Crohn's and Colitis: Steroids (Prednisolone) GOOD?.... BAD?
Vložit
- čas přidán 6. 09. 2024
- All sorts of dread runs through you when you are told you have to take a course of steroids!. After 8 years of being on and off prednisolone i thought it was about time i shared my experiences.
Please keep in mind that every single person reacts different to medication however i hope that i have put a positive spin for you and also puts your mind at rest
follow me on Instagram - @itsahardcrohnslife
Email me on - itsahardcrohnslife@gmail.com
best wishes xxx
You hit the nail on the head on this one. I've experienced all of that...even the acne on my current run of prednisone. Honestly all the bad experience I don't notice it being too bad coz the good parts of it works sooooo well and makes me feel "normal".
Marcus Naidu so true!, it was the only time my brain had a rest from the worry . I’m so pleased you could relate 💜
You’re positive approach to living with IBD is an inspiration… love you ❤
I was on Prednisolone right through Christmas and New Year and literally hovered up any food I could get my hands on! So I put on weight but that was what I wanted as I'd lost so much and didn't look like myself. So I'm grateful to them for that! I was quite lucky with side-effects. Apart from the hunger I just got a few spots (which are still lingering). I found they made me really hyper, and I would laugh at the stupidest thing. I remember seeing something on Facebook and just laughing at it for 10 minutes! And it wasnt really that funny which made me laugh even more!
Neil Bawden haha!! No way!! How funny!, it just goes to show how differently they effect each person, they had the opposite effect on me , I’d prob find it funny now 😂😂 x
Didnt hear about the Vitamin D and Calcium before while on prednisone. Thanks, good video!! Stay well and cheery!!
Great video babe, I’m on Pred at the moment, I have a love hate relationship with them, I love how good they make me feel but I always know it’s not a long term fix! Can’t wait for moon face to go! Xxx
Kate Stutter that is sooo true!, I was the same it’s always at the back of your mind when you come off them the worry but enjoy feeling well and fingers crossed for your treatment aswell 😘💜 xxxx
It's a Hard Crohn's Life thanks hun, the first part of my treatment starts on Thursday! Xxx
Kate Stutter oh hun let me no how it goes! Sending big hug xxx😘
Thanks for sharing this! I’m on prednisone now for Crohn’s and I haven’t noticed if I take them earlier they work faster. I’m going to start paying more attention to that. Thanks for the tip :)
Brittany Yedla it definitely seems to help me also. I hope you found it helpful 💜Xx
Your videos have been so helpful in my UC journey! Thank you :)
Kassie Maher you are very welcome , sending all well wishes x
I’d rather get hit by a truck than have to take prednisone again.
Why?
Why ?
@@molondon1808 bc of the horrible side effects.
I rather take prednisone than loose my colon
@@gemkari6581 they told me prednisone injections not working. I had it only 3 days !!!
Can you ask u please how long u been taken it ur self ?
l just clicked the 111 Like 😊 I am currently back on Prednisolone and this time as suppositories .I am going to take oral tablets through my IBD Nursing team to stop the bleeding .
I been on prednisone now for a year they finally got my doses down to 5 mg. But they trying to get me off them but it did help with the Crohn's tho. And i take another pill so the steroids want mess with my bones. And i take a antibiotic pill also so the steroids want make my immune system to low.
`your channel is doing so well! Well done
vick suman aww thankyou so much, hope you are well xx
Thanks 🙏
Hi. Loving the video. Ive been on this steroid since July of this year and have had it increased back to 40mg. Im currently going through hot snd cold sweats all the time. Is this one of your symptoms?
Hiya , thankyou for watching, No it wasn't but it seems to be a side effect that lots of people do xx
@@ItsaHardCrohnsLife
Fantastic videos and very informative. Cant wait to see more of your story and follow you on your journey of this living nightmare(thats what ive called it)
Im following you on insta aswell 2 keep up with u
Strictures!! And I have active inflammation.. Any help wud b greatly appreciated..
Thanks for the vid, 1st time on pred in over 5 years, it makes me feel human again, was scared of getting aggressive like in the past, more stable than ever. Could crohns affect hormones and why they help so much?
I'm so glad they are helping you!, I have often wondered this aswell, steroids stop your natural adrenal gland from producing its self while your taking them and I think that mimics hormone type symptoms. Xxx
Hi! I know this comment is a year old, but I was wondering what you mean about your first time in 5 years...you were on prednisone for 5 years?? :0 thank you!
Never again. I developed steroid induced eczema. Never suffered so much pain and skin damage. Just say NO
I’m on steroids now and my anxiety is through the roof! Did you have anxiety at all with the steroids?
Hiya, i didn't on a high dose but when i was weaning off i did yes, it's very common but knowing that its that ,and nothing else helps. Also get some evening primrose capsules, they work amazing and i still take them now if im having a wobble and they help so much. I really hope you feel better soon xxx
Thanks ! Great information .🌸🌸🌸greets🇳🇱👩🏼🦰
Hi sorry to bring this up but i came to this channel from prednisone side effects i been on 60mg prednisone for 3months and im about to go down 5mg every week starting tdy i have aide affects of moonface, weight gain, pale skin? And acnes, and mood swings, im only 16 and im worrying soo much that my face and skin wont go back fully normal... did your face and side affects compelety go away after going off on prednisone? If it did how long did it take if it didnt, is there any treatment or do i have to live like this forever? (Especially moodface, pale skin and acne) please help me
Also did ur metabolsim come back once u stop taking pills? I used to not gain any weight whatever i eat and im scared that once im off pills im gonna start gaining weight if i eat like before
Hiya, Peter okay let me put your mind at rest straight away , so I have just come off prednisolone again due to my recent flare , I ended up taking them for 8 months non stop and wow I looked so different looking in the mirror. my face had gone so big. And I gained so much weight I honestly thought it was never gonna go ,then once I had been off them for 3 months I was back to normal. I can promise it will go and your appetite will also go back to normal. It may just take a while for them to get out your system but once they are the moon face will be no longer I promise xx I noticed drinking water helped flush it out quicker xx
@@ItsaHardCrohnsLife okay thank you sooo much i been struggling and stressing about moonface weight gain acne all these shit...
@@peterlee5877 literally everything that you have got will go away once it’s out your system. It has got me every time thank gawd lol xx
@@ItsaHardCrohnsLife wait by loosing weight, i will loose all these fat around my belly arms and chest right..?
@@ItsaHardCrohnsLife they will just burn off automatically or do i rlly need to have an diet? Because i gained weight eating alot because of this hunger these pills made...
Sounds like Nellie from the office
Hai 20mg once daily for 3 days can I take withdrawl
Tel me please😭😭😭😭😭😥😥😥
No you cannot take for just 3 days . Your doctor will prescribe how long to take them for and how slow to taper off x
@@ItsaHardCrohnsLife ho ok but u r really cute