Our Biggest Weaknesses - Monday Grubbag Ep 2 / Squirmy and Grubs
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- čas přidán 25. 07. 2024
- Welcome to another Monday Grubbag! In today's video, find out if we're making an OnlyFans, what our biggest weaknesses are, if Shane uses a wheelchair in his dreams, and more!
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Shane Burcaw (he/him) is the author of several award-winning books about disability. He is the President of a nonprofit organization called Laughing At My Nightmare, and a renowned public speaker who has performed across the country at places such as Harvard University, The University of Florida, The University of Connecticut, Princeton University, and many more.
Hannah Burcaw (she/her) graduated from Carleton College, where she studied Sociology and Anthropology. She films and edits the “Squirmy and Grubs” vlog, which has over 800,000 subscribers on CZcams. Hannah has spoken at prestigious universities and Fortune 500 companies alike about the realities of ableism. On her popular Instagram account, she advocates for acceptance of all people and works to improve the way society thinks about disability.
Shane and Hannah have been together for over four years. They got married in September of 2020 in the midst of a global pandemic in their backyard, with their officiant conducting the ceremony via Zoom. Their interabled relationship often confuses people, because much of society still cannot fathom people with disabilities being involved in loving, intimate relationships. Anyone who watches these episodes will quickly see their relationship is just as “normal” as any other. Sure, Hannah helps Shane use the bathroom and brush his teeth, but those activities do not detract from the emotional, intellectual, and physical connection they experience together.
What other questions do you have for us?!
What country you visiting for your next holiday post corona?
Do you hold Shane on your lap, and bounce him on your knees, Mrs. Burcaw?
You guys crack me up, as a person with cerebral Palsy it's funny to see other people with disabilities thriving and just being themselves, I love you guys and I hope y'all are doing well :)
What was Chloe staring out the window at?
What's your general approach to writing a book? How do you overcome writer's block?
My thought process on being a burden to spouses is that my wife chose me. She knew every single thing "wrong" with me and all the things I will need help with from day to day and in the future. She decided that wasn't burdensome. That doesn't mean I wouldn't be a burden on someone else though and I know I would be because I've been that before for my family. They struggled with me a lot throughout the years and I felt that every day, my wife hasn't once in 14 years made me feel like I'm a burden in any way to her. After about 10 years I finally realized she's right. I'm not a burden to her. I'm the human that brings her joy and comfort. I make her laugh every day. I am a positive part of her life every single day and that doesn't sound like a burden. I'm almost sure hannah feels similarly.
That is beautiful.
Well said, and I am happy that you and your wife found love and joy together. That’s a special thing to find in life and not everyone has the luck to find their person (able bodied or different in their own special way)❤️ I wish you many more years of happiness together!
It's beautiful that you were brave enough to finally realize and accept what she's been telling you... that you're not a burden. It takes courage to accept that. And Lord knows some people will always want you to believe the worst. But that's about them, not you. ❤️❤️
I can’t believe how rude some people can be! No one should make assumptions about other’s relationship. It is actually much more information about them! They can only imagine it being a burden because they would feel that way! Your relationship is inspirational, not because one of you has a disability, but because you desire to give to each other to the best of your abilities. You work at it, and you communicate well. Ignore the short sighted.❤️
Omg! Thank you, you've explained it perfectly. It was hard to believe my husband for a long time.
I care about the moon photo 💕 Beautiful job, well done Hannah.
I thought it was a good photo as well.
Hannah: what misconceptions did you have about disability / inter-abled relationships before meeting Shane, that you wish you could go back and tell your earlier self different?
Shane: are there any misconceptions you have had about inter-abled relationships ( things you thought would be a big thing, turned out not to be a thing at all)?
Thank you both so much! Really enjoy your videos, and feel like I’m learning too. Always look forward to your videos
Shane's "messed up comment" made me think of how many men out there do only physical things for their wives, contributing no wisdom, uniuqe ideas, thoughtfulness, humor, fun surprises or emotional support and many other things that Shane is so good at!!!!!
I have to agree with you, I think they are a amazing couple
Now that is profound! Everyone brings something into a relationship. If Shane was not "Shane" would Hannah be his "Hannah"?
Very true. But I also wonder, do these people go around leaving those comments to couples where the husband is essentially a man child that does nothing even though he could? I rather doubt they do. I think they just mind that Shane doesn't do those things because it's by disability that doesn't, rather than choice, which is ridiculous.
He has no choice but to do those things you dumb ass!
Oh so only men do it then 🤣
I care about Hannah's picture of the moon! I have a 6-month-old so I was not about to lose more sleep by staying up for the eclipse so I'm happy to see pictures of it!
i care about hannahs picture of the moon, shane is rude 😆
🤣🔥🤣🔥🤣🔥🤣🔥🤣🔥
These people outlining burdens are not normal, healthy people. Feeling compassion for other people is normal. I am amazed that you are able to deal with these comments! I appreciate your videos. Thank you so Much!
Shane, your speech sounds soooooo good. I'm just now realizing how good it sounds in comparison to earlier videos when you weren't on treatments. 😍😍
You guys are lucky to have each other. Shane you’re an inspiration man and I enjoyed reading your thoughts about turning 30, as well. Hannah, you’re gorgeous inside and out!
I loved seeing your photo Hannah, we are currently very overcast & heavy rain on and off with maybe 15 min of sun a day so I missed out big time. You got a beautiful shot!
Great video thank you! Loved Hannah's moon eclipse picture - wow! I found the dream answer interesting thanks for sharing. I appreciate that you handle trolls and intrusiveness with humour and acknowledge that it must be a frustrating thing to have to deal with in your effort to raise awareness. Beyond all that, you are inspiring and balancing to watch and an appreciated part of my life and week(s).
I care about Hannah's picture of the moon; Shane you're rude! ok, just had to do that. Love you guys!
Love your videos. Regarding those with the "burden" questions\comments, are to be pitied. They do not know what it is to truly someone unconditionally.
Good questions, great answers. Thank you for letting us in, again. I think a person who knows their strengths and weaknesses is in a pretty good place. Thanks again.
Shane - have you ever tried one of those pressure mats - they are electronic but they have "waves" that move through them to keep pressure on different areas over the day. Might help!
Question for next grab bag: a toy company made an action figure of Shane and one of Hannah. What two accessories would come with each of you?
Ooh, great question!
Snacks 😆
Super good question!!
POPPABLES!
A mug of beer or his arm lol
And for Hannah, a sign just saying “No.”
The love I feel from the two of you is a match made in Heaven.
God bless you both now and forever.
Thank you 🙏
You “kids” warm my heart and this video was so fun!! Hannah, you look so cute in that dress💖 here’s a big ol’ hug for you both💖💖
I love you guys, you guys make’s me smile and laugh out loud, I hope you guys are doing well. I wanted to know if you kept your Facebook updated when new videos is posted
U guys should do a comedy special, ur both funny and riff off each other well ☺️ also ur not just an inspiration to inter-abled relationship. Me and my partner watch ir videos and we love u guys. And its nice to know that some of the issues u guys have as a couple are very relatable, its nice to see u work through things together as a couple 😊 u guys r the best 💞
Scam?? What is this scam u speak of?
can't believe i've been watching your older videos for like 45 minutes without realizing you guys uploaded 50 minutes ago lmao.
this may be a bit of an odd question, but have you guys ever considered standup? i feel like you guys would be such a unique and fresh duo on stage! and you definitely have so many stories you could tell in your bits! i would totally go to a show :)
Omg I love you two so much. I am loosing it 😆 inside over this line of inappropriate conversation. Shane you come across like you have zero inhibitions which isn’t true but kudos for such a front-you just love to shock us! 🤣😜 & the way Hannah just lets your silliness tickle her. Y’all are so precious and real and I needed to see your sweet smiling faces. Also I guess I’m the last one to know what a fans only page is. How rude right?! But no doubt you’d make a fortune! Love love love you both so much. 🥰🤗
You guys are such a amazing couple and inspiring 💗 just keep doing what your doing and forget about all of them!
Hey guys! You always make the best vids! My Monday grub bag question is…. Has Shane ever ridden a roller coaster? Loved that moon! Wow!
2:37 - Of course we all love it when Hannah moons the camera.
As i see you both.. you love each other you bring happiness and joy to each other's lives and you both look past any limitations in each other. Anyone who criticised you must be jealous of the relationship you have.
I personally was very impressed with the moon pic and wish I could take my own that good
I loved Hannah's picture of the moon! It was gorgeous. I always have difficulty getting a good picture of the moon.
I always try to get good pics of the moon when it looks cool. But, they never come out as good as real life. I think Hannah's was awesome! Great job Hannah!
Cameras are getting better, especially cellphone cameras (which are the ones you're most likely to have on you). You could always get good pictures, you just had to have the right lenses and such. But now it's getting where you can take something decent without all that high-end gear.
That is a gorgeous picture of the moon Hannah, I love it!
Awesome moon pic 😄 glad you took the five seconds to feature it. 'Plans?' 😅 flexible 'plans' are the best 'plans'
love you both so much. love your videos. be safe. 💗😘
yup...we in our familly and even with my kids have always called those "throw up burbs" ick..a real thing and a terrible thing to recover quickly from.
We called them "tasty burps" cause they weren't tasty
Thanks for answering my question!! 💜
I'm a few weeks behind on videos but now I get to binge to catch up. I just wanted to say how much I really like you guys. I really enjoy your videos & just listening to you guys tell stories or have conversations. You guys crack me up.. even when you're not trying to be funny. I hate that there are people that try to make Shane feel like shit. That is about as low as someone can get. Hannah knew what she was signing up for and she made that conscious decision. I love my husband & I know for a fact that if he was in a wheel chair when we first met i would have still wanted to be with him & be his caregiver.
How do you balance out work and life? Like you vlog so much trips and share so much personal info, how do you find time to keep things "real" by not filming everything? (I'm not trying to be rude I'm just curious!! I love how open you guys are and your videos are so fun!!)
I would be very interested in a video on how Shane uses his iPhone and computer. What assistive technologies does he use, if any? I am very interested in assistive technologies on phones and computers and seeing how it works for you would be very interesting. Thanks for the great content you produce.
Loving the episodes guys! Shane, I totally feel you on the plans and things must go according to plan. I never thought about it as a problem/weakness until now. Lindy is gonna love this when I tell her. Haha
I loved the eclipse pic! It was overcast here and I didn't get to see it.
So, thank you, Hannah! 💙
I care about the moon picture, but I also care for Shane’s humour 😅
I care about Hannah’s picture of the moon, that’s so well done!
Yall are hilarious and amazing. Love when a new video pops up 🥰😍
“Where’s the door? Where the parking?” 😂 Hannah this is me and the struggle is real. I totally understand you and have skipped out on things for the same reasons you described.
Love the moon picture! So pretty!
DO IT!
DO IT!
DO IT!
Loving this series!
Digital maps are useful for the "is there parking " question. I often scout out a place that way if I have to go somewhere new. It slightly reduces the list of things to worry about.
For alternative seating-have you guys seen the chill out chair? Expensive (as all Disability related stuff) but it just looks like an armchair even though it’s more supportive and you can reposition in it easily.
Monday grub bag question: do either of you struggle with body image issues/insecurity, and if so how do you overcome it?❤️
I do yes.its been a long on going issue for me
Very entertaining video, you guys are naturally talented speakers
Your picture of the moon is great Hannah! 😂
Hannah, I can see why you and Shane are together. You are a perfect match for each other. It’s so easy to see. Take car and know you are loved.
Hi Shane and Hanna, As your marriage matures Shane you will realize that having to wake up at a certain time is not life altering. Shane what is happening with your new wheelchair did I miss that video? Beautiful as ever Hanna. Blessings on your marriage! Sharalyn
We are 43 years and counting
A brilliant interview xx
Will we get another horror short this year? 😂 Loved the poppables one from last Halloween!!
Wow, people can be rude. It is hard enough being disabled and we already feel like a Burden on our bad days. My family loves me like Hannah loves you and they do not feel like I am a burden, but it’s always there in your head. Having others point it out in detail is just mean and mentally stressful.
Knowing that you’re not starting an OF but wanting to watch to see Shane’s sarcastic comments 😆 🙌🏻
Do u both really know how much we love to watch your show? Well we do. Please keep it going.. Thanks sooo much.😁
Nice picture the moon, Hannah!!! I saw a moon last night! I took a picture too!
❤️
I grew up with a kid whose Dad had CP. He was active in the school, boy scouts, community. My Dad was friends with him so we got together frequently with our families. My friend Doug was frequently teased, bullied embarrassed, sad by so many children about his Dad calling him the "R" word, stupid, goofy and much worse they would imitate how he walked and talked. Since you guys want kids, how will you handle if your child finds themselves being bullied or teasing them about Shane? How do you feel its best addressed with the parents of the bullying kids? I grew up in the late 60s early 70s so things may be different now, more awareness. Doug's Dad was super funny and soooo smart. Worked full time in an academic position and there were 4 kids in his home.
I am an adult with Apert Syndrome and things have definitely gotten better, even since I was in school in the late 90's. I have 2 sisters that are paraprofessional aides and there are programs in schools for disability awareness or inclusion. The biggest thing I get now is kids coming up to me asking why my hands/face are like that. Rude? Maybe, but I love answering then because it puts the kid more at ease.
@@MarkK395 Hey Mark. Thanks for responding. My second son who is now 34 has Asperger's Syndrome. We had a tough time mostly in middle school. But he got through it and is living his life. Works full-time, just bought a new car, bowls, has friends and although he hasn't been able to live totally independent (he lived with his brother for a bit) and now is back with us. Many people say that you never would know, but he does have a disability That he talks openly about. Great to see your open to educating people too.
@@carolszybowski7577 No problem Carol! That’s awesome that your son is doing so well! I’m a live in PCA, lease my car and did 3 years of college before dropping out. I love talking to people about my disability, especially kids because then they can say disabled people are cool! It’s also funny watching the reaction of the parents with the kids because they cringe when the kid asks me a question and are apologetic about it. I always say I’d rather them ask rather than stare and wonder, usually relaxes them.
I am so glad there's much more of an effort at inclusion and sensitivity than when I was in school. My 10 y.o. son has ASD (with most of the hallmarks of what they previously called Asperger's) and ADHD, with a good deal of sensory processing issues and physical and verbal tics. His school has been so accommodating and invested in him, which I can't all put down to it being a small Montessori school. The culture really has changed, no matter how many people try to drag us back. There used to be much more of strong cultural link between being able-bodied/minded and "acting right" and being disabled/non-neurotypical and "acting wrong." It's not perfect, but people are much more able to realize a person's worth is independent of that.
Shane needs a massage chair for the end of the day or breaks during for his muscles and of course to smoke a pipe in by the fire.
Don't forget the velvet robe (that's open a bit in the front)
@Joe Calvert all the way
I love watching your videos, you always have me laughing!
Hi!
I would love to hear a bit more about your hobbies in the next questions video 😊 Like what kind of activities have you tried and liked/disliked? What do you do nowadays? What would you like to try in the future?
I’m also wondering about how you think when you buy clothes for you both and where you get most of your clothes Hannah! I always find you so well dressed and beautiful 😍
Your relationship seems so wholesome and loving, adore you both ❤️
Love from a Swede
Shane needs a mini hot tub to soak in at the end of the day
Question for Monday grub bag: Hannah, have you had exposure to the disability community prior to meeting Shane? If so, what was that like? Did it help you in any way when you met Shane? Or have you had no experience?
Your picture of the moon was awesome.❤️
Well, I absolutely love you both. You both are such an inspiration. I am a single father of two girls which I raised for the last 12 years. I have had them watch your videos with me so they would understand why I look forward to seeing you both. I tell them it’s like hanging out with friends. About this video on a funny note. Shane while you are sitting in your recliner chair smoking your pipe and pondering the universe you can look up on the wall above the fireplace and see the beautiful picture of the moon that Hannah took. Lol
Beautiful moon pic Hannah!
How can Shane be a burden when he is so much fun!
Great picture, Hannah! Thanks for sharing.
Great moon photo, Hannah! I did not take any. Just watched. Figured enough ppl would get good photos. :)
The mind is normal. Burden is a word normal people use when they don't understand life.
Its burdensome when there is no care.
I was told in my past two relationships that “well you should feel lucky/grateful/or excuse my lying (etc.etc.) because “you know, you’re a lot with your physical disabilities.” I feel tears coming up just writing this. My question is do you know any lovely couples like yourselves where the woman is disabled and the man loves her for all that she is, as she is and doesn’t feel burdened or say she is?
Thanks very much. That’s the least of my faults. Lol 😂 I don’t like going anywhere unless my list of ‘important’ questions is answered either Hannah. 😊💕
You bring up a good point because it’s true the only couples I follow on CZcams is where the male is disabled. My daughter is physically disabled she’s only six but your comment really puts it in perspective for me for her future.
I'm glad you know your worth when others have been too dense to see it. That doesn't take away the loneliness, I know, but it keeps you from being with people who don't deserve you. Be gentle with yourself and hang in there!
@@Ashton123082 aww thank you so much for responding with encouragement and faith. It sounds like you know and have wisdom /experience in this area. Either way, thank you very much for connecting with my post. I feel less alone because you’ve done that. 🔆🌸✌🏼
@@crystalortega2156 thank you so much for responding. I have faith for your daughter moving forward in all ways. I know that’s easy to say. Things are changing. I want to see more inclusion especially for upcoming generations. I admit, I selfishly want my own love story too. People like Hannah and Shane are one ‘forever’ example of that. I hope they share that they at least know some couples where the man is able bodied and the woman has limitations. I want to be seen so your daughter feels free and all children that being a physically challenged female doesn’t at mean there’s a stigma that prevents us from love like anyone else. I want to meet someone too. I truly want evidence that it works both ways. I want a loving, funny, beautiful relationship and I’m not seeing it in the media (nor my love life yet). I’m hoping Shane, Hannah, or anyone comes forward. We all deserve to see ourselves represented to help us know we’re lovable and valuable partners. I am finally becoming more vocal as I’m getting older. I’m determined to do what it takes to switch the roles. I want to see equality. When I find my forever love and there aren’t any visible examples for children like your daughter to actually ‘see’, I’ll consider making a channel with my true loves full commitment. Every child no matter their situation deserves and frankly needs to see themselves as lovable contributing members of society. That’s the true disability if they don’t see themselves reflected in society. Sorry, ranting. It’s meant from my heart. Wishing you, your daughter and loved ones every blessing. Thank you so much for relighting my spark. ☀️🦋🌸💕💫
@@BumblesZ You were not ranting lol. your comment was absolutely beautiful it actually made me cry because of your passion and I would love to see physically disabled women represented with love as you mentioned so my daughter understands that she isn’t alone and you know that she can find love too granted she’s only 6 years old right now but trust me 10 years goes by really quickly and when she’s 16 and she’s looking for that boyfriend and nobody wants her you know it’ll be amazing for her to see channels such as yours to show her love will come her way. I appreciate your comment and I do hope you find that true love. It’s women like you that really allow me to see a bright future for my daughter. ❤️❤️
Can't wait to see the recliner video. very distinguished gentleman like video.
Hey been subscribed for a year or so! I love your videos! Monday question. Where are your families on grandbabies? Do they pressure you guys?
Y'all are such a beautiful couple ♥️♥️
Dark red, velvet robe with satin collars. In the dark brown wood library. Miniature recliner on a raised platform. By the antique fireplace.
Oh!!! Also!!! You know how there are wheelchair lifts to go upstairs? A lift to ride up to the top of the fancy bookshelves to get down your favorite classic!!
This is kind of making me hear a quiet, foreboding chuckle....
Just don't forget the pipe!!
I remember when u two had only a couple of thousand subscribers, I never commented much but I feel 8n a sort of weird way that I earned the right to leave a comment or two,love you guys
Huge fan of Shane as an author and so excited to read your guys' new book! How has the experience been between being an author of your previous books and now working together as co-authors?
yay its Grub Bag time!!!!
You both 💕 🕊️"are comedians laughter is healing I'm GLAD you BOTH ARE A GREAT COUPLE CONGRATULATIONS 🙏🏽
Your camera has a level?? Omg that's soooo cooool!!
You guy’s are amazing.💕
Question 🙋♀️ would physical therapy help with the soreness of sitting in your chair all day? You do what you can for Hanna which I bet she appreciates it …
You two Would literally make 2-3 million dollars a month on onlyfans and that's crazy
LOVED THE MOON PIC!
That pic of the moon was AWESOME!
Here's my deep question for yall: how do you feel like your relationship has grown over time?
Hey Shane I was wondering how you gained confidence when it comes to dating after people used your disability against you when it comes to dating?
Hannah, I was thrilled to see your moon picture because the clouds interfered with our view last night.
You two are amazing ☺️
I love you both! just a question, who edits the yt videos?
I believe Hannah said she does all that.
@@KrimeKitty yep
Shane, I think you are the very opposite of a burden. I mean, it's obvious. You provide Hannah with one of the most unique life experiences two people can share. Just because you can't make a meal I think minimizes your contribution (I know you know this). You give Hannah so much and how could she fight back and tolerate the haters if her tank wasn't full from what you give her. You are not a burden - No way. I'm sorry you have to tolerate such a comment from anyone.
He is too
100% agree. It’s a win win for both of them.
You guys make me a laugh!! “No no, don’t move on, what happened”
Do you know what I find amazing? that long before you two came here, you agreed to be there for each other and you would find each other and you would be there as a couple to love each other to help each other, so I think it's amazing that you found each other, this is an agreement between you two long before you came to this world, you don't remember it but you made it ,you made that Pact,that's why you guys are where you are today,you two have always been a couple,and thought it would be fun and challenging to have one of you guys have a disability and the other not,and to see if you would make it even if faced with this particular challenge, back then you knew it would go so fast,this life, but now that your here,it can almost be forgotten, but you two are doing it,what a great love!it will go down in the eternal book of love as one of the great ones,you have an innumerable amount of watchers cheering you on,God is so good.
Shane makes it to 30 and says screw it I'm starting an OnlyFans
Hannah your moon picture is beautiful 🤩
The moon was so cool to see.
My granddaughter loves seeing the full moon. Thanks Hannah
Good vid today - I know you have answered this before, but could you talk about the contracture of your wrists and other joints? I know others with similar diseases also have that - just don't know why that happens.