♡ New Feed + More Bad Reactions! (18.01.18) | Amy's Life ♡
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- čas přidán 17. 01. 2018
- ♡ New Feed + More Bad Reactions! (18.01.18) | ♡
• CHECK THESE OUT!!
• POTS Video: • ♡ POTS Awarness: Faint...
• Faces of Chronic Illness Video: • ♡ WE ARE THE FACES OF ...
• Gastroparesis Awareness Video: • ♡ What It's REALLY Lik...
• WATCH YESTERDAYS VLOG: • ♡ A Near Miss with the...
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♡ MORE INFO ABOUT MY HEALTH ♡
• HKPP: medlineplus.gov/ency/article/...
• POTS: www.nhs.uk/conditions/postural...
• M.E/CFS: www.nhs.uk/conditions/Chronic-...
• FIBRO: www.nhs.uk/Conditions/Fibromya...
• EDS: www.nhs.uk/Conditions/ehlers-d...
• GASTROPARESIS: www.nhs.uk/conditions/gastropa...
• MCAD: www.ukmasto.org/ukmasto-medica...
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“I’m not naked” ❤️😂 classic. You never cease to inspire me with your strong and positive attitude! Ps your family seems amazing too. Wishing you all (including tom) the best for this year xx
Shontelle Scott you too hunny thinking of you beautiful ❤️😍
Hope you start to feel better. Praying for you! 🙏 I hate that you go through so much. Thank you for sharing your life with us! Sending tons of love from Texas😘
I hope you're doing ok since this vlog! Praying for your dietician and you to figure out the best feed for a good rate :)
I work at a school here myself. I am the head cook and I love it. When you said she is figuring out the menu I know what she is doing. :) Thanks for sharing everything. Your are amazing!!
Love your videos xx
Awe I hope you feel better sweetie. I haven’t been catching up on any videos I’ve been dealing with so much family issues. But I came straight tah your videos today just tah check up on you. I hope all is well sweetie.*, Love You Beautiful..God Bless!! 🧡
Hope you fell better xx
Feel better soon Sweetie!! I pray for you every night and wish you all the best!!!! 😍🙂😃😎😄😗😘
Amy, I just recently found your channel. What originally caught my eye was POTS. I misread it as the other Pott's Disease TB of the spine. Unfortunately a friend if mine recently died from it. Anyway, I enjoy your videos.. Keep up the smiling when you can. Xs and Os from Las Vegas.
Can you explain the discomfort or pain you get with the tube? Like where is the pain and what's it like?
When we have to mix powder to water we do it in the blender and blend well and let rest. Then shake again. Hope that helps.
much love and hope you feel better and the feed didnt cause the flare up.
Hey Amy, I'm wondering if you're reacting to the new feed, it can set off POTS or MCAD, my dietician won't put me on it in case it exacerbates my dysautonomia. It can cause too much osmolarity in some patients who then require more fluids to keep their orthostatic tolerance up. Also, I totally get what you mean about having to go through unnecessary pain. My current feed rate is 55 ml per hour but we are trying to increase to 65 ml per hour.
Glad you got the correct type of feed
I have an apple laptop too and I cannot replace the battery either and my MacBook Pro is weird about the internal speakers they quit for two months and one night I took out the speakers from the line out port where you plug in speakers and I just worked it was weird. Good luck with your apple
My girlfriend has been trying to find the proper diagnosis for the past 4 years. She has been to the Mayo Clinic in Arizona and a patient at Kieser Medical Center in Garden Grove California. Other than telling her she has POTS not one of these places has been able to determine why she has such severe pain in her upper epigastric region. She is on iv feeding but I wonder if it is not the right type of nutritional feeding for her. She has gotten to a point where the struggle is to much for her to handle. She is giving up on life. I would give my life for her. I feel lost. Thank you for your strength as it gives me hope that we will find the answer. Peace
Do you have an EpiPen just in case? Xx
I am on feeds and my rate is 300 ml per hour my doctor wants me to get around 400-600 but every time i increase from 300 I will throw up
My prescribed rate is 130ml/hr but since starting I’ve had to go down to 100 but it depends on how I’m feeling on a given day. If o run feeds at night I run it at 50
Yay for vivonex. My dietician wants me running at 85-90ml however I struggle to get to 75ml
Sorry for this qs but really i don't understand why you use a fedding tube? You can't eat or you have a problem?
sarah chono her stomach doesnt digest food or drinks like it should. So a NG tube has to be place so she can have proper nutrition. Her tube goes past her stomach into her intestines. I hope that helps.
It seems like having POTS / dysautonomia causes the body to be extra sensitive to EVERYTHING. Like having bad reactions to meds, foods etc. So easily. Sorry you have had to go thru all this , I know it's rough. You are in my prayers. Have a blessed day!
Definitely take advantage of that free replacement even if we miss seeing you while it’s being replaced
Im on vital 1.5 40 ml/hr 24 hrs a day. I am not trying to gain weight i am just maintaining. I honestly dont mind being hooked up all the time so my dietician and i are not going to up the rate.
You could also edit on your phone
My recommended was 120ml per hour when I first started but I've gone down to 100ml bc that's all I could tolerate
Good luck Amy .😎😁👍🤘😇🙏
50-90ml. Usually 75-90ml
i do 65 an hour 22 hours a day
So strong
FUNNEL!!!!
I miss food too. Looking at junk food at the moment.
what does her collarbone tattoo say?
I thought 6-1-2014
The haters are jealous Amy , everyone should know that we all love you 😘 same as me we can fight what kind of desise we get , never be weak be strong 💪 EVERYONE SUBSCRIBE TO HER BEAUTIFUL CHANNEL!!!
Nice to see ur videos
I’m Berfin 🇬🇧🇹🇷🇩🇪
My router feel is 5 minutes per hour
Why haven't u gotten a g tube??
Animal_ Protector I’ve said this so many times! And a G tube would be useless I would need a J tube, it’s because I’m getting a gastric pacemaker first x
Amy's Life
Sorry I guess I missed that. I just got an internal heart monitor that goes under my skin and over my heart. It's the size of a flash drive. Much bigger then I thought it would be. But the cool thing is my doctor can see my heart rate from anywhere. It's still painful though.
Anyhow I just thought a g tube or the g j button may be more comfortable to you. My nose bled all the time from my NG tube.
Much love from. The USA.
I am on 60 Mils my Doctor recommends 80 trying to get up. I have Severe anorexic
❤️❤️❤️
You need a funnel xxx
Barbie I know you are in a grave I love you so much and everything you've done do you live is so much effort and then the end is here Amy Lee Fisher death go watch it immediately after