
+
Mónica Bv not even close!! It is a burden, a hassle, a constant pain in the ass hassle!!!
Pacific NW Native, you are not denying it to be an accessory.
My stoma and the bag has become just a normal part of me most of the time anymore. There are companies in Europe that sell ostomy underwear, clothes, bathing suits, etc. I have ordered a bunch from diff companies and tried them myself. Ostomy secrets is my fav. They have wraps that are lace for intimate times. Especially since you do a lot regarding sex education I thought you might like to know that if you haven’t already run across them! There is comfizz too. Victoria’s secret actually has an ostomy line. Over in the US we can’t order from them because it is considered a medical product not clothing. But you could!
I so appreciate you openly talking about your stoma in attempts to normalize it! I am HERE for it
I know that this video was posted over 2 years ago but I’m just stumbling upon it now. You and Mona are the epitome of courage. It’s you not your stoma that caught my attention. I appreciate your honesty and know first hand that comic relief is a way to cope with something that really isn’t easy to deal with. You’re my superhero!!
Hi Hannah. I'm not usually one to comment on videos, but this was clearly exceptionally brave of you and, in my opinion at least, really worthwhile. It is definitely educational (as has been pointed out by many other commenters) but what stuck out to me as an individual with mental health issues was seeing how you're persevering through what is obviously a difficult time, and using your experience to benefit others. You may never hear it in reality, but there's a genuine round of applause on this side of the camera :)
You are such a beautiful soul. Sharing your story is helpful to others.
Thank you for helping this social worker understand what a stoma is, what it looks like, where they are, what the recovery process was like. I appreciate your educating the masses. Your candor and willingness to be open and to share. Your courage, warmth & vivacity are appreciated. You should be leading a support group.
I wear a colostomy bag and I’m glad that you are informing people about this!!! I love that you named her!!!
These are very informative! And not gross at all, at least not for me. Thank you a lot for showing it! I was very curious about it.
This is really cool, honestly. The fact that you’re so open about the whole process and having a positive attitude about it. I don’t have a stoma or anything but I’m seeing a lot of people in this comment thread who do and who appreciate this video. And well I didn’t even know this existed before I saw this video, so thank you for that. For teaching me something new.
Likewise
You (and Mona) are just adorable. Thank you so much for sharing this aspect of your life with us. I am certain you have helped so many other gorgeous young women understand, accept, and manage their own stomas. You’re a genius.
you are officially my favorite youtuber. to just be yourself and so comfortable, its refreshing
I went through this same thing. Had ulcerative colitis for 10 years, ended up with emergency surgery in October 2016 and woke up with ileostomy.
Used the same bags as you Hannah, and decided I wanted my stoma forever, and in that case they remove your rectum.
Had the surgery booked but changed my mind totally and decided I couldn't be young and live with a stoma forever - lost all confidence! Called surgeons and said I really wanted a j-pouch instead (so a stoma reversal). I had my J-pouch operation in October 2017 a year after my stoma surgery. The J-pouch needs time to heal inside before it can be in use, so I had to wait and had my J-pouch take down and stoma reversal a month ago in March 2018. I've now not had my stoma for a month (today) and am back to using my bum again and OH MY GOD THE PAIN, FIRE, BURN back there! I miss my stoma for the ease of life but OMG I am also so happy to be rid of this crinkly bag on my body AT ALL TIMES.
So yeah- that's my story.
I'm so glad I decided to have my stoma reversed and I can't wait for the day it all works semi-normally again (as it doesn't right now) - good luck with whatever you decide 🙂
They don't always defunction the lower bowel loop. It is a huge operation and mostly unnecessary unless something like cancer is involved. I have a colostomy and my lower bowel is intact and present and is unlikely ever going to be defunctioned. The doctors actually refused to do it.
I had the J pouch done about 10 years ago...you would never know anything was wrong..totally normal..had UC for 15 years prior..
Permanent Colectomy done here I have Crohn's and well my rectum and descending colon were hit the hardest since my rectum wouldn't heal with just a loop ileostomy I ended up having it all removed so the bag is me in my case ( wow that made me depressed just saying it ) most people have to have surgery again within 5 years you beat that you win. I'd recommend going with the jpouch surgery if possible I'm 27 and I know how abnormal the bag makes you feel and if I had the option I would have done it even if it cost me more in surgery costs and hospital stays in the long run not having the bag is the only thing I actually miss
Stine Egeberg I just had my Onostomy bag placed one week ago cause I have cancer, which is treatable , I told them I wanted to be reversible but realized you mentioned the pain , burn and all that, is it that hard to start using your normal rectum once they place the stoma back? Will it burn or be super painful ?
Stine Egeberg oh and I might have mine for one year depending if the nerves do not get affected by the chemo
Thank you for showing and telling us about the stoma . Drs at one point said I might need one , but thankfully haven't as of yet , I had UC . After about 17 yrs it seems to have gone away , so the Dr discontinued the medication . Glad you are doing so well Hannah !
You are a remarkable woman. I don't know why CZcams algorithms think I seen to see a lot of Stoma videos, but if I need to see them, I am glad I saw yours. All the best to your and I pray your recovery continues.
Hi, I stumbled on your channel when researching medical devices for a new job I am starting but I just wanted to say how admirable and inspirational your bravery, honesty and humour is in tackling such a difficult topic. You are helping so many people out there deal with these issues, I'm sure. Wishing you health and happiness for the future.
Pretty admirable of you to decide to show us what is quite an intimate part of your life. It's very educational and helps normalise people with Stoma's! Thank you
3:20 I was thinking the exact same thing! Like, at first it doesn't seem unusual to show someone your tummy or a scar, but when showing your stoma you aren't just showing your tummy or a scar, youre basically showing them your new butthole. (and of course we all know how anyone would react if you were to actually spread your cheeks to the world)
Also, the whole bag changing process seems less of a hassle than I initially thought, seems like it doesn't much more time than actually going to the loo :P
Thanks for being comfortable enough to share this with your audience, this whole misadventure seems so fascinating!
Hi Hannah, I’ve had my surgery in 2009 and I live an outstanding life now! My stoma is about the same place as yours🤗 Love your videos❣️
This was amazingly brave of you to show us what your stoma looked like and how to change the bag. I certainly learned alot and I am sure others did too. My Grandfather had the same thing, but never spoke about it. We just knew that each time we ate, he went into the bathroom afterwards and would 'go' and then change his bag. We never knew anything else. I hope that your recovery continues to improve or should I say has improved, since I am watching this in 2021 and the video was out in 2018. Take Good Care
The “barriers” are fingertip Latex Gloves. You can get them on Amazon.
I think you are so brave showing your stoma on CZcams! I’ve had one for nearly 5 years and I’ve only shown my husband, kids and bestie! You are very brave especially as I’m sure you felt very vulnerable. Personally, I see the bag as an accessory to a bodily function - like toilet roll or tampons.
You are amazing for sharing your journey💕 I happen upon your video while looking for something else totally unrelated. But I was struck by your courage to share Mona, with all of us! I hear the sadness, and grief in your voice, you are now in my prayers! But your authenticity, is an inspiration to many! Thank you 💕
Hanna I have such respect for you! Your confidence, your bravery, your matter-of-fact style, and MUCH more are truly inspiring. You don't have a woe-is-me mindset although it would not be a surprising possibility IF you did. Instead you have a leadership role in guiding people through a medical reality that is a super challenging circumstance for some. Instead of languishing you have a truly kind and generous spirit in approaching this subject and how you have personally dealt with this medical reality. We all have something that we are working through (mine is diabetes) and your willingness to share your reality is simply priceless! Thank you!
Thank you for this video. I had emergency surgery this past May. Had a blocked bowel, a hole in my bowel and 8in taken out when I had ostomy. Then 3 days later they had to go in a second time for surgery. They did the same to my belly button. I could have it reversed now if I want now but since I’m paralyzed from waste down past 13yrs (from an F4 tornado as I laid on top of my 3 & 6 yr old boys using my body as a shield. I had a traumatic brain injury, 2 collapsed lungs, 5 broken ribs and 2 crushed bones in my spine to name a few. My boys are ok but I was clinically dead several times. Like 13 total believe it or not) it is much easier.
I change my bag depending on things sometimes it is a couple times a day to every 5 days perhaps.
Thanks again for getting this out there. Xxoo
Katja Golden you are the definition of one of the BEST mothers in the world, probably ever. Your strength and courage are beyond admirable and I hope you have a long life. You deserve it. Have an amazing day
You are a TRUE hero!! This touched me so much and I literally visualize it in my mind. I treated up really! Much respect! You’re an incredible mom👏🏼👏🏼👏🏼
I must say you are one of the bravest and courageous person i have ever seen...🙏🙏
Damn, that's like a movie worthy story! God bless.
God bless you! Your an inspiration to me! C567 quadriplegic
I know this video is pretty old, but I'd just like to say thank you. I have crohns and have had a stoma bag since december last year and it's nice to get the awareness out there. Obviously I wouldnt wish it upon anyone, but I respect you ALOT fore making this video
I know this is a while ago now, but I just wanted to say "Thank You!" for your videos. We have a lot of young people referred to us from Paediatric Gastroenterology with their own stomas fitted. (I work in Children's mental health) and whilst there's a bit more young children's resources around, there's not a lot for our teens and young adults, so its really good to meet you and Mona. Thank you again, and lots of love and luck!
thank you so much for making this! I had googled a stoma/ileostomy after you mentioned it in a previous video (just to have that knowledge) and this was so much more helpful than anything I found. your honesty and openness is so lovely!
Yessss queen!!!! I have a permanent ileostomy and I am 19 so I definitely relate! I have 2 stomas though. I also have a feeding tube and central line. I only change my bag Mondays and Thursday. They recommend you change it at least twice a week.
When medical issues change your life drastically there are so many emotions you have to work through, it’s fantastic you’ve found ways to express and process those emotions. I know this will give others hope to do the same
I'm a 65 year old man and I must admit you have bigger stones than I've ever had! What an inspiration! I can only believe you've been a saving grace to countless others. Your courage and determination are remarkable. Thanks for the video.
Another lady I seen puts a heating pad on hers after she changes it just for a few minutes to help it stick better, not sure if that helps you or not. You both are very brave ladies & I admire your strength. My grandmother had one many years ago, wow how things have changed, she would have really loved the newer technology of the items they use now.....God Bless You!
You are so unbelievably brave! Thank you for doing this video Hannah
i'm a little squeamish but i'm still glad you made this video and shared such a new and interesting part of your life with us! very informative for those who are completely unaware of stomas and what not
Oh wow, Hannah. So, I found a video of yours about chub rub and it was so helpful. I noticed this video in the thumbnails and was curious. I can only imagine how many people you have helped with this video. I loved that you shared all the ins and outs about this (no pun intended). Hearing about how it is affecting you mentally and emotionally is SO VALUABLE too. It's a lot and you're amazing and brave for sharing your experience. All the best to you, Mona and Dan. Xo
Thanks Hannah, I am about to go thru what you have and will have my own little stoma so seeing your smile in this video shows me there is a light at the end of my dark tunnel.
Hi Hannah! I am a new viewer of yours and I think this is amazing that you have done this video, I think there is a lot of ignorance with this type of thing, luckily I have grown up with it, my mum had a stoma from ulcerative colitis, this was before I was born and since I was little I have seen it and watched her clean etc, it’s name is Fred! X